“The Attitude Is Essential” The Experience of Two Mothers with Differing Educational Backgrounds Receiving Post-Discharge Intervention after Very Preterm Delivery

References

• Adama, E. A., Bayes, S., & Sundin, D. (2016). Parents’ experiences of caring for preterm infants after discharge from neonatal intensive care unit: A meta-synthesis of the literature. Journal of Neonatal Nursing, 22(1). https://doi.org/10.1016/j.jnn.2015.07.006
   Google Scholar
• Adkins, C. S., & Doheny, K. K. (2017). Exploring preterm mothers’ personal narratives: Influences and meanings. Advances in Nursing Science, 40(2), 154–167. https://doi.org/10.1097/ANS.0000000000000150
   PubMed Web of Science ®Google Scholar
• Al Maghaireh, D. F., Abdullah, K. L., Chan, C. M., Piaw, C. Y., & Al Kawafha, M. M. (2016). Systematic review of qualitative studies exploring parental experiences in the neonatal intensive care unit. Journal of Clinical Nursing, 25(19–20), 2745–2756. https://doi.org/10.1111/jocn.13259
   PubMed Web of Science ®Google Scholar
• Davies, B., Doane, G., Steele, R., Krueger, G., Zhao, Y., Albersheim, S., Garga, D., Siden, H., Strahlendorf, C., Baird, J., Bifirie, M., & Cadell, S. (2017). Best practice in provider/parent interaction. Qualitative Health Research, 27(3), 406–420. https://doi.org/10.1177/1049732316664712
   PubMed Web of Science ®Google Scholar
• Dodds, R. L., Yarbrough, D. V., & Quick, N. (2018). Lessons learned: Providing peer support to culturally diverse families of children with disabilities or special health care needs. Social Work, (20180426). https://doi.org/10.1093/sw/swy019
   PubMed Web of Science ®Google Scholar
• Eatough, V., & Smith, J. A. (2008). Interpretative phenomenological analysis. In C. Willig & W. Stainton-Rogers (Eds.), The sage handbook of qualitative research in psychology (pp. 179–194). Sage. https://doi.org/10.4135/9781848607927.n11
   Google Scholar
• Farina, M. D. M. (2020). Why can’t i be latina, female, and professional? clinical implications of social discourses that render class invisible. Smith College Studies in Social Work, 90(1–2), 54–78. https://doi.org/10.1080/00377317.2020.1706414
   Web of Science ®Google Scholar
• Fernández Medina, I. M., Granero-Molina, J., Fernández-Sola, C., Hernández-Padilla, J. M., Camacho Ávila, M., & López Rodríguez, M. D. M. (2018). Bonding in neonatal intensive care units: Experiences of extremely preterm infants’ mothers. Women & Birth, 31(4), 325–330. https://doi.org/10.1016/j.wombi.2017.11.008
   PubMed Web of Science ®Google Scholar
• Fowler, C., Green, J., Elliott, D., Petty, J., & Whiting, L. (2019). The forgotten mothers of extremely preterm babies: A qualitative study. Journal of Clinical Nursing, 28(11–12), 2124–2134. https://doi.org/10.1111/jocn.14820
   PubMed Web of Science ®Google Scholar
• Galobardes, B., Lynch, J., & Smith, G. D. (2007). Measuring socioeconomic position in health research. British Medical Bulletin, 81-82(1), 21–37. https://doi.org/10.1093/bmb/ldm001
   PubMed Web of Science ®Google Scholar
• Gilstrap, C. M. (2021). Organizational sensegiving in family-centered care: How NICU nurses help families make sense of the NICU experience. Health Communication, 36(13), 1623–1633. https://doi.org/10.1080/10410236.2020.1785373
   PubMed Web of Science ®Google Scholar
• Granero-Molina, J., Fernández Medina, I. M., Fernández-Sola, C., Hernández-Padilla, J. M., Jiménez Lasserrotte, M. D. M., & López Rodríguez, M. D. M. (2019). Experiences of mothers of extremely preterm infants after hospital discharge. Journal of Pediatric Nursing, 45, e2–e8. https://doi.org/10.1016/j.pedn.2018.12.003
   PubMed Web of Science ®Google Scholar
• Gullino, S., Kaiser, A., Khan, H., Phillips, A., Elwin, A., & Edwards, A. D. (2017). New mothers’ experiences of the urban environment with their preterm infants involve complex social, emotional and psychological processes. Acta Paediatrica, International Journal of Paediatrics, 106(3), 405–410. https://doi.org/10.1111/apa.13715
   PubMed Web of Science ®Google Scholar
• Hutchinson, S. W., Spillett, M. A., & Cronin, M. (2012). Parents’ experiences during their infant’s transition from neonatal intensive care unit to home: A qualitative study. Qualitative Report, 17(12). https://doi.org/10.46743/2160-3715/2012.1793
   PubMedGoogle Scholar
• Jeukens-Visser, M., Koldewijn, K., van Wassenaer-Leemhuis, A. G., Flierman, M., Nollet, F., & Wolf, M. J. (2021). Development and nationwide implementation of a postdischarge responsive parenting intervention program for very preterm born children: The TOP program. Infant Mental Health Journal, 42(3), 423–437. https://doi.org/10.1002/imhj.21902
   PubMed Web of Science ®Google Scholar
• Karpman, H., & Miller, J. (2020). Social class and social work in the age of trump. Smith College Studies in Social Work, 90(1), 79–95. https://doi.org/10.1080/00377317.2020.1706416
   Web of Science ®Google Scholar
• Koldewijn, K., Wolf, M. J., van Wassenaer, A., Meijssen, D., van Sonderen, L., van Baar, A., Beelen, A., Nollet, F., & Kok, J. (2009). The infant behavioral assessment and intervention program for very low birth weight infants at 6 months corrected age. The Journal of Pediatrics, 154(1), 33–38.e2. https://doi.org/10.1016/j.jpeds.2008.07.039
   PubMed Web of Science ®Google Scholar
• Kraemer, S. B. (2006). So the cradle won’t fall: Holding the staff who hold the parents in the nicu. Psychoanalytic Dialogues, 16(2), 149–164. https://doi.org/10.2513/s10481885pd1602_4
   Web of Science ®Google Scholar
• Labrie, N. H. M., van Veenendaal, N. R., Ludolph, R. A., Ket, J. C. F., van der Schoor, S. R. D., & van Kempen, A. A. M. W. (2021). Effects of parent-provider communication during infant hospitalization in the NICU on parents: A systematic review with meta-synthesis and narrative synthesis. Patient Education & Counseling, 104(7). https://doi.org/10.1016/j.pec.2021.04.023
   Web of Science ®Google Scholar
• Lareau, A. (2018). Unequal childhoods; class, race, and family life (2nd ed.). University of California.
   Google Scholar
• Lavallée, A., De Clifford-Faugère, G., Garcia, C., Fernandez Oviedo, A. N., Héon, M., & Aita, M. (2019). PART 2: Practice and research recommendations for quality developmental care in the NICU. Journal of Neonatal Nursing, 25(4), 160–165. https://doi.org/10.1016/j.jnn.2019.03.008
   Google Scholar
• Lesser, J. (2020). Introduction to smith studies in social work: Special issue on social work and social class. Smith College Studies in Social Work, 90(1), 1–6. https://doi.org/10.1080/00377317.2019.1686932
   Web of Science ®Google Scholar
• Lizzi, D. F. (2020). Classless: Classism in social work practice and the example of white rural poverty. Smith College Studies in Social Work, 90(1), 7–24. https://doi.org/10.1080/00377317.2020.1706330
   Web of Science ®Google Scholar
• Lorié, E. S., Wreesmann, W. J. W., van Veenendaal, N. R., van Kempen, A. A. M. W., & Labrie, N. H. M. (2021). Parents’ needs and perceived gaps in communication with healthcare professionals in the neonatal (intensive) care unit: A qualitative interview study. Patient Education and Counseling, 104(7), 1518–1525. https://doi.org/10.1016/j.pec.2020.12.007
   PubMed Web of Science ®Google Scholar
• Murdoch, M. R., & Franck, L. S. (2012). Gaining confidence and perspective: A phenomenological study of mothers’ lived experiences caring for infants at home after neonatal unit discharge. Journal of Advanced Nursing, 68(9), 2008–2020. https://doi.org/10.1111/j.1365-2648.2011.05891.x
   PubMed Web of Science ®Google Scholar
• Nizza, I. E., Farr, J., & Smith, J. A. (2021). Achieving excellence in interpretative phenomenological analysis (IPA): Four markers of high quality. Qualitative Research in Psychology, 18(3), 369–386. https://doi.org/10.1080/14780887.2020.1854404
   Web of Science ®Google Scholar
• Noon, E. J. (2017). An interpretative phenomenological analysis of the barriers to the use of humour in the teaching of childhood studies. Journal of Perspectives in Applied Academic Practice, 5(3), 45–52. https://doi.org/10.14297/jpaap.v5i3.255
   Google Scholar
• O’Donovan, A., & Nixon, E. (2019). “Weathering the storm:” mothers’ and fathers’ experiences of parenting a preterm infant. Infant Mental Health Journal, 40(4), 573–587. https://doi.org/10.1002/imhj.21788
   PubMed Web of Science ®Google Scholar
• Olshtain-Mann, O., & Auslander, G. K. (2008). Parents of preterm infants two months after discharge from the hospital: Are they still at (parental) risk? Health & Social Work, 33(4), 299–308. https://doi.org/10.1093/hsw/33.4.299
   PubMed Web of Science ®Google Scholar
• Quest, A. D. (2014). Out of the way and out of place : an interpretative phenomenological analysis of the experiences of social interactions of bisexually attracted young people [ Dissertation]. Portland State University.
   Google Scholar
• Ramaekers, S., & Suissa, J. (2012). The claims of parenting: Reasons, responsibility and society. In The claims of parenting: Reasons. Responsibility and Society. https://doi.org/10.1007/978-94-007-2251-4
   Google Scholar
• Russell, G., Sawyer, A., Rabe, H., Abbott, J., Gyte, G., Duley, L., Ayers, S., Aladangady, N., Batra, D., Kumar, A., Brown, J., Lance, L., & Ooi, L. (2014). Parents’ views on care of their very premature babies in neonatal intensive care units: A qualitative study. BMC Pediatrics, 14(1). https://doi.org/10.1186/1471-2431-14-230
   Google Scholar
• Sigurdson, K., Morton, C., Mitchell, B., & Profit, J. (2018). Disparities in NICU quality of care: A qualitative study of family and clinician accounts. Journal of Perinatology, 38(5), 600–607. https://doi.org/10.1038/s41372-018-0057-3
   PubMed Web of Science ®Google Scholar
• Sigurdson, K., Profit, J., Dhurjati, R., Morton, C., Scala, M., Vernon, L., Randolph, A., Phan, J. T., & Franck, L. S. (2020). Former NICU families describe gaps in family-centered care. Qualitative Health Research, 30(12), 1861–1875. https://doi.org/10.1177/1049732320932897
   PubMed Web of Science ®Google Scholar
• Smith, J. A. (2004). Reflecting on the development of interpretative phenomenological analysis and its contribution to qualitative research in psychology. Qualitative Research in Psychology, 1(1), 39–54. https://doi.org/10.1191/1478088704qp004oa
   Web of Science ®Google Scholar
• Smith, J. A. (2007). Hermeneutics, human sciences and health: Linking theory and practice. International Journal of Qualitative Studies on Health and Well-Being, 2(1), 3–11. https://doi.org/10.1080/17482620601016120
   Google Scholar
• Smith, J. A., & Eatough, V. (2006). Interpretative phenomenological analysis. In G. M. Breakwell, S. Hammond, C. Fife-Schaw, & J. A. Smith (Eds.), Research methods in psychology (pp. 322–341). Sage.
   Google Scholar
• Smith, J. A., Flowers, P., & Larkin, M. (2022). Interpretative phenomenological analysis: Theory, method and research (2nd ed.). Sage.
   Google Scholar
• Smith, J. A., & Osborne, M. (2008). Interpretative phenomenological analysis. In J. A. Smith (Ed.), Qualitative psychology: A practical guide to research methods (pp. 51–81). Sage .
   Google Scholar
• Spiers, J., & Riley, R. (2019). Analysing one dataset with two qualitative methods: The distress of general practitioners, a thematic and interpretative phenomenological analysis. Qualitative Research in Psychology, 16(2), 276–290. https://doi.org/10.1080/14780887.2018.1543099
   Web of Science ®Google Scholar
• Spinelli, M., Frigerio, A., Montali, L., Fasolo, M., Spada, M. S., & Mangili, G. (2016). ‘I still have difficulties feeling like a mother’: The transition to motherhood of preterm infants mothers. Psychology and Health, 31(2), 184–204. https://doi.org/10.1080/08870446.2015.1088015
   PubMed Web of Science ®Google Scholar
• Steinberg, Z., & Patterson, C. (2017). Giving voice to the psychological in the NICU: A relational model. Journal of Infant Child, & Adolescent Psychotherapy, 16(1), 25–44. https://doi.org/10.1080/15289168.2016.1267539
   Google Scholar
• Stern, D. N. (2018). The motherhood constellation: A unified view of parent-infant psychotherapy. In The motherhood constellation. A Unified View of Parent-Infant Psychotherapy. https://doi.org/10.4324/9780429482489
   Google Scholar
• Stuij, M. S., Muntinga, M. E., Bakker, M., Bendien, E. M., & Verdonk, P. (2020). Secundaire intersectionele analyse in kwalitatief gezondheidszorgonderzoek: Praktische handleiding Handleiding secundaire intersectionele kwalitatieve analyse. Amsterdam: UMC.https://doi.org/10.5281/zenodo.3901443
   Google Scholar
• Taubman-Ben-Ari, O., & Spielman, V. (2014). Personal growth following the first child’s birth: A comparison of parents of pre- and full-term babies. Social Work Research, 38(2), 91–106. https://doi.org/10.1093/swr/svu011
   Web of Science ®Google Scholar
• Trujillo, J. A., Fernandez, Y., Ghafoori, L., Lok, K., & Valencia, A. (2017). Interdisciplinary family conferences to improve patient experience in the neonatal intensive care unit. Health & Social Work, 42(4), 241–246. https://doi.org/10.1093/hsw/hlx039
   PubMed Web of Science ®Google Scholar
• Turner, M., Chur-Hansen, A., & Winefield, H. (2014). The neonatal nurses’ view of their role in emotional support of parents and its complexities. Journal of Clinical Nursing, 3156–3165. https://doi.org/10.1111/jocn.12558 23 21–22
   PubMed Web of Science ®Google Scholar
• Van der Pas, A. (2003). A serious case of neglect; the parental experience of child rearing. Eburon.
   Google Scholar
• Van Hus, J. W. P., Jeukens-Visser, M., Koldewijn, K., Holman, R., Kok, J. H., Nollet, F., & Van Wassenaer-Leemhuis, A. G. (2016). Early intervention leads to long-term developmental improvements in very preterm infants, especially infants with bronchopulmonary dysplasia. Acta Paediatrica, International Journal of Paediatrics, 105(7), 773–781. https://doi.org/10.1111/apa.13387
   PubMed Web of Science ®Google Scholar
• Van Wassenaer-Leemhuis, A. G., Jeukens-Visser, M., van Hus, J. W. P., Meijssen, D., Wolf, M. J., Kok, J. H., Nollet, F., & Koldewijn, K. (2016). Rethinking preventive post-discharge intervention programmes for very preterm infants and their parents. Developmental Medicine and Child Neurology, 58(S4), 67–73. https://doi.org/10.1111/dmcn.13049
   PubMedGoogle Scholar
• Vasileiou, K., Barnett, J., Thorpe, S., & Young, T. (2018). Characterising and justifying sample size sufficiency in interview-based studies: Systematic analysis of qualitative health research over a 15-year period. Bmc Medical Research Methodology, 18(1), 1–18. https://doi.org/10.1186/s12874-018-0594-7
   PubMed Web of Science ®Google Scholar
• Vincent, C., & Maxwell, C. (2016). Parenting priorities and pressures: Furthering understanding of ‘concerted cultivation. Discourse, 37(2), 269–281. https://doi.org/10.1080/01596306.2015.1014880
   Web of Science ®Google Scholar
• Weille, K. L. H. (2011). Making sense of parenthood: On ambivalence and resourcefulness. SWP.
   Google Scholar
• Weise, M. D. (2020). Helpless and defended: An encounter with class counter-transference. Smith College Studies in Social Work, 90(1–2), 41–53. https://doi.org/10.1080/00377317.2020.1706346
   Web of Science ®Google Scholar
• Wilson, C., & Cook, C. (2018). Ambiguous loss and post-traumatic growth: Experiences of mothers whose school-aged children were born extremely prematurely. Journal of Clinical Nursing, (7–8), 27(7–8. https://doi.org/10.1111/jocn.14319
   Web of Science ®Google Scholar
• World Health Organisation. (2023) Preterm Birth. Retrieved October 20, 2023 from https://www.who.int/news-room/fact-sheets/detail/preterm-birth
   Google Scholar
• World Medical Association. (2018) Declaration of Helsinki- Ethical Principles for Medical Research Involving Human Subjects. https://www.wma.net/policies-post/wma-declaration-of-helsinki-ethical-principles-for-medical-research-involving-human-subjects/
   Google Scholar
• Yaari, M., Millo, I., Harel-Gadassi, A., Friedlander, E., Bar-Oz, B., Eventov-Friedman, S., Mankuta, D., & Yirmiya, N. (2017). Maternal resolution of preterm birth from 1 to 18 months. Attachment and Human Development, 19(5), 487–503. https://doi.org/10.1080/14616734.2017.1324499
   PubMed Web of Science ®Google Scholar
• Yardley, L. (2000). Dilemmas in qualitative health research. Psychology and Health, 15(2), 215–228. https://doi.org/10.1080/08870440008400302
   Web of Science ®Google Scholar