355
Views
1
CrossRef citations to date
0
Altmetric
REVIEW

Optimizing Haemophilia Care in Resource-Limited Countries: Current Challenges and Future Prospects

, , & ORCID Icon
Pages 141-146 | Received 15 Oct 2022, Accepted 01 Feb 2023, Published online: 20 Feb 2023

References

  • Stonebraker JS, Bolton-Maggs PH, Michael Soucie J, Walker I, Brooker M. A study of variations in the reported haemophilia B prevalence around the world. Haemophilia. 2012;18:91–94. doi:10.1111/j.1365-2516.2011.02588.x
  • World Federation of Hemophilia. Nigeria includes bleeding disorders in national policy and strategic plan. Available from: https://wfh.org/nigeria-includes-bleeding-disorders-in-national-policy-and-strategic-plan/. Accessed February 2, 2023.
  • World Federation of Hemophilia. Economic benefits of basic hemophilia management and care; 2004. Available from: http://www.wfh.org. Accessed February 2, 2023.
  • World Federation of Hemophilia. Report on the Annual Global Survey 2019. Montreal: WFH; 2020.
  • World Federation of Hemophilia. Report on the Annual Global Survey 2020. Montreal: World Federation of Hemophilia; 2021.
  • Mbanya DN, Diop S, Ndoumba Mintya AN, et al. Hemophilia care in Africa: status and challenges. Transfus Clin Biol. 2021;28:158–162. doi:10.1016/j.tracli.2021.01.008
  • Haute autorite de Sante. Protocole National de Diagnostic Et de Soins (PNDS) Hemophilie. France: Haute autorite de Sante; 2019.
  • Federation Mondiale de l’Hemophilie. Lignes directrices pour la prise en charge de l’hemophilie. Montreal: Federation Mondiale de l’Hemophilie; 2012.
  • Srivastava A, Santagostino E, Dougall A, et al. WFH guidelines for the management of hemophilia. Haemophilia. 2020;00:1–158.
  • Tagny CT, Mbanya D, Tapko JB, Lefrère JJ. Blood safety in Sub-Saharan Africa: a multi-factorial problem. Transfusion. 2008;48:1256–1261. doi:10.1111/j.1537-2995.2008.01697.x
  • World Health Organisation. African Region Status Report on Blood Availability, Safety and Quality. Brazzaville: AFRO; 2022.
  • Weyand AC, Pipe SW. New therapies for hemophilia. Blood. 2019;133:389–398. doi:10.1182/blood-2018-08-872291
  • Ghosh K, Ghosh K. Overcoming the challenges of treating hemophilia in resource-limited nations: a focus on medication access and adherence. Expert Rev Hematol. 2021;14:721–730. doi:10.1080/17474086.2021.1957826
  • Okoye HC, Korubo KI, Nwogoh B, et al. Challenges in the management of bleeding disorders in Nigeria. Niger J Clin Pract. 2018;21:468–472. doi:10.4103/njcp.njcp_319_17
  • Nzometia CY, Tagny CT, Ndoumba AM, Balogog PN, Mbanya DN. Assessing the quality of care for haemophilia at the Yaoundé reference treatment Centre of Cameroon. Blood Coagul Fibrinolysis. 2017;28:176–180. doi:10.1097/MBC.0000000000000549
  • Diop S, Haffar A, Mahlangu J, Chami I, Kitchen S, Pierce G. Improving access to hemophilia care in sub-Saharan Africa by capacity building. Blood Adv. 2019;3:1–4. doi:10.1182/bloodadvances.2019GS121537
  • Balogog PN, Tagny CT, Ndoumba A, Mbanya D. FVIII and FIX inhibitors in people living with hemophilia in Cameroon, Africa: a preliminary study. Int Jnl Lab Hem. 2014;36:566–570. doi:10.1111/ijlh.12190
  • Chendjou A, Ndoumba A, Kalla C, Tayou C, Mbanya D. FVIII inhibitors during primary prophylaxis for hemophilia A: a pilot study in Cameroon. J Blood Transfusions Dis. 2020;3:126–129.
  • World Health Organisation. Guidance on Increasing Supplies of Plasma-Derived Medicinal Products in Low- and Middle-Income Countries Through Fractionation of Domestic Plasma. Geneva: World Health Organisation; 2021.
  • Pierce GF, Adediran M, Diop S, et al. Achieving access to haemophilia care in low-income and lower-middle-income countries: expanded humanitarian aid program of the world federation of hemophilia after 5 years. Lancet Haematol. 2022;9(9):e689–e697. PMID: 36055333. doi:10.1016/S2352-3026(22)00209-5