An uncertain uphill battle – experiences and consequences of living with lipedema

References

• Allen, E. V., & Hines, E. A. (1940). Lipedema of the legs: A syndrome characterized by fat legs and orthostatic edema. Proc Staff Meet Mayo Clin, (15), 184–10.
   Google Scholar
• Baumgartner, A., Hueppe, M., Meier-Vollrath, I., & Schmeller, W. (2021). Improvements in patients with lipedema 4, 8 and 12 years after liposuction. Phlebology: The Journal of Venous Disease, 36(2), 152–159. https://doi.org/10.1177/0268355520949775
   Google Scholar
• Bertsch, T., Erbacher, G., Elwell, R., & Partsch, H. (2020). Lipoedema: A paradigm shift and consensus. Journal of Wound Care, 29(Sup11b), 1–51. https://doi.org/10.12968/jowc.2020.29.Sup11b.1
   PubMedGoogle Scholar
• Campbell, S., Greenwood, M., Prior, S., Shearer, T., Walkem, K., Young, S., Bywaters, D., & Walker, K. (2020). Purposive sampling: Complex or simple? Research case examples. Journal of Research in Nursing: JRN, 25(8), 652–661. https://doi.org/10.1177/1744987120927206
   PubMed Web of Science ®Google Scholar
• Child, A. H., Gordon, K. D., Sharpe, P., Brice, G., Ostergaard, P., Jeffery, S., & Mortimer, P. S. (2010). Lipedema: An inherited condition. American Journal of Medical Genetics Part A, 152A(4), 970–976. https://doi.org/10.1002/ajmg.a.33313
   PubMed Web of Science ®Google Scholar
• Christoffersen, V., & Tennfjord, M. K. (2023). Younger women with lipedema, their experiences with healthcare providers, and the importance of social support and belonging: A qualitative study. International Journal of Environmental Research and Public Health, 20(3), 1925. https://doi.org/10.3390/ijerph20031925
   PubMedGoogle Scholar
• Dadras, M., Mallinger, P. J., Corterier, C. C., Theodosiadi, S., & Ghods, M. (2017). Liposuction in the treatment of lipedema: A longitudinal study. Archives of Plastic Surgery, 44(4), 324–331. https://doi.org/10.5999/aps.2017.44.4.324
   PubMedGoogle Scholar
• Dudek, J. E., Białaszek, W., & Gabriel, M. (2021). Quality of life, its factors, and sociodemographic characteristics of Polish women with lipedema. BMC Women’s Health, 21(1), 27. https://doi.org/10.1186/s12905-021-01174-y
   PubMed Web of Science ®Google Scholar
• Falck, J., Rolander, B., Nygårdh, A., Jonasson, L. L., & Mårtensson, J. (2022). Women with lipoedema: A national survey on their health, health-related quality of life, and sense of coherence. BMC Women’s Health, 22(1), 457. https://doi.org/10.1186/s12905-022-02022-3
   PubMed Web of Science ®Google Scholar
• Fink, J. M., Schreiner, L., Marjanovic, G., Erbacher, G., Seifert, G. J., Foeldi, M., & Bertsch, T. (2021). Leg volume in patients with lipoedema following bariatric surgery. Visceral Medicine, 37(3), 206–211. https://doi.org/10.1159/000511044
   PubMed Web of Science ®Google Scholar
• Forner-Cordero, I., Szolnoky, G., Forner-Cordero, A., & Kemeny, L. (2012). Lipedema: An overview of its clinical manifestations, diagnosis and treatment of the disproportional fatty deposition syndrome - systematic review. Clinical Obesity, 2(3–4), 86–95. https://doi.org/10.1111/j.1758-8111.2012.00045.x
   PubMedGoogle Scholar
• Grabe, S., Ward, L. M., & Hyde, J. S. (2008). The role of the media in body image concerns among women: A meta-analysis of experimental and correlational studies. Psychological Bulletin, 134(3), 460–476. https://doi.org/10.1037/0033-2909.134.3.460
   PubMed Web of Science ®Google Scholar
• Graneheim, U. H., Lindgren, B. M., & Lundman, B. (2017). Methodological challenges in qualitative content analysis: A discussion paper. Nurse Education Today, 56, 29–34. https://doi.org/10.1016/j.nedt.2017.06.002
   PubMed Web of Science ®Google Scholar
• Graneheim, U. H., & Lundman, B. (2004). Qualitative content analysis in nursing research: Concepts, procedures and measures to achieve trustworthiness. Nurse Education Today, 24(2), 105–112. https://doi.org/10.1016/j.nedt.2003.10.001
   PubMed Web of Science ®Google Scholar
• Halk, A. B., & Damstra, R. J. (2017). First Dutch guidelines on lipedema using the international classification of functioning, disability and health. Phlebology: The Journal of Venous Disease, 32(3), 152–159. https://doi.org/10.1177/0268355516639421
   Google Scholar
• Hecker, J., Freijer, K., Hiligsmann, M., & Evers, S. (2022). Burden of disease study of overweight and obesity; the societal impact in terms of cost-of-illness and health-related quality of life. BMC Public Health, 22(1), 46. https://doi.org/10.1186/s12889-021-12449-2
   PubMed Web of Science ®Google Scholar
• Herbst, K. L. (2012). Rare adipose disorders (RADs) masquerading as obesity. Acta Pharmacologica Sinica, 33(2), 155–172. https://doi.org/10.1038/aps.2011.153
   PubMed Web of Science ®Google Scholar
• Melander, C., Juuso, P., & Olsson, M. (2022). Women’s experiences of living with lipedema. Health Care for Women International, 43(1–3), 54–69. https://doi.org/10.1080/07399332.2021.1932894
   PubMed Web of Science ®Google Scholar
• Okunogbe, A., Nugent, R., Spencer, G., Ralston, J., & Wilding, J. (2021). Economic impacts of overweight and obesity: Current and future estimates for eight countries. BMJ Global Health, 6(10), e006351. https://doi.org/10.1136/bmjgh-2021-006351
   PubMed Web of Science ®Google Scholar
• Reich-Schupke, S., Schmeller, W., Brauer, W. J., Cornely, M. E., Faerber, G., Ludwig, M., Lulay, G., Miller, A., Rapprich, S., Richter, D. F., Schacht, V., Schrader, K., Stücker, M., & Ure, C. (2017). S1 guidelines: Lipedema. Journal Deutschen Dermatology Gesellschaft, 15(7), 758–767. https://doi.org/10.1111/ddg.13036
   Web of Science ®Google Scholar
• Romeijn, J. R. M., de Rooij, M. J. M., Janssen, L., & Martens, H. (2018). Exploration of patient characteristics and quality of life in patients with lipoedema using a survey. Dermatology and Therapy, 8(2), 303–311. https://doi.org/10.1007/s13555-018-0241-6
   Web of Science ®Google Scholar
• SBU. (2021). Lipödem – diagnostik, behandling, upplevelser och erfarenheter: en systematisk översikt och utvärdering av medicinska, hälsoekonomiska och etiska aspekter. SBU Utvärderar, 327. https://www.sbu.se/327
   Google Scholar
• Shenton, A. (2004). Strategies for ensuring trustworthiness in qualitative research projects. Education for Information, 22(2), 63–75. https://doi.org/10.3233/EFI-2004-22201
   Google Scholar
• Tong, A., Sainsbury, P., & Craig, J. (2007). Consolidated criteria for reporting qualitative research (COREQ): A 32-item checklist for interviews and focus groups. International Journal for Quality in Health Care: Journal of the International Society for Quality in Health Care / ISQua, 19(6), 349–357. https://doi.org/10.1093/intqhc/mzm042
   PubMed Web of Science ®Google Scholar
• Wold, L. E., Hines, E. A., & Allen, E. V. (1951). Lipedema of the legs; a syndrome characterized by fat legs and edema. Annals of Internal Medicine, 34(5), 1243–1250. https://doi.org/10.7326/0003-4819-34-5-1243
   PubMed Web of Science ®Google Scholar