Ethnicity & Health, Volume 16, Issue 4-5 (2011)

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Ethnicity & Health, Volume 16, Issue 4-5 (2011)

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Sickle cell and thalassaemia

Editorial

Editorial
Sickle cell and thalassaemia: global public health issues come of age
Simon M. Dyson & Karl Atkin
Pages: 299-311
Published online: 28 Jul 2011
First Page PreviewforSickle cell and thalassaemia: global public health issues come of age | Full Text | References | PDF (194.5 KB)
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Original Articles

Article
Informing choice or teaching submission to medical authority: a case study of adolescent transitioning for sickle cell patients
Carolyn Moxley Rouse
Pages: 313-325
Published online: 28 Jul 2011
AbstractforInforming choice or teaching submission to medical authority: a case study of adolescent transitioning for sickle cell patients | Full Text | References | PDF (182.5 KB)
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Article
‘He's the dad isn't he?’ Gender, race and the politics of prenatal screening
Kate Reed
Pages: 327-341
Published online: 28 Jul 2011
Abstractfor‘He's the dad isn't he?’ Gender, race and the politics of prenatal screening | Full Text | References | PDF (199.9 KB)
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Article
‘All her children are born that way’: gendered experiences of stigma in families affected by sickle cell disorder in rural Kenya
Vicki M. Marsh, Dorcas M. Kamuya & Sassy S. Molyneux
Pages: 343-359
Published online: 28 Jul 2011
Abstractfor‘All her children are born that way’: gendered experiences of stigma in families affected by sickle cell disorder in rural Kenya | Full Text | References | PDF (207 KB)
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Open Access
Article
Familial influences on antenatal and newborn haemoglobinopathy screening
Fiona Ulph, Tim Cullinan, Nadeem Qureshi & Joe Kai
Pages: 361-375
Published online: 28 Jul 2011
AbstractforFamilial influences on antenatal and newborn haemoglobinopathy screening | Full Text | References | PDF (194.5 KB)
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Article
Ethical implications and practical considerations of ethnically targeted screening for genetic disorders: the case of hemoglobinopathy screening
Cynthia F. Hinton, Althea M. Grant & Scott D. Grosse
Pages: 377-388
Published online: 28 Jul 2011
AbstractforEthical implications and practical considerations of ethnically targeted screening for genetic disorders: the case of hemoglobinopathy screening | Full Text | References | PDF (134 KB)
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Article
Living with sickle cell disease: traversing ‘race’ and identity
Charmaine D. Royal, Charles R. Jonassaint, Jude C. Jonassaint & Laura M. De Castro
Pages: 389-404
Published online: 28 Jul 2011
AbstractforLiving with sickle cell disease: traversing ‘race’ and identity | Full Text | References | PDF (235.7 KB)
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Article
Respect, trust, and the management of sickle cell disease pain in hospital: comparative analysis of concern-raising behaviors, preliminary model, and agenda for international collaborative research to inform practice
James Elander, Mary Catherine Beach & Carlton Haywood Jr
Pages: 405-421
Published online: 28 Jul 2011
AbstractforRespect, trust, and the management of sickle cell disease pain in hospital: comparative analysis of concern-raising behaviors, preliminary model, and agenda for international collaborative research to inform practice | Full Text | References | PDF (234.8 KB)
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Article
Race and social attitudes about sickle cell disease
Shawn M. Bediako & Kimberly R. Moffitt
Pages: 423-429
Published online: 28 Jul 2011
AbstractforRace and social attitudes about sickle cell disease | Full Text | References | PDF (149.4 KB)
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Article
Barriers to conceiving sibling donors for sickle cell disease: perspectives from patients and parents
Gina A. Jae, Adam K. Lewkowitz, Joanna C. Yang, Liang Shen, Amal Rahman & Gustavo Del Toro
Pages: 431-445
Published online: 28 Jul 2011
AbstractforBarriers to conceiving sibling donors for sickle cell disease: perspectives from patients and parents | Full Text | References | PDF (215.7 KB)
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Article
Organized ambivalence: when sickle cell disease and stem cell research converge
Ruha Benjamin
Pages: 447-463
Published online: 28 Jul 2011
AbstractforOrganized ambivalence: when sickle cell disease and stem cell research converge | Full Text | References | PDF (200.6 KB)
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Article
‘I can die today, I can die tomorrow’: lay perceptions of sickle cell disease in Kumasi, Ghana at a point of transition
Jemima A. Dennis-Antwi, Lorraine Culley, David R. Hiles & Simon M. Dyson
Pages: 465-481
Published online: 28 Jul 2011
Abstractfor‘I can die today, I can die tomorrow’: lay perceptions of sickle cell disease in Kumasi, Ghana at a point of transition | Full Text | References | PDF (212.3 KB)
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Open Access
Article
Feasibility of preconception screening for thalassaemia in Indonesia: exploring the opinion of Javanese mothers
Costrie Ganes Widayanti, Annastasia Ediati, Moedrik Tamam, Sultana M.H. Faradz, Erik A. Sistermans & Anne Marie C. Plass
Pages: 483-499
Published online: 28 Jul 2011
AbstractforFeasibility of preconception screening for thalassaemia in Indonesia: exploring the opinion of Javanese mothers | Full Text | References | PDF (705.4 KB)
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