Shifting Responsibilities: Developing a Pan-European Service Model for an eHealth Technology Supporting Self-Management of People with Chronic Obstructive Pulmonary Disease and Comorbidities

References

• GOLD. Global initiative for chronic obstructive lung disease: global strategy for the diagnosis, management, and prevention of chronic obstructive pulmonary disease (2023 report); 2022. Available from: www.goldcopd.org. Accessed December 20, 2023.
   Google Scholar
• Agustí A, Celli BR, Criner GJ, et al. Global initiative for chronic obstructive lung disease 2023 report: GOLD executive summary. Eur Respir J. 2023;61(4):2300239. doi:10.1183/13993003.00239-2023
   PubMed Web of Science ®Google Scholar
• Adeloye D, Song P, Zhu Y, Campbell H, Sheikh A, Rudan I. Global, regional, and national prevalence of, and risk factors for, chronic obstructive pulmonary disease (COPD) in 2019: a systematic review and modelling analysis. Lancet Respir Med. 2022;10(5):447–458. doi:10.1016/S2213-2600(21)00511-7
   PubMed Web of Science ®Google Scholar
• Jankowska-Polańska B, Kasprzyk M, Chudiak A, Uchmanowicz I. Relation between illness acceptance and quality of life in patients with chronic obstructive pulmonary disease (COPD). Adv Respir Med. 2016;85(1):3–10. doi:10.5603/PiAP.a2015.0079
   Google Scholar
• Quaderi SA, Hurst JR. The unmet global burden of COPD. Glob Health Epidemiol Genom. 2018;3. doi:10.1017/gheg.2018.1
   PubMed Web of Science ®Google Scholar
• Shah CH, Onukwugha E, Zafari Z, Villalonga-Olives E, Park J, Slejko JF. Economic burden of comorbidities among COPD patients hospitalized for acute exacerbations: an analysis of a commercially insured population. Expert Rev Pharmacoecon Outcomes Res. 2022;22(4):683–690. doi:10.1080/14737167.2021.1981291
   PubMed Web of Science ®Google Scholar
• Iheanacho I, Zhang S, King D, Rizzo M, Ismaila AS. Economic burden of chronic obstructive pulmonary disease (COPD): a systematic literature review. Int J COPD. 2020;15:439–460. doi:10.2147/COPD.S234942
   Google Scholar
• Sethi S, Make BJ, Robinson SB, et al. Relationship of COPD exacerbation severity and frequency on risks for future events and economic burden in the medicare fee-for-service population. Int J COPD. 2022;17:593–608. doi:10.2147/COPD.S350248
   Google Scholar
• Corlateanu A. COPD and comorbidities in the Republic of Moldova. Eurasian J Pulmonol. 2022. doi:10.14744/ejop_78_21
   Web of Science ®Google Scholar
• Chaudhary MFA, Hoffman EA, Guo J, et al. Predicting severe chronic obstructive pulmonary disease exacerbations using quantitative CT: a retrospective model development and external validation study. Lancet Digit Health. 2023;5(2):e83–e92. doi:10.1016/s2589-7500(22)00232-1
   PubMedGoogle Scholar
• MacLeod M, Papi A, Contoli M, et al. Chronic obstructive pulmonary disease exacerbation fundamentals: diagnosis, treatment, prevention and disease impact. Respirology. 2021;26(6):532–551. doi:10.1111/resp.14041
   PubMed Web of Science ®Google Scholar
• Richard AA, Shea K. Delineation of self-care and associated concepts. J Nurs Scholarsh. 2011;43(3):255–264. doi:10.1111/j.1547-5069.2011.01404.x
   PubMed Web of Science ®Google Scholar
• Audulv Å, Asplund K, Norbergh KG. Who’s in charge? The role of responsibility attribution in self-management among people with chronic illness. Patient Educ Couns. 2010;81(1):94–100. doi:10.1016/j.pec.2009.12.007
   PubMed Web of Science ®Google Scholar
• Wang R, Zhou C, Wu Y, et al. Patient empowerment and self-management behaviour of chronic disease patients: a moderated mediation model of self-efficacy and health locus of control. J Adv Nurs. 2022;78(4):1055–1065. doi:10.1111/jan.15077
   PubMed Web of Science ®Google Scholar
• Small N, Bower P, Chew-Graham CA, Whalley D, Protheroe J. Patient empowerment in long-term conditions: development and preliminary testing of a new measure. BMC Health Serv Res. 2013;13(1). doi:10.1186/1472-6963-13-263
   Google Scholar
• Charles C, Gafnv A, Whelan T. Shared decision-making in the medical encounter: what does it mean? (or it takes at least two to tango). Soc Sci Med. 1997;44(5):681–692. doi:10.1016/s0277-9536(96)00221-3
   PubMed Web of Science ®Google Scholar
• Elwyn G, Frosch D, Thomson R, et al. Shared decision making: a model for clinical practice. J Gen Intern Med. 2012;27(10):1361–1367. doi:10.1007/s11606-012-2077-6
   PubMed Web of Science ®Google Scholar
• van Gemert-Pijnen L, Kip H, Kelders SM, Sanderman R. Introducing eHealth. In: EHealth Research, Theory and Development: A Multidisciplinary Approach. 1st ed. Routledge; 2018:1–26.
   Google Scholar
• Kermelly SB, Bourbeau J. eHealth in self-managing at a distance patients with COPD. Life. 2022;12(6):773. doi:10.3390/life12060773
   PubMedGoogle Scholar
• Limna P. The digital transformation of healthcare in the digital economy: a systematic review. Int J Adv Health Sci Technol. 2023;3(2):127–132. doi:10.35882/ijahst.v3i2.244
   Google Scholar
• Stefanicka-Wojtas D, Kurpas D. eHealth and mHealth in chronic diseases—identification of barriers, existing solutions, and promoters based on a survey of EU stakeholders involved in Regions4PerMed (H2020). J Pers Med. 2022;12(3):467. doi:10.3390/jpm12030467
   PubMed Web of Science ®Google Scholar
• Ahmed RE, Bdair IA, AL-Mugheed K, et al. Empowering self-efficacy by using patient empowerment among chronic obstructive pulmonary disease: pre–post-test study. Healthcare. 2023;11(3):430. doi:10.3390/healthcare11030430
   Web of Science ®Google Scholar
• Ossebaard HC, van Gemert-Pijnen L. EHealth and quality in health care: implementation time. Int J Qual Health Care. 2016;28(3):415–419. doi:10.1093/intqhc/mzw032
   PubMed Web of Science ®Google Scholar
• Cole AC, Adapa K, Khasawneh A, Richardson DR, Mazur L. Codesign approaches involving older adults in the development of electronic healthcare tools: a systematic review. BMJ Open. 2022;12(7):e058390. doi:10.1136/bmjopen-2021-058390
   PubMed Web of Science ®Google Scholar
• Nyberg A, Wadell K, Lindgren H, Tistad M. Internet-based support for self-management strategies for people with COPD-protocol for a controlled pragmatic pilot trial of effectiveness and a process evaluation in primary healthcare. BMJ Open. 2017;7(7):e016851. doi:10.1136/bmjopen-2017-016851
   PubMed Web of Science ®Google Scholar
• Hallensleben C, van Luenen S, Rolink E, Ossebaard HC, Chavannes NH. eHealth for people with COPD in the Netherlands: a scoping review. Int J COPD. 2019;14:1681–1690. doi:10.2147/COPD.S207187
   Google Scholar
• Kelly M, Fullen B, Martin D, Mcmahon S, Mcveigh JG. eHealth interventions to support self-management in people with musculoskeletal disorders, “eHealth: it’s TIME” - a scoping review. Phys Ther. 2022;102(4). doi:10.1093/ptj/pzab307
   PubMed Web of Science ®Google Scholar
• Shen H, Van Der Kleij RMJJ, Van Der Boog PJM, Chang X, Chavannes NH. Electronic health self-management interventions for patients with chronic kidney disease: systematic review of quantitative and qualitative evidence. J Med Internet Res. 2019;21(11):e12384. doi:10.2196/12384
   PubMed Web of Science ®Google Scholar
• RE-SAMPLE. Available from: https://www.re-sample.eu/. Accessed November 28, 2022.
   Google Scholar
• Meirte J, Hellemans N, Anthonissen M, et al. Benefits and disadvantages of electronic patient-reported outcome measures: systematic review. JMIR Perioper Med. 2020;3(1):e15588. doi:10.2196/15588
   PubMedGoogle Scholar
• Holmes MM, Stanescu S, Bishop FL. The use of measurement systems to support patient self-management of long-term conditions: an overview of opportunities and challenges. Patient Relat Outcome Meas. 2019;10:385–394. doi:10.2147/prom.s178488
   PubMed Web of Science ®Google Scholar
• van Limburg M, van Gemert-Pijnen JEWC, Nijland N, Ossebaard HC, Hendrix RMG, Seydel ER. Why business modeling is crucial in the development of eHealth technologies. J Med Internet Res. 2011;13(4):e124. doi:10.2196/jmir.1674
   PubMed Web of Science ®Google Scholar
• Varsi C, Nes LS, Kristjansdottir OB, et al. Implementation strategies to enhance the implementation of eHealth programs for patients with chronic illnesses: realist systematic review. J Med Internet Res. 2019;21(9):e14255. doi:10.2196/14255
   PubMed Web of Science ®Google Scholar
• Ross J, Stevenson F, Lau R, Murray E. Factors that influence the implementation of e-health: a systematic review of systematic reviews (an update). Implement Sci. 2016;11(1). doi:10.1186/s13012-016-0510-7
   PubMedGoogle Scholar
• Ammenwerth E, Iller C, Mahler C. IT-adoption and the interaction of task, technology and individuals: a fit framework and a case study. BMC Med Inform Decis Mak. 2006;6. doi:10.1186/1472-6947-6-3
   PubMedGoogle Scholar
• van Gemert-Pijnen JEWC, Nijland N, van Limburg M, et al. A holistic framework to improve the uptake and impact of eHealth technologies. J Med Internet Res. 2011;13(4):e111. doi:10.2196/jmir.1672
   PubMed Web of Science ®Google Scholar
• Greenhalgh T, Wherton J, Papoutsi C, et al. Beyond adoption: a new framework for theorizing and evaluating nonadoption, abandonment, and challenges to the scale-up, spread, and sustainability of health and care technologies. J Med Internet Res. 2017;19(11):e367. doi:10.2196/jmir.8775
   PubMed Web of Science ®Google Scholar
• Bitner M, Ostrom A, Morgan F. Service blueprinting: a practical technique for service innovation. Calif Manage Rev. 2008;50(3):66–94. doi:10.2307/41166446
   Web of Science ®Google Scholar
• Broekhuis M, van Weering MD, Schuit C, Schürz S, van Velsen L. Designing a stakeholder-inclusive service model for an eHealth service to support older adults in an active and social life. BMC Health Serv Res. 2021;21(1). doi:10.1186/s12913-021-06597-9
   PubMed Web of Science ®Google Scholar
• Freeman R. The stakeholder approach revisited. Zeitschrift für Wirtschafts- und Unternehmensethik. 2004;5. doi:10.5771/1439-880X-2004-3-228
   Google Scholar
• Carr D, Howells A, Chang M, Hirji N, English A. An integrated approach to stakeholder engagement. Healthc Q. 2009;12:62–70. doi:10.12927/hcq.2009.20754
   PubMedGoogle Scholar
• Mitchell RK, Agle BR, Wood DJ. Toward a theory of stakeholder identification and salience: defining the principle of who and what really counts. Acad Manage Rev. 1997;22(4):853–886. doi:10.2307/259247
   Web of Science ®Google Scholar
• Sharp H, Finkelstein A, Galal G. Stakeholder Identification in the Requirements Engineering Process. IEEE; 1999. doi:10.1109/DEXA.1999.795198
   Google Scholar
• Mural. Available from: https://www.mural.co/. Accessed July 26, 2023.
   Google Scholar
• Qualtrics. Available from: https://www.qualtrics.com/. Accessed July 26, 2023.
   Google Scholar
• Simonse L, Albayrak A, Starre S. Patient journey method for integrated service design. Des Health. 2019;3(1):82–97. doi:10.1080/24735132.2019.1582741
   Google Scholar
• Idoughi D, Seffah A, Kolski C. Adding user experience into the interactive service design loop: a persona-based approach. Behaviour Inf Technol. 2012;31(3):287–303. doi:10.1080/0144929X.2011.563799
   Web of Science ®Google Scholar
• Funnell MM. Patient empowerment: what does it really mean? Patient Educ Couns. 2016;99(12):1921–1922. doi:10.1016/j.pec.2016.10.010
   PubMed Web of Science ®Google Scholar
• Funnell MM, Anderson RM, Arnold MS, et al. Empowerment: an idea whose time has come in diabetes education. Diabetes Educ. 1991;17(1):37–41. doi:10.1177/014572179101700108
   PubMedGoogle Scholar
• Raina RS, Thawani V. The zest for patient empowerment. J Clin Diagn Res. 2016;10(6):FE01–FE03. doi:10.7860/JCDR/2016/16816.7902
   PubMedGoogle Scholar
• Shnaigat M, Downie S, Hosseinzadeh H. Effectiveness of patient activation interventions on chronic obstructive pulmonary disease self-management outcomes: a systematic review. Aust J Rural Health. 2022;30(1):8–21. doi:10.1111/ajr.12828
   PubMed Web of Science ®Google Scholar
• Peters JB, Antons JC, Koolen EH, et al. Patient activation is a treatable trait in patients with chronic airway diseases: an observational study. Front Psychol. 2022;13. doi:10.3389/fpsyg.2022.947402
   Web of Science ®Google Scholar
• Yadav UN, Hosseinzadeh H, Baral KP. Self-management and patient activation in COPD patients: an evidence summary of randomized controlled trials. Clin Epidemiol Glob Health. 2018;6(3):148–154. doi:10.1016/j.cegh.2017.10.004
   Web of Science ®Google Scholar
• Grönloh C, Myreteg G, Cajander A, Rexhepi H. “why do they need to check me?” Patient participation through eHealth and the doctor-patient relationship: qualitative study. J Med Internet Res. 2018;20(1). doi:10.2196/jmir.8444
   Web of Science ®Google Scholar
• Redman BK. Responsibility for control; ethics of patient preparation for self-management of chronic disease. Bioethics. 2007;21(5):243–250. doi:10.1111/j.1467-8519.2007.00550.x
   PubMed Web of Science ®Google Scholar
• Gemert-Pijnen J, Kelders S, Kip H, Sanderman R. EHealth Research, Theory and Development: A Multi-Disciplinary Approach. Routledge; 2018.
   Google Scholar
• Pieterse M, Kip H, Cruz-Martínez RR. The complexity of eHealth implementation: a theoretical and practical perspective. In: EHealth Research, Theory and Development. Routledge; 2018:247–270.
   Google Scholar
• Nilsen ER, Stendal K, Gullslett MK. Implementation of eHealth technology in community health care: the complexity of stakeholder involvement. BMC Health Serv Res. 2020;20(1). doi:10.1186/s12913-020-05287-2
   Web of Science ®Google Scholar
• Cvetanovska N, Jessup RL, Wong Shee A, Rogers S, Beauchamp A. Patients’ perspectives of factors influencing active participation in healthcare interactions: a qualitative study. Patient Educ Couns. 2023;114:107808. doi:10.1016/j.pec.2023.107808
   PubMed Web of Science ®Google Scholar