In search of self after stroke: a longitudinal qualitative study in the context of client-centred rehabilitation

References

• Arntzen, C., Borg, T., & Hamran, T. (2015). Long-term recovery trajectory after stroke: An ongoing negotiation between body, participation and self. Disability & Rehabilitation, 37(18), 1626–10. https://doi.org/10.3109/09638288.2014.972590
   PubMed Web of Science ®Google Scholar
• Bendz, M. (2000). Rules of relevance after a stroke. Social Science & Medicine, 51(5), 713–723. https://doi.org/10.1016/S0277-9536(99)00486-4
   PubMed Web of Science ®Google Scholar
• Bendz, M. (2003). The first year of rehabilitation after a stroke - from two perspectives. Scandinavian Journal of Caring Sciences, 17(3), 215–222. https://doi.org/10.1046/j.1471-6712.2003.00217.x
   PubMed Web of Science ®Google Scholar
• Bertilsson, A. S., Ranner, M., von Koch, L., Eriksson, G., Johansson, U., Ytterberg, C. & Tham, K., et al. (2014). A client-centred ADL intervention: Three-month follow-up of a randomized controlled trial. Scandinavian Journal of Occupational Therapy, 21(5), 377–391. https://doi.org/10.3109/11038128.2014.880126
   PubMed Web of Science ®Google Scholar
• Bertilsson, A. S., von Koch, L., Tham, K., Johansson, U. (2015). Client-centred ADL intervention after stroke: Significant others’ experiences. Scandinavian Journal of Occupational Therapy, 22(5), 377–386. https://doi.org/10.3109/11038128.2015.1044561
   PubMed Web of Science ®Google Scholar
• Carter, N., Bryant-Lukosius, D., DiCenso, A., Blythe, J, Neville, AJ. (2014). The use of triangulation in qualitative research. Oncology Nursing Forum, 41(5), 545–547. https://doi.org/10.1188/14.ONF.545-547
   PubMed Web of Science ®Google Scholar
• Charmaz, K. (2006). Constructing grounded theory: A practical guide through qualitative analysis. Sage Publications.
   Google Scholar
• Erikson, A., Karlsson, G., Borell, L., & Tham, K. (2007). The lived experience of memory impairment in daily occupation after acquired brain injury. Otjr-Occup Part Heal, 27(3), 84–94. https://doi.org/10.1177/153944920702700302
   Google Scholar
• Erikson, A., Karlsson, G., & Tham, K. (2016). Living with the long-term consequences 11-13 years after stroke: A phenomenological study. Journal of Rehabilitation Medicine: Official Journal of the UEMS European Board of Physical & Rehabilitation Medicine, 48(10), 847–852. https://doi.org/10.2340/16501977-2161
   PubMed Web of Science ®Google Scholar
• Erikson, A., Park, M., & Tham, K. (2010). Belonging: A qualitative, longitudinal study of what matters for persons after stroke during the one year of rehabilitation. Journal of Rehabilitation Medicine: Official Journal of the UEMS European Board of Physical & Rehabilitation Medicine, 42(9), 831–838. https://doi.org/10.2340/16501977-0608
   PubMed Web of Science ®Google Scholar
• Flink, M., Bertilsson, A. S., Johansson, U., Guidetti, S., Tham, K., von Koch, L. (2016). Training in client-centeredness enhances occupational therapist documentation on goal setting and client participation in goal setting in the medical records of people with stroke. Clinical Rehabilitation, 30(12), 1200–1210. https://doi.org/10.1177/0269215515620256
   PubMed Web of Science ®Google Scholar
• Glaser, B., & Strauss, A. (1967). The discovery of grounded theory. Strategies for qualitative research. Sociology Press.
   Google Scholar
• Guidetti, S., Asaba, E., & Tham, K. (2007). The lived experience of recapturing self-care. The American Journal of Occupational Therapy: Official Publication of the American Occupational Therapy Association, 61(3), 303–310. https://doi.org/10.5014/ajot.61.3.303
   PubMed Web of Science ®Google Scholar
• Guidetti, S., Eriksson, G., von Koch, L., Johansson, U., & Tham, K. (2020). Activities in daily living: The development of a new client-centred ADL intervention for persons with stroke. Scandinavian Journal of Occupational Therapy, 29(2), 1–12. https://doi.org/10.1080/11038128.2020.1849392
   Web of Science ®Google Scholar
• Guidetti, S., Eriksson, G., von Koch, L., Johansson, U., Tham, K. (2022). Activities in daily living: The development of a new client-centred ADL intervention for persons with stroke. Scandinavian Journal of Occupational Therapy, 29(2), 104–115. https://doi.org/10.1080/11038128.2020.1849392
   PubMed Web of Science ®Google Scholar
• Guidetti, S., Ranner, M., Tham, K., Andersson, M., Ytterberg, C., & Koch, L. (2015). A â€�client-centred activities of daily livingâ€� intervention for persons with stroke: One-year follow-up of a randomized controlled trial. Journal of Rehabilitation Medicine: Official Journal of the UEMS European Board of Physical & Rehabilitation Medicine, 47(7), 605–611. https://doi.org/10.2340/16501977-1981
   PubMed Web of Science ®Google Scholar
• Hole, E., Stubbs, B., Roskell, C., & Soundy, A. (2014). The patient’s experience of the psychosocial process that influences identity following stroke rehabilitation: A metaethnography. Scientific World Journal, 2014, 1–13. https://doi.org/10.1155/2014/349151
   Web of Science ®Google Scholar
• Horne, J., Lincoln, N. B., Preston, J., & Logan, P. (2014). What does confidence mean to people who have had a stroke? – a qualitative interview study. Clinical Rehabilitation, 28(11), 1125–1135. https://doi.org/10.1177/0269215514534086
   PubMed Web of Science ®Google Scholar
• Kneck, A., & Audulv, A. (2019). Analyzing variations in changes over time: Development of the pattern-oriented longitudinal analysis approach. Nursing Inquiry, 26(3), e12288. https://doi.org/10.1111/nin.12288
   PubMed Web of Science ®Google Scholar
• Kristensen, H. K., Tistad, M., Koch, L., Ytterberg, C. (2016). The importance of patient involvement in stroke rehabilitation. PloS One, 11(6), e0157149. https://doi.org/10.1371/journal.pone.0157149
   PubMed Web of Science ®Google Scholar
• Lou, S., Carstensen, K., Jorgensen, C. R., & Nielsen, C. P. (2017). Stroke patients’ and informal carers’ experiences with life after stroke: An overview of qualitative systematic reviews. Disability & Rehabilitation, 39(3), 301–313. https://doi.org/10.3109/09638288.2016.1140836
   PubMed Web of Science ®Google Scholar
• Meurleau-Ponty, M. (2002). The phenomenology of perception. Routledge.
   Google Scholar
• Norlander, A., Iwarsson, S., Jonsson, A. C., Lindgren, A., & Månsson Lexell, E. Participation in social and leisure activities while re-constructing the self: Understanding strategies used by stroke survivors from a long-term perspective. Disability & Rehabilitation, 2021(16), 1–9. https://doi.org/10.1080/09638288.2021.1900418
   Google Scholar
• Norlander, A., Iwarsson, S., Jonsson, A. C., Lindgren, A., Månsson Lexell, E. (2018). Living and ageing with stroke: An exploration of conditions influencing participation in social and leisure activities over 15 years. Brain Injury: [BI], 32(7), 858–866. https://doi.org/10.1080/02699052.2018.1463561
   PubMed Web of Science ®Google Scholar
• Palstam, A., Tornbom, M., & Sunnerhagen, K. S. (2018). Experiences of returning to work and maintaining work 7 to 8 years after a stroke: A qualitative interview study in Sweden. British Medical Journal Open, 8(7), e021182. https://doi.org/10.1136/bmjopen-2017-021182
   PubMed Web of Science ®Google Scholar
• Pedersen, S. G., Anke, A., Aadal, L., Pallesen, H., Moe, S., Arntzen, C. (2019). Experiences of quality of life the first year after stroke in Denmark and Norway. A qualitative analysis. International Journal of Qualitative Studies on Health and Well-Being, 14(1), 1659540. https://doi.org/10.1080/17482631.2019.1659540
   PubMed Web of Science ®Google Scholar
• Polit, D., & B, C. T. (2017). Nursing research: Generating and assessing evidence for nursing practice (10 ed.). Wolters Kluwer Health.
   Google Scholar
• Ranner, M., Guidetti, S., von Koch, L., Tham, K. (2019). Experiences of participating in a client-centred ADL intervention after stroke. Disability & Rehabilitation, 41(25), 3025–3033. https://doi.org/10.1080/09638288.2018.1483434
   PubMed Web of Science ®Google Scholar
• Ranner, M., von Koch, L., Guidetti, S., Tham, K. (2016). Client-centred ADL intervention after stroke: Occupational therapists’ experiences. Scandinavian Journal of Occupational Therapy, 23(2), 81–90. https://doi.org/10.3109/11038128.2015.1115549
   PubMed Web of Science ®Google Scholar
• Rexrode, K. M., Madsen, T. E., AYX, Y., Carcel, C., Lichtman, J. H., & Miller, E. C. (2022). The impact of sex and gender on stroke. Circulation Research, 130(4), 512–528. https://doi.org/10.1161/CIRCRESAHA.121.319915
   PubMed Web of Science ®Google Scholar
• Rogers, C. (1946). Significant aspects of client-centered Therapy. American Psychologist, 1(10), 415–422. https://doi.org/10.1037/h0060866
   PubMed Web of Science ®Google Scholar
• Singam, A., Ytterberg, C., Tham, K., von Koch, L. (2015). Participation in complex and social everyday activities six years after stroke: Predictors for return to Pre-stroke Level. PloS One, 10(12), e0144344. https://doi.org/10.1371/journal.pone.0144344
   PubMed Web of Science ®Google Scholar
• Swedish Agency for Health and Care Services Analysis. (2015) . Patientlagen i praktiken the patient act in practice. Myndigheten för vårdanalys.
   Google Scholar
• Tistad, M., Ytterberg, C., Sjostrand, C., Widén Holmqvist, L., von Koch, L. (2012). Shorter length of stay in the stroke unit: Comparison between the 1990s and 2000s. Topics in Stroke Rehabilitation, 19(2), 172–181. https://doi.org/10.1310/tsr1902-172
   PubMed Web of Science ®Google Scholar
• Tuthill, E. L., Maltby, A. E., DiClemente, K., & Pellowski, J. A. (2020). Longitudinal qualitative Methods in Health behavior and Nursing research: Assumptions, design, analysis and lessons learned. International Journal Quality Methods, 19, 160940692096579. https://doi.org/10.1177/1609406920965799
   Web of Science ®Google Scholar
• Van de Velde, D., Devisch, I., & De Vriendt, P. (2016). The client-centred approach as experienced by male neurological rehabilitation clients in occupational therapy. A qualitative study based on a grounded theory tradition. Disability & Rehabilitation, 38(16), 1567–1577. https://doi.org/10.3109/09638288.2015.1107628
   PubMed Web of Science ®Google Scholar
• Vos, T., Abajobir, A. A., Abate, K. H., Abbafati, C., Abbas, K. M., Abd-Allah, F., Abdulkader, R. S., Abdulle, A. M., Abebo, T. A., Abera, S. F., Aboyans, V., Abu-Raddad, L. J., Ackerman, I. N., Adamu, A. A., Adetokunboh, O., Afarideh, M., Afshin, A., Agarwal, S. K. … Disease Injury Incidence Prevalence Collaborators. (2017). Global, regional, and national incidence, prevalence, and years lived with disability for 328 diseases and injuries for 195 countries, 1990–2016: A systematic analysis for the global burden of disease study 2016. The Lancet, 390(10100), 1211–1259. https://doi.org/10.1016/S0140-6736(17)32154-2
   PubMed Web of Science ®Google Scholar
• Walder, K., & Molineux, M. (2020). Listening to the client voice - a constructivist grounded theory study of the experiences of client-centred practice after stroke. Australian Occupational Therapy Journal, 67(2), 100–109. https://doi.org/10.1111/1440-1630.12627
   PubMed Web of Science ®Google Scholar
• Waldner, K., & Molineux, M. (2017). Re-establishing an occupational identity after stroke – a theoretical model based on survivor experience. The British Journal of Occupational Therapy, 80(10), 620–630. https://doi.org/10.1177/0308022617722711
   Web of Science ®Google Scholar
• Walsh, M. E., Galvin, R., Loughnane, C., et al. (2015a). Community re-integration and long-term need in the first five years after stroke: Results from a national survey. Disability & Rehabilitation, 37(20), 1834–1838. https://doi.org/10.3109/09638288.2014.981302
   PubMed Web of Science ®Google Scholar
• Walsh, M. E., Galvin, R., Loughnane, C., Macey, C., Horgan, N. F. (2015b). Factors associated with community reintegration in the first year after stroke: A qualitative meta-synthesis. Disability & Rehabilitation, 37(18), 1599–1608. https://doi.org/10.3109/09638288.2014.974834
   PubMed Web of Science ®Google Scholar
• WHO. (2007). People-centred Health care a policy framework. WHO Western Pacific Regional Publications.
   Google Scholar
• Williams, S., & Murray, C. (2013). The lived experience of older adults’ occupational adaptation following a stroke. Australian Occupational Therapy Journal, 60(1), 39–47. https://doi.org/10.1111/1440-1630.12004
   PubMed Web of Science ®Google Scholar
• Wissel, J., Olver, J., & Sunnerhagen, K. S. (2013). Navigating the poststroke continuum of care. Journal of Stroke and Cerebrovascular Diseases: The Official Journal of National Stroke Association, 22(1), 1–8. https://doi.org/10.1016/j.jstrokecerebrovasdis.2011.05.021
   PubMed Web of Science ®Google Scholar
• Wottrich, A. W., Astrom, K., & Lofgren, M. (2012). On parallel tracks: Newly home from hospital–people with stroke describe their expectations. Disability & Rehabilitation, 34(14), 1218–1224. https://doi.org/10.3109/09638288.2011.640381
   PubMed Web of Science ®Google Scholar
• Yun, D., & Choi, J. (2019). Person-centered rehabilitation care and outcomes: A systematic literature review. International Journal of Nursing Studies, 93, 74–83. https://doi.org/10.1016/j.ijnurstu.2019.02.012
   PubMed Web of Science ®Google Scholar