Quality assessment of the registration of vulvar and vaginal premalignant lesions at the Cancer Registry of Norway

Figures & data

Table I. From the list of morphology codes for vagina and vulvar sites with terminology descriptions provided for the 23 laboratories during re-collection of notifications based on Norwegian SNOMED laboratory coding lists.

Codes	Terminology/Description
80102	Carcinoma in situ, NOS^a (Intraepithelial carcinoma, NOS)
80502	Papillary carcinoma in situ
80522	Papillary squamous cell carcinoma, non-invasive
80522	Papillary squamous cell papilloma with atypia
80522	Carcinoma in situ in squamous cell papilloma
80702	Squamous cell carcinoma in situ, NOS
80702	Severe dysplasia
80702	Squamous intraepithelial neoplasia
80762	Squamous cell carcinoma in situ with questionable stromal invasion (not microinvasion)
80812	Bowen disease
81402	Adenocarcinoma in situ NOS. Severe dysplasia in glandular epithelium, NOS
74000	Dysplasia, NOS
76086	Mild/moderate dysplasia in glandular epithelium
Others	Any other code used locally to represent moderate or severe dysplasia, carcinoma in situ or intraepithelial neoplasia, VIN or VaIN.

The ICD-O/WHO code 80772 is not used in the Norwegian laboratory lists.

^aNot otherwise specified.

Figure 1. The completeness of the pathology notifications of VIN (Vulvar Intraepithelial Neoplasia) and VaIN (Vaginal Intraepithelial Neoplasia) registered at the Cancer Registry of Norway during 2002 to 2007. “Notifications in CRN only” refers to those notifications that were not sent from pathology laboratories during the independent case ascertainment.

Table II. Accuracy of topography and morphology codes assigned to notifications at Cancer Registry of Norway (CRN) and reabstracted notifications.

	Original versus reabstracted coding
	Total	Identical		Major discrepancy		Minor discrepancy
	N^a	N	%	N	%	N	%
Topography^b
Vulva	642	593	92.4	12	1.9	37	5.8
Vagina	128	121	94.5	7	5.5	0	0
Total	770	714	92.7	19	2.5	37	4.8
Morphology
Vulva	642	582	90.7	14	2.2	46	7.2
Vagina	172	142	82.6	2	1.2	28	16.3
Total	814	724	88.9	16	2.0	74	9.1

^anumber of notifications.

^bDiscrepancies are assigned to vulva or vagina according to the topographic code on the reabstracted notification.