The use of participatory workshops in the development of a new version of the Communication Disability Profile (CDP)

Figures & data

Table 1. Demographic, aphasia and cognitive status of participants with aphasia of the CHUC Group (n=5).

Participant Identification	D.G.	H.A.	J.M.	J.O.	V.C.
Sex	M	F	M	M	M
Age	68	51	56	53	60
Years of schooling	18	12	14	9	12
Professional situation	Retired	Active	Sick Leave	Retired	Retired
Previous occupation	Mechanical Engineer (University Professor)	Clinical Secretary	Government Employee	Salesman	Accountant
Aetiology	Stroke	Stroke	Stroke	Stroke	Stroke
Years post stroke	2	2	1	7	3
LMMSE	W/D 26	W/D 25	W/D 29	W/D 27	W/D 28
Aphasia Type	Broca	Global	Broca	Transcortical motor	Wernicke
AQ/100	33.3	29.7	75.0	77.6	61.7
Speech type^1	Non-fluent	Non-fluent	Non-fluent	Non-fluent	Fluent
Comprehension	8/8	5.5/8	8/8	7/8	4.5/8

AQ – Aphasia Quotient; W/D: without disability

Table 2. Demographic, aphasia, and cognitive status of participants with aphasia of the IPA Group (n= 6).

Participant Identification	B.M.	C.C.	J.C.	J.F.	L.A.	M.P.
Sex	F	M	M	M	F	F
Age	37	58	60	66	63	58
Years of schooling	18	14	4	4	4	4
Professional situation	Retired	Retired	Retired	Retired	Retired	Retired
Previous occupation	Psychologist	Lorry driver	Electrical company Employee	Bank Clerk	Seamstress	Housewife
Aetiology	Stroke	Stroke	Stroke	Stroke	Stroke	Stroke
Years post stroke	3	12	13	4	4	4
LMMSE	W/D 30	W/D 27	W/D 25	W/D 29	W/D 28	W/D 27
Aphasia Type	Broca	Global	Global	Global	Transcortical Motor	Wernicke
AQ/100	66.1	59.9	35.8	48.2	77.6	92.2
Speech type^1	Non-fluent	Non-fluent	Non-fluent	Non-fluent	Non-fluent	Fluent
Comprehension	8/8	6/8	4/8	7/8	8/8	7.5/8

AQ – Aphasia Quotient; W/D: without disability

Table 3. Suggestions about Design.

				Group
Section/ page on CDP	Suggestions	Examples of the suggestions		IPA (n)	CHUC (n)
		CDP-EP version 1	CDP-EP version 2
15; 25; 27; 29; 35: 37; 39; 43; 45; 47; 49; 57	Increase line spacing (participants made a gesture with fingers to increase space).			5	1
All pages	Use colour (participants pointed to the colour option and said “colours” (B.M.)).			6	5
Scales	Number of scales used in CDP- 1 (A1). (“to me it would be this (pointing to A1) … one was enough” (M.P.)).			4	0
Scales	Number of scales used in CDP - 2 Scales (man and woman) (“two scales, one for men and one for women” (J.F.)).			2	5
Scales	Add words “always”, “often”, “sometimes”, “rarely” and “never”, under the respective figures representing the options.			4	4
Scales	Add words on the scales (mentioned in the previous topic and “impossible”, “hard”, “more or less”, “easy” and “very easy”).			4	5
71	Use a single picture (originally, there were 3 pictures for the same subject).			6	4
87;101	Use a single line.			6	5

Table 4. Suggestions made by both groups about the category Clarity in Phases 1 and 2.

		Group
Section/ page on CDP	Suggestions	CHUC (n)	IPA (n)	Suggested by the SLT
49	Add IRS (taxes)	3	0
65	Friendship in the distance	5	0
63	Issues – Paperwork	0	3
63	Increase shop counter size; add IRS (taxes)	5	3
Card 3	Replace the word “Stroke” by “Thrombosis”	5	5
77	Speech balloon aphasia	3	0
13; 17	Speech balloon	0	5
39	Speech balloon (BláBláBlá)	0	6

Table 5. Suggestions made by both groups about the category Clarity in Phases 1 and 2.

		Group
Section/ page on CDP	Suggestions	CHUC (n)	IPA (n)	Suggested by the SLT
Card 2; 3; 31; 35; 39; 61; 62; 64; 66; 89	Balloon Thinking with questions marks (???) – Understanding	5	5
29; 39	Balloon Thinking with clock	0	6
19; 39	Balloon Thinking with specific time clock and red signs	5	0
93	Mouth down	5	0
Card 3	Sad face	5	0
65	Cards	4	0
63	Nurse hat	5	5
99	Blush, sweat, take out garbage	5	0
63	Red cross	5	5
63	Money	5	6
33	Two balloons - Man says “Did you understand?” – Lady says “Yes!”	5	0
67	At home – to specify	0	5
57; 59	Envelope	5	0
Write	To write on the computer	5	2
Write	To write on the phone	5	2
53	To write the person’s name	5	0
65	Parties – Participation	0	2
57	Vertical sheet	0	3
45	Grammatically correct sentence	5	6
45	Phrase by title	3	1
99	Anita’s story (original name: “Martine”, by children’s story)	5	0
63	Hospital	5	2
65	Street image	5	1
79	Image and word “Phone”	5	6
77	Image “Write”	0	5
101	Image “family, house, work” and balloon Thinking	5	0
105	Jogo da Malha (traditional Portuguese game)	5	6
65	Kits Puzzles	4	0
Read	Read a letter from a friend	0	6
Read	Read a book	5	6
Read	Read on the computer	5	6
Read	Read on the phone	5	6
Read	Read a postcard	0	6
Read	Read a magazine	4	0
29; 39	Open book	5	0
65	Crosswords book, Sudoku, Letter soup	4	0
31	Hands down - Understand and Emotions	0	5
63	Marketplace	0	3
63	Business/Issues	5	0

Table 6. Suggestions made by both groups about the category Clarity in Phases 1 and 2.

		Group
Section/ page on CDP	Suggestions	CHUC (n)	IPA (n)	Suggested by the SLT
Communicate	New topic “Communicate” – through the computer	5	0
Speak	New topic “Speak” by the phone	5	6
41; 47; 49	Glasses	0	5
55	Eggs	5	6
99	Word “Do”	0	5
93	Word “Done”	1	1
93	Word “Strength”	5	2
59	Word “IRS” (taxes)	5	5
17; 27	Word “Maps”	5	0
93	Word “Goal”	4	0
65	Fishing, bike, and cards	0	6
83	People sitting in the line	4	0
103	Not confident – look more embarrassed	0	3
63	Square	0	1
13	Remove newspaper	0	4
83	Watchword	5	0
65	Sun	4	0
85	Phone	5	1
77	Phone – Word Dictionary	0	2
5	Television	0	5
93	Angry marks	4	0
3; 7; 8; 12; 14; 15; 27; 43; 51; 57; 59; 61; 62; 64; 66; 89; card 2	Translate	4	3

Figure 1. Indicators used to validate suggestions for the final version of the CDP for the Portuguese population with aphasia.

Table 7. Validated suggestions for the final version of CDP-EP.

Shaded– homogeneous suggestions; not shaded – heterogeneous suggestions

Table 8. Validated suggestions for the final version of CDP - EP.

Shaded – homogeneous suggestions; not shaded – heterogeneous suggestions

Table 9. Validated suggestions for final version of CDP-EP.

Shaded– homogeneous suggestions; not shaded – heterogeneous suggestions