REFERENCES
- Catapano, P., and R. Garland-Thomson. 2019. About Us:
- Cureton, A., and D. Wasserman. 2020. The Oxford Handbook of philosophy and disability. New York: Oxford University Press.
- Davis, L. J. 1995. Enforcing normalcy: Disability, deafness, and the body. New York: Verso.
- Dobbs, D. 2019. The devastating allure of medical miracles. Wired. February 18, https://www.wired.com/story/devastating-allure-of-medical-miracles/. Accessed February 17, 2024.
- Garland-Thomson, R. 2009. Staring: How we look. Oxford, UK: Oxford University Press.
- Garland-Thomson, R. 2019. Welcoming the unexpected. In Human flourishing in an age of gene editing. Oxford: Oxford UP.
- Garland-Thomson, R. 2020. How we got to CRISPR: The dilemma of being human. Perspectives in Biology and Medicine 63 (1):28–43. doi: 10.1353/pbm.2020.0002.
- Girma, H. 2019. Haben: The deaf blind woman who conquered Harvard Law. New York: Twelve Publishers.
- Hacking, I. 1990. The taming of chance. Cambridge: Cambridge University Press.
- Kleege, G. 1999. Sight unseen. New Haven: Yale University Press.
- Koenig, B. 2014. Have we asked too much of consent?. Hastings Center Report. doi: 10.1002/hast.329.
- Laspro, M., E. Thys, B. Chaya, E. D. Rodriguez, and L. L. Kimberly. 2024. First-in-human whole-eye transplantation: Ensuring an ethical approach to surgical innovation. The American Journal of Bioethics 24 (5):59–73. doi: 10.1080/15265161.2023.2296407.
- Iezzoni, L. I., S. R. Rao, J. Ressalam, D. Bolcic-Jankovic, N. D. Agaronnik, K. Donelan, T. Lagu, and E. G. Campbell. 2021. Physicians’ perceptions of people with disability and their health care. Health Affairs 40 (2):297–306. doi: 10.1377/hlthaff.2020.01452.
- Iezzoni, L. I., S. R. Rao, J. Ressalam, D. Bolcic-Jankovic, N. D. Agaronnik, T. Lagu, E. Pendo, and E. G. Campbell. 2022. US physicians knowledge about the americans with disabilities act and accommodation of patients with disability. Health Affairs 41 (1):96–104. doi: 10.1377/hlthaff.2021.01136.
- Nagel, T. 1986. The view from nowhere. New York: Oxford University Press.
- National Council on Disability. 2019. Quality-adjusted life years and the devaluation of life with disability. Nov 6. Part of the bioethics and disability series. https://www.ncd.gov/report/quality-adjusted-life-years-and-the-devaluation-of-life-with-a-disability/
- Nuremberg Code 1949. https://www.ushmm.org/information/exhibitions/online-exhibitions/special-focus/doctors-trial/nuremberg-code
- Parens, E., and A. Asch. 1999. The disability rights critique of prenatal genetic testing: Reflections and recommendations. Hasting Center Report. Sept–Oct 1999.
- Parens, E. 1995. The goodness of fragility: On the prospect of genetic technologies aimed at the enhancement of human capacities. Kennedy Institute of Ethics Journal 5 (2):141–53. doi: 10.1353/ken.0.0149.
- Parens, E. 2008. Surgically shaping children: Technology, ethics, and the pursuit of normality. Baltimore, MD: Johns Hopkins University Press.
- Quality-Adjusted Life Years and the Devaluation of Life with Disability. 2019, Nov 6. Part of the bioethics and disability series. National Council on Disability.
- Reynolds, J. M. and Christine W., eds. 2022. The disability bioethics reader. New York and London: Routledge.
- Shildrick, M. 2015. “Staying Alive” affect, identity and anxiety in organ transplantation. Body & Society 21 (3):20–41. doi: 10.1177/1357034X15585886.