995
Views
0
CrossRef citations to date
0
Altmetric
Empirical Studies

Being a patient in the intensive care unit: a narrative approach to understanding patients’ experiences of being awake and on mechanical ventilation

, &
Article: 2322174 | Received 11 Oct 2023, Accepted 19 Feb 2024, Published online: 03 Mar 2024

References

  • Aitken, L. M., Kydonaki, K., Blackwood, B., Trahair, L. G., Purssell, E., Sekhon, M., & Walsh, T. S. (2021). Inconsistent relationship between depth of sedation and intensive care outcome: Systematic review and meta-analysis. Thorax, 76(11), 1089–13. https://doi.org/10.1136/thoraxjnl-2020-216098
  • Alexandersen, I., Haugdahl, H. S., Paulsby, T. E., Lund, S. B., Stjern, B., Eide, R., & Haugan, G. (2021). A qualitative study of long‐term ICU patients’ inner strength and willpower: Family and health professionals as a health‐promoting resource. Journal of Clinical Nursing, 30(1–2), 161–173. https://doi.org/10.1111/jocn.15532
  • Alexandersen, I., Haugdahl, H. S., Stjern, B., Paulsby, T. E., Lund, S. B., & Haugan, G. (2021). ‘I want to get back!’ a qualitative study of long‐term critically ill patients’ inner strength and willpower: Back home after long‐term intensive care. Journal of Clinical Nursing, 30(19–20), 3023–3035. https://doi.org/10.1111/jocn.15812
  • Amdal, C. D., Pe, M., Falk, R. S., Piccinin, C., Bottomley, A., Arraras, J. I., Darlington, A. S., Hofsø, K., Holzner, B., Jørgensen, N. M. H., Kulis, D., Rimehaug, S. A., Singer, S., Taylor, K., Wheelwright, S., & Bjordal, K. (2021). Health-related quality of life issues, including symptoms, in patients with active COVID-19 or post COVID-19; a systematic literature review. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 30(12), 3367–3381. https://doi.org/10.1007/s11136-021-02908-z
  • Antonovsky, A. (1987). Unraveling the mystery of health: How people manage stress and stay well (1st ed.). Jossey-Bass.
  • Barrett, L. F., Lewis, M., & Haviland-Jones, J. M. (2018). Handbook of emotions (4th ed.). Guilford Press.
  • Baumgarten, M., & Poulsen, I. (2015). Patients’ experiences of being mechanically ventilated in an ICU: A qualitative metasynthesis. Scandinavian Journal of Caring Sciences, 29(2), 205–214. https://doi.org/10.1111/scs.12177
  • Berntzen, H., Bjørk, I. T., & Wøien, H. (2018). “Pain relieved, but still struggling” – critically ill patients experiences of pain and other discomforts during analgosedation. Journal of Clinical Nursing, 27(1–2), e223–e234. https://doi.org/10.1111/jocn.13920
  • Brown, S. M., Bose, S., Banner-Goodspeed, V., Beesley, S. J., Dinglas, V. D., Hopkins, R. O., Jackson, J. C., Mir-Kasimov, M., Needham, D. M., & Sevin, C. M. (2019). Approaches to addressing post-intensive care syndrome among intensive care unit survivors. A narrative review. Annals of the American Thoracic Society, 16(8), 947–956. https://doi.org/10.1513/AnnalsATS.201812-913FR
  • Butcher, B. W., Eaton, T. L., Montgomery-Yates, A. A., & Sevin, C. M. (2022). Meeting the challenges of establishing intensive care unit follow-up clinics. American Journal of Critical Care, 31(4), 324–328. https://doi.org/10.4037/ajcc2022987
  • Carroll, S. M. (2007, November). Silent, slow lifeworld: The communication experience of nonvocal ventilated patients. Qualitative Health Research, 17(9), 1165–1177. https://doi.org/10.1177/1049732307307334
  • Carruthers, H., Gomersall, T., & Astin, F. (2018). The work undertaken by mechanically ventilated patients in intensive care: A qualitative meta-ethnography of survivors’ experiences. International Journal of Nursing Studies, 86, 60–73. https://doi.org/10.1016/j.ijnurstu.2018.05.013
  • Danielis, M., Povoli, A., Mattiussi, E., & Palese, A. (2020). Understanding patients’ experiences of being mechanically ventilated in the intensive care unit: Findings from a meta‐synthesis and meta‐summary. Journal of Clinical Nursing, 29(13–14), 2107–2124. https://doi.org/10.1111/jocn.15259
  • Devlin, J. W., Skrobik, Y., Gélinas, C., Needham, D. M., Slooter, A. J. C., Pandharipande, P. P., Watson, P. L., Weinhouse, G. L., Nunnally, M. E., Rochwerg, B., Balas, M. C., van den Boogaard, M., Bosma, K. J., Brummel, N. E., Chanques, G., Denehy, L., Drouot, X., Fraser, G. L. … Kho, M. E. (2018). Clinical practice guidelines for the prevention and management of pain, Agitation/sedation, delirium, immobility, and sleep disruption in adult patients in the ICU. Critical Care Medicine, 46(9), e825–e873. https://doi.org/10.1097/CCM.0000000000003299
  • Egerod, I., Bergbom, I., Lindahl, B., Henricson, M., Granberg-Axell, A., & Storli, S. L. (2015). The patient experience of intensive care: A meta-synthesis of Nordic studies. International Journal of Nursing Studies, 52(8), 1354–1361. https://doi.org/10.1016/j.ijnurstu.2015.04.017
  • Ely, E. W., Inouye, S. K., Bernard, G. R., Gordon, S., Francis, J., May, L., Truman, B., Speroff, T., Gautam, S., Margolin, R., Hart, R. P., & Dittus, R. (2001). Delirium in mechanically ventilated patients: Validity and reliability of the confusion assessment method for the intensive care unit (CAM-ICU). JAMA, 286(21), 2703–2710. https://doi.org/10.1001/jama.286.21.2703
  • Eriksson, M., & Lindström, B. (2006). Antonovsky’s sense of coherence scale and the relation with health: A systematic review. Journal of Epidemiology and Community Health, 60(5), 376–381. https://doi.org/10.1136/jech.2005.041616
  • Greenberg, L. S. 2018 The Clinical Application of Emotion in Psychotherapy Barrett, L. F., Lewis, M., Haviland-Jones , J. M. Handbook of emotions 4th (Guildford Press).
  • Happ, M. B. (2000). Interpretation of nonvocal behavior and the meaning of voicelessness in critical care. Social Science & Medicine, 50(9), 1247–1255. https://doi.org/10.1016/S0277-9536(99)00367-6
  • Happ, M. B., Garrett, K., Thomas, D. D., Tate, J., George, E., Houze, M., Radtke, J., & Sereika, S. (2011). Nurse-patient communication interactions in the intensive care unit. American Journal of Critical Care, 20(2), e28–40. https://doi.org/10.4037/ajcc2011433
  • Holm, A., & Dreyer, P. (2017, 03). Nurse-patient communication within the context of non-sedated mechanical ventilation: A hermeneutic-phenomenological study. Nursing in Critical Care, 23(2), 88–94. https://doi.org/10.1111/nicc.12297
  • Holm, A., Viftrup, A., Karlsson, V., Nikolajsen, L., & Dreyer, P. (2021). Nurses’ communication with mechanically ventilated patients in the intensive care unit: Umbrella review. Journal of Advanced Nursing, 76(11), 2909–2920. https://doi.org/10.1111/jan.14524
  • Ijssennagger, C. E., Ten Hoorn, S., Van Wijk, A., Van den Broek, J. M., Girbes, A. R., & Tuinman, P. R. (2018). Caregivers’ perceptions towards communication with mechanically ventilated patients: The results of a multicenter survey. Journal of Critical Care, 48, 263–268. https://doi.org/10.1016/j.jcrc.2018.08.036
  • Jones, C. (2013). What’s new on the post-ICU burden for patients and relatives? Intensive Care Medicine, 39(10), 1832–1835. https://doi.org/10.1007/s00134-013-3015-8
  • Karlsen, M. M. W., Finset, A., Heggdal, K., & Heyn, L. G. (2022). Caught between ideals and reality: Phenomenological-hermeneutic study of healthcare providers’ experiences while interacting with mechanically ventilated patients. Journal of Interprofessional Care. https://doi.org/10.1080/13561820.2021.1967303
  • Karlsen, M. M. W., Happ, M. B., Finset, A., Heggdal, K., & Heyn, L. G. (2020). Patient involvement in micro-decisions in intensive care. Patient Education & Counseling, 103(11), 2252–2259. https://doi.org/10.1016/j.pec.2020.04.020
  • Karlsen, M. M. W., Heggdal, K., Finset, A., & Heyn, L. G. (2019). Attention‐seeking actions by patients on mechanical ventilation in intensive care units: A phenomenological‐hermeneutical study. Journal of Clinical Nursing, 28(1–2), 66–79. https://doi.org/10.1111/jocn.14633
  • Karlsen, M. M. W., Mathisen, C., & Heyn, L. G. (2021). Advancing communication skills in intensive care: Caring for relatives of critically ill patients. Patient Education & Counseling, 104(12), 2851–2856. https://doi.org/10.1016/j.pec.2021.08.010
  • Karlsson, V., & Forsberg, A. (2008). Health is yearning – experiences of being conscious during ventilator treatment in a critical care unit. Intensive and Critical Care Nursing, 24(1), 41–50. https://doi.org/10.1016/j.iccn.2007.06.004
  • King, J., O’Neill, B., Ramsay, P., Linden, M. A., Darweish Medniuk, A., Outtrim, J., & Blackwood, B. (2019). Identifying patients’ support needs following critical illness: A scoping review of the qualitative literature. Critical Care, 23(1), 187–187. https://doi.org/10.1186/s13054-019-2441-6
  • Krewulak, K. D., Stelfox, H. T., Leigh, J. P., Ely, E. W., & Fiest, K. M. (2018). Incidence and prevalence of delirium subtypes in an adult ICU: A systematic review and meta-analysis. Critical Care Medicine, 46(12), 2029–2035. https://doi.org/10.1097/CCM.0000000000003402
  • Kvande, M. E., Angel, S., & Højager Nielsen, A. (2021). Humanizing intensive care: A scoping review (HumanIC). Nursing Ethics, 29(2), 498–510. https://doi.org/10.1177/09697330211050998
  • Laerkner, E., Egerod, I., & Hansen, H. P. (2015). Nurses’ experiences of caring for critically ill, non-sedated, mechanically ventilated patients in the intensive care unit: A qualitative study. Intensive & Critical Care Nursing: The Official Journal of the British Association of Critical Care Nurses, 31(4), 196–204. https://doi.org/10.1016/j.iccn.2015.01.005
  • Laerkner, E., Egerod, I., Olesen, F., & Hansen, H. P. (2017). A sense of agency: An ethnographic exploration of being awake during mechanical ventilation in the intensive care unit. International Journal of Nursing Studies, 75, 1–9. https://doi.org/10.1016/j.ijnurstu.2017.06.016
  • Langeland, E. V. L., Nilsen, A. B. V., Schraner, M., & Magistretti, C. M. (2022). Effectiveness of interventions to enhance the sense of coherence in the life course. In M. B. B. Mittelmark, G. F. Bauer, L. Vaandrager, J. M. Pelikan, S. Sagy, M. Eriksson, B. Lingström, & C. M. Magistretti (Eds.), The handbook of Salutogenesis (2nd ed. pp. 201–219). Springer International Publishing.
  • Lindberg, C., Sivberg, B., Willman, A., & Fagerström, C. (2015). A trajectory towards partnership in care – patient experiences of autonomy in intensive care: A qualitative study. Intensive & Critical Care Nursing, 31(5), 294–302. https://doi.org/10.1016/j.iccn.2015.04.003
  • Malterud, K., Siersma, V. D., & Guassora, A. D. (2016). Sample size in qualitative interview studies: Guided by Information Power. Qualitative Health Research, 26(13), 1753–1760. https://doi.org/10.1177/1049732315617444
  • McPeake, J., & Mikkelsen, M. E. (2018). The evolution of post intensive care syndrome. Critical Care Medicine, 46(9), 1551–1552. https://doi.org/10.1097/CCM.0000000000003232
  • Morgan, A. (2021). Long-term outcomes from critical care. Surgery (Oxford), 39(1), 53–57. https://doi.org/10.1016/j.mpsur.2020.11.005
  • Nanwani-Nanwani, K., López-Pérez, L., Giménez-Esparza, C., Ruiz-Barranco, I., Carrillo, E., Arellano, M. S., Díaz-Díaz, D., Hurtado, B., García-Muñoz, A., Relucio, M. Á., Quintana-Díaz, M., Úrbez, M. R., Saravia, A., Bonan, M. V., García-Río, F., Testillano, M. L., Villar, J., García de Lorenzo, A., & Añón, J. M. (2022). Prevalence of post-intensive care syndrome in mechanically ventilated patients with COVID-19. Scientific Reports, 12(1), 7977–7977. https://doi.org/10.1038/s41598-022-11929-8
  • Nasheeda, A., Abdullah, H. B., Krauss, S. E., & Ahmed, N. B. (2019). Transforming transcripts into stories: A multimethod approach to narrative analysis. International Journal of Qualitative Methods, 18, 160940691985679. https://doi.org/10.1177/1609406919856797
  • Olsen, H. T., Nedergaard, H. K., Strøm, T., Oxlund, J., Wian, K.-A., Ytrebø, L. M., Kroken, B. A., Chew, M., Korkmaz, S., Lauridsen, J. T., & Toft, P. (2020). Nonsedation or light sedation in critically ill, mechanically ventilated patients. The New England Journal of Medicine, 382(12), 1103–1111. https://doi.org/10.1056/NEJMoa1906759
  • Pescosolido, B. A. 2013. Patient trajectories Cockerham, W. C., Dingwall, R., Quah, S. The Wiley Blackwell Encyclopedia of Health, Illness, Behavior, and Society. Wiley Online Library. https://doi.org/10.1002/9781118410868.wbehibs282
  • Puntillo, K. A., Arai, S., Cohen, N. H., Gropper, M. A., Neuhaus, J., Paul, S. M., & Miaskowski, C. (2010). Symptoms experienced by intensive care unit patients at high risk of dying. Critical Care Medicine, 38(11), 2155–2160. https://doi.org/10.1097/CCM.0b013e3181f267ee
  • Riesmann, C. K. (2007). Narrative methods for the human sciences. Sage Publications.
  • Russell, S. (1999). An exploratory study of patients’ perceptions, memories and experiences of an intensive care unit. Journal of Advanced Nursing, 29(4), 783–791. https://doi.org/10.1046/j.1365-2648.1999.00953.x
  • Schofield-Robinson, O. J., Lewis, S. R., Smith, A. F., McPeake, J., & Alderson, P. (2018). Follow-up services for improving long-term outcomes in intensive care unit (ICU) survivors. Cochrane Database Syst Rev, 2018(11), CD012701–CD012701. https://doi.org/10.1002/14651858.CD012701.pub2
  • Schweickert, W. D., & Kress, J. P. (2008). Strategies to optimize analgesia and sedation. Critical Care, Suppl 12(Suppl 3), S6–S6. https://doi.org/10.1186/cc6151
  • Sessler, C. N., Gosnell, M. S., Grap, M. J., Brophy, G. M., O’Neal, P. V., Keane, K. A., Tesoro, E. P., & Elswick, R. K. (2002). The Richmond Agitation-Sedation Scale: Validity and reliability in adult intensive care unit patients. American Journal of Respiratory and Critical Care Medicine, 166(10), 1338–1344. https://doi.org/10.1164/rccm.2107138
  • Strøm, T., Martinussen, T., & Toft, P. (2010). A protocol of no sedation for critically ill patients receiving mechanical ventilation: A randomised trial. The Lancet, 375(9713), 475–480. https://doi.org/10.1016/S0140-6736(09)62072-9
  • Tingsvik, C., Bexell, E., Andersson, A.-C., & Henricson, M. (2013). Meeting the challenge: ICU-nurses’ experiences of lightly sedated patients. Australian Critical Care, 26(3), 124–129. https://doi.org/10.1016/j.aucc.2012.12.005
  • Tolotti, A., Bagnasco, A., Catania, G., Aleo, G., Pagnucci, N., Cadorin, L., Zanini, M., Rocco, G., Stievano, A., Carnevale, F. A., & Sasso, L. (2018). The communication experience of tracheostomy patients with nurses in the intensive care unit: A phenomenological study. Intensive and Critical Care Nursing, 46, 24–31. https://doi.org/10.1016/j.iccn.2018.01.001
  • Valsø, Å., Rustøen, T., Skogstad, L., Schou‐Bredal, I., Ekeberg, Ø., Småstuen, M. C., Myhren, H., Sunde, K., & Tøien, K. (2020). Post‐traumatic stress symptoms and sense of coherence in proximity to intensive care unit discharge. Nursing in Critical Care, 25(2), 117–125. https://doi.org/10.1111/nicc.12466
  • Valsø, Å., Rustøen, T., Småstuen, M. C., Ekeberg, Ø., Skogstad, L., Schou-Bredal, I., Myhren, H., Sunde, K., & Tøien, K. (2020). Effect of nurse-led consultations on post-traumatic stress and sense of coherence in discharged ICU patients with clinically relevant post-traumatic stress symptoms – A randomized controlled trial. Critical Care Medicine, 48(12), e1218–e1225. https://doi.org/10.1097/CCM.0000000000004628
  • Vincent, J.-L., Shehabi, Y., Walsh, T. S., Pandharipande, P. P., Ball, J. A., Spronk, P., Longrois, D., Strøm, T., Conti, G., Funk, G.-C., Badenes, R., Mantz, J., Spies, C., & Takala, J. (2016). Comfort and patient-centred care without excessive sedation: The eCASH concept. Intensive Care Medicine, 42(6), 962–971. https://doi.org/10.1007/s00134-016-4297-4
  • World Medical Association.(2013). WMA declaration of Helsinki- Ethical principles for medical research involving human subjects. https://www.wma.net/policies-post/wma-declaration-of-helsinki-ethical-principles-for-medical-research-involving-human-subjects/
  • Yuan, C., Timmins, F., & Thompson, D. R. (2021). Post-intensive care syndrome: A concept analysis. International Journal of Nursing Studies, 114, 103814–103814. https://doi.org/10.1016/j.ijnurstu.2020.103814