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Empirical Studies

Dialogued into being: Constructing knowledge about hand osteoarthritis from a polyphony of voices in healthcare encounters

ORCID Icon, ORCID Icon, ORCID Icon, & ORCID Icon
Article: 2330221 | Received 14 Nov 2023, Accepted 11 Mar 2024, Published online: 18 Mar 2024

References

  • Abbott, A. (1988). The system of professions: An essay on the division of expert labor. University of Chicago Press.
  • Album, D., & Westin, S. (2008). Do diseases have a prestige hierarchy? A survey among physicians and medical students. Social Science & Medicine, 66(1), 182–15. https://doi.org/10.1016/j.socscimed.2007.07.003
  • Alvesson, M., & Sköldberg, K. (2018). Reflexive methodology: New vistas for qualitative research (3rd. ed.). SAGE.
  • Baillergeau, E., & Duyvendak, J. W. (2016). Experiential knowledge as a resource for coping with uncertainty: Evidence and examples from the Netherlands. Health, Risk & Society, 18(7–8), 407–426. https://doi.org/10.1080/13698575.2016.1269878
  • Bakhtin, M. M. (1981). The dialogic imagination: Four essays. University of Texas Press.
  • Bakhtin, M. M. (1984). Problems of Dostoevsky’s poetics. University of Minnesota Press. https://doi.org/10.5749/j.ctt22727z1
  • Bakhtin, M. M. (1986). Speech genres and other late essays. University of Texas Press.
  • Barry, C. A., Stevenson, F. A., Britten, N., Barber, N., & Bradley, C. P. (2001). Giving voice to the lifeworld. More humane, more effective medical care? A qualitative study of doctor–patient communication in general practice. Social Science & Medicine, 53(4), 487–505. https://doi.org/10.1016/S0277-9536(00)00351-8
  • Battalova, A., Bulk, L., Nimmon, L., Hole, R., Krupa, T., Lee, M., Mayer, Y., & Jarus, T. (2020). “I can understand where they’re coming from”: How clinicians’ disability experiences shape their interaction with clients. Qualitative Health Research, 30(13), 2064–2076. https://doi.org/10.1177/1049732320922193
  • Belova, O., King, I., & Sliwa, M. (2008). Introduction: Polyphony and organization studies: Mikhail Bakhtin and beyond. Organization Studies, 29(4), 493–500. https://doi.org/10.1177/0170840608088696
  • Blume, S. (2017). In search of experiential knowledge. Innovation: The European Journal of Social Science Research, 30(1), 91–103. https://doi.org/10.1080/13511610.2016.1210505
  • Bontemps-Hommen, M., Baart, A., & Vosman, F. (2020). Professional medical discourse and the emergence of practical wisdom in everyday practices: Analysis of a keyhole case. Health Care Analysis, 28(2), 137–157. https://doi.org/10.1007/s10728-019-00385-7
  • Borkman, T. (1976). Experiential knowledge: A new concept for the analysis of self-help groups. Social Service Review, 50(3), 445–456. https://doi.org/10.1086/643401
  • Bowers, R., & Moore, K. N. (1997). Bakhtin, nursing narratives, and dialogical consciousness. Advances in Nursing Science, 19(3), 70–77. https://doi.org/10.1097/00012272-199703000-00007
  • Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77–101. https://doi.org/10.1191/1478088706qp063oa
  • Braun, V., & Clarke, V. (2019). Reflecting on reflexive thematic analysis. Qualitative Research in Sport, Exercise and Health, 11(4), 589–597. https://doi.org/10.1080/2159676X.2019.1628806
  • Braun, V., & Clarke, V. (2021). One size fits all? What counts as quality practice in (reflexive) thematic analysis? Qualitative Research in Psychology, 18(3), 328–352. https://doi.org/10.1080/14780887.2020.1769238
  • Braun, V., & Clarke, V. (2022a). Conceptual and design thinking for thematic analysis. Qualitative Psychology, 9(1), 3–26. https://doi.org/10.1037/qup0000196
  • Braun, V., & Clarke, V. (2022b). Thematic analysis: A practical guide. SAGE.
  • Braun, V., & Clarke, V. (2022c). Toward good practice in thematic analysis: Avoiding common problems and be(com)ing a knowing researcher. International Journal of Transgender Health, 24(1), 1–6. https://doi.org/10.1080/26895269.2022.2129597
  • Burr, V. (1995). An introduction to social constructionism. Routledge.
  • Burr, V. (2015). Social constructionism 3rd. ed. Routledge.
  • Byrne, P. S., & Long, B. E. L. (1976). Doctors talking to patients: A study of the verbal behaviour of general practitioners consulting in their surgeries. H.M.S.O.
  • Castro, E. M., Van Regenmortel, T., Sermeus, W., & Vanhaecht, K. (2019). Patients’ experiential knowledge and expertise in health care: A hybrid concept analysis. Social Theory & Health, 17(3), 307–330. https://doi.org/10.1057/s41285-018-0081-6
  • Dent, M., & Pahor, M. (2015). Patient involvement in Europe – a comparative framework. Journal of Health Organization and Management, 29(5), 546–555. https://doi.org/10.1108/jhom-05-2015-0078
  • Dingwall, R., & Pilnick, A. (2020). Shared decision making: Doctors have expertise that patients want or need. BMJ: British Medical Journal, 368, m128. https://doi.org/10.1136/bmj.m128
  • Favero, M., Belluzzi, E., Ortolan, A., Lorenzin, M., Oliviero, F., Doria, A., Scanzello, C. R., & Ramonda, R. (2022). Erosive hand osteoarthritis: Latest findings and outlook. Nature Reviews Rheumatology, 18(3), 171–183. https://doi.org/10.1038/s41584-021-00747-3
  • Ferlie, E., McGivern, G., & FitzGerald, L. (2012). A new mode of organizing in health care? Governmentality and managed networks in cancer services in England. Social Science & Medicine, 74(3), 340–347. https://doi.org/10.1016/j.socscimed.2011.03.021
  • Fleming, M. H., & Mattingly, C. (2019). Action and narrative: Two dynamics of clinical reasoning. In J. Higgs, G. M. Jensen, S. Loftus, & N. Christensen (Eds.), Clinical reasoning in the health professions (4th ed., pp. 19–128). Elsevier.
  • Freidson, E. (1970). Professional dominance: The social structure of medical care. Routledge. https://doi.org/10.4324/9781315127491
  • Freidson, E. (2001). Professionalism: The third logic. Polity Press.
  • Fricker, M. (2007). Epistemic injustice: Power and the ethics of knowing. Oxford University Press. https://doi.org/10.1093/acprof:oso/9780198237907.001.0001
  • Gergen, K. J. (1978). Toward generative theory. Journal of Personality and Social Psychology, 36(11), 1344–1360. https://doi.org/10.1037/0022-3514.36.11.1344
  • Gergen, K. J. (1994a). Realities and relationships: Soundings in social construction. Harvard. University Press.
  • Gergen, K. J. (1994b). Toward transformation in social knowledge 2nd ed. Sage Publications.
  • Gergen, K. J. (2011). Knowledge as co-creation. In K. J. Gergen (Ed.), Relational being: Beyond self and community. Oxford University Press. https://doi.org/10.1093/acprof:osobl/9780199846269.003.0008
  • Gergen, K. J. (2015). An invitation to social construction (3rd ed.). SAGE Publications Ltd. https://doi.org/10.4135/9781473921276
  • Gibbons, M. (1994). The new production of knowledge: The dynamics of science and research in contemporary societies. SAGE Publications.
  • Gibson, A., Britten, N., & Lynch, J. (2012). Theoretical directions for an emancipatory concept of patient and public involvement. Health (London), 16(5), 531–547. https://doi.org/10.1177/1363459312438563
  • Gieryn, T. F. (1983). Boundary-work and the demarcation of science from non-science: Strains and interests in professional ideologies of scientists. American Sociological Review, 48(6), 781–795. https://doi.org/10.2307/2095325
  • Glickel, S. Z. (2001). Clinical assessment of the thumb trapeziometacarpal joint. Hand Clinics, 17(2), 185–195. https://doi.org/10.1016/S0749-0712(21)00239-0
  • Gordon, G. H., Joos, S. K., & Byrne, J. (2000). Physician expressions of uncertainty during patient encounters. Patient Education and Counseling, 40(1), 59–65. https://doi.org/10.1016/S0738-3991(99)00069-5
  • Greenhalgh, T. (2009). Patient and public involvement in chronic illness: Beyond the expert patient. BMJ (Online), 338(7695), 629–631. https://doi.org/10.1136/bmj.b49
  • Grimen, H. (2009). Power, trust, and risk. Medical Anthropology Quarterly, 23(1), 16–33. https://doi.org/10.1111/j.1548-1387.2009.01035.x
  • Håkansson Eklund, J., Holmström, I. K., Kumlin, T., Kaminsky, E., Skoglund, K., Höglander, J., Sundler, A. J., Condén, E., & Summer Meranius, M. (2019). “Same same or different?” A review of reviews of person-centered and patient-centered care. Patient Education and Counseling, 102(1), 3–11. https://doi.org/10.1016/j.pec.2018.08.029
  • Halloy, A., Simon, E., & Hejoaka, F. (2023). Defining patient’s experiential knowledge: Who, what and how patients know. A narrative critical review. Sociology of Health & Illness, 45(2), 405–422. https://doi.org/10.1111/1467-9566.13588
  • Han, P. K. J., Babrow, A., Hillen, M. A., Gulbrandsen, P., Smets, E. M., & Ofstad, E. H. (2019). Uncertainty in health care: Towards a more systematic program of research. Patient Education and Counseling, 102(10), 1756–1766. https://doi.org/10.1016/j.pec.2019.06.012
  • Hazen, M. A. (1993). Towards polyphonic organization. Journal of Organizational Change Management, 6(5), 15–26. https://doi.org/10.1108/09534819310072747
  • Heritage, J., & Maynard, D. W. (2006). Problems and prospects in the study of physician-patient interaction: 30 years of research. Annual Review of Sociology, 32(1), 351–374. https://doi.org/10.1146/annurev.soc.32.082905.093959
  • Hofmann, B. (2016). Disease, illness, and sickness. In H. Kincaid, J. R. Simon, & M. Solomon (Eds.), The Routledge companion to philosophy of medicine (pp.16–26). Routledge Taylor & Francis Group.
  • Iedema, R., Degeling, P., Braithwaite, J., & White, L. (2004). ‘It’s an interesting conversation i’m hearing’: The doctor as manager. Organization Studies, 25(1), 15–33. https://doi.org/10.1177/0170840604038174
  • Ingstad, B., & Christie, V. M. (2001). Encounters with illness: The perspective of the sick doctor. Anthropology & Medicine, 8(2–3), 201–210. https://doi.org/10.1080/13648470120101372
  • Jasanoff, S. (2004). States of knowledge: The co-production of science and the social order (1 ed.). Routledge. https://doi.org/10.4324/9780203413845
  • Joseph-Williams, N., Elwyn, G., & Edwards, A. (2014). Knowledge is not power for patients: A systematic review and thematic synthesis of patient-reported barriers and facilitators to shared decision making. Patient Education and Counseling, 94(3), 291–309. https://doi.org/10.1016/j.pec.2013.10.031
  • Kjeken, I., Bergsmark, K., Haugen, I. K., Hennig, T., Hermann-Eriksen, M., Hornburg, V. T., Hove, Å., Prøven, A., Sjøvold, T. A., & Slatkowsky-Christensen, B. (2021). Task shifting in the care for patients with hand osteoarthritis. Protocol for a randomized controlled non-inferiority trial. BMC Musculoskeletal Disorders, 22(1), 194. https://doi.org/10.1186/s12891-021-04019-9
  • Kleinman, A. (1980). Patients and healers in the context of culture : An exploration of the borderland between anthropology, medicine, and psychiatry (1st. ed.). University of California Press.
  • Kloppenburg, M., Kroon, F. P. B., Blanco, F. J., Doherty, M., Dziedzic, K. S., Greibrokk, E., Haugen, I. K., Herrero-Beaumont, G., Jonsson, H., Kjeken, I., Maheu, E., Ramonda, R., Ritt, M. J. P. F., Smeets, W., Smolen, J. S., Stamm, T. A., Szekanecz, Z., Wittoek, R., & Carmona, L. (2018). 2018 update of the EULAR recommendations for the management of hand osteoarthritis. Annals of the Rheumatic Diseases, 78(1), 16. https://doi.org/10.1136/annrheumdis-2018-213826
  • Kloppenburg, M., & Kwok, W.-Y. (2012). Hand osteoarthritis—A heterogeneous disorder. Nature Reviews Rheumatology, 8(1), 22–31. https://doi.org/10.1038/nrrheum.2011.170
  • Klykken, F. H. (2021). Implementing continuous consent in qualitative research. Qualitative Research, 22(5), 795–810. https://doi.org/10.1177/14687941211014366
  • Lindström, J., & Karlsson, S. (2016). Tensions in the epistemic domain and claims of no-knowledge: A study of Swedish medical interaction. Journal of Pragmatics, 106, 129–147. https://doi.org/10.1016/j.pragma.2016.07.003
  • Lukes, S. (1974). Power: A radical view. Macmillan.
  • Magnussen, H. J., Kjeken, I., Pinxsterhuis, I., Sjøvold, T. A., & Feiring, M. (2023). Negotiating professional tasks in a hospital: A qualitative study of rheumatologists and occupational therapists in the management of hand osteoarthritis. Journal of Multidisciplinary Healthcare, 16, 3057–3074. https://doi.org/10.2147/jmdh.S425640
  • Magnussen, H. J., Kjeken, I., Pinxsterhuis, I., Sjøvold, T. A., Hennig, T., Thorsen, E., & Feiring, M. (2023). Participation in healthcare consultations: A qualitative study from the perspectives of persons diagnosed with hand osteoarthritis. Health Expectations, 26(3), 1276–1286. https://doi.org/10.1111/hex.13744
  • Mahr, D. (2021). The knowledge of experience: Exploring epistemic diversity in digital health, participatory medicine, and environmental research. Palgrave Macmillan. https://doi.org/10.1007/978-981-16-3702-5
  • Malterud, K., Siersma, V. D., & Guassora, A. D. (2016). Sample size in qualitative interview studies: Guided by information power. Qualitative Health Research, 26(13), 1753–1760. https://doi.org/10.1177/1049732315617444
  • Maxwell, J. A. (2013). Qualitative research design: An interactive approach 3rd ed. Sage.
  • McCormack, B. (2003). A conceptual framework for person-centred practice with older people. International Journal of Nursing Practice, 9(3), 202–209. https://doi.org/10.1046/j.1440-172X.2003.00423.x
  • Mead, N., & Bower, P. (2000). Patient-centredness: A conceptual framework and review of the empirical literature. Social Science & Medicine, 51(7), 1087–1110. https://doi.org/10.1016/S0277-9536(00)00098-8
  • Miles, M. B., & Huberman, A. M. (1994). Qualitative data analysis: An expanded sourcebook 2nd ed. Sage.
  • Mol, A. (2002). The body multiple: Ontology in medical practice. Duke University Press.
  • Mol, A. (2008). The logic of care: Health and the problem of patient choice. Routledge. https://doi.org/10.4324/9780203927076
  • Morse, J. M., & Coulehan, J. (2014). Maintaining confidentiality in qualitative publications. Qualitative Health Research, 25(2), 151–152. https://doi.org/10.1177/1049732314563489
  • Norwegian Directorate of Health. (2015). Prioriteringsveileder-revmatologi [National priority guide-rheumatology]. Retrieved October 10th, 2023, from https://www.helsebiblioteket.no/innhold/nasjonale-veiledere/prioriteringsveileder-revmatologi
  • Nowotny, H., Scott, P., & Gibbons, M. (2003). Introduction: `Mode 2’ revisited: The new production of knowledge. Minerva, 41(3), 179–194. https://doi.org/10.1023/A:1025505528250
  • Palukka, H., Haapakorpi, A., Auvinen, P., & Parviainen, J. (2021). Outlining the role of experiential expertise in professional work in health care service co-production. International Journal of Qualitative Studies on Health and Well-Being, 16(1), 1954744. https://doi.org/10.1080/17482631.2021.1954744
  • Parsons, T. (1951). The social system. Routledge & Kegan Paul.
  • Patton, M. Q. (2002). Qualitative research & evaluation methods (3rd ed.). Sage Publications.
  • Phillips, L., & Scheffmann-Petersen, M. (2020). Unpacking ‘patient-centredness’: How knowledge is negotiated dialogically in the interweaving of genres and voices in counselling conversations. Sociology of Health & Illness, 42(6), 1456–1472. https://doi.org/10.1111/1467-9566.13118
  • Pilnick, A. (2022). Reconsidering patient centred care: Between autonomy and abandonment. Emerald Publishing Limited.
  • Pilnick, A., & Dingwall, R. (2011). On the remarkable persistence of asymmetry in doctor/patient interaction: A critical review. Social Science & Medicine, 72(8), 1374–1382. https://doi.org/10.1016/j.socscimed.2011.02.033
  • Politi, M. C., Clark, M. A., Ombao, H., Dizon, D., & Elwyn, G. (2011). Communicating uncertainty can lead to less decision satisfaction: A necessary cost of involving patients in shared decision making? Health Expectations, 14(1), 84–91. https://doi.org/10.1111/j.1369-7625.2010.00626.x
  • Pols, J. (2005). Enacting appreciations: Beyond the patient perspective. Health Care Analysis, 13(3), 203–221. https://doi.org/10.1007/s10728-005-6448-6
  • Prior, L. (2003). Belief, knowledge and expertise: The emergence of the lay expert in medical sociology. Sociology of Health and Illness, 25(3), 41–57. https://doi.org/10.1111/1467-9566.00339
  • Prytz Mjølstad, B., Luise Kirkengen, A., Getz, L., & Hetlevik, I. (2013). Standardization meets stories: Contrasting perspectives on the needs of frail individuals at a rehabilitation unit. International Journal of Qualitative Studies on Health and Well-Being, 8(1), 21498. https://doi.org/10.3402/qhw.v8i0.21498
  • Qin, J., Barbour, K. E., Murphy, L. B., Nelson, A. E., Schwartz, T. A., Helmick, C. G., Allen, K. D., Renner, J. B., Baker, N. A., & Jordan, J. M. (2017). Lifetime risk of symptomatic hand osteoarthritis: The Johnston County osteoarthritis project. Arthritis and Rheumatology, 69(6), 1204–1212. https://doi.org/10.1002/art.40097
  • Renedo, A., Komporozos-Athanasiou, A., & Marston, C. (2017). Experience as evidence: The dialogic construction of health professional knowledge through patient involvement. Sociology, 52(4), 778–795. https://doi.org/10.1177/0038038516682457
  • Renedo, A., Miles, S., & Marston, C. (2020). Transitions to adulthood: Self-governance and disciplining in the making of patient citizens. Sociology of Health & Illness, 42(3), 481–495. https://doi.org/10.1111/1467-9566.13019
  • Riessman, C. K., & Mattingly, C. (2005). Introduction: Toward a context-based ethics for social research in health. Health: An Interdisciplinary Journal for the Social Study of Health, Illness and Medicine, 9(4), 427–429. https://doi.org/10.1177/1363459305056411
  • Rose, D., & Kalathil, J. (2019). Power, privilege and knowledge: The untenable promise of co-production in mental “health”. Frontiers in Sociology, 4, 57. https://doi.org/10.3389/fsoc.2019.00057
  • Rycroft-Malone, J., Seers, K., Titchen, A., Harvey, G., Kitson, A., & McCormack, B. (2004). What counts as evidence in evidence-based practice? Journal of Advanced Nursing, 47(1), 81–90. https://doi.org/10.1111/j.1365-2648.2004.03068.x
  • Sainsaulieu, I. (2023). Care staff mobilisation in the hospital: Fight or cooperate?. Macmillan Palgrave.
  • Solman, B., & Clouston, T. (2016). Occupational therapy and the therapeutic use of self. British Journal of Occupational Therapy, 79(8), 514–516. https://doi.org/10.1177/0308022616638675
  • Spradley, J. P. (1980). Participant observation. Holt, Rinehart and Winston.
  • Stanton, J., & Randal, P. (2016). Developing a psychiatrist–patient relationship when both people are doctors: A qualitative study. BMJ Open, 6(5), e010216. https://doi.org/10.1136/bmjopen-2015-010216
  • Stivers, T., & McCabe, R. (2021). Dueling in the clinic: When patients and providers disagree about healthcare recommendations. Social Science & Medicine, 290, 114140. https://doi.org/10.1016/j.socscimed.2021.114140
  • Strauss, A. (1963). The hospital and its negotiated order. In E. Freidson (Ed.), The hospital in modern society (pp. 147–169). The Free Press.
  • Strauss, A. (1985). Social organization of medical work. University of Chicago Press.
  • Sullivan, P., & McCarthy, J. (2008). Managing the polyphonic sounds of organizational truths. Organization Studies, 29(4), 525–541. https://doi.org/10.1177/0170840608088702
  • Szasz, T. S., & Hollender, M. H. (1956). A contribution to the philosophy of medicine: The basic models of the doctor-patient relationship. AMA Archives of Internal Medicine, 97(5), 585–592. https://doi.org/10.1001/archinte.1956.00250230079008
  • Tai-Seale, M., Stults, C., Zhang, W., & Shumway, M. (2012). Expressing uncertainty in clinical interactions between physicians and older patients: What matters? Patient Education and Counseling, 86(3), 322–328. https://doi.org/10.1016/j.pec.2011.06.005
  • Taylor, R. R., Lee, S. W., Kielhofner, G., & Ketkar, M. (2009). Therapeutic use of self: A nationwide survey of practitioners’ attitudes and experiences. The American Journal of Occupational Therapy, 63(2), 198–207. https://doi.org/10.5014/ajot.63.2.198
  • Thorne, S. (2008). Chronic disease management: What is the concept? Canadian Journal of Nursing Research, 40(3), 7–14.
  • Timmermans, S., & Mauck, A. (2005). The promises and pitfalls of evidence-based medicine. Health Affairs, 24(1), 18–28. https://doi.org/10.1377/hlthaff.24.1.18
  • Wind, G. (2008). Negotiated interactive observation: Doing fieldwork in hospital settings. Anthropology & Medicine, 15(2), 79–89. https://doi.org/10.1080/13648470802127098