Long-term outcomes following Fetal Alcohol Spectrum Disorder (FASD) diagnosis in adulthood

ABSTRACT

Background

Early diagnosis of Fetal Alcohol Spectrum Disorder (FASD) is known to improve outcomes in children. It is less clear if diagnosis in adulthood also conveys benefits. This study investigated long-term outcomes for individuals diagnosed with FASD after 18 years of age.

Method

Twenty adults aged 18–45 years at FASD diagnosis were interviewed. Pre-diagnosis information was compared to follow-up information gathered between 1 and 11 years later.

Results

Individuals reported high rates of mental health disorders (55%) and unemployment (85%). Pre-diagnosis, 10% received disability income and 15% were eligible for intellectual disability (ID) services. At follow-up, 90% received disability income and 85% were eligible for ID services. All (100%) enacted at least one assessment recommendation and 75% enacted two. Most (75%) reported having a diagnosis was beneficial, providing better adaptation and self-understanding.

Conclusion

An FASD diagnosis in adulthood can benefit individuals through more access to supports/services and greater personal understanding and adaptation.

KEYWORDS:

• Fetal alcohol spectrum disorder
• FASD
• diagnosis
• adult
• outcomes

Disclosure statement

No potential conflict of interest was reported by the author(s).

Additional information

Funding

This work was supported by a grant from the Public Health Agency of Canada. Additional support was provided by the Centre for Addiction and Mental Health, and Surrey Place. No limitations on publication have been imposed.