Exploring the meaning of a good life for older widows with extensive need of care: a qualitative in-home interview study

References

• Abdi, S., Spann, A., Borilovic, J., De Witte, L., & Hawley, M. (2019). Understanding the care and support needs of older people: A scoping review and categorisation using the WHO international classification of functioning, disability and health framework (ICF). BMC Geriatrics, 19(1). https://doi.org/10.1186/s12877-019-1189-9
   PubMedGoogle Scholar
• Allassad Alhuzail, N. (2018). ‘My private kingdom and sometimes my private jail’ the meaning of home in the lives of Bedouin women: Changes in the home and social spaces and their implications for Bedouin women. Journal of Gender Studies, 27(6), 711–12. https://doi.org/10.1080/09589236.2017.1301810
   Web of Science ®Google Scholar
• Almevall, A., Juuso, P., Zingmark, K., Nilsson, C. (2022). Perceptions of a good life for the oldest old living at home. International Journal of Ageing & Later Life, 16(1), 25–48. https://doi.org/10.3384/ijal.1652-8670.2234
   Google Scholar
• Almevall, A. D., Nordmark, S., Niklasson, J., & Zingmark, K. (2022). Experiences of home as an aspect of well‐being in people over 80 years: A mixed method study. Journal of Advanced Nursing, 78(1), 252–263. https://doi.org/10.1111/jan.15093
   Web of Science ®Google Scholar
• Almevall, A. D., Wennberg, P., Zingmark, K., Öhlin, J., Söderberg, S., Olofsson, B., Nordmark, S., & Niklasson, J. (2022). Associations between everyday physical activity and morale in older adults. Geriatric Nursing, 48, 37–42. https://doi.org/10.1016/j.gerinurse.2022.08.007
   Web of Science ®Google Scholar
• Andersson, M., Hallberg, I. R., & Edberg, A. (2008). Old people receiving municipal care, their experiences of what constitutes a good life in the last phase of life: A qualitative study. International Journal of Nursing Studies, 45(6), 818–828. https://doi.org/10.1016/j.ijnurstu.2007.04.003
   PubMed Web of Science ®Google Scholar
• Barry, A., Heale, R., Pilon, R., & Lavoie, A. M. (2018). The meaning of home for ageing women living alone: An evolutionary concept analysis. Health & Social Care in the Community, 26(3), e337–e344. https://doi.org/10.1111/hsc.12470
   PubMed Web of Science ®Google Scholar
• Birkeland, A., & Natvig, G. K. (2009). Coping with ageing and failing health: A qualitative study among elderly living alone. International Journal of Nursing Practice, 15(4), 257–264. https://doi.org/10.1111/j.1440-172X.2009.01754.x
   PubMed Web of Science ®Google Scholar
• Bjerkmo, L., Helgesen, A. K., Larsen, T. A., & Blix, B. H. (2021). “Falling off the wagon”: Older adults’ experiences of living with frailty in rural arctic communities. International Journal of Circumpolar Health, 80(1), 1957569. https://doi.org/10.1080/22423982.2021.1957569
   Web of Science ®Google Scholar
• Booth, A., Hannes, K., Harden, A., Noyes, J., Harris, J., Tong, A. (2014). COREQ (consolidated criteria for reporting qualitative studies). Guidelines for reporting health research: A user’s manual: 214–226.
   Google Scholar
• Brändström, A., Meyer, A. C., Modig, K., & Sandström, G. (2022). Determinants of home care utilization among the Swedish old: Nationwide register-based study. European Journal of Ageing, 19(3), 651–662. https://doi.org/10.1007/s10433-021-00669-9
   Web of Science ®Google Scholar
• Braun, V., & Clarke, V. (2019). Reflecting on reflexive thematic analysis. qualitative research in sport, exercise and health. Qualitative Research in Sport, Exercise & Health, 11(4), 589–597. https://doi.org/10.1080/2159676X.2019.1628806
   Web of Science ®Google Scholar
• Braun, V., & Clarke, V. (2021). Thematic analysis: A practical guide [eBook version]. SAGE Moradi H, Vaezi A: Lessons Learned from Korea: COVID-19 Pandemic, 41, 873–874. https://doi.org/10.1017/ice.2020.104
   Google Scholar
• Brink, S. (1990). International policy trends in housing the elderly in developed countries. Ageing International, 17(2), 13–20. https://doi.org/10.1007/BF03004336
   Google Scholar
• Can Oz, Y., Duran, S., & Dogan, K. (2022). The meaning and role of spirituality for older adults: A qualitative study. Journal of Religion & Health, 61(2), 1490–1504. https://doi.org/10.1007/s10943-021-01258-x
   Web of Science ®Google Scholar
• Cederbom, S., Wågert, P., Söderlund, A., & Söderbäck, M. (2014). The importance of a daily rhythm in a supportive environment–promoting ability in activities in everyday life among older women living alone with chronic pain. Disability & Rehabilitation, 36(24), 2050–2058. https://doi.org/10.3109/09638288.2014.887795
   PubMed Web of Science ®Google Scholar
• Chiaranai, C., Chularee, S., & Srithongluang, S. (2018). Older people living with chronic illness. Geriatric Nursing, 39(5), 513–520. https://doi.org/10.1016/j.gerinurse.2018.02.004
   PubMed Web of Science ®Google Scholar
• Claesson, M., Josefsson, K., & Jonasson, L. (2021). ‘My registered nurse’: Older people’s experiences of registered nurses’ leadership close to them in community home care in sweden. International Journal of Older People Nursing, 16(5), e12399. https://doi.org/10.1111/opn.12399
   Web of Science ®Google Scholar
• Darab, S., Hartman, Y., & Holdsworth, L. (2018). What women want: Single older women and their housing preferences. Housing Studies, 33(4), 525–543. https://doi.org/10.1080/02673037.2017.1359501
   Web of Science ®Google Scholar
• Davies, K., Collerton, J. C., Jagger, C., Bond, J., Barker, S. A., Edwards, J., Hughes, J., Hunt, J. M., & Robinson, L. (2010). Engaging the oldest old in research: Lessons from the Newcastle 85+ study. BMC Geriatrics, 10(1), 1–9. https://doi.org/10.1186/1471-2318-10-64
   Google Scholar
• Emiliussen, J., Engelsen, S., Christiansen, R., & Klausen, S. H. (2023). The good life in care homes–a qualitative investigation with residents, relatives, care workers and managers. Ageing International, 48(1), 16–40. https://doi.org/10.1007/s12126-021-09438-6
   Web of Science ®Google Scholar
• Entwistle, V. A., Watt, I. S. (2013). Treating patients as persons: A capabilities approach to support delivery of person-centered care. The American Journal of Bioethics, 13(8), 29–39. https://doi.org/10.1080/15265161.2013.802060
   PubMed Web of Science ®Google Scholar
• Eshbaugh, E. M. (2008). Perceptions of living alone among older adult women. Journal of Community Health Nursing, 25(3), 125–137. https://doi.org/10.1080/07370010802221685
   PubMed Web of Science ®Google Scholar
• Eurostat. Population structure and ageing. Updated 2020-2021. https://ec.europa.eu/eurostat/statistics-explained/index.php/Population_structure_and_ageing.
   Google Scholar
• Fæø, S. E., Husebo, B. S., Bruvik, F. K., & Tranvåg, O. (2019). “We live as good a life as we can, in the situation we’re in”–the significance of the home as perceived by persons with dementia. BMC Geriatrics, 19(1), 1–10. https://doi.org/10.1186/s12877-019-1171-6
   Google Scholar
• Felix, E., De Haan, H., Vaandrager, L., & Koelen, M. (2015). Beyond thresholds: The everyday lived experience of the house by older people. Journal of Housing for the Elderly, 29(4), 329–347. https://doi.org/10.1080/02763893.2015.1055027
   Web of Science ®Google Scholar
• Finlay, J. M., Gaugler, J. E., & Kane, R. L. (2020). Ageing in the margins: Expectations of and struggles for ‘a good place to grow old’among low-income older minnesotans. Ageing and Society, 40(4), 759–783. https://doi.org/10.1017/S0144686X1800123X
   Web of Science ®Google Scholar
• Galvin, K., & Todres, L. (2011). Kinds of well-being: A conceptual framework that provides direction for caring. International Journal of Qualitative Studies on Health and Well-Being, 6(4), 10362. https://doi.org/10.3402/qhw.v6i4.10362
   PubMed Web of Science ®Google Scholar
• Goodwin, V. A., Low, M. S., Quinn, T. J., Cockcroft, E. J., Shepherd, V., Evans, P. H., Henderson, E. J., Mahmood, F., Ni Lochlainn, M., Needham, C., Underwood, B. R., Arora, A., & Witham, M. D. (2023). Including older people in health and social care research: Best practice recommendations based on the INCLUDE framework. Age & Ageing, 52(6), afad082. https://doi.org/10.1093/ageing/afad082
   PubMed Web of Science ®Google Scholar
• Grove, H. (2021). Ageing as well as you can in place: Applying a geographical lens to the capability approach. Social Science & Medicine, 288, 113525. https://doi.org/10.1016/j.socscimed.2020.113525
   Web of Science ®Google Scholar
• Horrell, B., Breheny, M., Stephens, C. (2020). Using nussbaum’s central capabilities to understand caring for older people in new zealand. International Journal of Care and Caring, 4(4), 531–547. https://doi.org/10.1332/239788220X15936247038641
   Google Scholar
• Hupkens, S., Goumans, M., Derkx, P., Oldersma, A., Schutter, T., & Machielse, A. (2019). Meaning in life of older adults in daily care: A qualitative analysis of participant observations of home nursing visits. Journal of Advanced Nursing, 75(8), 1732–1740. https://doi.org/10.1111/jan.14027
   PubMed Web of Science ®Google Scholar
• Hupkens, S., Machielse, A., Goumans, M., & Derkx, P. (2018). Meaning in life of older persons: An integrative literature review. Nursing Ethics, 25(8), 973–991. https://doi.org/10.1177/0969733016680122
   PubMed Web of Science ®Google Scholar
• Jakobsen, L. M., & Lind, R. (2023). ´ you are not yourself anymore´: The place of the ethical demand in a practical home care context. Scandinavian Journal of Caring Sciences, 37(1), 79–87. https://doi.org/10.1111/scs.13076
   Web of Science ®Google Scholar
• Kaldestad, K., & Nåden, D. (2022). Dignity in fragile older women receiving daily municipality care. Nursing Ethics, 29(7–8), 1660–1669. https://doi.org/10.1177/09697330221109942
   Web of Science ®Google Scholar
• Ko, H., Park, Y., Cho, B., Lim, K.-C., Chang, S. J., Yi, Y. M., Noh, E.-Y., & Ryu, S.-I. (2019). Gender differences in health status, quality of life, and community service needs of older adults living alone. Archives of Gerontology & Geriatrics, 83, 239–245. https://doi.org/10.1016/j.archger.2019.05.009
   Web of Science ®Google Scholar
• Krause, N., & David Hayward, R. (2012). Religion, meaning in life, and change in physical functioning during late adulthood. Journal of Adult Development, 19(3), 158–169. https://doi.org/10.1007/s10804-012-9143-5
   Web of Science ®Google Scholar
• Lawton, M. P. (1982). The well-being and mental health of the aged. Review of Human Development, 614–628.
   Google Scholar
• Lawton, M. P. (1983). Environment and other determinants of weil-being in older people. The Gerontologist, 23(4), 349–357. https://doi.org/10.1093/geront/23.4.349
   PubMed Web of Science ®Google Scholar
• Lee, G. R., & DeMaris, A. (2007). Widowhood, gender, and depression: A longitudinal analysis. Research on Aging, 29(1), 56–72. https://doi.org/10.1177/0164027506294098
   Web of Science ®Google Scholar
• Lee, G. R., DeMaris, A., Bavin, S., & Sullivan, R. (2001). Gender differences in the depressive effect of widowhood in later life. Journals of Gerontology, Series B: Psychological Sciences & Social Sciences, 56(1), S56–S61. https://doi.org/10.1093/geronb/56.1.S56
   PubMed Web of Science ®Google Scholar
• Liljas, A. E., Walters, K., Jovicic, A., Iliffe, S., Manthorpe, J., Goodman, C., & Kharicha, K. (2017). Strategies to improve engagement of ‘hard to reach’older people in research on health promotion: A systematic review. BMC Public Health, 17(1), 1–12. https://doi.org/10.1186/s12889-017-4241-8
   Google Scholar
• Melander, C., Sävenstedt, S., Wälivaara, B., Olsson, M. (2018). Human capabilities in advanced dementia: Nussbaum’s approach. International Journal of Older People Nursing, 13(2), e12178. https://doi.org/10.1111/opn.12178
   PubMed Web of Science ®Google Scholar
• Moore, S. L., Metcalf, B., & Schow, E. (2006). The quest for meaning in aging. Geriatric Nursing, 27(5), 293–299. https://doi.org/10.1016/j.gerinurse.2006.08.012
   PubMed Web of Science ®Google Scholar
• Naef, R., Ward, R., Mahrer-Imhof, R., & Grande, G. (2013). Characteristics of the bereavement experience of older persons after spousal loss: An integrative review. International Journal of Nursing Studies, 50(8), 1108–1121. https://doi.org/10.1016/j.ijnurstu.2012.11.026
   PubMed Web of Science ®Google Scholar
• Näsman, M., Niklasson, J., Saarela, J., Nygård, M., Olofsson, B., Gustafson, Y., & Nyqvist, F. (2020). Morale in old age and its association with sociodemographic, social, and health-related factors in different age groups. Journal of Aging Research, 2020, 1–13. https://doi.org/10.1155/2020/3939718
   Google Scholar
• Nations, U. (2019). World population prospects 2019: Data booklet. United Nations. 10.18356/3e9d869f-en
   Google Scholar
• Ness, T. M., Hellzen, O., & Enmarker, I. (2014). “Embracing the present and fearing the future”: The meaning of being an oldest old woman in a rural area. International Journal of Qualitative Studies on Health and Well-Being, 9(1), 25217. https://doi.org/10.3402/qhw.v9.25217
   PubMedGoogle Scholar
• Nussbaum, M. C. (2000). Women and human development: The capabilities approach (Vol. 3). Cambridge university press.
   Google Scholar
• Nussbaum, M. C. (2011). Creating capabilities: The human development approach.
   Google Scholar
• Oswald, F., & Wahl, H. (2005). Dimensions of the meaning of home in later life. In G. Rowles (Ed.), Home and identity in late life: International perspectives (pp. 21–45). Springer Publishing Company.
   Google Scholar
• Percival, J. (2002). Domestic spaces: Uses and meanings in the daily lives of older people. Ageing and Society, 22(6), 729–749. https://doi.org/10.1017/S0144686X02008917
   Web of Science ®Google Scholar
• Pirhonen, J. (2015). Dignity and the capabilities approach in long‐term care for older people. Nursing Philosophy, 16(1), 29–39. https://doi.org/10.1111/nup.12057
   Web of Science ®Google Scholar
• Portacolone, E. (2015). Older Americans living alone: The influence of resources and intergenerational integration on inequality. Journal of Contemporary Ethnography, 44(3), 280–305. https://doi.org/10.1177/0891241614528709
   Web of Science ®Google Scholar
• SCB. Medellivslängden i sverige. https://www.scb.se/hitta-statistik/sverige-i-siffror/manniskorna-i-sverige/medellivslangd-i-sverige/. Updated 2021.
   Google Scholar
• Sjöberg, M., Edberg, A., Rasmussen, B. H., & Beck, I. (2019). Being acknowledged by others and bracketing negative thoughts and feelings: Frail older people’s narrations of how existential loneliness is eased. International Journal of Older People Nursing, 14(1), e12213. https://doi.org/10.1111/opn.12213
   Web of Science ®Google Scholar
• Søvde, B. E., Sandvoll, A. M., Natvik, E., & Drageset, J. (2022). Carrying on life at home or moving to a nursing home: Frail older people’s experiences of at-homeness. International Journal of Qualitative Studies on Health and Well-Being, 17(1), 2082125. https://doi.org/10.1080/17482631.2022.2082125
   Web of Science ®Google Scholar
• Statistics Sweden. Population forecast for sweden. https://www.scb.se/hitta-statistik/sverige-i-siffror/manniskorna-i-sverige/befolkningsprognos-for-sverige/.
   Google Scholar
• Swenson, M. M. (1998). The meaning of home to five elderly women. Health Care for Women International, 19(5), 381–393. https://doi.org/10.1080/073993398246160
   PubMedGoogle Scholar
• Tellez, J., Krishnakumar, J., Bungener, M., & Le Galès, C. (2016). Capability deprivation of people with Alzheimer’s disease: An empirical analysis using a national survey. Social Science & Medicine, 151, 56–68. https://doi.org/10.1016/j.socscimed.2015.12.032
   Web of Science ®Google Scholar
• Tiilikainen, E., Hujala, A., Kannasoja, S., Rissanen, S., & Närhi, K. (2019). “They’re always in a hurry”–older people´ s perceptions of access and recognition in health and social care services. Health & Social Care in the Community, 27(4), 1011–1018. https://doi.org/10.1111/hsc.12718
   Web of Science ®Google Scholar
• Toye, F., Jenkins, C., & Barker, K. (2021). Understanding the experience of living well, beyond the age of 85 years: A qualitative analysis using themes from a meta-ethnography. Age & Ageing, 50(6), 2238–2245. https://doi.org/10.1093/ageing/afab179
   Web of Science ®Google Scholar
• Vasunilashorn, S., Steinman, B. A., Liebig, P. S., & Pynoos, J. (2012). Aging in place: Evolution of a research topic whose time has come. Journal of Aging Research, 2012, 1–6. https://doi.org/10.1155/2012/120952
   Google Scholar
• Watz, S., & Ingstad, K. (2022). Keeping calm on a busy day—an interpersonal skill home care patients desire in health workers: Hermeneutical phenomenological method. BMC Nursing, 21(1), 49. https://doi.org/10.1186/s12912-022-00825-1
   Web of Science ®Google Scholar
• Willroth, E. C., Pfund, G. N., Mroczek, D. K., & Hill, P. L. (2023). Perceptions of a good life: Associations with culture, age, wellbeing, and health. European Journal of Personality, 08902070231186344. https://doi.org/10.1177/08902070231186344
   Web of Science ®Google Scholar