Strategies on personalized medicine and the power of the imagined public

Figures & data

Table 1. The included strategy documents.

Title and year	Aim of the document
A national Danish initiative on precision medicine and individualized medicine Published in 2014 by deans of the health faculties	To present a brief memorandum on the establishment of a national Danish initiative on precision medicine
A national Danish initiative on precision medicine and individualized medicine Published in 2014 by deans of the health faculties	To present the effects of implementing genomic medicine in clinical work at hospitals and the infrastructure and organization needed to realize this.
Personalized medicine and individualized treatment – proposal for a collective Danish effort Published in 2015 by the five regions, Danish Regions (umbrella organization for the five regions), Aarhus University, University of Copenhagen, Aalborg University, University of South Denmark, Danish Patients (interest organization)	To present a proposal for a collective Danish effort on personalized medicine.
Denmark should focus on personalized medicine Published in 2015 – A press release from the Danish Government and Danish Regions	To state that the Danish Government and the Danish Regions have allocated 5 million Danish krone to an initial analysis on the future of personalized medicine
Plan of action for personalized medicine Published in 2015 by Danish Regions	To provide a brief description in plain language of personalized medicine and the regions’ thoughts on personalized medicine
Danes’ thoughts on and attitudes towards personalized medicine and genetic testing Published in 2016 by The Danish Ministry of Health, Danish Regions	To investigate Danes’ attitudes towards personalized medicine by means of a questionnaire and two public meetings.
Terms of reference according to an initial analysis on personalized medicine Published in 2016 by The Danish Ministry of Health	To describe the terms for the initial analysis on personalized medicine
Reporting from the reference group on personalized medicine – an initial analysis. Published in 2016 by the reference group	To present an initial analysis on the implications of implementing a larger national programme for personalized medicine. Describes different scenarios for implementing personalized medicine.
Analysis of personalized medicine – completed for Danish Regions Published in 2016 by Damvad Analytics	To present a mapping of Danish business operators engaged in personalized medicine To analyse – in comparison with other countries – the strength of Danish research engaged with personalized medicine.
Mapping of international experiences with personalized medicine Published in 2016 by The Danish Ministry of Health	To inspire the drawing up of a national strategy on personalized medicine
Memorandum on the use health data Published in 2017 by The Danish Ministry of Health	To describe seven principles for the future use of health data collected by public institutions
Memorandum on changing The Health Law for the establishment of The National Genome Center Published in 2017 by The Danish Ministry of Health	To present different stakeholders’ response to the proposed law for the establishment of the NGC and the ministry's answer to the responses
Timeline for The National Genome Center Published in 2019 – a press release from Danish Regions	To describe the regions’ plan for implementing personalized medicine
Strategic contribution to the development of biobanks in Denmark Published in 2019 by Danish Regions	To present a strategy for the development of the regions’ biobanks within the framework of the national strategy for personalized medicine
Personalized medicine for the benefit of the patients – clear diagnosis, targeted treatment, strengthened research footing. Danish national strategy on personalized medicine 2017–2020. Published in 2016, The Danish Ministry of Health and Danish Regions	To describe a common path towards the national strategy for personalized medicine.
Political agreement on establishing The National Genome Center (NGC) Published in 2018 by the Danish Parliament	To describe the legislative foundation and reasoning for establishing the NGC explicit by law as a government agency
A hearing statement and answers from The Danish Ministry of Health on the establishment of the NGC Published in 2018 by The Danish Ministry of Health	To present a statement from The Danish Ministry of Health at the [legal] hearing on the establishment of the NGC, answering queries from various organizations and actors.
Personalized medicine for the benefit of the patients – clear diagnosis, targeted treatment, strengthened research footing. Danish national strategy on personalized medicine 2021–2022. Published in 2020, The Danish Ministry of Health and Danish Regions	To present an update of the national strategy for personalized medicine from 2017

Table 2. Overview of strategy topics according to time and actors.

Figure 1. Connection between strategy actors and imagined publics.