87
Views
0
CrossRef citations to date
0
Altmetric
Research Papers

From collaborator to colleague: a community-based program science approach for engaging Kenyan communities of gay, bisexual and other men who have sex with men in HIV research

, , , , , , , , , , & show all
Pages 660-671 | Received 06 Sep 2022, Accepted 09 Sep 2023, Published online: 25 Sep 2023

References

  • Anderson, E. E. (2011). CIRTification: Community involvement in research training facilitator manual. Center for Clinical and Translational Science, University of Illinois at Chicago. http://www.ccts.uic.edu/content/cirtification
  • Aral, S. O., & Blanchard, J. F. (2012). The program science initiative: Improving the planning, implementation and evaluation of HIV/STI prevention programs. Sexually Transmitted Infections, 88(3), 157–159. https://doi.org/10.1136/sextrans-2011-050389
  • Balazs, C. L., & Morello-Frosch, R. (2013). The three Rs: How community-based participatory research strengthens the rigor, relevance, and reach of science. Environmental Justice, 6(1), 1–13. https://doi.org/10.1089/env.2012.0017
  • Becker, M., Mishra, S., Aral, S., Bhattacharjee, P., Lorway, R., Green, K., Anthony, J., Isac, S., Emmanuel, F., Musyoki, H., Lazarus, L., Thompson, L. H., Cheuk, E., & Blanchard, J. F. (2018). The contributions and future direction of program science in HIV/STI prevention. Emerging Themes in Epidemiology, 15(1), 1–7. https://doi.org/10.1186/s12982-018-0076-8
  • Bhattacharjee, P., Rego, D., Musyoki, H., Becker, M., Pickles, M., Isac, S., Lorway, R., Musimbi, J., Walimbwa, J., Olango, K., Kuria, S., Ongaro, M. K., Sahai, A., Mugambi, M., Emmanuel, F., Mishra, S., Bartilol, K., Moses, S., & Blanchard, J. F. (2019). Evaluation of community-based HIV self-testing delivery strategies on reducing undiagnosed HIV infection, and improving linkage to prevention and treatment services among men who have sex with men in Kenya: A programme science study protocol. BMC Public Health, 19(1), 986. https://doi.org/10.1186/s12889-019-7291-2
  • Bidwell, D. (2009). Is community-based participatory research postnormal science? Science Technology and Human Values, 34(6), 741–761. https://doi.org/10.1177/0162243909340262
  • Biruk, C., & Trapence, G. (2018). Community engagement in an economy of harms: Reflections from an LGBTI-rights NGO in Malawi. Critical Public Health, 28(3), 340–351. https://doi.org/10.1080/09581596.2017.1414151
  • Blanchard, J. F., & Aral, S. O. (2011). Program science: An initiative to improve the planning, implementation and evaluation of HIV/Sexually transmitted infection prevention programmes. Sexually Transmitted Infections, 87(1), 2–3. https://doi.org/10.1136/sti.2010.047555
  • Booth, K. M. (2004). Local women, global science: Fighting AIDS in Kenya. Indiana University Press.
  • Brizay, U., Golob, L., Globerman, J., Gogolishvili, D., Bird, M., Rios-Ellis, B., Rourke, S. B., & Heidari, S. (2015). Community-academic partnerships in HIV-related research: A systematic literature review of theory and practice. Journal of the International AIDS Society, 18(1), 19354. https://doi.org/10.7448/IAS.18.1.19354
  • Campbell, C. K., Lippman, S. A., Moss, N., & Lightfoot, M. (2018). Strategies to increase HIV testing among MSM: A synthesis of the literature. AIDS and Behavior, 22(8), 2387–2412. https://doi.org/10.1007/s10461-018-2083-8
  • Chipungu, J., Bosomprah, S., Zanolini, A., Thimurthy, H., Chilengi, R., Sharma, A., & Holmes, C. B. (2017). Understanding linkage to care with HIV self-test approach in Lusaka, Zambia – a mixed method approach. PloS ONE, 12(11), e0187998. https://doi.org/10.1371/journal.pone.0187998
  • Crockett, M., Avery, L., & Blanchard, J. F. (2015). Program science: A framework for improving global maternal, newborn, and child health. JAMA Pediatrics, 169(4), 305–306. https://doi.org/10.1001/jamapediatrics.2015.9
  • De Cock, K. M., Barker, J. L., Baggaley, R., & El Sadr, W. M. (2019). Where are the positives? HIV testing in sub-Saharan Africa in the era of test and treat. AIDS, 33(2), 349–352. https://doi.org/10.1097/QAD.0000000000002096
  • Figueroa, C., Johnson, C., Verster, A., & Baggaley, R. (2015). Attitudes and acceptability on HIV self-testing among key populations: A literature review. AIDS and Behavior, 19(11), 1949–1965. https://doi.org/10.1007/s10461-015-1097-8
  • Guta, A., Flicker, S., & Roche, B. (2013). Governing through community allegiance: A qualitative examination of peer research in community-based participatory research. Critical Public Health, 23(4), 432–451. https://doi.org/10.1080/09581596.2012.761675
  • Guta, A., Strike, C., Flicker, S., Murray, S. J., Upshur, R., & Myers, T. (2014). Governing through community-based research: Lessons from the Canadian HIV research sector. Social Science & Medicine, 123, 250–261. https://doi.org/10.1016/j.socscimed.2014.07.028
  • Held, M. B. (2019). Decolonizing research paradigms in the context of settler colonialism: An unsettling, mutual, and collaborative effort. International Journal of Qualitative Methods, 18, 160940691882157. https://doi.org/10.1177/1609406918821574
  • Israel, B. A., Schulz, A. J., Coombe, C. M., Parker, E. A., Reyes, A. G., Rowe, Z., & Lichtenstein, R. L. (2019). Community-based participatory research: An approach to research in the urban context. In S. Galeo, C. K. Ettman, & D. Vlahov (Eds.), Urban health (pp. 272–C29). Oxford University Press. https://doi.org/10.1093/oso/9780190915858.003.0029
  • Janes, J. E. (2016a). Democratic encounters? Epistemic privilege, power, and community-based participatory action research. Action Research, 14(1), 72–87. https://doi.org/10.1177/1476750315579129
  • Janes, J. E. (2016b). The “will to participate”: Governmentality, power, and community-based participatory research. Intersectionalities: A Global Journal of Social Work Analysis, Research, Polity, and Practice, 5(1), 110–125.
  • Kothari, A., Rudman, D., Dobbins, M., Rouse, M., Sibbald, S., & Edwards, N. (2012). The use of tacit and explicit knowledge in public health: A qualitative study. Implementation Science, 7(1), 1–12. https://doi.org/10.1186/1748-5908-7-20
  • Kraemer Diaz, A. E., Spears Johnson, C. R., & Arcury, T. A. (2015). Perceptions that influence the maintenance of scientific integrity in community-based participatory research. Health Education and Behavior, 42(3), 393–401. https://doi.org/10.1177/1090198114560016
  • Lazarus, L., Prakash, R., Kombo, B. K., Thomann, M., Olango, K., Ongaro, M. K., Kuria, S., Melon, M., Musyoki, H., Shaw, S., Bhattacharjee, P., & Lorway, R. (2022). Understanding socio-sexual networks: Critical consideration for HIVST intervention planning among men who have sex with men in Kenya. BMC Public Health, 22(1), 1–11. https://doi.org/10.1186/s12889-022-12901-x
  • Lorway, R., Thompson, L. H., Lazarus, L., du Plessis, E., Pasha, A., Fathima Mary, P., Khan, S., & Reza-Paul, S. (2014). Going beyond the clinic: Confronting stigma and discrimination among men who have sex with men in Mysore through community-based participatory research. Critical Public Health, 24(1), 73–87. https://doi.org/10.1080/09581596.2013.791386
  • Lucko, J. (2018). “We didn’t have courage”: Internalizing racism and the limits of participatory action research. Anthropology & Education Quarterly, 49(3), 246–261. https://doi.org/10.1111/aeq.12254
  • MacKinnon, K. R., Guta, A., Voronka, J., Piling, M., Williams, C. C., Strike, C., & Ross, L. E. (2021). The political economy of peer research: Mapping the possibility and precarities of paying people for lived experience. British Journal of Social Work, 51(3), 888–906. https://doi.org/10.1093/bjsw/bcaa241
  • MacKinnon, K. R., Guta, A., Voronka, J., Pilling, M., Williams, C. C., Strike, C., & Ross, L. E. (2021). The political economy of peer research: Mapping the possibilities and precarities of paying people for lived experience. British Journal of Social Work, 51(3), 888–906.
  • Minkler, M., Garcia, A. P., Rubin, V., & Wallerstein, N. (2012). Community-based participatory research: A strategy for building healthy communities and promoting health through policy (Technical Report). Policy Link and the University of California, Berkeley, School of Public Health.
  • Monteiro, S., Brigeiro, M., Mora, C., Vilella, W., & Parker, R. (2019). A review of HIV testing strategies among MSM (2005–2015): Changes and continuities due to the biomedicalization of responses to AIDS. Global Public Health, 14(5), 764–776. https://doi.org/10.1080/17441692.2018.1545038
  • Muhammad, M., Duran, B., Belone, L., Wallerstein, N., Avila, M., & Sussman, A. L. (2015). Reflections on researcher identity and power: The impact of positionality on community based participatory research (CBPR) processes and outcomes. Critical Sociology, 41(7–8), 1045–1063. https://doi.org/10.1177/0896920513516025
  • Mullings, L., Wali, A., McLean, D., Mitchell, J., Prince, S., Thomas, D., & Tovar, P. (2001). Qualitative methodologies and community participation in examining reproductive experiences: The Harlem Birth right project. Maternal and Child Health Journal, 5(2), 85–93. https://doi.org/10.1023/A:1011397031640
  • National AIDS Control Council, Kenya. (2018). Kenya HIV estimates report. Ministry of health. Retrieved May 15, 2019, from https://nacc.or.ke/wp-content/uploads/2018/12/HIV-estimates-report-Kenya-20182.pdf
  • Ndlovu-Gatsheni, S. J. (2021). Epistemic injustice. In F. J. Carrillo & G. Koch (Eds.), Knowledge for the anthropocene: A multidisciplinary approach (pp. 167–177). Edward Elgar Publishing.
  • Njau, B., Covin, C., Lisasi, E., Damian, D., Mushi, D., Boulle, A., & Mathews, C. (2019). A systematic review of qualitative evidence on factors enabling and deterring uptake of HIV self-testing in Africa. BMC Public Health, 19(1), 1–16. https://doi.org/10.1186/s12889-019-7685-1
  • Odinga, M. M., Kuria, S., Muindi, O., Mwakazi, P., Njraini, M., Melon, M., Kombo, B., Kaosa, S., Kioko, J., Musimbi, J., Musyoki, H., Bhattacharjee, P., & Lorway, R. (2020). HIV testing amid COVID-19: Community efforts to reach men who have sex with men in three Kenyan counties. Gates Open Research, 4, 117. https://doi.org/10.12688/GATESOPENRES.13152.2
  • Okall, D. O., Ondenge, K., Nyambura, M., Otieno, F. O., Hardnett, F., Turner, K., Mills, L. A., Masinya, K., Chen, R. T., & Gust, D. G. (2014). Men who have sex with men in Kisumu, Kenya: Comfort in accessing health services and willingness to participate in HIV prevention studies. Journal of Homosexuality, 61(12), 1712–1726. https://doi.org/10.1080/00918369.2014.951261
  • Okoboi, S., Lazarus, O., Castelnuovo, B., Nanfuka, M., Kambugu, A., Mujugira, A., King, R., & Clark, J. L. (2020). Peer distribution of HIV self-test kits to men who have sex with men to identify undiagnosed HIV infection in Uganda: A pilot study. PLOS ONE, 15(1), e0227741. https://doi.org/10.1371/journal.pone.0227741
  • Paphitis, S. A. (2018). The possibility of addressing epistemic injustice through engaged research practice: Reflections on a menstruation related critical health education project in South Africa. Critical Public Health, 28(3), 363–372. https://doi.org/10.1080/09581596.2017.1418500
  • Reynolds, L., & Sariola, S. (2018). The ethics and politics of community engagement in global health research. Critical Public Health, 28(3), 257–268. https://doi.org/10.1080/09581596.2018.1449598
  • Ryan, G. (2018). Introduction to positivism, interpretivism and critical theory. Nurse Researcher, 25(4), 41–49. https://doi.org/10.7748/nr.2018.e1562
  • Santos, B. D. S. (2018). The end of the cognitive empire: The coming age of the epistemologies of the south. Duke University Press.
  • Thambinathan, V., & Kinsella, E. A. (2021). Decolonizing methodologies in qualitative research: Creating spaces for transformative praxis. International Journal of Qualitative Methods, 20, 1–9. https://doi.org/10.1177/16094069211014766
  • Thomann, M., Kombo, B., Musyoki, H., Masinya, K., Kuria, S., Kyana, M., Musimbi, J., Lazarus, L., Blanchard, J. F., Bhattacharjee, P., & Lorway, R. (2022). Remaking the technosubject: Kenyan men contextualizing HIV self-testing technologies. Medical Anthropology, 41(3), 272–286. https://doi.org/10.1080/01459740.2022.2027405
  • Van der Elst, E. M., Mahmoud, S., Oduor, C., Chirro, O., Ibrahim, F., & Kombo, B. (2017). Peer-led oral HIV-self testing finds undiagnosed HIV among MSM in Malindi, Kenya [Poster presentation]. Conference on Retroviruses and Opportunistic Infections, Seattle, USA.
  • Wallerstein, N., Duran, B., Oetzel, J. G., & Minkler, M. (2018). On community-based participatory research. In M. Minkler (Ed.), Community-based participatory research for health: Advancing social and health equity (pp. 3–16). Jossey-Bass.
  • Warren, M. R., Calderón, J., Kupscznk, L. A., Squires, G., & Su, C. (2018). Is collaborative, community-engaged scholarship more rigorous than traditional scholarship? On advocacy, bias, and social science research. Urban Education, 53(4), 445–472. https://doi.org/10.1177/0042085918763511

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.