Health-related needs of survivors of hypertensive disorders of pregnancy: implications for health communication interventions

References

• Ren J, Fan Z, Li J, Wang Y, Zhang J, Hua S. Blood pressure patterns of hypertensive disorders of pregnancy in first and second trimester and contributing factors: a retrospective study. J Obstet Gynaecol. 2023;43(1):2171776. doi:10.1080/01443615.2023.2171776.
   PubMedGoogle Scholar
• Everitt IK, Freaney PM, Wang MC, Grobman WA, O’Brien MJ, Pool LR, et al. Association of state medicaid expansion status with hypertensive disorders of pregnancy in a singleton first live birth. Circ Cardiovasc Qual Outcomes. 2022;15(1):e008249.
   PubMed Web of Science ®Google Scholar
• Huang C, Wei K, Lee PMY, Qin G, Yu Y, Li J. Maternal hypertensive disorder of pregnancy and mortality in offspring from birth to young adulthood: national population based cohort study. Br Med J. 2022;379:e072157.
   PubMedGoogle Scholar
• Karrar SA, Hong PL. Preeclampsia. In: StatPearls. StatPearls; 2022. Available from: http://www.ncbi.nlm.nih.gov/books/NBK570611/.
   Google Scholar
• Ford ND. Hypertensive disorders in pregnancy and mortality at delivery hospitalization—United States, 2017–2019. MMWR. Morbidity and mortality weekly report, 71; 2022. Available from: https://doi.org/10.15585/mmwr.mm7117a1.
   Google Scholar
• You WB, Wolf M, Bailey SC, Pandit AU, Waite KR, Sobel RM, et al. Factors associated with patient understanding of preeclampsia. Hypertens Pregnancy. 2012;31(3):341–9. doi:10.3109/10641955.2010.507851.
   PubMed Web of Science ®Google Scholar
• Wallis AB, Tsigas EZ, Saftlas AF, Sibai BM. Prenatal education is an opportunity for improved outcomes in hypertensive disorders of pregnancy: results from an Internet-based survey. J Matern Fetal Neonatal Med. 2013;26(16):1565–7.
   PubMed Web of Science ®Google Scholar
• Wilkinson J, Cole G. Preeclampsia knowledge among women in Utah. Hypertens Pregnancy. 2018;37(1):18–24. doi:10.1080/10641955.2017.1397691.
   PubMed Web of Science ®Google Scholar
• Robinson JR, Anders SH, Novak LL, Simpson CL, Holroyd LE, Bennett KA, et al. Consumer health-related needs of pregnant women and their caregivers. JAMIA Open. 2018;1(1):57–66. doi:10.1093/jamiaopen/ooy018.
   PubMedGoogle Scholar
• Shree R, Hatfield-Timajchy K, Brewer A, Tsigas E, Vidler M. Information needs and experiences from pregnancies complicated by hypertensive disorders: a qualitative analysis of narrative responses. BMC Pregnancy Childbirth. 2021;21:1–12.
   PubMed Web of Science ®Google Scholar
• Cameron NA, Yee LM, Dolan BM, O’Brien MJ, Greenland P, Khan SS. Trends in cardiovascular health counseling among postpartum individuals. JAMA. 2023;330(4):359–67.
   PubMed Web of Science ®Google Scholar
• Caropreso L, de Azevedo Cardoso T, Eltayebani M, Frey BN. Preeclampsia as a risk factor for postpartum depression and psychosis: a systematic review and meta-analysis. Arch Women’s Ment Health. 2020;23(4):493–505. doi:10.1007/s00737-019-01010-1.
   PubMed Web of Science ®Google Scholar
• Roberts L, Davis GK, Homer CS. Depression, anxiety, and post-traumatic stress disorder following a hypertensive disorder of pregnancy: a narrative literature review. Front Cardiovasc Med. 2019;6:147.
   PubMed Web of Science ®Google Scholar
• Roberts L, Henry A, Harvey SB, Homer CS, Davis GK. Depression, anxiety and posttraumatic stress disorder six months following preeclampsia and normotensive pregnancy: a P4 study. BMC Pregnancy Childbirth. 2022;22(1):1–10.
   PubMed Web of Science ®Google Scholar
• Bijl RC, Bangert SE, Shree R, Brewer AN, Abrenica-Keffer N, Tsigas EZ, et al. Patient journey during and after a pre-eclampsia-complicated pregnancy: a cross-sectional patient registry study. BMJ Open. 2022;12(3):e057795.
   PubMed Web of Science ®Google Scholar
• Joint Commission. Preventing infant death and injury during delivery. Sentinel Event Alert. 2004;30:1–3.
   Google Scholar
• Joint Commission. Sentinel event data: root causes by event type: 2004 – June 2013; 2013. Available from: https://www.medleague.com/wp-content/uploads/2013/11/Root_Causes_by_Event_Type_2004-2Q2013.pdf.
   Google Scholar
• California Departmetn of Public Health. California pregnancy-associated mortality review: report from 2002 and 2003 maternal death reviews; 2011. Available from: https://www.cdph.ca.gov/Programs/CFH/DMCAH/CDPH%20Document%20Library/PAMR/CA-PAMR-Report-1.pdf.
   Google Scholar
• Strauss A, Corbin J. Grounded theory methodology: an overview; 1994.
   Google Scholar
• Saldaña J. Coding and analysis strategies; 2014.
   Google Scholar
• Forsythe DE, Buchanan BG, Osheroff JA, Miller RA. Expanding the concept of medical information: an observational study of physicians’ information needs. Comput Biomed Res. 1992;25(2):181–200.
   PubMedGoogle Scholar
• Chetty P. Grounded theory analysis using axial and selective coding. Project Guru; 2020.
   Google Scholar
• Glaser B, Strauss A. The discovery of grounded theory: Strategies for qualitative research. Mill Valley (CA): Sociology Press; 1967.
   Google Scholar
• Xavier J, Honnold JA, Bradford J. The health, health related needs, and lifecourse experiences of transgender Virginians; 2007.
   Google Scholar
• Hopman P, Schellevis FG, Rijken M. Health-related needs of people with multiple chronic diseases: differences and underlying factors. Qual Life Res. 2016;25:651–60.
   PubMed Web of Science ®Google Scholar
• Sharma SV, Chuang R-J, Rushing M, Naylor B, Ranjit N, Pomeroy M, et al. Peer reviewed: social determinants of health-related needs during COVID-19 among low-income households with children. Prev Chronic Dis. 2020;17:E119.
   PubMed Web of Science ®Google Scholar
• Fang M, Wang J, Wang Z, Chen Y, Xu W, Tao C, et al. Impact of hypertensive disorders of pregnancy on short-and long-term outcomes of pregnancy-associated hemorrhagic stroke. Front Neurol. 2023;14:1097183.
   PubMed Web of Science ®Google Scholar
• Garovic VD, White WM, Vaughan L, Saiki M, Parashuram S, Garcia-Valencia O, et al. Incidence and long-term outcomes of hypertensive disorders of pregnancy. J Am Coll Cardiol. 2020;75(18):2323–34. doi:10.1016/j.jacc.2020.03.028.
   PubMed Web of Science ®Google Scholar
• Von Dadelszen P, Magee LA. Preventing deaths due to the hypertensive disorders of pregnancy. Best Pract Res Clin Obstet Gynaecol. 2016;36:83–102.
   PubMed Web of Science ®Google Scholar
• Van der Zande IS, van der Graaf R, Oudijk MA, Van Delden JJ. Vulnerability of pregnant women in clinical research. J Med Ethics. 2017;43(10):657–63.
   PubMed Web of Science ®Google Scholar
• Nicoloro-SantaBarbara J, Rosenthal L, Auerbach MV, Kocis C, Busso C, Lobel M. Patient-provider communication, maternal anxiety, and self-care in pregnancy. Soc Sci Med. 2017;190:133–40. doi:10.1016/j.socscimed.2017.08.011.
   PubMed Web of Science ®Google Scholar
• Furness PJ, McSeveny K, Arden MA, Garland C, Dearden AM, Soltani H. Maternal obesity support services: a qualitative study of the perspectives of women and midwives. BMC Pregnancy Childbirth. 2011;11(1):1–11.
   PubMedGoogle Scholar
• Stengel MR, Kraschnewski JL, Hwang SW, Kjerulff KH, Chuang CH. “What my doctor didn’t tell me”: examining health care provider advice to overweight and obese pregnant women on gestational weight gain and physical activity. Women’s Health Issues. 2012;22(6):e535–e540.
   PubMed Web of Science ®Google Scholar
• Leiferman J, Sinatra E, Huberty J. Pregnant women’s perceptions of patient-provider communication for health behavior change during pregnancy. Open J Obstet Gynecol. 2014;2014:672–684.
   Google Scholar
• Alexander K, Clary-Muronda V. A scoping review of interventions seeking to improve aspects of patient–provider relationships involving Black pregnant and post-partum people. J Adv Nurs. 2023;79(5):2014–24.
   PubMed Web of Science ®Google Scholar
• Vedam S, Stoll K, Taiwo TK, Rubashkin N, Cheyney M, Strauss N, et al. The giving voice to mothers study: inequity and mistreatment during pregnancy and childbirth in the United States. Reprod Health. 2019;16(1):1–18.
   PubMedGoogle Scholar
• Druzin M, Shields LE, Peterson NL, Cape V, Morton C. Improving health care response to hypertensive disorders of pregnancy: a California quality improvement toolkit. California Maternal Quality Care Collaborative; 2021. Available from: https://www.cmqcc.org/resources-tool-kits/toolkits/preeclampsia-toolkit.
   Google Scholar
• You WB, Wolf MS, Bailey SC, Grobman WA. Improving patient understanding of preeclampsia: a randomized controlled trial. Am J Obstet Gynecol. 2012;206(5):431.e1–5.
   PubMed Web of Science ®Google Scholar
• ACOG. Safe motherhood initiative; 2023. Available from: https://www.acog.org/en/community/districts-and-sections/district-ii/programs-and-resources/safe-motherhood-initiative.
   Google Scholar
• Villagran M, Goldsmith J, Wittenberg-Lyles E, Baldwin P. Creating COMFORT: a communication-based model for breaking bad news. Commun Educ. 2010;59(3):220–34.
   Web of Science ®Google Scholar
• Fingar K, Mabry-Hernandez I, Ngo-Metzger Q, Wolff T, Steiner C, Elixhauser A. Delivery hospitalizations involving preeclampsia and eclampsia, 2005–2014: statistical brief #222. In: Healthcare cost and utilization project (HCUP) statistical briefs. Agency for Healthcare Research and Quality; 2006. Available from: https://europepmc.org/article/NBK/nbk442039.
   Google Scholar
• Khedagi AM, Bello NA. Hypertensive disorders of pregnancy. Cardiol Clin. 2021;39(1):77–90.
   PubMed Web of Science ®Google Scholar
• Jim B, Karumanchi SA. Preeclampsia: pathogenesis, prevention, and long-term complications. Semin Nephrol. 2017;37(4):386–97.
   PubMed Web of Science ®Google Scholar