Patient-reported outcome measures for rehabilitation hospitals: a scoping review

Figures & data

Figure 1. PRISMA diagram of scoping review results for PROMs for inpatient rehabilitation.

Figure 2. Number of items in PROMs.

Table 1. Condition-specific patient-reported outcome measures (PROMs) used for inpatient rehabilitation.

Condition	PROM (Abbreviated)	PROM (Full name)	Major domains measured	Reference
Amputee	ABIS	Amputee Body Image Scale	Psychological	[86]
	PEQ	Prosthesis Evaluation Questionnaire	Physical, prosthesis-specific, psychological, social	[86]
Burns	BSHS-B	Burn Specific Health Scale-Brief	Physical, psychological	[87,88]
	BSHS-FN	Burn Specific Health Scale for Face and Neck	Physical, psychological	[89]
	BSPAS	Burn Specific Pain Anxiety Scale	Psychological	[88]
Cancer	EORTC QLQ-C30	European Organization for Research and Treatment of Cancer Quality of Life Questionnaire Core 30	Physical, psychological, social	[2,90–93]
Cardiac failure	MLHFQ	Minnesota Living with Heart Failure Questionnaire	Physical, psychological	[82]
COPD	COPD CAT	Chronic Obstructive Pulmonary Disease Common Assessment Test	Physical	[81]
	SGRQ	St George’s Respiratory Questionnaire	Physical, global health rating	[81]
Coronary artery disease	MacNew	MacNew Heart Disease health related quality of life questionnaire	Psychological, physical, social, global health rating	[79,83]
Low back pain	ODI	Oswestry Disability Index	Physical, social	[33]
Multiple sclerosis	FAMS	Functional Assessment of Multiple Sclerosis questionnaire	Physical, psychological, social	[67]
	MSIS-29	Multiple Sclerosis Impact Scale-29	Physical, psychological	[67]
	MSQOL-54	Multiple Sclerosis Quality of Life 54	Physical, psychological, social, global health rating	[68]
Osteoarthritis, inflammatory rheumatoid diseases	ASES	Arthritis Self-Efficacy Scale	Psychological	[63]
	HOOS	Hip Osteoarthritis and Outcome Score	Physical	[57]
	KOOS	Knee Osteoarthritis and Outcome Score	Physical	[55,57]
	OKS	Oxford Knee Score	Physical	[55,58,60,61]
	RADAI	Rheumatoid Arthritis Disease Activity Index	Physical	[63]
	OHS	Oxford Hip Score	Physical	[60]
	TAS	Tegner Activity Scale	Physical	[61]
	UCLA	UCLA Activity Score, University of California Los Angeles Activity Score	Physical	[56]
	WOMAC	Western Ontario and McMaster Universities Osteoarthritis Index	Physical	[56,59,62]
Parkinson’s disease	UPDRS I	Unified Parkinson’s Disease Rating Scale Section I	Psychological, physical	[30,65,66]
	UPDRS II	Unified Parkinson’s Disease Rating Scale Section II	Physical	[30,31,65,66]
	PDDS	Parkinson’s Disease Disability Scale	Physical, social	[31]
	PDQ39	Parkinson’s Disease Questionnaire 39	Physical, psychological, social	[30,64]
Spinal cord injury	SMS-NAC	Stoke Mandeville Spinal Needs Assessment Checklist	Physical, social, psychological	[76]
Stroke	SAQOL-39NL	Stroke and Aphasia quality of life scale	Social, physical	[72]
	SIS	Stroke Impact Scale V.3	Social, physical, psychological	[72]
	SS-QOL	Stroke Specific Quality Of Life	Physical, social, psychological	[74]

ADLs: activities of daily living; COPD: chronic obstructive pulmonary disease; PROM: patient-reported outcome measure.

Table 2. Examples of symptom specific patient-reported outcome measures in the rehabilitation research literature.

Symptom	PROM (Abbreviated)	PROM (Full name)	Major domains measured	Reference
Anxiety and/or depression	BDI	Beck Depression Inventory	Psychological, social, physical	[68,78]
	GDS	Geriatric Depression Scale	Psychological	[105]
	HADS	Hospital Anxiety and Depression Scale	Psychological	[1,24,72,79,93,106–108]
	PHQ	Patient Health Questionnaire; anxiety and depression subscales	Psychological	[92]
Emotional disturbance	CD-RISC-25	Connor Davidson Resilience Scale 25	Psychological	[56]
	FoP‐Q‐SF	Fear of Progression Questionnaire Short Form	Social, physical, psychological	[92]
	MBUT	Modified Body Uneasiness Test	Physical, psychological	[78]
	MDMQ	Multidimensional Mood Questionnaire	Psychological	[71]
	RSES	Rosenberg Self-Esteem Scale	Psychological	[105
Fatigue	FSS	Fatigue Severity Scale	Physical	[68,72]
Pain	CPCI-42	Chronic Pain Coping Inventory 42	Psychological, physical, social	[77]
	FPQ	Fear of Pain Questionnaire	Physical, psychological	[77]
	MPS	Musculoskeletal Pain Survey	Physical	[77]
	NPRS	Numeric Pain Rating Scale	Physical	[33,90]
	PCS	Pain Catastrophizing Scale	Psychological	[77]
	TKS-11	Tampa Kinesiophobia Scale	Physical, psychological	[77]
	VAS	Visual Analogue Scale	Physical	[61,63]
Sarcopenia /weakness	SARC-F	Strength Assistance Rise Climb Falls Questionnaire	Physical	[69,105]

Table 3. Generic patient-reported outcome measures used for inpatient rehabilitation.

PROM (Abbreviated)	PROM	Major domains measured	Reference
15D	15-Dimensional instrument	Physical, social, psychological	[67]
EQ-5D-3L	EuroQOL-5D-3L	Physical, psychological	[69,84]
EQ-5D-5L	EuroQOL-5D-5L	Physical, psychological	[25,55,58,60,67,70,72,73,80,85,105,124]
EQ-5D-VAS	EuroQOL-5D-5L Visual Analogue Scale	Global health rating	[33,55,75,105,108]
HAQ-DI	Health Assessment Questionnaire Disability Index	Physical	[33,63]
PANAS	Positive And Negative Affect Schedule	Psychological	[125]
SF-12	Short Form 12	Physical, social, psychological, global health	[78]
SF-36	Short Form 36	Physical, social, psychological, global health	[24,59,62,63,82–84,106,107]
SQOL	Subjective Quality of Life Questionnaire	Psychological, social	[77]
USER-P	Utrecht Scale for Evaluation of Rehabilitation-Participation	Physical, psychological	[72]

ADLs: activities of daily living.

Database(s): Ovid MEDLINE(R) ALL 1946 to 31 October 2022.

Search ID#	Search terms
1	Patient-reported outcome measures/
2	(PROM or PROMs).mp.
3	(patient* adj4 report* adj4 (outcome* or measure* or instrument* or survey* or assessment* or scale* or tool* or questionnaire* or score or scoring or index or rating or rate*)).mp.
4	(‘patient report*’ and (outcome measure* or health care survey* or health index or health status)).mp.
5	Functional status questionnaire*.mp.
6	Health status questionnaire*.mp.
7	Self-report questionnaire*.mp.
8	Self-administered questionnaire*.mp.
9	Self-rating scale*.mp.
10	Self-rating questionnaire*.mp.
11	(patient adj4 report*).mp. and (‘quality of life’.mp. or ‘quality of life’/ or QOL.mp.)
12	((‘quality of life’ or qol) adj3 (measure* or instrument* or survey* or assessment* or scale* or tool* or questionnaire* or score or scoring or index or rating or rate*)).mp.
13	or/1-12
14	exp Rehabilitation/
15	rehabilitat*.tw,kw.
16	subacute.mp.
17	14 or 15 or 16
18	exp Hospitals/
19	hospital*.tw,kw.
20	Inpatients/
21	inpatient*.mp.
22	or/18–21
23	13 and 17 and 22
24	(‘rehabilitation centre*’ or ‘rehabilitation center*’).mp.
25	13 and 24
26	23 or 25
27	limit 26 to english language
28	limit 27 to yr=’2000 -Current’

Note: [mp = title, abstract, original title, name of substance word, subject heading word, floating subheading word, keyword heading word, organism supplementary concept word, protocol supplementary concept word, rare disease supplementary concept word, unique identifier, synonyms].

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