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Tracking the Transformation of Novel Sequencing Practices into Clinical Services

Created 26 Sep 2022| Updated 20 Oct 2022 | 7 articles

The papers gathered in this special issue offer us an important, empirically rich glimpse at on-the-ground efforts in the United States to realize the promise of genomics in the clinic. What they make amply clear is that two decades after the completion of the Human Genome Project, for most the benefits of the much-touted precision medicine remain – at best – uncertain.

Edited by

Sarah Ackerman(University of California San Francisco)

Simon Outram(Victoria University)

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Article
The pathos of precision
Jenny Reardon

Originally published in New Genetics and Society, Volume: 41, Number: 3 (03 Jul 2022) Tracking the Transformation of Novel Sequencing Practices into Clinical Services; Sara Ackerman, Simon Outram

Published online: 29 Aug 2022
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Article
Promising precision medicine: how patients, clinicians and caregivers work to realize the potential of genomics-informed cancer care
Sara L. Ackerman

Originally published in New Genetics and Society, Volume: 41, Number: 3 (03 Jul 2022) Tracking the Transformation of Novel Sequencing Practices into Clinical Services; Sara Ackerman, Simon Outram

Published online: 11 Dec 2021
AbstractforPromising precision medicine: how patients, clinicians and caregivers work to realize the potential of genomics-informed cancer care | Full Text | References | PDF (291.3 KB) | EPUB
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Article
The challenge of recruiting diverse populations into health research: an embedded social science perspective
Simon M. Outram, Sara L. Ackerman, Matthew Norstad & Barbara Koenig

Originally published in New Genetics and Society, Volume: 41, Number: 3 (03 Jul 2022) Tracking the Transformation of Novel Sequencing Practices into Clinical Services; Sara Ackerman, Simon Outram

Published online: 06 Sep 2022
AbstractforThe challenge of recruiting diverse populations into health research: an embedded social science perspective | Full Text | References | PDF (339.9 KB) | EPUB
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“If relatives inherited the gene, they should inherit the data.” Bringing the family into the room where bioethics happens
Deborah R. Gordon & Barbara A. Koenig

Originally published in New Genetics and Society, Volume: 41, Number: 1 (02 Jan 2022)

Published online: 13 Dec 2021
Abstractfor“If relatives inherited the gene, they should inherit the data.” Bringing the family into the room where bioethics happens | Full Text | References | PDF (275.1 KB) | EPUB
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“It’s personalized, but it’s still bucket based”: the promise of personalized medicine vs. the reality of genomic risk stratification in a breast cancer screening trial
Jennifer Elyse James & Galen Joseph

Originally published in New Genetics and Society, Volume: 41, Number: 3 (03 Jul 2022) Tracking the Transformation of Novel Sequencing Practices into Clinical Services; Sara Ackerman, Simon Outram

Published online: 02 Sep 2022
Abstractfor“It’s personalized, but it’s still bucket based”: the promise of personalized medicine vs. the reality of genomic risk stratification in a breast cancer screening trial | Full Text | References | PDF (522.5 KB) | EPUB
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Article
“Doing Good” in U.S. Cancer Genomics? Valuation practices across the boundaries of research and care in rural community oncology
Katherine Weatherford Darling, Michael Kohut, Susan Leeds, Eric C. Anderson & Paul K.J. Han

Originally published in New Genetics and Society, Volume: 41, Number: 3 (03 Jul 2022) Tracking the Transformation of Novel Sequencing Practices into Clinical Services; Sara Ackerman, Simon Outram

Published online: 12 Jul 2022
Abstractfor“Doing Good” in U.S. Cancer Genomics? Valuation practices across the boundaries of research and care in rural community oncology | Full Text | References | PDF (217.1 KB) | EPUB
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Article
Building the airplane while flying it: tracking the transformation of novel sequencing practices into clinical services
Rayna Rapp & Simon Outram

Originally published in New Genetics and Society, Volume: 41, Number: 3 (03 Jul 2022) Tracking the Transformation of Novel Sequencing Practices into Clinical Services; Sara Ackerman, Simon Outram

Published online: 01 Sep 2022
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