New strategies to ensure good patient–physician communication when treating adolescents and young adults with cancer: the proposed model of the Milan Youth Project

Abstract:

Adolescence is a particularly complex time of life, entailing physiological, psychological, and social changes that further the individual’s cognitive, emotional, and social growth. Being diagnosed with cancer at this time can have important consequences on an individual’s emotional and physical development, and adolescent and young adult cancer patients have particular medical and psychosocial needs. Patient–physician communications are important in any clinical relationship, but fundamental in the oncological sphere because their quality can affect the patient–physician relationship, the therapeutic alliance, and patient compliance. A major challenge when dealing with adolescent and young adult patients lies in striking the right balance between their need and right to understand their disease, treatment, and prognosis, and the need for them to remain hopeful and to protect their emotional sensitivity. We herein describe the activities of the Youth Project of the Istituto Nazionale Tumori in Milan, Italy in order to share a possible model of interaction with these special patients and the tactics our group has identified to help them communicate and share their thoughts. This model implies not only the involvement of a multidisciplinary team, including psychologists and spirituality experts, but also the constitution of dedicated creative activities to give patients the opportunity to express feelings they would otherwise never feel at ease putting into words. These efforts seek the goal to minimize the potentially traumatic impact of disease on the patient’s psychological well-being. Our group focused also on communication using modern media as vehicles of information, eg, integrating the use of social networks in the involvement of patients in adolescent- and young adult-dedicated activities and uploading informative videos on YouTube.

Keywords::

• relationship
• teenagers
• psychology
• spirituality
• art
• social network

Acknowledgments

The authors thank the Associazione Bianca Garavaglia for supporting the Youth Project at the Pediatric Oncology Unit at the Istituto Nazionale Tumori in Milan, Italy, and the Magica Cleme Foundation for supporting some of the described initiatives. The patients gave consent for their likenesses to be published in the video abstract, and in Figures 1 and 2 of this paper.

Disclosure

The authors report no conflicts of interest in this work.