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Empirical Studies

Coping with fibromyalgia - a focus group study

ORCID Icon & ORCID Icon
Article: 2204622 | Received 16 Jan 2023, Accepted 15 Apr 2023, Published online: 19 Apr 2023

References

  • Alok, R., Das, S. K., Agarwal, G. G., Tiwari, S. C., Salwahan, L., & Srivastava, R. (2014). Problem-focused coping and self-efficacy as correlates of quality of life and severity of fibromyalgia in primary fibromyalgia patients. JCR: Journal of Clinical Rheumatology, 20(6), 314–316.‏ https://doi.org/10.1097/RHU.0000000000000130
  • Anderson, F. J., & Winkler, A. E. (2007). An integrated model of group psychotherapy for patients with fibromyalgia. International Journal of Group Psychotherapy, 57(4), 451–474‏. https://doi.org/10.1521/ijgp.2007.57.4.451
  • Arksey, H., & Knight, P. T. (1999). Interviewing for social scientists: An introductory resource with examples. Sage Publications‏.
  • Armentor, J. L. (2017). Living with a contested, stigmatized illness: Experiences of managing relationships among women with fibromyalgia. Qualitative Health Research, (), Vol. 27(4), pp. 462–12. https://doi.org/10.1177/1049732315620160
  • Arnold, L. M., Crofford, L. J., Mease, P. J., Burgess, S. M., Palmer, S. C., Abetz, L., & Martin, S. A. (2008). Patient perspectives on the impact of fibromyalgia. Patient Education and Counseling, 73(1), 114–120. https://doi.org/10.1016/j.pec.2008.06.005
  • Bair, M. J., & Krebs, E. E. (2020). Fibromyalgia. Annals of Internal Medicine, 172(5), ITC33–48.‏. https://doi.org/10.7326/AITC202003030
  • Barski, L., Shafat, T., Buskila, Y., Amital, H., Makulin, Y., Shvarts, B., Jotkowitz1, A., Buskila, D., & Aloisi, A. M. (2020). High prevalence of fibromyalgia syndrome among Israeli nurses. Clinical and Experimental Rheumatology, 38(suppl 1231), 25–30. ‏. https://doi.org/10.1155/2020/3864571
  • Bernardy, K., Klose, P., Welsch, P., & Häuser, W. (2018). Efficacy, acceptability and safety of cognitive behavioural therapies in fibromyalgia syndrome–A systematic review and meta‐analysis of randomized controlled trials. European Journal of Pain, 22(2), 242–260. https://doi.org/10.1002/ejp.1121
  • Biccheri, E., Roussiau, N., & Mambet-Doué, C. (2016). Fibromyalgia, spirituality, coping and quality of life. Journal of Religion and Health, 55(4), 1189–1197. https://doi.org/10.1007/s10943-016-0216-9
  • Boehm, A., Eisenberg, E., & Lampel, S. (2011). The contribution of social capital and coping strategies to functioning and quality of life of patients with fibromyalgia. The Clinical Journal of Pain, 27(3), 233–239. https://doi.org/10.1097/AJP.0b013e3181fdabcf
  • Bohn, D., Bernardy, K., Wolfe, F., & Häuser, W. (2013). The association among childhood maltreatment, somatic symptom intensity, depression, and somatoform dissociative symptoms in patients with fibromyalgia syndrome: A single-center cohort study. Journal of Trauma & Dissociation, 14(3), 342–358. https://doi.org/10.1080/15299732.2012.736930
  • Boulton, T. (2019). Nothing and everything: Fibromyalgia as a diagnosis of exclusion and inclusion. Qualitative Health Research, 29(6), 809–819. https://doi.org/10.1177/1049732318804509
  • Bowlby, J. (1980). Attachment and loss. Hogarth Press & Institute of Psychoanalysis.
  • Branco, J. C., Bannwarth, B., Failde, I., Carbonell, J. A., Blotman, F., Spaeth, M., Saraiva, F., Nacci, F., Thomas, E., Caubère, J. -P., Le Lay, K., Taieb, C., & Matucci-Cerinic, M. (2010). Prevalence of fibromyalgia: A survey in five European countries. Seminars in Arthritis and Rheumatism, 39(6), 448–453. https://doi.org/10.1016/j.semarthrit.2008.12.003
  • Braun, A., Evdokimov, D., Frank, J., Pauli, P., Üçeyler, N., & Sommer, C. (2020). Clustering fibromyalgia patients: A combination of psychosocial and somatic factors leads to resilient coping in a subgroup of fibromyalgia patients. PloS One, 15(12), e0243806. https://doi.org/10.1371/journal.pone.0243806
  • Bucourt, E., Martaillé, V., Goupille, P., Joncker Vannier, I., Huttenberger, B., Réveillère, C., Mulleman, D., & Courtois, A. R. (2021). A comparative study of fibromyalgia, rheumatoid arthritis, spondyloarthritis, and Sjögren’s syndrome; impact of the disease on quality of life, psychological adjustment, and use of coping strategies. Pain Medicine, 22(2), 372–381. https://doi.org/10.1093/pm/pnz255
  • Carey, M. A. (1995). Comment: Concerns in the analysis of focus group data. Qualitative Health Research, 5(4), 487–495. https://doi.org/10.1177/104973239500500409
  • Carter, S., & Henderson, L. (2005). Approaches to qualitative data collection in social science. In A. Bowling & S. Ebrahim (Eds.), Handbook of health research methods: Investigation, measurement and analysis (pp. 219–229). Open University Press.
  • Cetingok, S., Seker, O., & Cetingok, H. (2022). The relationship between fibromyalgia and depression, anxiety, anxiety sensitivity, fear avoidance beliefs, and quality of life in female patients. Medicine, 101(39), e30868. https://doi.org/10.1097/MD.0000000000030868
  • Chang, K. V., Hung, C. H., Sun, W. Z., Wu, W. T., Lai, C. L., Han, D. S., & Chen, C. C. (2020). Evaluating soreness symptoms of fibromyalgia: Establishment and validation of the revised fibromyalgia impact questionnaire with integration of soreness assessment. Journal of the Formosan Medical Association, 119(7), 1211–1218‏. https://doi.org/10.1016/j.jfma.2019.10.018
  • Clauw, D. J. (2015). Fibromyalgia and related conditions. Mayo Clinic Proceedings, 90(5), 680–692. https://doi.org/10.1016/j.mayocp.2015.03.014
  • Constantinou, C. S., Georgiou, M., & Perdikogianni, M. (2017). A comparative method for themes saturation (CoMets) in qualitative interviews. Qualitative Research, 17(5), 571–588. https://doi.org/10.1177/1468794116686650
  • Cooper, S., & Gilbert, L. (2017). The role of ‘social support’ in the experience of fibromyalgia – narratives from South Africa. Health & Social Care in the Community, 25(3), 1021–1030.‏. https://doi.org/10.1111/hsc.12403
  • Corbin, J., & Strauss, A. (2015). Basics of qualitative research. Sage.
  • Davis, M. C., Zautra, A. J., & Smith, B. W. (2004). Chronic pain, stress, and the dynamics of affective differentiation. Journal of Personality, 72(6), 1133–1160.
  • Folkman, S., & Moskowitz, J. T. (2000). Positive affect and the other side of coping. The American Psychologist, 55(6), 647–654. https://doi.org/10.1037/0003-066X.55.6.647
  • Fram, S. M. (2013). The constant comparative analysis method outside of grounded theory. Qualitative Report, 18(1), 1. https://doi.org/10.46743/2160-3715/2013.1569
  • Fredrickson, B. L. (2009). Positivity. Crown.
  • Friedberg, F., Williams, D. A., & Collinge, W. (2012). Lifestyle-oriented non-pharmacological treatments for fibromyalgia: A clinical overview and applications with home-based technologies. Journal of Pain Research, 5, 425–435. https://doi.org/10.2147/JPR.S35199
  • Galvez-Sánchez, C. M., & Del Paso, G. A. R. (2020). Diagnostic criteria for fibromyalgia: Critical review and future perspectives. Journal of Clinical Medicine, 9(4), 1219. https://doi.org/10.3390/jcm9041219
  • Galvez-Sánchez, C. M., Duschek, S., & Del Paso, G. A. R. (2019). Psychological impact of fibromyalgia: Current perspectives. Psychology Research and Behavior Management, 12, 117–127.‏. https://doi.org/10.2147/PRBM.S178240
  • Gendelman, O., Amital, H., Bar-On, Y., Shor, D. B. A., Amital, D., Tiosano, S., Shalev, V., Chodick, G., & Weitzman, D. (2018). Time to diagnosis of fibromyalgia and factors associated with delayed diagnosis in primary care. Best Practice & Research Clinical Rheumatology, 32(4), 489–499‏. https://doi.org/10.1016/j.berh.2019.01.019
  • Gilman, R., Huebner, E. S., & Laughlin, J. E. (2000). A first study of the multidimensional students life satisfaction scale with adolescents. Social Indicators Research, 52, 135–160. https://doi.org/10.1023/A:1007059227507
  • Glaser, B. G., & Strauss, A. L. (1967). The Discovery of grounded theory: Strategies for Qualitative Research. Aldine De Gruyter.
  • Hamilton, N. A., Zautra, A. J., & Reich, J. (2007). Individual differences in emotional processing and reactivity to pain among older women with rheumatoid arthritis. The Clinical Journal of Pain, 23(2), 165–172. https://doi.org/10.1097/AJP.0b013e31802b4f58
  • Hellou, R., Häuser, W., Brenner, I., Buskila, D., Jacob, G., Elkayam, O., Aloush, V., & Ablin, J. N. (2017). Self-reported childhood maltreatment and traumatic events among Israeli patients suffering from fibromyalgia and rheumatoid arthritis. Pain Research and Management, 2017. https://doi.org/10.1155/2017/3865249
  • Juuso, P., Skär, L., Olsson, M., & Söderberg, S. (2011). Living with a double burden: Meanings of pain for women with fibromyalgia. International Journal of Qualitative Studies on Health and Well-Being, 6(3), 7184. https://doi.org/10.3402/qhw.v6i3.7184
  • Kitzinger, J. (1994). The methodology of focus groups: The importance of interaction between research participants. Sociology of Health & Illness, 16(1), 103–121‏. https://doi.org/10.1111/1467-9566.ep11347023
  • Lazarus, R. S. (1999). Stress and emotion: A new synthesis. Springer Publishing Co.
  • Lazarus, R. S., & Folkman, S. (1984). Stress, appraisal, and coping. Springer.
  • Lincoln, Y. S., & Guba, E. G. (1985). Naturalistic inquiry. 75th). Sage Publications.
  • López Espino, M., & Mingote Adán, J. C. (2008). Fibromialgia. Clínica Y Salud, 19(3), 343–358.‏.
  • Madden, S., & Sim, J. (2006). Creating meaning in fibromyalgia syndrome. Social Science & Medicine, (), Vol. 63(11), pp. 2962–2973. https://doi.org/10.1016/j.socscimed.2006.06.020
  • Mazo, J. P. S., & Estrada, M. G. (2020). Implications of chronic pain on the quality of life of women with fibromyalgia. Psicologia Em Estudo, 23. https://doi.org/10.4025/psicolestud.v23.e38447
  • Montesó-Curto, P., Cubí-Guillen, M. T., Núria Llàdser Navarro, A., Llobet, M. P., & Toussaint, L. (2022). Family perceptions and experiences of living with patients with fibromyalgia syndrome. Disability and Rehabilitation, 44(20), 5855–5862. https://doi.org/10.1080/09638288.2021.1948620
  • Muller, V., Chiu, C. Y., Tang, X., Eagle, D., Peebles, M. C., Iwanaga, K., Brooks, M., & Chan, F. (2017). Association of employment and health and well-being in people with Fibromyalgia. Journal of Rehabilitation, 83(3), 37–43.
  • Neumeister, M. W., & Neumeister, E. L. (2020). Fibromyalgia. Clinics in Plastic Surgery, 47(2), 203–213‏. https://doi.org/10.1016/j.cps.2019.12.007
  • Oliveira Júnior, J. O. D., & Ramos, J. V. C. (2019). Adherence to fibromyalgia treatment: Challenges and impact on the quality of life. BrJp São Paulo, 2(1), 81–87. https://doi.org/10.5935/2595-0118.20190015
  • Parkes, C. M. (2013). Elisabeth Kübler-Ross, on death and dying: A reappraisal. Mortality, 18(1), 94–97. https://doi.org/10.1080/13576275.2012.758629
  • Pernambuco, A. P., Silva, L. R. T. D., Fonseca, A. C. S., & Reis, D. D. Á. (2017). Clinical profile of patients with fibromyalgia syndrome. Fisioterapia Em Movimento, 30(2), 287–296. https://doi.org/10.1590/1980-5918.030.002.AO09
  • Quintner, J. (2020). Why are women with fibromyalgia so stigmatized? Pain Medicine, 21, 882–888. https://doi.org/10.1093/pm/pnz350
  • Raymond, M. C., & Brown, J. B. (2000). Experience of fibromyalgia - Qualitative study. Canadian Family Physician, 46(5), 1100–1106.
  • Rodríguez Pérez, M. (2020). Fibromyalgia: How is his impact on family Life? Biomedical Journal of Scientific & Technical Research 24(2), 18103. https://doi.org/10.26717/BJSTR.2020.24.004023
  • Rowe, C. A., Sirois, F. M., Toussaint, L., Kohls, N., Nöfer, E., Offenbächer, M., & Hirsch, J. K. (2019). Health beliefs, attitudes, and health-related quality of life in persons with fibromyalgia: Mediating role of treatment adherence. Psychology, Health & Medicine, 24(8), 962–977. https://doi.org/10.1080/13548506.2019.1576913
  • Russell, D., Álvarez Gallardo, I. C., Wilson, I., Hughes, C. M., Davison, G. W., Sañudo, B., & McVeigh, J. G. (2018). ‘Exercise to me is a scary word’: Perceptions of fatigue, sleep dysfunction, and exercise in people with fibromyalgia syndrome—a focus group study. Rheumatology International, 38(3), 507–515‏. https://doi.org/10.1007/s00296-018-3932-5
  • Sarzi-Puttini, P., Giorgi, V., Marotto, D., & Atzeni, F. (2020). Fibromyalgia: An update on clinical characteristics, aetiopathogenesis and treatment Nature Reviews. Rheumatology, 16(11), 645–660‏. https://doi.org/10.1038/s41584-020-00506-w
  • Şen, E. T., Hocaoğlu, A., & Berk, Ö. S. (2019). Group psychotherapy with fibromyalgia patients: A systematic review. Archives of Rheumatology, 34(4), 476–491. https://doi.org/10.5606/ArchRheumatol.2019.6801
  • Sewitch, M. J., Dobkin, P. L., Bernatsky, S., Baron, M., Starr, M., Cohen, M., & Fitzcharles, M. A. (2004). Medication non-adherence in women with fibromyalgia. Rheumatology, 43(5), 648–654. https://doi.org/10.1093/rheumatology/keh141
  • Sim, J., & Madden, S. (2008). Illness experience in fibromyalgia syndrome: A meta-synthesis of qualitative studies. Social Science & Medicine, 67(1), 57–67.‏. https://doi.org/10.1016/j.socscimed.2008.03.003
  • Soriano-Maldonado, A., Amris, K., Ortega, F. B., Segura-Jiménez, V., Estévez-López, F., Álvarez-Gallardo, I., Aparicio, V. A., Delgado-Fernández, M., Henriksen, M., & Ruiz, J. R. (2015). Association of different levels of depressive symptoms with symptomatology, overall disease severity, and quality of life in women with fibromyalgia. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 24, 2951–2957. https://doi.org/10.1007/s11136-015-1045-0
  • Sullivan, N., Phillips, L. A., Pigeon, W. R., Quigley, K. S., Graff, F., Litke, D. R., Helmer, D. A., Rath, J. F., & McAndrew, L. M. (2019). Coping with medically unexplained physical symptoms: The role of illness beliefs and behaviors. International Journal of Behavioral Medicine, 26(6), 665–672. https://doi.org/10.1007/s12529-019-09817-z
  • Undeland, M., & Malterud, K. (2007). The fibromyalgia diagnosis–Hardly helpful for the patients? A qualitative focus group study. Scandinavian Journal of Primary Health Care, 25(4), 250–255. https://doi.org/10.1080/02813430701706568
  • van Middendorp, H., Lumley, M. A., Jacobs, J. W., van Doornen, L. J., Bijlsma, J. W., & Geenen, R. (2008). Emotions and emotional approach and avoidance strategies in fibromyalgia. Journal of Psychosomatic Research, 64(2), 159–167. https://doi.org/10.1016/j.jpsychores.2007.08.009
  • Wolfe, F., Clauw, D. J., Fitzcharles, M. -A., Goldenberg, D. L., Katz, R. S., Mease, P., Russell, A. S., Russell, I. J., Winfield, J. B., & Yunus, M. B. (2010). The American college of rheumatology preliminary diagnostic criteria for fibromyalgia and measurement of symptom severity. Arthritis Care & Research, 62(5), 600–610. https://doi.org/10.1002/acr.20140
  • Wong, L. P. (2008). Focus group discussion: A tool for health and medical research. Singapore Medical Journal, 49(3), 256–260.
  • Wuytack, F., & Miller, P. The lived experience of fibromyalgia in female patients, a phenomenological study. (2011). Chiropractic & Manual Therapies, 19(1), 1–9 ‏‏. https://doi.org/10.1186/2045-709X-19-22
  • Yaghmaian, R., & Miller Smedema, S. (2019). A feminist, biopsychosocial subjective well-being framework for women with fibromyalgia. Rehabilitation Psychology, 64(2), 154–166. https://doi.org/10.1037/rep0000226