198
Views
0
CrossRef citations to date
0
Altmetric
Research Articles

Communicative accessibility and prospective acceptability of a digital behavioural activation intervention for people with aphasia

, ORCID Icon, ORCID Icon, ORCID Icon & ORCID Icon
Pages 895-918 | Received 30 Nov 2022, Accepted 30 Jul 2023, Published online: 10 Aug 2023

References

  • Australian Psychological Society. (2020). Depression Practice Guide, Treatment. https://psychology.org.au/for-members/resource-finder/resources/assessment-and-intervention/clinical-guide/Depression-practice-guide/Treatment
  • Ayerbe, L., Ayis, S., Wolfe, C. D. A., & Rudd, A. G. (2013). Natural history, predictors and outcomes of depression after stroke: Systematic review and meta-analysis. British Journal of Psychiatry, 202(1), 14–21. https://doi.org/10.1192/bjp.bp.111.107664
  • Baker, C., Worrall, L., Rose, M., Hudson, K., Ryan, B., & O’Byrne, L. (2018). A systematic review of rehabilitation interventions to prevent and treat depression in post-stroke aphasia. Disability and Rehabilitation, 40(16), 1870–1892. https://doi.org/10.1080/09638288.2017.1315181
  • Bartoli, F., Lillia, N., Lax, A., Crocamo, C., Mantero, V., Carrà, G., Agostoni, E., & Clerici, M. (2013). Depression after stroke and risk of mortality: A systematic review and meta-analysis. Stroke Research and Treatment, 2013:862978. https://doi.org/10.1155/2013/862978
  • Bays, C. L. (2001). Quality of life of stroke survivors: A research synthesis. Journal of Neuroscience Nursing, 33(6), 310–316. https://doi.org/10.1097/01376517-200112000-00005
  • Berg, K., Isaksen, J., Wallace, S. J., Cruice, M., Simmons-Mackie, N., & Worrall, L. (2020). Establishing consensus on a definition of aphasia: An e-delphi study of international aphasia researchers. Aphasiology, 36(4), 385–400. https://doi.org/10.1080/02687038.2020.1852003
  • Brandenburg, C., Worrall, L., Rodriguez, A. D., & Copland, D. (2013). Mobile computing technology and aphasia: An integrated review of accessibility and potential uses, Aphasiology, 27(4), 444–461. https://doi.org/10.1080/02687038.2013.772293
  • Brown, K., Worrall, L., Davidson, B., & Howe, T. (2010). Snapshots of success: An insider perspective on living successfully with aphasia. Aphasiology, 24(10), 1267–1295. https://doi.org/10.1080/02687031003755429
  • Cameron, J. I., Cheung, A. M., Streiner, D. L., Coyte, P. C., & Stewart, D. E. (2011). Stroke survivor depressive symptoms are associated with family caregiver depression during the first 2 years poststroke. Stroke, 42(2), 302–306. https://doi.org/10.1161/strokeaha.110.597963
  • Chen, C. M., & Wu, C. H. (2015). Effects of different video lecture types on sustained attention, emotion, cognitive load, and learning performance. Computers & Education, 80, 108–121. https://doi.org/10.1016/j.compedu.2014.08.015
  • Clunne, S. J., Ryan, B. J., Hill, A. J., Brandenburg, C., & Kneebone, I. (2018). Accessibility and applicability of currently available e-mental health programs for depression for people with poststroke aphasia: Scoping review. Journal of Medical Internet Research, 20(12), e291. https://doi.org/10.2196/jmir.9864
  • Finch, E., & Hill, A. J. (2014). Computer use by people with aphasia: A survey investigation. Brain Impairment, 15(2), 107–119. https://doi.org/10.1017/brimp.2014.17
  • Ghose, S. S., Williams, L. S., & Swindle, R. W. (2005). Depression and other mental health diagnoses after stroke increase inpatient and outpatient medical utilization three years poststroke. Medical Care, 43(12), 1259–1264. https://doi.org/10.1097/01.mlr.0000185711.50480.13
  • Gillen, R., Tennen, H., McKee, T. E., Gernert-Dott, P., & Affleck, G. (2001). Depressive symptoms and history of depression predict rehabilitation efficiency in stroke patients. Archives of Physical Medicine and Rehabilitation, 82(12), 1645–1649. https://doi.org/10.1053/apmr.2001.26249
  • Gortner, E. T., Gollan, J. K., Dobson, K. S., & Jacobson, N. S. (1998). Cognitive–behavioral treatment for depression: Relapse prevention. Journal of Consulting and Clinical Psychology, 66(2), 377–384. https://doi.org/10.1037/0022-006x.66.2.377
  • Graneheim, U. H., & Lundman, B. (2004). Qualitative content analysis in nursing research: Concepts, procedures, and measures to achieve trustworthiness. Nurse Education Today, 24, 105–112. https://doi.org/10.1016/j.nedt.2003.10.001
  • Griffel, J., Leinweber, J., Spelter, B., & Roddam, H. (2019). Patient-centred design of aphasia therapy apps: A scoping review. Aphasie und verwandte Gebiete, 2, 6–21.
  • Hackett, M. L., & Pickles, K. (2014). Part I: frequency of depression after stroke: An updated systematic review and meta-analysis of observational studies. International Journal of Stroke. 9(8), 1017–1025. https://doi.org/10.1111/ijs.12357
  • Haw, C. (2017). Accessible information: collaborating with people with aphasia to develop an evidence-based template for health information [Doctoral dissertation, University of Sheffield]. https://etheses.whiterose.ac.uk/17991/1/CarolineHaw_Thesis_August2017.pdf
  • Herbert, R., Haw, C., Brown, C., Gregory, E., & Brumfitt, S. (2012). Accessible Information Guidelines [Pdf]. Stroke Association. Retrieved 24 August 2020, from https://www.stroke.org.uk/sites/default/files/accessible_information_guidelines.pdf1_.pdf.
  • Heuer, S., & Hallowell, B. (2015). A novel eye-tracking method to assess attention allocation in individuals with and without aphasia using a dual-task paradigm. Journal of Communication Disorders, 55, 15–30. https://doi.org/10.1016/j.jcomdis.2015.01.005
  • Hilari, K., & Northcott, S. (2006). Social support in people with chronic aphasia. Aphasiology, 20(1), 17–36. https://doi.org/10.1080/02687030500279982
  • Hinckley, J. J., Hasselkus, A., & Ganzfried, E. (2013). What people living with aphasia think about the availability of aphasia resources. American Journal of Speech-Language Pathology, 22(2). https://doi.org/10.1044/1058-0360(2013)/12-0090
  • Jacobson, N. S., Dobson, K. S., Truax, P. A., Addis, M. E., Koerner, K., Gollan, J. K., Gortner, E., & Prince, S. E. (1996). A component analysis of cognitive–behavioral treatment for depression. Journal of Consulting and Clinical Psychology, 64(2), 295–304. https://doi.org/10.1037//0022-006x.64.2.295
  • Johansson, S., Gulliksen, J., & Gustavsson, C. (2021). Disability digital divide: The use of the internet, smartphones, computers and tablets among people with disabilities in Sweden. Universal Access in the Information Society, 20, 105–120. https://doi.org/10.1007/s10209-020-00714-x
  • Kagan, A., & Gailey, G. F. (1993). Functional is not enough: Training conversation partners for aphasic adults. In A. L. Holland & M. M. Forbes (Eds.) Aphasia teatment: World perspectives (pp. 199-225). Singular. https://doi.org/10.1007/978-1-4899-7248-4_9
  • Kalbe, E., Reinhold, N., Brand, M., Markowitsch, H. J., & Kessler, J. (2005). A new test battery to assess aphasic disturbances and associated cognitive dysfunctions—German normative data on the aphasia check list. Journal of Clinical and Experimental Neuropsychology, 27(7), 779–794. https://doi.org/10.1080/13803390490918273
  • Kauhanen, M., Korpelainen, J., Hiltunen, P., Määttä, R., Mononen, H., Brusin, E., Sotaniemi, K., & Myllylä, V. (2000). Aphasia, depression, and non-verbal cognitive impairment in ischaemic stroke. Cerebrovascular Diseases, 10(6), 455–461. https://doi.org/10.1159/000016107
  • Kneebone, I. I. (2016). Stepped psychological care after stroke. Disability and Rehabilitation, 38(18), 1836–1843. https://doi.org/10.3109/09638288.2015.1107764.
  • Malterud, K., Siersma, V. D., & Guassora, A. D. (2016). Sample size in qualitative interview studies: Guided by information power. Qualitative Health Research, 26(13), 1753–1760. https://doi.org/10.1177/1049732315617444
  • Menger, F., Morris, J., & Salis, C. (2016). Aphasia in an internet age: Wider perspectives on digital inclusion. Aphasiology, 30(2–3), 112–132. https://doi.org/10.1080/02687038.2015.1109050
  • Menger, F., Morris, J., & Salis, C. (2020). The impact of aphasia on Internet and technology use. Disability and Rehabilitation, 42(21), 2986–2996. https://doi.org/10.1080/09638288.2019.1580320
  • Parr, S. (2007). Living with severe aphasia: Tracking social exclusion. Aphasiology, 21(1), 98–123. https://doi.org/10.1080/02687030600798337
  • Perski, O., & Short, C. E. (2021). Acceptability of digital health interventions: Embracing the complexity. Translational Behavioral Medicine. https://doi.org/10.1093/tbm/ibab048
  • Prochaska, J. O., Norcross, J. C., & Saul, S. F. (2020). Generating psychotherapy breakthroughs: Transtheoretical strategies from population health psychology. American Psychologist, 75(7), 996. https://doi.org/10.1037/amp0000568
  • Renton, T., Tang, H., Ennis, N., Cusimano, M. D., Bhalerao, S., Schweizer, T. A., & Topolovec-Vranic, J. (2014). Web-based intervention programs for depression: A scoping review and evaluation. Journal of Medical Internet Research, 16(9), e209. https://doi.org/10.2196/jmir.3147
  • Richardson, D. C., Griffin, N. K., Zaki, L., Stephenson, A., Yan, J., Curry, T., Noble, R., Hogan, J., Skipper, J. I., & Devlin, J.T. (2020). Engagement in video and audio narratives: Contrasting self-report and physiological measures. Scientific Reports, 10(1), 1–8. https://doi.org/10.1038/s41598-020-68253-2
  • Roper, A., & Skeat, J. (2022) Innovation through participatory design: Collaborative qualitative methods in the development of speech-language pathology technology, International Journal of Speech-Language Pathology, 24(5), 527–532, https://doi.org/10.1080/17549507.2022.2050943
  • Rose, T. A., Worrall, L. E., & McKenna, K. T. (2003). The effectiveness of aphasia-friendly principles for printed health education materials for people with aphasia following stroke. Aphasiology, 17(10), 947–963. https://doi.org/10.1080/02687030344000319
  • Rosso, I. M., Killgore, W. D. S., Olson, E. A., Webb, C. A., Fukunaga, R., Auerbach, R. P., Gogel, H., Buchholz, J. L., & Rauch, S. L. (2016). Internet-based cognitive behavior therapy for major depressive disorder: A randomized controlled trial. Depression and Anxiety, 34(3), 236–245. https://doi.org/10.1002/da.22590
  • Sekhon, M., Cartwright, M., & Francis, J. J. (2017). Acceptability of healthcare interventions: An overview of reviews and development of a theoretical framework. BMC Health Services Research, 17(1), 1–13. https://doi.org/10.1186/s12913-017-2031-8
  • Shek, A. C., Biondi, A., Ballard, D., Wykes, T., & Simblett, S. K. (2021). Technology-based interventions for mental health support after stroke: A systematic review of their acceptability and feasibility. Neuropsychological Rehabilitation, 31(3), 432–452. https://doi.org/10.1080/09602011.2019.1701501
  • Simmons-Mackie, N., Kagan, A., & Shumway, E. (2018). Aphasia Severity Rating. Toronto, ON: Aphasia Institute. Retrieved from https://www.aphasia.ca/wp-content/uploads/2019/04/Formatted_ASR_Apr1.pdf
  • Sun, Q., Xu, H., Zhang, W., Zhou, Y., & Lv, Y. (2022). Behavioral activation therapy for subthreshold depression in stroke patients: An exploratory randomized controlled trial. Neuropsychiatric Disease and Treatment, 2795–2805. https://doi.org/10.2147/NDT.S392403
  • Thomas, S. A., Drummond, A. E., Lincoln, N. B., Palmer, R. L., das Nair, R., Latimer, N. R., Hackney, G. L., Mandefield, L., Walters, S. J., Hatton, R. D., Cooper, C. L., Chater, T. F., England, T. J., Callaghan, P., Coates, E., Sutherland, K. E., Eshtan, S. J., & Topcu, G. (2019). Behavioural activation therapy for post-stroke depression: The BEADS feasibility RCT. Health Technology Assessment (Winchester, England), 23(47), 1. https://doi.org/10.3310/hta23470
  • Thomas, S. A., & Lincoln, N. B. (2006). Factors relating to depression after stroke. British Journal of Clinical Psychology, 45(1), 49–61. https://doi.org/10.1348/014466505x34183
  • Thomas, S. A., & Lincoln, N. B. (2008). Predictors of emotional distress after stroke. Stroke, 39(4), 1240–1245. https://doi.org/10.1161/strokeaha.107.498279
  • Thomas, S. A., Walker, M. F., Macniven, J. A., Haworth, H., & Lincoln, N. B. (2012). Communication and low mood (CALM): A randomized controlled trial of behavioural therapy for stroke patients with aphasia. Clinical Rehabilitation, 27(5), 398–408. https://doi.org/10.1177/0269215512462227
  • Tong, A., Sainsbury, P., & Craig, J. (2007) Consolidated criteria for reporting qualitative research (COREQ): A 32-item checklist for interviews and focus groups. International Journal of Quality in Health Care, 19(6), 349–357. https://doi.org/10.1093/intqhc/mzm042
  • Uphoff, E, Ekers, D., Robertson, L., Dawson, S., Sanger, E., South, E., Samaan, Z., Richards, D., Meader, N., & Churchill, R. (2020). Behavioural activation therapy for depression in adults. Cochrane Database of Systematic Reviews 2020(7). CD013305. https://doi.org/10.1002/14651858.CD013305.pub2.
  • W3C® Web Accessibility Initiative (n.d.). Cognitive Accessibility at W3C. https://www.w3.org/WAI/cognitive/
  • Watfern, C., Heck, C., Rule, C., Baldwin, P., & Boydell, K. M. (2019). Feasibility and acceptability of a mental health website for adults with an intellectual disability: Qualitative evaluation. JMIR Mental Health, 6(3), e12958. https://doi.org/10.2196/12958
  • Wilson, S., Galliers, J., Roper, A.,MacFarlane, A., & O’Sullivan, D. (n.d.). Language-light UX guidelines: Nine interaction design guidelines for aphasia. http://languagelightux.org/

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.