3,668
Views
3
CrossRef citations to date
0
Altmetric
Articles

Discourses of compassion from the margins of health care: the perspectives and experiences of people with a mental health condition

ORCID Icon, ORCID Icon, ORCID Icon, & ORCID Icon
Pages 31-39 | Received 23 Mar 2022, Accepted 29 Jul 2022, Published online: 21 Sep 2022

References

  • Alegría, M., NeMoyer, A., Falgàs Bagué, I., Wang, Y., & Alvarez, K. (2018). Social determinants of mental health: Where we are and where we need to go. Current Psychiatry Reports, 20(11), 1–13. https://doi.org/10.1007/s11920-018-0969-9
  • Blanchet Garneau, A., Browne, A. J., & Varcoe, C. (2019). Understanding competing discourses as a basis for promoting equity in primary health care. BMC Health Services Research, 19(1), 1–11. https://doi.org/10.1186/s12913-019-4602-3
  • Bordin, E. S. (1979). The generalizability of the psychoanalytic concept of the working alliance. Psychotherapy: Theory, Research & Practice, 16(3), 252–260. https://doi.org/10.1037/h0085885
  • Bowers, L., Ross, J., Nijman, H., Muir‐Cochrane, E., Noorthoorn, E., & Stewart, D. (2012). The scope for replacing seclusion with time out in acute inpatient psychiatry in England. Journal of Advanced Nursing, 68(4), 826–835. https://doi.org/10.1111/j.1365-2648.2011.05784.x
  • Crawford, P., Brown, B., Kvangarsnes, M., & Gilbert, P. (2014). The design of compassionate care. Journal of Clinical Nursing, 23(23-24), 3589–3599. https://doi.org/10.1111/jocn.12632
  • Department of Health (2012). Compassion in practice: Nursing, midwifery, and care staff. Our vision and strategy. Retrieved from https://www.england.nhs.uk/wp-content/uploads/2012/12/compassion-in-practice.pdf. Last accessed 16th September 2021.
  • Department of Health (2014). Positive and proactive care: Reducing the need for restrictive interventions. Retrieved from https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/300293/JRA_DoH_Guidance_on_RP_web_accessible.pdf. Last accessed 12th February 2022.
  • Double, D. B. (2019). Twenty years of the critical psychiatry network. The British Journal of Psychiatry: The Journal of Mental Science, 214(2), 61–62. https://doi.org/10.1192/bjp.2018.181
  • Ellison, V. S., & Sami, K. (2014). Clients’ hope arises from social workers’ compassion: African American youths’ perspectives on surmounting the obstacles of disadvantage. Families in Society, 95, 2. https://doi.org/10.1606/1044-3894.2014.95.14
  • Felton, A., Repper, J., & Avis, M. (2018). Therapeutic relationships, risk, and mental health practice. International Journal of Mental Health Nursing, 27(3), 1137–1148. https://doi.org/10.1111/inm.12430
  • Frampton, S. B., Guastello, S., & Lepore, M. (2013). Compassion as the foundation of patient-centered care: The importance of compassion in action. Journal of Comparative Effectiveness Research, 2(5), 443–455. https://doi.org/10.2217/cer.13.54
  • Francis, R. (2010). Independent inquiry into care provided by mid Staffordshire NHS Foundation Trust January 2005-March 2009 (Vol. 375). The Stationery Office.
  • Francis, R. (2013). Report of the Mid Staffordshire NHS Foundation Trust public inquiry: Executive Summary. The Stationery Office.
  • Gilbert, P. (2010). Compassion focused therapy: The CBT distinctive features series. Routledge.
  • Hamovitch, E. K., Choy-Brown, M., & Stanhope, V. (2018). Person-centered care and the therapeutic alliance. Community Mental Health Journal, 54(7), 951–958.
  • Huggett, C., Birtel, M. D., Awenat, Y. F., Fleming, P., Wilkes, S., Williams, S., & Haddock, G. (2018). A qualitative study: Experiences of stigma by people with mental health problems. Psychology and Psychotherapy, 91(3), 380–397. https://doi.org/10.1111/papt.12167
  • Hui A., Rennick-Egglestone S., Franklin D., Walcott R., Llewellyn-Beardsley J., Ng F., Roe J., Yeo C., Deakin E., Brydges S., Penas Moran P. (2021). Institutional injustice: Implications for system transformation emerging from the mental health recovery narratives of people experiencing marginalisation. Plos one. 16(4), e0250367. https://doi.org/10.1371/journal.pone.0250367
  • Hunt, M. R. (2009). Strengths and challenges in the use of interpretive description: Reflections arising from a study of the moral experience of health professionals in humanitarian work. Qualitative Health Research, 19(9), 1284–1292. https://doi.org/10.1177/1049732309344612
  • Isobel, S., Wilson, A., Gill, K., & Howe, D. (2021). ‘What would a trauma‐informed mental health service look like?’ Perspectives of people who access services. International Journal of Mental Health Nursing, 30(2), 495–505.
  • Johnstone, L., & Boyle, M. (2018). The power threat meaning framework: An alternative nondiagnostic conceptual system. Journal of Humanistic Psychology, p. 002216781879328. https://doi.org/10.1177/0022167818793289
  • Johnstone, L. (2019). Do you still need your psychiatric diagnosis? Critiques and alternatives. In J. Watson (Ed.), Drop the disorder!: Challenging the culture of psychiatric diagnoses (pp. 8–23). PCCS Books Ltd.
  • Johnson, J. L., Adkins, D., & Chauvin, S. (2020). A review of the quality indicators of rigor in qualitative research. American Journal of Pharmaceutical Education, 84(1), 7120. https://doi.org/10.5688/ajpe7120
  • Kang, J. H., Go, S. I., & Bruera, E. (2018). Compassion is a key quality for palliative care teams. Cancer Medicine, 7(11), 5325–5326. https://doi.org/10.1002/cam4.1804
  • Kirby, J. N., Tellegen, C. L., & Steindl, S. R. (2017). A meta-analysis of compassion-based interventions: Current state of knowledge and future directions. Behavior Therapy, 48(6), 778–792. https://doi.org/10.1016/j.beth.2017.06.003
  • Lloyd, M., & Carson, A. (2011). Making compassion count: Equal recognition and authentic involvement in mental health care. International Journal of Consumer Studies, 35(6), 616–621. https://doi.org/10.1111/j.1470-6431.2011.01018.x
  • Maxwell, E. (2017). Perspectives: The primacy of compassion in nursing, necessary but not sufficient? Journal of Research in Nursing, 22(1–2), 169–172. https://doi.org/10.1177/1744987116685634
  • McAllister, S., Robert, G., Tsianakas, V., & McCrae, N. (2019). Conceptualising nurse-patient therapeutic engagement on acute mental health wards: An integrative review. International Journal of Nursing Studies, 93, 106–118. https://doi.org/10.1016/j.ijnurstu.2019.02.013
  • McKenzie, K., Gregory, J., & Hogg, L. (2022). Mental Health Workers' Attitudes Towards Individuals With a Diagnosis of Borderline Personality Disorder: A Systematic Literature Review. Journal of Personality Disorders, 36(1), 70–98. https://doi.org/10.1521/pedi_2021_35_528
  • Mental Health Act (2007). Legislation: Mental Health Act 2007. Retrieved from: http://www.opsi.gov.uk/acts/acts2007/ukpga_20070012_en_1. Last Accessed 11th January 2022.
  • Mercer, D. (2015). Imagined in policy, inscribed on bodies: Defending an ethic of compassion in a political context: comment on ‘Why and how is compassion necessary to provide good quality healthcare? International Journal of Health Policy and Management, 4(10), 681–683. https://doi.org/10.15171/ijhpm.2015.125
  • Mitchell, A. J., Hardy, S., & Shiers, D. (2017). Parity of esteem: Addressing the inequalities between mental and physical healthcare. BJPsych Advances, 23(3), 196–205. https://doi.org/10.1192/apt.bp.114.014266
  • Murray, C. J. L., Abbafati, C., Abbas, K. M., Abbasi, M., Abbasi-Kangevari, M., Abd-Allah, F., Abdollahi, M., Abedi, P., Abedi, A., Abolhassani, H., Aboyans, V., Abreu, L. G., Abrigo, M. R. M., Abu-Gharbieh, E., Abu Haimed, A. K., Abushouk, A. I., Acebedo, A., Ackerman, I. N., Adabi, M., … Lim, S. S. (2020). Five insights from the global burden of disease study 2019. The Lancet, 396(10258), 1135–1159. https://doi.org/10.1016/S0140-6736(20)31404-5
  • NHS England (2018). Towards commissioning for workplace compassion: A support guide. Retrieved from https://www.england.nhs.uk/wp-content/uploads/2018/10/towards-commissioning-for-workplace-compassion-a-support-guide-v2.pdf. Last accessed 10th December 2021.
  • Noble, H., & Smith, J. (2015). Issues of validity and reliability in qualitative research. Evidence-Based Nursing, 18(2), 34–35.
  • Nochaiwong, S., Ruengorn, C., Thavorn, K., Hutton, B., Awiphan, R., Phosuya, C., Ruanta, Y., Wongpakaran, N., & Wongpakaran, T. (2021). Global prevalence of mental health issues among the general population during the coronavirus disease-2019 pandemic: A systematic review and meta-analysis. Scientific Reports, 11(1), 1–18. https://doi.org/10.1038/s41598-021-89700-8
  • Parliament, U. K. (2018). The evidence behind early interventions. Retrieved from https://publications.parliament.uk/pa/cm201719/cmselect/cmsctech/506/50605.htm. Last accessed 10th January 2022.
  • Pierce, M., Hope, H., Ford, T., Hatch, S., Hotopf, M., John, A., Kontopantelis, E., Webb, R., Wessely, S., McManus, S., & Abel, K. M. (2020). Mental health before and during the COVID-19 pandemic: A longitudinal probability sample survey of the UK population. The Lancet. Psychiatry, 7(10), 883–892. https://doi.org/10.1016/S2215-0366(20)30308-4
  • Power, T., Baker, A., & Jackson, D. (2020). Only ever as a last resort: Mental health nurses’ experiences of restrictive practices. International Journal of Mental Health Nursing, 29(4), 674–684. https://doi.org/10.1111/inm.12701
  • Public Health England (2015). Health inequalities briefing for London NHS Health Checks and target diseases: Inequalities by protected characteristics and socioeconomic factors. London Public Health England. Retrieved from https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/431384/20150520_NHS_Health_Checks_a_health_inequalities_briefing_for_London.pdf. Last accessed 12th February 2022.
  • Rogers, C. R. (1951). Client-centred therapy. Houghton & Mifflin.
  • Rogers, C. R. (1963). Toward a science of the person. Journal of Humanistic Psychology, 3(2), 72–92. https://doi.org/10.1177/002216786300300208
  • Rooney, J. M. (2020). Compassion in mental health: A literature review. Mental Health and Social Inclusion, 24(4), 217–228. https://doi.org/10.1108/MHSI-05-2020-0029
  • Rose, N. (2018). Our psychiatric future. John Wiley & Sons.
  • Ross, A. J., Anderson, J. E., Kodate, N., Thomas, L., Thompson, K., Thomas, B., Key, S., Jensen, H., Schiff, R., and Jaye, P. (2012). Simulation training for improving compassionate care of older people: An independent evaluation of an innovative programme for interprofessional education. BMJ Quality and Safety. https://doi.org/10.1136/bmjqs-2012-000954
  • Scarlet, J., Altmeyer, N., Knier, S., & Harpin, R. E. (2017). The effects of Compassion Cultivation Training (CCT) on health-care workers. Clinical Psychologist, 21(2), 116–124. https://doi.org/10.1111/cp.12130
  • Sinclair, S., McClement, S., Raffin-Bouchal, S., Hack, T. F., Hagen, N. A., McConnell, S., & Chochinov, H. M. (2016). Compassion in health care: an empirical model. Journal of Pain and Symptom Management, 51(2), 193–203. https://doi.org/10.1016/j.jpainsymman.2015.10.009
  • Spandler, H., & Stickley, T. (2011). No hope without compassion: The importance of compassion in recovery-focused mental health services. Journal of Mental Health (Abingdon, England), 20(6), 555–566. https://doi.org/10.3109/09638237.2011.583949
  • Spandler, H., & Poursanidou, D. (2019). Who is included in the Mad Studies Project.? The Journal of Ethics in Mental Health, Open Volume 10, pp. 1–20.
  • Stacey, G., Felton, A., Morgan, A., Stickley, T., Willis, M., Diamond, B., Houghton, P., Johnson, B., & Dumenya, J. (2016). A critical narrative analysis of shared decision-making in acute inpatient mental health care. Journal of Interprofessional Care, 30(1), 35–41. https://doi.org/10.3109/13561820.2015.1064878
  • Stickley, T., & Freshwater, D. (2006). The art of listening in the therapeutic relationship. Mental Health Practice, 9(5), 12–18. https://doi.org/10.7748/mhp2006.02.9.5.12.c1899
  • Sustere, E., & Tarpey, E. (2019). Least restrictive practice: Its role in patient independence and recovery. The Journal of Forensic Psychiatry & Psychology, 30(4), 614–629. https://doi.org/10.1080/14789949.2019.1566489
  • Sweeney, A., Gillard, S., Wykes, T., & Rose, D. (2015). The role of fear in mental health service users’ experiences: A qualitative exploration. Social Psychiatry and Psychiatric Epidemiology, 50(7), 1079–1087. https://doi.org/10.1007/s00127-015-1028-z
  • Sweeney, A., & Taggart, D. (2018). (Mis) understanding trauma-informed approaches in mental health. Journal of Mental Health (Abingdon, England), 27(5), 383–387.
  • Thorne, S. (2008). Interpretive description (Vol. 2). Walnut Creek, CA: Left Coast Press.
  • Thorne, S. (2016). Interpretative description: Qualitative research for applied practice. 2nd Edn. Routledge, Taylor & Francis. New York & London.
  • Tolan, J., & Cameron, R. (2016). Skills in person-centred counselling & psychotherapy. London: Sage Publications.
  • Trzeciak, S., Mazzarelli, A., & Booker, C. (2019). Compassionomics: The revolutionary scientific evidence that caring makes a difference. Studer Group.
  • Von Peter, S., Aderhold, V., Cubellis, L., Bergström, T., Stastny, P., Seikkula, J., & Puras, D. (2019). Open dialogue as a human rights-aligned approach. Frontiers in Psychiatry, 10, 387. https://doi.org/10.3389/fpsyt.2019.00387
  • West, M., Bailey, S., & Williams, E. (2020). The courage of compassion. Supporting nurses and midwives to deliver high-quality care, London: The King’s Fund, London. Retrieved from https://eput.nhs.uk/wp-content/uploads/2020/09/NursesandMidwivesThe-courage-of-compassion-full-reportKingsFundSept2020_0.pdf. Last accessed 12th February 2022.
  • Zhang, Y. Y., Zhang, C., Han, X. R., Li, W., & Wang, Y. L. (2018). Determinants of compassion satisfaction, compassion fatigue and burn out in nursing: A correlative meta-analysis. Medicine, 97(26), e11086. https://doi.org/10.1097/MD.0000000000011086