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Bereavement Care Volume 39, 2020 - Issue 2
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Articles

Bereavement support in the UK – a rapid evidence assessment

Alistair Hewisona Reader in the Organisation and Management of Care, School of Nursing, Institute of Clinical Sciences, College of Medical and Dental Sciences, University of [email protected]View further author information
,
Shazia Zafarb Research Fellow, School of Nursing, Institute of Clinical Sciences, College of Medical and Dental Sciences, University of [email protected]View further author information
&
Nikolaos Efstathiouc Lecturer in Nursing, School of Nursing, Institute of Clinical Sciences, College of Medical and Dental Sciences, University of [email protected]ORCID Iconhttps://orcid.org/0000-0001-5811-8982View further author information
ORCID Icon
Pages 69-78 | Published online: 16 Jul 2020

  • Agnew, A., & Duffy, J. (2009). Effecting positive change with bereaved service users in a hospice setting. International Journal of Palliative Nursing, 15(3), 110, 112, 114–18.
  • Agnew, A., Manktelow, R., & Donaghy, K. (2008). User perspectives on palliative care services: Experiences of middle-aged partners bereaved through cancer known to social work services in Northern Ireland. Practice, 20(3), 163–180.
  • Agnew, A., Manktelow, R., Haynes, T., & Jones, L. (2011). Bereavement assessment practice in hospice settings: Challenges for palliative care social workers. British Journal of Social Work, 41, 111–130.
  • Aoun, S. M., Ewing, G., Grande, G., Toye, C., & Bear, N. (2018). The impact of supporting family caregivers before bereavement on outcomes after bereavement: Adequacy of end-of-life support and achievement of preferred place of death. Journal of Pain and Symptom Management, 55(2), 368–378.
  • Arthur, A., Wilson, E., James, M., Stanton, W., & Seymour, J. (2010). Bereavement care services: a synthesis of the literature - final report of review commissioned by DH to support implementation of the End of Life Care Strategy. Department of Health.
  • Barends, E., Rousseau, D. M., & Briner, R. B. (eds.). (2017). CEBMa guideline for rapid evidence assessments in management and organizations, Version 1.0. Center for Evidence Based Management. Retrieved from www.cebma.org/wp-content/uploads/CEBMa-REA-Guideline.pdf [accessed 19 January 2020].
  • Beardsley, C. (2009). In need of further tuning': Using a US patient satisfaction with chaplaincy instrument in a UK multi-faith setting, including the bereaved. Clinical Medicine, 9, 53–8.
  • Bereavement Services Association and Cruse Bereavement Care. (2013). Bereavement Care Service Standards. Bereavement Services Association and Cruse Bereavement Care. Retrieved from www.cruse.org.uk/sites/default/files/default_images/pdf/Documents-and-fact-sheets/Bereavement_Care_Service_Standards.pdf [accessed 29 January 2020].
  • Berry, M., Brink, E., & Metaxa, V. (2017). Time for change? A national audit on bereavement care in intensive care units. Journal of the Intensive Care Society, 18, 11–16.
  • Booth, A., Meier, P., Shapland, J., Wong, R., & Paisley, S. (2011). Alcohol pricing and criminal harm: A rapid evidence assessment of the published research literature’. School of Health and Related Research (ScHARR). Retrieved from www.ias.org.uk/uploads/pdf/Crime%20and%20social%20impacts%20docs/rapid-evidence-assessment.pdf [accessed 29 January 2020].
  • Boyden, P., Freeman, A., & Offen, L. (2009). Setting up and running a loss and bereavement support group for adults with learning disabilities. British Journal of Learning Disabilities, 38, 35–40.
  • Brocklehurst, T., Hearnshaw, C., & Machin, L. (2014). Bereavement needs assessment – piloting a process. Progress in Palliative Care, 22(3), 143–149.
  • Buckley, T., Sunari, D., Marshall, A., Bartrop, R., McKinley, S., & Tofler, G. (2012). Physiological correlates of bereavement and the impact of bereavement interventions. Dialogues in Clinical Neuroscience, 14(2), 129–139.
  • Carroll, C., Booth, A., & Cooper, K. (2013). A worked example of ‘best fit’ framework synthesis: A systematic review of views concerning the taking of some potential chemopreventive agents. BMC Medical Research Methodology, 13, 37. Retrieved from https://bmcmedresmethodol.biomedcentral.com/articles/10.1186/1471-2288-11-29 [accessed 29 January 2020].
  • Carroll, J., Bradley, L., Crawford, H., Hannant, P., Johnson, H., & Thompson, A. (2017). SEN support: A rapid evidence assessment. Department for Education/Government Social Research.
  • Chapple, A., & Ziebland, S. (2011). How the Internet is changing the experience of bereavement by suicide: A qualitative study in the UK. Health, 15(2), 173–187.
  • The Choice in End of Life Care Programme Board. (2015). What’s important to me. A review of choice in end of life care. The Choice in End of Life Care Programme Board. Retrieved from https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/407244/CHOICE_REVIEW_FINAL_for_web.pdf [accessed 29 January 2020].
  • Co-op Funeral Care. (2018). Making peace with death: National attitudes to death, dying and bereavement. Manchester: Co-operative Group Limited. Retrieved from www.co-operativefuneralcare.co.uk/media-hub/news/making-peace-with-death [accessed 19 January 2020].
  • Crawford, C., Boyd, C., Shamini, J., Khorsan, R., & Jonas, W. (2015). Rapid Evidence Assessment of the Literature (REAL©): Streamlining the systematic review process and creating utility for evidence-based health care. BMC Res Notes, 8, 631.
  • Cruse Bereavement Care. (2018). Annual review. London: Cruse Bereavement Care. Retrieved from www.cruse.org.uk/sites/default/files/default_images/pdf/Documents-and-fact-sheets/Cruse20Annual20Report2017-18.pdf [accessed 15 March 2019].
  • Davies, P. (2006). What is needed from research synthesis from a policy-making perspective? In J.Popay (Ed.), Moving beyond effectiveness in evidence synthesis methodological issues in the synthesis of diverse sources of evidence (pp. 97–103). National Institute for Health and Clinical Excellence.
  • Davies, P. T. (2004). Rapid evidence assessments: A tool for policy making? Government Social Research.
  • D’Eath, M., Barry, M. M., & Sixsmith, J. (2012). Rapid evidence review of interventions for improving health literacy. European Centre for Disease Prevention and Control.
  • Dementia Voices. (2018). End of life care and post bereavement support - shifting the conversation from difficult to important sharing the perspectives of people living with dementia and their carers. Retrieved from http://tide.uk.net/wp-content/uploads/2018/09/End-of-Life-Care-Post-Bereavement-Support-Shifting-the-Conversation-from-Difficult-to-Important.pdf [accessed 29 January 2020].
  • Department for International Development. (2012). Infrastructure: Rapid evidence reviews. Evidence on demand. DfID.
  • Department of Health. (2008). End of life care strategy promoting high quality care for all adults at the end of life. Department of Health.
  • Department of Health. (2010). Bereavement care services: A synthesis of the literature. Final Report of review commissioned by DH to support implementation of the End of Life Care Strategy. Department of Health.
  • Department of Health. (2016). Our commitment to you for end of life care: The government response to the review of choice in end of life care. Department of Health.
  • Dixon-Woods, M. (2011). Using framework-based synthesis for conducting reviews of qualitative studies. BMC Medicine, 9(1), 39.
  • Efstathiou, N., Walker, W., Metcalfe, A., & Vanderspank, B. (2018). The state of bereavement support in adult intensive care: A systematic review and narrative synthesis. Journal of Critical Care, 50, 177–187.
  • Eyre, A. (2006). Assistance in the UK: Current capability and the development of best practice. London: Department for Culture, Media & Sport.
  • Finley, R., & Payne, M. (2010). A retrospective records audit of bereaved carers’ groups. Groupwor, 20(2), 65–84.
  • Ganann, R., Ciliska, D., & Thomas, H. (2010). Expediting systematic reviews: Methods and implications of rapid reviews. Implementation Science, 5(56), 1–10.
  • Green, J., & Cawkill, P. (2012). Supporting the bereaved families of armed forces personnel. Bereavement Care, 31(3), 129–132.
  • GSR. (2013). Rapid Evidence Assessment Toolkit. Retrieved from http://webarchive.nationalarchives.gov.uk/20140402164155/http://www.civilservice.gov.uk/networks/gsr/resources-and-guidance/rapid-evidence-assessment [accessed 29 January 2020].
  • Haby, M. M., Chapman, E., Clark, R., Barreto, J., Reveiz, L., & Lavis, J. N. (2016). What are the best methodologies for rapid reviews of the research evidence for evidence-informed decision making in health policy and practice: A rapid review. Health Research Policy and Systems, 14, 83. DOI 10.1186/s12961-016-0155-7
  • Hawton, K., Sutton, L., Simkin, S., Walker, D. M., Stacey, G., Waters, K., & Rees, S. (2012). Evaluation of a resource for people bereaved by suicide. Crisis, 33(5), 254–264.
  • Hayward, J. S., Makinde, O., & Vasudev, N. S. (2016). Letters of condolence: assessing attitudes and variability in practice amongst oncologists and palliative care doctors in Yorkshire. Ecancermedicalscience, 10, 642. doi: 10.3332/ecancer.2016.642
  • Independent Age. (2018). Good grief: Older people’s experiences of partner bereavement. London: Independent Age. Retrieved from www.independentage.org/policy-and-research/research-reports/good-grief-older-peoples-experiences-of-partner-bereavement [accessed 29 January 2020].
  • Khangura, S., Polisena, J., Clifford, T. J., Farrah, K., & Kamel, C. (2014). Rapid review: An emerging approach to evidence synthesis in health technology assessment. International Journal of Technology Assessment in Health Care, 30(1), 20–27.
  • Lobb, L. A., Kristjanson, L. J., Aoun, S. M., Monterosso, L., Halkett, G. K. B., & Davies, A. (2010). Predictors of complicated grief: A systematic review of empirical studies. Death Studies, 34(8), 673–698.
  • Moher, D., Liberati, A., Tetzlaff, J., & Altman, D. G. (Prisma Group). (2009). Preferred reporting items for systematic reviews and metaanalyses: The PRISMA statement. PLoS Medicine, 6(7), e1000097.
  • Montgomery, L., & Campbell, A. (2012). A qualitative evaluation of the provision of bereavement care accessed by service users living in a health and social care trust area in Northern Ireland. Journal of Social Work in End-of-Life & Palliative Care, 8(2), 165–181.
  • Murray Parkes, C. (1998). Bereavement in adult life. British Medical Journal, 316, 856–859.
  • National Bereavement Alliance. (2017). A guide to commissioning bereavement services in England. Macmillan Cancer Support, London.
  • National Council for Palliative Care. (2014). Life after death. National Council for Palliative Care.
  • National Palliative and End of Life Care Partnership. (2015). Ambitions for palliative and end of life care: A national framework for local action 2015–2020. Retrieved from http://endoflifecareambitions.org.uk [accessed 29 January 2020].
  • National Quality Board. (2018). Learning from deaths – Guidance for NHS trusts on working with bereaved families and carers (1st ed). NHS England.
  • Näppä, U., Lundgren, A., & Axelsson, B. (2016). The effect of bereavement groups on grief, anxiety, and depression – a controlled, prospective intervention study. BMC Palliative Care, 15, 58.
  • Newsom, C., Schut, H., Stroebe, M. S., Wilson, S., Birrell, J., Moerbeek, M., & Eisma, M. C. (2017). Effectiveness of bereavement counselling through a community-based organization: A naturalistic, controlled trial. Clinical Psychology & Psychotherapy, 24(6), O1512–O1523.
  • Newsom, C., Stroebe, M. S., Schut, H., Wilson, S., Birrell, J., Moerbeek, M., & Eisma, M. C. (2017). Community-based counselling reaches and helps bereaved people living in low-income households. Psychotherapy Research, 29(4), 479–491.
  • Nielsen, M. K., Neergaard, M. A., Jensen, A. B., Bro, F., & Guldin, M. (2016). Do we need to change our understanding of anticipatory grief in caregivers? A systematic review of caregiver studies during end-of-life caregiving and bereavement. Clinical Psychology Review, 44, 75–93.
  • Parry, R., Seymour, J., Whittaker, B., Bird, L., & Cox, K. (2013). Rapid evidence review: Pathways focused on the dying phase in end of life care and their key components. Nottingham: Sue Ryder Care Centre for the Study of Supportive, Palliative and End of Life Care, University of Nottingham.
  • Pitman, A. L., Rantell, K., Moran, P., Sireling, L., Marston, L., King, M., & Osborn, D. (2017). Support received after bereavement by suicide and other sudden deaths: A cross-sectional UK study of 3432 young bereaved adults. BMJ Open, 7(5), 1–12.
  • Roberts, K., Holland, J., Prigerson, H. G., Sweeney, C., Corner, G., Breitbart, W., & Lichtenthal, W. G. (2017). The development of the Bereavement Risk Inventory and Screening Questionnaire (BRISQ): Item generation and expert panel feedback. Palliative and Supportive Care, 15(1), 57–66.
  • Rolls, L., & Harper, M. (2016). The impact of practical support on parental bereavement: Reflections from a study involving parents bereaved through military death. Death Studies, 40(2), 88–101.
  • Schut, H., & Stroebe, M. S. (2010). Effects of support, counselling and therapy before and after the loss: Can we really help bereaved people? Psychologica Belgica, 50(1&2), 89–102.
  • Scottish Government. (2011). Shaping bereavement care – a framework for action. Edinburgh: Scottish Government. Retrieved from: www.sehd.scot.nhs.uk/mels/CEL2011_09.pdf [accessed 29 January 2020].
  • Sealey, M., Breen, L. J., O’Connor, M., & Aoun, S. M. (2015). A scoping review of bereavement risk assessment measures: Implications for palliative care. Palliative Medicine, 29(7), 577–589.
  • Simonsen, G., & Cooper, M. (2015). Helpful aspects of bereavement counselling: An interpretative phenomenological analysis. Counselling and Psychotherapy Research, 15(2), 119–127.
  • Small, N., Barnes, S., Gott, M., Parker, P., Payne, S., Seamark, D., & Gariballa, S. (2009). Dying, death and bereavement: A qualitative study of the views of carers of people with heart failure in the UK. BMC Palliative Care, 8(6), 1–10.
  • Speirs, J., Gross, R., & Heptonstall, P. (2015). Developing a rapid evidence assessment (REA) methodology. UK Energy Research Centre.
  • Spence, S., & Smale, U. (2015). Group work with bereaved people: Developing person-centered practice. Person-centred experiential psychotherapies, 14(1), 3–17.
  • Stephen, A. I., Wimpenny, P., Unwin, R., Work, F., Dempster, P., MacDuff, C., … Brown, A. (2009). Bereavement and bereavement care in health and social care: provision and practice in Scotland. Death Studies, 33(3), 239–261.
  • Stephen, A. I., Wimpenny, P., & Wilcock, S. E. (2013). Bereavement care for older people in healthcare settings: Qualitative study of experiences. Journal of Older People Nursing, 8, 279–289.
  • Stroebe, M. S., Hansson, R. O., Stroebe, W., & Schut, H. (eds.). (2008). Handbook of bereavement research and practice. Advances in theory and intervention. American Psychological Association.
  • Stroebe, M. S., Schut, H., & Stroebe, W. (2007). Health outcomes of bereavement. The Lancet, 370, 1960–1973.
  • Thomas, J., Newman, M., & Oliver, S. (2013). Rapid evidence assessments of research to inform social policy: Taking stock and moving forward. Evidence & Policy, 9(1), 5–27.
  • Valentine, C., McKell, J., & Ford, A. (2018). Service failures and challenges in responding to people bereaved through drugs and alcohol: An interprofessional analysis. Journal of Interprofessional Care, 32(3), 295–303.
  • Watt, A., Cameron, A., Sturm, L., Lathlean, T., Babidge, W., Blamey, S., … Maddern, G. (2008). Rapid reviews versus full systematic reviews: An inventory of current methods and practice in health technology assessment. International Journal of Health Technology Assessment in Health Care, 24(2), 133–139.
  • Whitehead, C., Monk, S., Burgess, G., Clarke, A., & Holmans, A. (2008). Rapid evidence review of the research literature on the impact of worsening affordability. Cambridge University Press.
  • Young, H., Garrad, B., Lambe, L., & Higg, J. (2014). Helping people cope with bereavement. Learning Disability Practice, 17(6), 16–20.

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