Future Rare Diseases
Volume 4, 2023 - Issue 1
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Plain Language Summary of Publication
The effects of garetosmab in people with fibrodysplasia ossificans progressiva (FOP): A plain language summary of the LUMINA-1 study
Maja Di Rocco1 Department of Pediatrics, Unit of Rare Diseases, IRCCS Istituto Giannina Gaslini, Genoa, Italy
, Robert J Pignolo2 Department of Medicine, Mayo Clinic, Rochester, MN, USA
, Richard Keen3 Centre for Metabolic Bone Disease, Royal National Orthopaedic Hospital NHS Trust, London, UK
, Dushyanth Srinivasan4 Regeneron Pharmaceuticals, Tarrytown, NY, USA
, Scott J Mellis4 Regeneron Pharmaceuticals, Tarrytown, NY, USA
, Michelle Davis5 International Fibrodysplasia Ossificans Progressiva Association, North Kansas City, MO, USA
, Philippe Orcel6 Department of Rheumatology - DMU Locomotion, Assistance Publique – Hôpitaux de Paris, Paris, France;7 INSERM Université Paris Cité, Paris, France
, Christian Roux8 Department of Rheumatology, Cochin Hospital, Assistance Publique – Hôpitaux de Paris, Paris, France
, Małgorzata Szczepanek9 Institute of Medical Sciences, Medical College of Rzeszów University, Rzeszów University, Rzeszów, Podkarpackie, Poland
, Javier Bachiller-Corral10 Department of Rheumatology, Hospital Universitario Ramón y Cajal, Madrid, Spain
, Angela M Cheung11 University Health Network, University of Toronto, Toronto, ON, Canada
, Kathryn M Dahir12 Vanderbilt University Medical Center, Program for Metabolic Bone Disorders, Nashville, TN, USA
, Mona Al Mukaddam13 Departments of Orthopaedics, Medicine & the Center for Research in FOP & Related Disorders, University of Pennsylvania Perelman School of Medicine, Philadelphia, PA, USA
, Anita Boyapati4 Regeneron Pharmaceuticals, Tarrytown, NY, USA
, Kusha Mohammadi4 Regeneron Pharmaceuticals, Tarrytown, NY, USA
, Aris N Economides4 Regeneron Pharmaceuticals, Tarrytown, NY, USA
, Robert J Sanchez4 Regeneron Pharmaceuticals, Tarrytown, NY, USA
, Dinko Gonzalez Trotter4 Regeneron Pharmaceuticals, Tarrytown, NY, USA
, Susan Rhee4 Regeneron Pharmaceuticals, Tarrytown, NY, USA
, Gary A Herman4 Regeneron Pharmaceuticals, Tarrytown, NY, USA
, Richard DelGizzi4 Regeneron Pharmaceuticals, Tarrytown, NY, USA
, George D Yancopoulos4 Regeneron Pharmaceuticals, Tarrytown, NY, USA
, E Marelise W Eekhoff14 Department of Internal Medicine, Section Endocrinology & Metabolism, Amsterdam University Medical Centers (UMC), Vrije Universiteit, Amsterdam UMC Expert Center in Rare Bone Disease, Amsterdam Movement Sciences, Amsterdam, The Netherlands
& Frederick S Kaplan13 Departments of Orthopaedics, Medicine & the Center for Research in FOP & Related Disorders, University of Pennsylvania Perelman School of Medicine, Philadelphia, PA, USA
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Article: FRD63
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Received 05 Dec 2023, Accepted 11 Mar 2024, Published online: 11 Apr 2024
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