403
Views
0
CrossRef citations to date
0
Altmetric
Empirical Studies

Experiences of facilitators and barriers for fulfilment of human needs when living with restless legs syndrome: a qualitative study

ORCID Icon, , , ORCID Icon, , , & show all
Article: 2348884 | Received 01 Nov 2023, Accepted 25 Apr 2024, Published online: 12 May 2024

References

  • Allen, R. P., Picchietti, D. L., Garcia-Borreguero, D., Ondo, W. G., Walters, A. S., Winkelman, J. W., Zucconi, M., Ferri, R., Trenkwalder, C., Lee, H. B., & International Restless Legs Syndrome Study Group. (2014). Restless legs syndrome/Willis-ekbom disease diagnostic criteria: Updated international restless legs syndrome study group (IRLSSG) consensus criteria–history, rationale, description, and significance. Sleep Medicine, 15(8), 860–12. https://doi.org/10.1016/j.sleep.2014.03.025
  • Björk, M., Knutsson, S., Odzakovic, E., Hellström, A., Sandlund, C., Ulander, M., Lind, J., Pakpour, A. H., Broström, A., & members of the Jönköping University (JU) Sleep Well Research Group. (2023). Validation of two brief instruments (the SURE and CollaboRATE) to measure shared decision-making in patients with restless legs syndrome. Journal of Sleep Research, e14071. https://doi.org/10.1111/jsr.14071
  • Broström, A., Alimoradi, Z., Lind, J., Ulander, M., Lundin, F., & Pakpour, A. (2023). Worldwide estimation of restless legs syndrome: A systematic review and meta-analysis of prevalence in the general adult population. Journal of Sleep Research, 32(3), e13783. https://doi.org/10.1111/jsr.13783
  • Broström, A., Alimoradi, Z., Odzakovic, E., Kaldo, V., Jernelöv, S., Lind, J., Ulander, M., & Pakpour, A. (2024). Quality of life among patients with restless legs syndrome: A systematic review and meta-analysis. Journal of Clinical Neuroscience: Official Journal of the Neurosurgical Society of Australasia, 122, 80–91. https://doi.org/10.1016/j.jocn.2024.02.027
  • Dewing, J., & McCormack, B. (2017). Editorial: Tell me, how do you define person-centredness? Journal of Clinical Nursing, 26(17–18), 2509–2510. https://doi.org/10.1111/jocn.13681
  • Didato, G., DiGiacomo, R., Rosa, G. J., Dominese, A., de Curtis, M., & Lanteri, P. (2020). Restless legs syndrome across the lifespan: Symptoms, pathophysiology, management and daily life impact of the different patterns of disease presentation. International Journal of Environmental Research and Public Health, 17(10), 3658. https://doi.org/10.3390/ijerph17103658
  • Elwyn, G., Frosch, D. L., & Kobrin, S. (2016). Implementing shared decision-making: Consider all the consequences. Implementation Science: IS, 11(1), 114. https://doi.org/10.1186/s13012-016-0480-9
  • Esfandiari, N., Mazaheri, M. A., Akbari-Zardkhaneh, S., Sadeghi-Firoozabadi, V., & Cheraghi, M. (2021). Internet-delivered versus face-to-face cognitive behavior therapy for anxiety disorders: Systematic review and meta-analysis. International Journal of Preventive Medicine, 12, 153. https://doi.org/10.4103/ijpvm.ijpvm_208_21
  • Frankel, R. M., & Stein, T. (2001). Getting the most out of the clinical encounter: The four habits model. Journal of Medical Practice Management, 16(4), 184–191.
  • Fridlund, B., & Baigi, A. (2014). Developing and establishing the psychometric properties of an ethos towards wellness questionnaire (EtWeQ). Open Journal of Nursing, 4(7), 538–547. https://doi.org/10.4236/ojn.2014.47057
  • Fridlund, B., Mårtensson, J., Baigi, A., & Broström, A. (2015). Establishing the psychometric properties of the Comprehensive Ethos Towards Wellness Questionnaire in a Norwegian population. Journal of Holistic Nursing: Official Journal of the American Holistic Nurses’ Association, 33(4), 366–373. https://doi.org/10.1177/0898010115572632
  • Fulda, S., Allen, R. P., Earley, C. J., Högl, B., Garcia-Borreguero, D., Inoue, Y., Ondo, W., Walters, A. S., Williams, A. M., & Winkelman, J. W. (2021). We need to do better: A systematic review and meta-analysis of diagnostic test accuracy of restless legs syndrome screening instruments. Sleep Medicine Reviews, 58, 101461. https://doi.org/10.1016/j.smrv.2021.101461
  • Garcia-Borreguero, D., Cano-Pumarega, I., & Marulanda, R. (2018). Management of treatment failure in restless legs syndrome (Willis-ekbom disease). Sleep Medicine Reviews, 41, 50–60. https://doi.org/10.1016/j.smrv.2018.01.001
  • Gardner, B. (2015). A review and analysis of the use of ‘habit’ in understanding, predicting and influencing health-related behaviour. Health Psychology Review, 9(3), 277–295. https://doi.org/10.1080/17437199.2013.876238
  • Gordon, N. P., & Hornbrook, M. C. (2016). Differences in access to and preferences for using patient portals and other eHealth technologies based on race, ethnicity, and age: A database and survey study of seniors in a large health plan. Journal of Medical Internet Research, 18(3), e50. https://doi.org/10.2196/jmir.5105
  • Graneheim, U. H., & Lundman, B. (2004). Qualitative content analysis in nursing research: Concepts, procedures and measures to achieve trustworthiness. Nurse Education Today, 24(2), 105–112. https://doi.org/10.1016/j.nedt.2003.10.001
  • Harrison, E. G., Keating, J. L., & Morgan, P. E. (2019). Non-pharmacological interventions for restless legs syndrome: A systematic review of randomised controlled trials. Disability and Rehabilitation, 41(17), 2006–2014. https://doi.org/10.1080/09638288.2018.1453875
  • Harrison, E. G., Keating, J. L., & Morgan, P. E. (2021). The experience of living with restless legs syndrome: A qualitative study. Journal of Health Psychology, 26(8), 1154–1167. https://doi.org/10.1177/1359105319871632
  • Holzknecht, E., Domahs, F., Brandauer, E., Bergmann, M., Zengin, T., Delazer, M., Hochleitner, M., Högl, B., & Stefani, A. (2022). Language analysis of spontaneous descriptions of restless legs syndrome: Gender differences? Journal of Sleep Research, 31(1), e13433. https://doi.org/10.1111/jsr.13433
  • Holzknecht, E., Hochleitner, M., Wenning, G. K., Högl, B., & Stefani, A. (2020). Gender differences in clinical, laboratory and polysomnographic features of restless legs syndrome. Journal of Sleep Research, 29(3), e12875. https://doi.org/10.1111/jsr.12875
  • Hordern, A., Georgiou, A., Whetton, S., & Prgomet, M. (2011). Consumer e-health: An overview of research evidence and implications for future policy. Health Information Management: Journal of the Health Information Management Association of Australia, 40(2), 6–14. https://doi.org/10.1177/183335831104000202
  • Jacobs, G., Van Lieshout, F., Borg, M., & Ness, O. (2017). Being a person-centred researcher, principles and methods for doing research in a person-centred way. In B. McCormack, S. van Dulmen, H. Eide, K. Skovdahl, & T. Eide (Eds.), Person-centred Healthcare Research (pp. 51–60). Wiley Blackwell.
  • Kenrick, D. T., Griskevicius, V., Neuberg, S. L., & Schaller, M. (2010). Renovating the pyramid of needs: Contemporary extensions built upon ancient foundations. Perspectives on Psychological Science: A Journal of the Association for Psychological Science, 5(3), 292–314. https://doi.org/10.1177/1745691610369469
  • Khachatryan, S. G., Ferri, R., Fulda, S., Garcia-Borreguero, D., Manconi, M., Muntean, M. L., & Stefani, A. (2022). Restless legs syndrome: Over 50 years of European contribution. Journal of Sleep Research, 31(4), e13632. https://doi.org/10.1111/jsr.13632
  • Kumar, V., Sattar, Y., Bseiso, A., Khan, S., & Rutkofsky, I. H. (2017). The Effectiveness of Internet-Based Cognitive Behavioral Therapy in Treatment of Psychiatric Disorders. Cureus, 9(8), e1626. https://doi.org/10.7759/cureus.1626
  • Légaré, F., Ratté, S., Gravel, K., & Graham, I. D. (2008). Barriers and facilitators to implementing shared decision-making in clinical practice: update of a systematic review of health professionals’ perceptions. Patient Education & Counseling, 73(3), 526–535. https://doi.org/10.1016/j.pec.2008.07.018
  • Légaré, F., & Thompson-Leduc, P. (2014). Twelve myths about shared decision making. Patient Education and Counseling, 96(3), 281–286. https://doi.org/10.1016/j.pec.2014.06.014
  • Lv, Q., Wang, X., Asakawa, T., & Wang, X. (2021). Pharmacologic treatment of restless legs syndrome. Current Neuropharmacology, 19(3), 372–382. https://doi.org/10.2174/1570159X19666201230150127
  • Maslow, A. H. (1943). A theory of human motivation. Psychological Review, 50(4), 370–396. https://doi.org/10.1037/h0054346
  • McCormack, B., van Dulmen, S., Eide, H., Skovdahl, K. & Eide, T. (Eds). (2017). Person-Centredness in Healthcare Policy, Practice and Research. In Person-Centred Healthcare Research. https://doi.org/10.1002/9781119099635.ch1
  • McLeod, S. (2018). Maslow´s hierarchy of needs Maslow´s hierarchy of needs. Business, 3–5.
  • National Quality Forum. (2017). Shared decision making: A standard of care for all patients.
  • Norman, C. D., & Skinner, H. A. (2006). eHealth literacy: essential skills for consumer health in a networked world. Journal of Medical Internet Research, 8(2), e9. https://doi.org/10.2196/jmir.8.2.e9
  • Novick, G. (2008). Is there a bias against telephone interviews in qualitative research? Research in Nursing & Health, 31(4), 391–398. https://doi.org/10.1002/nur.20259
  • Oerlemans, A. J. M., Knippenberg, M. L., & Olthuis, G. J. (2021). Learning shared decision-making in clinical practice. Patient Education and Counseling, 104(5), 1206–1212. https://doi.org/10.1016/j.pec.2020.09.034
  • Paige, S. R., Krieger, J. L., Stellefson, M., & Alber, J. M. (2017). eHealth literacy in chronic disease patients: An item response theory analysis of the eHealth literacy scale (eHEALS). Patient Education and Counseling, 100(2), 320–326. https://doi.org/10.1016/j.pec.2016.09.008
  • Ratzan, S. C., & Parker, R. M. (2000). Introduction. In C. Seldon, M. Zorn, S. Ratzan, & R. Parker (Eds.), National Library of medicine Current bibliographies in medicine: Health literacy. NLM Pub. No. CBM 2000-1 (pp. 1). National Institutes of Health, US Department of Health and Human Services.
  • Sarvimäki, A., & Stenbock-Hult, B. (1993). Caring: An introduction to health care from a humanistic perspective. Almqvist & Wiksell.
  • Song, M. L., Park, K. M., Motamedi, G. K., & Cho, Y. W. (2020). Cognitive behavioral therapy for insomnia in restless legs syndrome patients. Sleep Medicine, 74, 227–234. https://doi.org/10.1016/j.sleep.2020.07.011
  • Stellefson, M., Paige, S. R., Alber, J. M., Chaney, B. H., Chaney, D., Apperson, A., & Mohan, A. (2019). Association Between Health Literacy, Electronic Health Literacy, Disease-Specific Knowledge, and Health-related quality of life among adults with chronic obstructive pulmonary Disease: Cross-sectional study. Journal of Medical Internet Research, 21(6), e12165. https://doi.org/10.2196/12165
  • Swanson, K. M. (1991). Empirical development of a middle range theory of caring. Nursing Research, 40(3), 161–166. https://doi.org/10.1097/00006199-199105000-00008
  • Ture, D. A., Demirci, H., & Sengoren Dikis, O. (2020). The relationship between health literacy and disease specific costs in subjects with chronic obstructive pulmonary disease (COPD). The Aging Male: The Official Journal of the International Society for the Study of the Aging Male, 23(5), 396–402. https://doi.org/10.1080/13685538.2018.1501016
  • Winkelman, J. W. (2022). Treating severe refractory and augmented restless legs syndrome. Chest, 162(3), 693–700. https://doi.org/10.1016/j.chest.2022.05.014
  • Xu, J. X., Wu, L. X., Jiang, W., & Fan, G. H. (2021). Effect of nursing intervention based on Maslow’s hierarchy of needs in patients with coronary heart disease interventional surgery. World Journal of Clinical Cases, 9(33), 10189–10197. https://doi.org/10.12998/wjcc.v9.i33.10189