Addressing Self-Stigma in Fibromyalgia Using Pain Neuroscience Education: An Occupational Therapy Case Study

References

• American College of Rheumatology. (2019). Fibromyalgia. Retrieved December 8, 2019, from https://www.rheumatology.org/I-AM-A/Patient-Caregiver/Diseases-Conditions/Fibromyalgia
   Google Scholar
• American Occupational Therapy Association (AOTA). (2020). Occupational therapy practice framework: Domain and process (4th ed.). American Journal of Occupational Therapy, 74(Suppl. 2), 7412410010. https://doi.org/10.5014/ajot.2020.74S2001
   Google Scholar
• American Occupational Therapy Association (AOTA). (2021). Position statement—role of occupational therapy in pain management. American Journal of Occupational Therapy, 75(Suppl. 3), 7513410010. https://doi.org/10.5014/ajot.2021.75S3001
   Web of Science ®Google Scholar
• Armentor, J. L. (2017). Living with a contested, stigmatized illness: Experiences of managing relationships among women with fibromyalgia. Qualitative Health Research, 27(4), 462–473. https://doi.org/10.1177/1049732315620160
   PubMed Web of Science ®Google Scholar
• Artino, A. R. (2012). Academic self-efficacy: From educational theory to instructional practice. Perspectives on Medical Education, 1(2), 76–85. https://doi.org/10.1007/s40037-012-0012-5
   PubMedGoogle Scholar
• Ataoğlu, S., Ankaralı, H., Ankaralı, S., Ataoğlu, B. B., & Ölmez, S. B. (2018). Quality of life in fibromyalgia, osteoarthritis and rheumatoid arthritis patients: Comparison of different scales. The Egyptian Rheumatologist, 40(3), 203–208. https://doi.org/10.1016/j.ejr.2017.09.007
   Web of Science ®Google Scholar
• Bandura, A. (1977). Self-efficacy: Toward a unifying theory of behavioral change. Psychological Review, 84(2), 191–215. https://doi.org/10.1037/0033-295X.84.2.191
   PubMed Web of Science ®Google Scholar
• Bean, D. J., Dryland, A., Rashid, U., & Tuck, N. L. (2022). The determinants and effects of chronic pain stigma: A mixed methods study and the development of a model. The Journal of Pain, 23(10), 1749–1764. https://doi.org/10.1016/j.jpain.2022.05.006
   PubMed Web of Science ®Google Scholar
• Beaton, D. E., Wright, J. G., Katz J. N. & Upper Extremity Collaborative Group. (2005). Development of the QuickDASH: Comparison of three item-reduction approaches. Journal of Bone and Joint Surgery, 87(5), 1038–1046. https://doi.org/10.2106/JBJS.D.02060
   Google Scholar
• Cohen, M., Quintner, J., Buchanan, D., Nielsen, M., & Guy, L. (2011). Stigmatization of patients with chronic pain: The extinction of empathy. Pain Medicine (Malden, Mass.), 12(11), 1637–1643. https://doi.org/10.1111/j.1526-4637.2011.01264.x
   PubMed Web of Science ®Google Scholar
• Corrigan, P. W., Larson, J. E., & Rüsch, N. (2009). Self-stigma and the “why try” effect: Impact on life goals and evidence-based practices. World Psychiatry : Official Journal of the World Psychiatric Association (WPA), 8(2), 75–81. https://doi.org/10.1002/j.2051-5545.2009.tb00218.x
   PubMed Web of Science ®Google Scholar
• Davis, C., & Gillard, M. (2021, October). From stigma to solidarity: Pain neuroscience education in occupational therapy [Virtual poster presentation]. USA Annual Conference, St. Petersburg, FL, USA.
   Google Scholar
• De Ruddere, L., Bosmans, M., Crombez, G., & Goubert, L. (2016). Patients are socially excluded when their pain has no medical explanation. The Journal of Pain, 17(9), 1028–1035. https://doi.org/10.1016/j.jpain.2016.06.005
   PubMed Web of Science ®Google Scholar
• De Ruddere, L., & Craig, K. D. (2016). Understanding stigma and chronic pain: A-state-of-the-art review. Pain, 157(8), 1607–1610. https://doi.org/10.1097/j.pain.0000000000000512
   PubMed Web of Science ®Google Scholar
• Eneberg-Boldon, K., Schaack, B., & Joyce, K. (2020). Pain neuroscience education as the foundation of interdisciplinary pain treatment. Physical Medicine and Rehabilitation Clinics of North America, 31(4), 541–551. https://doi.org/10.1016/j.pmr.2020.07.004
   PubMed Web of Science ®Google Scholar
• Goffman, E. (1997). Selections from stigma. In L. J. Davis (Ed.), The disability studies reader (pp. 203–215). Taylor & Francis.
   Google Scholar
• International Association for the Study of Pain (2020). Terminology: Pain. https://www.iasp-pain.org/Education/Content.aspx?ItemNumber=1698#Pain
   Google Scholar
• Johnson, M. I. (2019). The landscape of chronic pain: Broader perspectives. Medicina, 55(5), 182. https://doi.org/10.3390/medicina55050182
   PubMed Web of Science ®Google Scholar
• Kumar, N. (2007). WHO normative guidelines on pain management. Report of a Delphi study to determine the need for guidelines and to identify the number and topics of guidelines that should be developed by WHO. WHO.http://www.ayurvedar.com/images/delphi_study_pain_guidelines.pdf
   Google Scholar
• Law, M., Baptiste, S., Carswell, A., McColl, M. A., Polatajko, H., & Pollock, N. (2014). COPM: Canadian occupational performance measure (5th ed.). CAOT Publications.
   Google Scholar
• Law, M., Baptiste, S., McColl, M., Opzoomer, A., Polatajko, H., & Pollock, N. (1990). The Canadian occupational performance measure: An outcome measure for occupational therapy. Canadian Journal of Occupational Therapy. Revue canadienne d'ergotherapie, 57(2), 82–87. https://doi.org/10.1177/000841749005700207
   PubMedGoogle Scholar
• Louw, A. (2014). Why You Hurt: Therapeutic neuroscience education system. Orthopedic Physical Therapy Products.
   Google Scholar
• Louw, A., Podalak, J., Zimney, K., Schmidt, S., & Puentedura, E. J. (2018). Can pain beliefs change in middle school students? A study of the effectiveness of pain neuroscience education. Physiotherapy Theory and Practice, 34(7), 542–550. https://doi.org/10.1080/09593985.2017.1423142
   PubMed Web of Science ®Google Scholar
• Louw, A., Puentedura, E. J., Diener, I., & Peoples, R. R. (2015). Preoperative therapeutic neuroscience education for lumbar radiculopathy: A single-case fMRI report. Physiotherapy Theory and Practice, 31(7), 496–508. https://doi.org/10.3109/09593985.2015.1038374
   PubMed Web of Science ®Google Scholar
• Louw, A., Zimney, K., Puentedura, E. J., & Diener, I. (2016). The efficacy of pain neuroscience education on musculoskeletal pain: A systematic review of the literature. Physiotherapy Theory and Practice, 32(5), 332–355. https://doi.org/10.1080/09593985.2016.1194646
   PubMed Web of Science ®Google Scholar
• McParland, J., Hezseltine, L., Serpell, M., Eccleston, C., & Stenner, P. (2011). An investigation of constructions of justice and injustice in chronic pain: A Q-methodology approach. Journal of Health Psychology, 16(6), 873–883. https://doi.org/10.1177/1359105310392417
   PubMed Web of Science ®Google Scholar
• Moseley, G. L. (2004). Evidence for a direct relationship between cognitive and physical change during an education intervention in people with chronic low back pain. European Journal of Pain (London, England), 8(1), 39–45. https://doi.org/10.1016/S1090-3801(03)00063-6
   PubMed Web of Science ®Google Scholar
• Nicholas, M. K., McGuire, B. E., & Asghari, A. (2015). A 2-item short form of the Pain Self-efficacy Questionnaire: Development and psychometric evaluation of PSEQ-2. The Journal of Pain, 16(2), 153–163. https://doi.org/10.1016/j.jpain.2014.11.002
   PubMed Web of Science ®Google Scholar
• Nielsen, A. (2012). Journeys with chronic pain: Acquiring stigma along the way. In H. McKenzie, J. Quintner, & G. Bendelow (Eds.), At the edge of being: The aporia of pain (pp 83–97) .Inter-Disciplinary Press.
   Google Scholar
• Perugino, F., De Angelis, V., Pompili, M., & Martelletti, P. (2022). Stigma and chronic pain. Pain and Therapy, 11, 1085–1094. https://doi.org/10.1007/s40122-022-00418-5
   PubMed Web of Science ®Google Scholar
• Raja, S. N., Carr, D. B., Cohen, M., Finnerup, N. B., Flor, H., Gibson, S., Keefe, F. J., Mogil, J. S., Ringkamp, M., Sluka, K. A., Song, X. J., Stevens, B., Sullivan, M. D., Tutelman, P. R., Ushida, T., & Vader, K. (2020). The revised International Association for the Study of Pain definition of pain: Concepts, challenges, and compromises. Pain, 161(9), 1976–1982. https://doi.org/10.1097/j.pain.0000000000001939
   Google Scholar
• Ryan, C. G., Gray, H. G., Newton, M., & Granat, M. H. (2010). Pain biology education and exercise classes compared to pain biology education alone for individuals with chronic low back pain: A pilot randomized controlled trial. Manual Therapy, 15(4), 382–387. https://doi.org/10.1016/j.math.2010.03.003
   PubMed Web of Science ®Google Scholar
• Snodgrass, J., & Amini, D. (2017). Occupational therapy practice guidelines for adults with musculoskeletal conditions. AOTA Press.
   Google Scholar
• Sullivan, M. J., Bishop, S. R., & Pivik, J. (1995). The pain catastrophizing scale: Development and validation. Psychological Assessment, 7(4), 524–532. https://doi.org/10.1037/1040-3590.7.4.524
   Web of Science ®Google Scholar
• Watson, J. A., Ryan, C. G., Cooper, L., Ellington, D., Whittle, R., Lavender, M., Dixon, J., Atkinson, G., Cooper, K., & Martin, D. J. (2019). Pain neuroscience education for adults with chronic musculoskeletal pain: A mixed-methods systematic review and meta-analysis. The Journal of Pain, 20(10), 1140.e1–1140.e22. https://doi.org/10.1016/j.jpain.2019.02.011
   PubMed Web of Science ®Google Scholar
• Waugh, O. C., Byrne, D. G., & Nicholas, M. K. (2014). Internalized stigma in people living with chronic pain. The Journal of Pain, 15(5), 550-e1–550.e10. https://doi.org/10.1016/j.jpain.2014.02.001
   PubMedGoogle Scholar
• Wong, E. M. L., Chan, S. W. C., & Chair, S. Y. (2010). Effectiveness of an educational intervention on levels of pain, anxiety and self‐efficacy for patients with musculoskeletal trauma. Journal of Advanced Nursing, 66(5), 1120–1131. https://doi.org/10.1111/j.1365-2648.2010.05273.x
   PubMed Web of Science ®Google Scholar