From empathy to action: design thinking as a catalyst for community-based participatory research in dementia caregiving

References

• Abookire, S., C. Plover, R. Frasso, and B. Ku. 2020. “Health Design Thinking: An Innovative Approach in Public Health to Defining Problems and Finding Solutions.” Frontiers in Public Health 8 (August): 459. https://doi.org/10.3389/fpubh.2020.00459
   PubMedGoogle Scholar
• Aflatoony, L., K. Hepburn, M. M. Perkins, D. Waldrop, and L. Reed. 2022. “Training Clinical Researchers with Design Thinking to Develop Dementia Caregiving Research Initiatives.” Design for Health 6 (1): 69–90. https://doi.org/10.1080/24735132.2022.2061830
   Google Scholar
• Altman, M., T. T. K. Huang, and J. Y. Breland. 2018. “Design Thinking in Health Care.” Preventing Chronic Disease 15 (9): E117. https://doi.org/10.5888/pcd15.180128
   PubMedGoogle Scholar
• Brown, T. 2008. “Design Thinking.” June, pp. 1–10.
   Google Scholar
• Brown, T. 2009. Change by Design: How Design Thinking Transforms Organizations and Inspires Innovation. New York: Harper Business.
   Google Scholar
• Chang, E. S., M. A. Simon, and X. Q. Dong. 2016. “Using Community-Based Participatory Research to Address Chinese Older Women’s Health Needs: Toward Sustainability.” Journal of Women & Aging 28 (4): 276–284. https://doi.org/10.1080/08952841.2014.950511
   PubMed Web of Science ®Google Scholar
• Chen, E., C. Leos, S. D. Kowitt, and K. E. Moracco. 2020. “Enhancing Community-Based Participatory Research through Human-Centered Design Strategies.” Health Promotion Practice 21 (1): 37–48. https://doi.org/10.1177/1524839919850557
   PubMed Web of Science ®Google Scholar
• Coalition, D. E. 2021. Family Caregiving in Diverse Communities.
   Google Scholar
• Cross, N. 2017. “Design Ability.” Design Thinking, available at: https://doi.org/10.5040/9781474293884.ch-001
   Google Scholar
• Design Council. 2019. “Framework for Innovation: Design Council’s evolved Double Diamond.” Accessed https://www.designcouncil.org.uk/our-resources/framework-for-innovation/.
   Google Scholar
• Dilworth-Anderson, P., I. C. Williams, and B. E. Gibson. 2002. “Issues of Race, Ethnicity, and Culture in Caregiving Research: A 20-Year Review (1980–2000).” The Gerontologist 42 (2): 237–272. https://doi.org/10.1093/geront/42.2.237
   PubMed Web of Science ®Google Scholar
• Durand, M. A., S. Alam, S. W. Grande, and G. Elwyn. 2016. “Much Clearer with Pictures’: Using Community-Based Participatory Research to Design and Test a Picture Option Grid for Underserved Patients with Breast Cancer.” BMJ Open 6 (2): e010008. https://doi.org/10.1136/bmjopen-2015-010008
   PubMed Web of Science ®Google Scholar
• Gray, N., C. Oré De Boehm, A. Farnsworth, and D. Wolf. 2010. “Integration of Creative Expression into Community-Based Participatory Research and Health Promotion with Native Americans.” Family & Community Health 33 (3): 186–192. https://doi.org/10.1097/FCH.0b013e3181e4bbc6
   PubMed Web of Science ®Google Scholar
• Hallgren, E. A., P. A. McElfish, and J. Rubon-Chutaro. 2015. “Barriers and Opportunities: A Community-Based Participatory Research Study of Health Beliefs Related to Diabetes in a US Marshallese Community.” The Diabetes Educator 41 (1): 86–94. https://doi.org/10.1177/0145721714559131
   PubMed Web of Science ®Google Scholar
• Hergenrather, K. C., S. D. Rhodes, C. A. Cowan, G. Bardhoshi, and S. Pula. 2009. “Photovoice as Community-Based Participatory Research: A Qualitative Review.” American Journal of Health Behavior 33 (6): 686–698. https://doi.org/10.5993/ajhb.33.6.6
   PubMed Web of Science ®Google Scholar
• Hills, M., J. Mullett, and S. Carroll. 2007. “Community-Based Participatory Action Research: Transforming Multidisciplinary Practice in Primary Health Care.” Revista Panamericana de Salud Publica = Pan American Journal of Public Health 21 (2–3): 125–135. https://doi.org/10.1590/s1020-49892007000200007
   PubMed Web of Science ®Google Scholar
• Israel, B., A. Schulz, E. Parker, A. Becker, A. Allen, and R. Guzman. 2003. “Critical Issues in Developing and following CBPR Principles.” In Community-Based Participatory Research for Health, edited by M. Minkler, and N. Wallerstein, 53–76. San Francisco: Jossey-Bass.
   Google Scholar
• Israel, B. A., E. A. Parker, Z. Rowe, A. Salvatore, M. Minkler, J. López, A. Butz, et al. 2005. “Community-Based Participatory Research: Lessons Learned from the Centers for Children’s Environmental Health and Disease Prevention Research.” Environmental Health Perspectives 113 (10): 1463–1471. https://doi.org/10.1289/ehp.7675
   PubMed Web of Science ®Google Scholar
• Israel, B. A., A. J. Schulz, E. A. Parker, and A. B. Becker. 2001. “Community-Based Participatory Research: Policy Recommendations for Promoting a Partnership Approach in Health Research.” Education for Health 14 (2): 182–197.
   PubMedGoogle Scholar
• Kia-Keating, M., D. Capous, S. Liu, and J. Adams. 2017. “Using Community Based Participatory Research and Human Centered Design to Address Violence-Related Health Disparities among Latino/a Youth.” 40 (2): pp. 160–169. https://doi.org/10.1097/FCH.0000000000000145
   Google Scholar
• Langdon, S. E., S. L. Golden, E. M. Arnold, R. F. Maynor, A. Bryant, V. K. Freeman, and R. A. Bell. 2016. “Lessons Learned from a Community-Based Participatory Research Mental Health Promotion Program for American Indian Youth.” Health Promotion Practice 17 (3): 457–463. https://doi.org/10.1177/1524839916636568
   PubMedGoogle Scholar
• De Las Nueces, D., K. Hacker, A. Digirolamo, and L. S. Hicks. 2012. “A Systematic Review of Community-Based Participatory Research to Enhance Clinical Trials in Racial and Ethnic Minority Groups.” Health Services Research 47 (3 Pt 2)PART 2, : 1363–1386. https://doi.org/10.1111/j.1475-6773.2012.01386.x
   PubMed Web of Science ®Google Scholar
• Lovitts, B. E. 2005. “Being a Good Course-Taker is Not Enough: A Theoretical Perspective on the Transition to Independent Research.” Studies in Higher Education 30 (2): 137–154.
   Web of Science ®Google Scholar
• Lucero, J., N. Wallerstein, B. Duran, M. Alegria, E. Greene-Moton, B. Israel, S. Kastelic, et al. 2018. “Development of a Mixed Methods Investigation of Process and Outcomes of Community-Based Participatory Research.” Journal of Mixed Methods Research 12 (1): 55–74. https://doi.org/10.1177/1558689816633309
   PubMed Web of Science ®Google Scholar
• Luna, D. R., D. A. Rizzato Lede, C. M. Otero, M. R. Risk, and F. González Bernaldo de Quirós. 2017. “User-Centered Design Improves the Usability of Drug-Drug Interaction Alerts: Experimental Comparison of Interfaces.” Journal of Biomedical Informatics 66: 204–213. https://doi.org/10.1016/j.jbi.2017.01.009
   PubMed Web of Science ®Google Scholar
• McNeill, L. H., I. H. C. Wu, D. Cho, Q. Lu, K. Escoto, and C. Harris. 2020. “Community Outreach and Engagement Strategies to Address Breast Cancer Disparities.” Current Breast Cancer Reports 12 (4): 209–215. https://doi.org/10.1007/s12609-020-00374-z
   Web of Science ®Google Scholar
• Minkler, M. 2005. “Community-Based Research Partnerships: Challenges and Opportunities.” Journal of Urban Health 82 (SUPPL. 2): 3–12.
   Google Scholar
• Minkler, M. 2010. “Linking Science and Policy through Community-Based Participatory Research to Study and Address Health Disparities.” American Journal of Public Health 100 (Suppl. 1): S81–S87. https://doi.org/10.2105/AJPH.2009.165720
   PubMedGoogle Scholar
• Noël, G., and J. Frascara. 2016. “Health and Design – Fostering a Culture of Collaboration through Education.” Health Design Network 1–59.
   Google Scholar
• Parker, M., N. Wallerstein, B. Duran, M. Magarati, E. Burgess, S. Sanchez-Youngman, B. Boursaw, et al. 2020. “Engage for Equity: Development of Community-Based Participatory Research Tools.” Health Education & Behavior 47 (3): 359–371. https://doi.org/10.1177/1090198120921188
   PubMed Web of Science ®Google Scholar
• Rhodes, S. D., R. M. Malow, and C. Jolly. 2010. “Community-Based Participatory Research: A New and Not-so-New Approach to HIV/AIDS Prevention, Care, and Treatment.” AIDS Education and Prevention 22 (3): 173–183. https://doi.org/10.1521/aeap.2010.22.3.173
   PubMed Web of Science ®Google Scholar
• Roberts, J. P., T. R. Fisher, M. J. Trowbridge, and C. Bent. 2016. “A Design Thinking Framework for Healthcare Management and Innovation.” Healthcare (Amsterdam, Netherlands) 4 (1): 11–14. elsevier https://doi.org/10.1016/j.hjdsi.2015.12.002
   PubMedGoogle Scholar
• Rowe, A., M. Knox, and G. Harvey. 2020. “Re-Thinking Health through Design: Collaborations in Research, Education and Practice.” Design for Health 4 (3): 327–344. routledgehttps://doi.org/10.1080/24735132.2020.1841918
   Google Scholar
• Saldana, J. 2016. Introduction to Coding, the Coding Manual for Qualitative Researchers. London, UK: SAGE. https://doi.org/10.1201/b22094-2
   Google Scholar
• Sanders, E. B.-N., and P. J. Stappers. 2008. “Co-Creation and the New Landscapes of Design.” CoDesign 4 (1): 5–18. https://doi.org/10.1080/15710880701875068
   Google Scholar
• Schmittdiel, J. A., K. Grumbach, and J. V. Selby. 2010. “System-Based Participatory Research in Health Care: An Approach for Sustainable Translational Research and Quality Improvement.” Annals of Family Medicine 8 (3): 256–259. https://doi.org/10.1370/afm.1117
   PubMed Web of Science ®Google Scholar
• Stacciarini, J. M. R., M. M. Shattell, M. Coady, and B. Wiens. 2011. “Review: Community-Based Participatory Research Approach to Address Mental Health in Minority Populations.” Community Mental Health Journal 47 (5): 489–497. https://doi.org/10.1007/s10597-010-9319-z
   PubMed Web of Science ®Google Scholar
• Wallerstein, N., B. Duran, M. Minkler, and K. Foley. 2012. “Developing and Maintaining Partnerships with Communities.” In Methods for Community Based Participatory Research for Health, edited by B. A. Israel, E. Enge, A. J. Schulz, and E. A. Parker, 43–68. Hoboken: John Wiley & Sons, Inc.
   Google Scholar
• Wallerstein, N., J. G. Oetzel, S. Sanchez-Youngman, B. Boursaw, E. Dickson, S. Kastelic, P. Koegel, et al. 2021. “HHS Public Access.” 47 (3): 380–390. https://doi.org/10.1177/1090198119897075
   Google Scholar
• Wallerstein, N. B., and B. Duran. 2006. “Using Community-Based Participatory Research to Address Health Disparities.” Health Promotion Practice 7 (3): 312–323. https://doi.org/10.1177/1524839906289376
   PubMedGoogle Scholar
• Ward, M. 2015. “Rapid Prototyping Politics: Design and the de-Material Turn.” In Transformation Design: Perspectives on a New Design Attitude, edited by Wolfgang Jonas, Sarah Zerwas, and K. von A., 227–245. Basel: Birkhauser.
   Google Scholar