Individual’s experiences of adjusting to changes in body image after spinal cord injury: a literature review and thematic synthesis

References

• Cash TF. Body image: past, present, and future. Body Image. 2004;1(1):1–5.
   PubMedGoogle Scholar
• Reboussin BA, Rejeski WJ, Martin KA, et al. Correlates of satisfaction with body function and body appearance in Middle-and older aged adults: the activity counseling trial (ACT). Psychol Health. 2000;15(2):239–254.
   Web of Science ®Google Scholar
• Tylka TL, Wood-Barcalow NL. What is and what is not positive body image? Conceptual foundations and construct definition. Body Image. 2015;14:118–129.
   PubMed Web of Science ®Google Scholar
• Wood-Barcalow NL, Tylka TL, Augustus-Horvath CL. “But I like my body”: positive body image characteristics and a holistic model for young-adult women. Body Image. 2010;7(2):106–116.
   PubMed Web of Science ®Google Scholar
• Vartanian LR. When the body defines the self: self-concept clarity, internalization, and body image. J Soc Clin Psychol. 2009;28(1):94–126.
   Web of Science ®Google Scholar
• Sundgot-Borgen C, Stenling A, Rosenvinge JH, et al. The norwegian healthy body image intervention promotes positive embodiment through improved self-esteem. Body Image. 2020;35:84–95.
   PubMed Web of Science ®Google Scholar
• Holsen I, Kraft P, Røysamb E. The relationship between body image and depressed mood in adolescence: a 5-year longitudinal panel study. J Health Psychol. 2001;6(6):613–627.
   PubMed Web of Science ®Google Scholar
• Becker CB, Verzijl CL, Kilpela LS, et al. Body image in adult women: associations with health behaviors, quality of life, and functional impairment. J Health Psychol. 2019;24(11):1536–1547.
   PubMed Web of Science ®Google Scholar
• Cook-Cottone CP. Incorporating positive body image into the treatment of eating disorders: a model for attunement and mindful self-care. Body Image. 2015;14:158–167.
   PubMed Web of Science ®Google Scholar
• Tiggemann M. Sociocultural perspectives on body image. In: Cash TF, Smolak L, editors. Body image: a handbook of science, practice, and prevention. 2nd ed. New York (NY): Guilford Press; 2012. p. 12–19.
   Google Scholar
• Groesz LM, Levine MP, Murnen SK. The effect of experimental presentation of thin media images on body satisfaction: a meta-analytic review. Int J Eat Disord. 2002;31(1):1–16.
   PubMed Web of Science ®Google Scholar
• Goodyear V, Andersson J, Quennerstedt M, et al. #Skinny girls: young girls’ learning processes and health-related social media. Qual Res Sport Exerc Health. 2022;14(1):1–18.
   PubMed Web of Science ®Google Scholar
• Bozsik F, Whisenhunt BL, Hudson DL, et al. Thin is in? Think again: the rising importance of muscularity in the thin ideal female body. Sex Roles. 2018;79(9–10):609–615.
   Web of Science ®Google Scholar
• Mackowiak R, Lucibello KM, Gilchrist JD, et al. Examination of actual and ideal body-related characteristics and body-related pride in adult males. Am J Mens Health. 2019;13(5):1557988319874642.
   Web of Science ®Google Scholar
• Bailey KA, Gammage KL, van Ingen C, et al. “My body was my temple”: a narrative revealing body image experiences following treatment of a spinal cord injury. Disabil Rehabil. 2017;39(18):1886–1892.
   PubMed Web of Science ®Google Scholar
• Carrotte ER, Prichard I, Lim MSC. “Fitspiration” on social media: a content analysis of gendered images. J Med Internet Res. 2017;19(3):e95.
   PubMed Web of Science ®Google Scholar
• Jung J, Barron D, Lee YA, et al. Social media usage and body image: examining the mediating roles of internalization of appearance ideals and social comparisons in young women. Comput Human Behav. 2022;135:107357.
   Web of Science ®Google Scholar
• Somers MF. Spinal cord injury: functional rehabilitation. 3rd ed. Upper Saddle River (NJ): Prentice Hall; 2010.
   Google Scholar
• Drench ME. Changes in body image secondary to disease and injury. Rehabil Nurs. 1994;19(1):31–36.
   PubMedGoogle Scholar
• Galvin RD. Researching the disabled identity: contextualising the identity transformations which accompany the onset of impairment. Sociol Health Illn. 2005;27(3):393–413.
   PubMed Web of Science ®Google Scholar
• Bailey KA, Gammage KL, van Ingen C, et al. Managing the stigma: exploring body image experiences and self-presentation among people with spinal cord injury. Health Psychol Open. 2016;3(1):2055102916650094.
   Google Scholar
• Cash TF, Smolak L. Understanding body images: historical and contemporary perspectives. In: Cash TF, Smolak L, editors. Body image: a handbook of science, practice, and prevention. New York (NY): The Guilford Press; 2011. p. 3–11.
   Google Scholar
• Moin V, Duvdevany I, Mazor D. Sexual identity, body image and life satisfaction among women with and without physical disability. Sex Disabil. 2009;27(2):83–95.
   Web of Science ®Google Scholar
• Stensman R. Body image among 22 persons with acquired and congenital severe mobility impairment. Spinal Cord. 1989;27(1):27–35.
   Google Scholar
• Bassett RL, Martin Ginis KA, Buchholz AC, SHAPE SCI Research Group A pilot study examining correlates of body image among women living with SCI. Spinal Cord. 2009;47(6):496–498.
   PubMed Web of Science ®Google Scholar
• Chau L, Hegedus L, Praamsma M, et al. Women living with a spinal cord injury: Perceptions about their changed bodies. Qual Health Res. 2008;18(2):209–221.
   PubMed Web of Science ®Google Scholar
• Lawrence B. Self-concept formation and physical handicap: some educational implications for integration. Disabil Handicap Soc. 1991;6(2):139–146.
   Google Scholar
• Rodgers RF, Wertheim EH, Paxton SJ, et al. # Bopo: enhancing body image through body positive social media-evidence to date and research directions. Body Image. 2022;41:367–374.
   PubMed Web of Science ®Google Scholar
• WeThe15. 2022. https://www.wethe15.org/
   Google Scholar
• Taleporos G, McCabe MP. The impact of physical disability on body esteem. Sex Disabil. 2001;19(4):293–308.
   Web of Science ®Google Scholar
• Barnes C. Theories of disability and the origins of the oppression of disabled people in Western society. In: Barton L, editor. Disability and society: emerging issues and insights. New York (NY): Routledge; 2018. p. 43–60.
   Google Scholar
• Gergen KJ. The social constructionist movement in modern psychology. Am Psychol. 1985;40(3):266–275.
   Web of Science ®Google Scholar
• Thomas J, Harden A. Methods for the thematic synthesis of qualitative research in systematic reviews. BMC Med Res Methodol. 2008;8(1):1–10.
   PubMedGoogle Scholar
• Engstrom MR. Identity processes after adult onset of disability: the negotiation of the socially reconstructed self [unpublished doctoral dissertation]. University of California Riverside; 2004.
   Google Scholar
• Quintiliani S. Hearing their voices: the experience of life after spinal cord injury for adult American women [unpublished doctoral dissertation]. Massachusetts: Massachusetts School of Professional Psychology; 2000.
   Google Scholar
• Asaba ME. “I’m not much different”: occupation, identity, and spinal cord injury in America [dissertation]. University of Southern California; 2005.
   Google Scholar
• Bailey KA. Exploring Body-Related experiences among individuals with spinal cord injury [master’s dissertation]. Brock University; 2014.
   Google Scholar
• Women PS. Sport and spinal cord injury: Narrative and resilience [Unpublished master’s thesis]. Exeter University, Exeter; 2010.
   Google Scholar
• Critical Appraisal Skills Programme. CASP Qualitative Checklist. 2018. https://casp-uk.net/wp-content/uploads/2018/01/CASP-Qualitative-Checklist-2018.pdf
   Google Scholar
• Lockwood C, Munn Z, Porritt K. Qualitative research synthesis: methodological guidance for systematic reviewers utilizing meta-aggregation. Int J Evid Based Healthc. 2015;13(3):179–187.
   PubMed Web of Science ®Google Scholar
• National Institute for Health and Care Excellence. Developing NICE guidelines: the manual process and methods PMG20 [Internet]. London: NICE; 2014. https://www.nice.org.uk/process/pmg20/chapter/reviewing-research-evidence
   Google Scholar
• Dodgson JE. Reflexivity in qualitative research. J Hum Lact. 2019;35(2):220–222.
   PubMed Web of Science ®Google Scholar
• Long A. Evaluative Tool for Mixed Methods Studies. https://usir.salford.ac.uk/id/eprint/13070/1/Evaluative_Tool_for_Mixed_Method_Studies.pdf
   Google Scholar
• Bailey KA, Gammage KL, van Ingen C, et al. “It’s all about acceptance”: a qualitative study exploring a model of positive body image for people with spinal cord injury. Body Image. 2015;15:24–34.
   PubMed Web of Science ®Google Scholar
• Buchtler K, Carrard V, Jochum H, et al. Body experience during post-acute rehabilitation in individuals after a traumatic spinal cord injury: a qualitative interview-based pilot study. Spinal Cord Ser Cases. 2021;7(1):1–11.
   PubMedGoogle Scholar
• Dewis ME. Spinal cord injured adolescents and young adults: the meaning of body changes. J Adv Nurs. 1989;14(5):389–396.
   PubMed Web of Science ®Google Scholar
• Kathnelson JD, Kurtz Landy CM, Ditor DS, et al. Supporting sexual adjustment from the perspective of men living with spinal cord injury. Spinal Cord. 2020;58(11):1176–1182.
   PubMed Web of Science ®Google Scholar
• Semerjian T, Montague S, Dominguez J, et al. Enhancement of quality of life and body satisfaction through the use of adapted exercise devices for individuals with spinal cord injuries. Top Spinal Cord Inj Rehabil. 2005;11(2):95–108.
   Google Scholar
• Sheldon A, Renwick R, Yoshida KK. Exploring body image and self-concept of men with acquired spinal cord injuries. Am J Mens Health. 2011;5(4):306–317.
   PubMed Web of Science ®Google Scholar
• Taleporos G, McCabe MP. Body image and physical disability—personal perspectives. Soc Sci Med. 2002;54(6):971–980.
   PubMed Web of Science ®Google Scholar
• Vázquez-Fariñas M, Rodríguez-Martin B. “Living with a fragmented body”: a qualitative study on perceptions about body changes after a spinal cord injury. Spinal Cord. 2021;59(8):855–864.
   PubMed Web of Science ®Google Scholar
• Saunders B, Sim J, Kingstone T, et al. Saturation in qualitative research: exploring its conceptualization and operationalization. Qual Quant. 2018;52(4):1893–1907.
   PubMed Web of Science ®Google Scholar
• Brittain I. Perceptions of disability and their impact upon involvement in sport for people with disabilities at all levels. J Sport Soc Issues. 2004;28(4):429–452.
   Web of Science ®Google Scholar
• Edwards C, Imrie R. Disability and bodies as bearers of value. Sociology. 2003;37(2):239–256.
   Google Scholar
• Campbell FA. Exploring internalized ableism using critical race theory. Disabil Soc. 2008;23(2):151–162.
   Web of Science ®Google Scholar
• Piran N. New possibilities in the prevention of eating disorders: the introduction of positive body image measures. Body Image. 2015;14:146–157.
   PubMed Web of Science ®Google Scholar
• Gill CJ. Four types of integration in disability identity development. J Vocat Rehabil. 1997;9(1):39–46.
   Google Scholar
• Donoghue C. Challenging the authority of the medical definition of disability: an analysis of the resistance to the social constructionist paradigm. Disabil Soc. 2003;18(2):199–208.
   Web of Science ®Google Scholar
• Shakespeare T. The social model of disability. Disabil Stud Reader. 2006;2:197–204.
   Google Scholar
• Bennett B, Breeze J, Neilson T. Applying the recovery model to physical rehabilitation. Nursing Standard. 2014;28(23):37–43.
   PubMedGoogle Scholar
• Davidson L. Recovery, self management and the expert patient–changing the culture of mental health from a UK perspective. J Ment Health. 2005;14(1):25–35.
   Google Scholar
• Jacob KS. Recovery model of mental illness: a complementary approach to psychiatric care. Indian J Psychol Med. 2015;37(2):117–119.
   PubMedGoogle Scholar
• Leamy M, Bird V, Le Boutillier C, et al. Conceptual framework for personal recovery in mental health: systematic review and narrative synthesis. Br J Psychiatry. 2011;199(6):445–452.
   PubMed Web of Science ®Google Scholar
• Tiggemann M. Considerations of positive body image across various social identities and special populations. Body Image. 2015;14:168–176.
   PubMed Web of Science ®Google Scholar
• Feragen KB. Congenital conditions. In: Rumsey N, Harcourt D, editors. The oxford handbook of the psychology of appearance. London: Oxford University Press; 2012. p. 353–371.
   Google Scholar
• Division of Clinical Psychology. Guidelines on language in relation to functional psychiatric diagnosis. British Psychological Society, Leicester. 2015.
   Google Scholar
• Haas BM, Price L, Freeman JA. Qualitative evaluation of a community peer support service for people with spinal cord injury. Spinal Cord. 2013;51(4):295–299.
   PubMed Web of Science ®Google Scholar
• Yoshida K, Self H, Renwick R, et al. Consumer values as a basis for future SCI practice models: application to women with SCI and body issues. Top Spinal Cord Inj Rehabil. 2009;15(1):1–14.
   Google Scholar
• Charmaz K. Loss of self: a fundamental form of suffering in the chronically ill. Sociol Health Illn. 1983;5(2):168–195.
   PubMedGoogle Scholar
• Grotevant HD. Assigned and chosen identity components: a process perspective on their integration. In: Adams GR, Gullotta TP, Montemayor R, editors. Adolescent identity formation. Thousand Oaks (CA): Sage Publications; 1992. p 73–90.
   Google Scholar
• Division of Clinical Psychology. Good practice guidelines on the use of psychological formulation. British Psychological Society, Leicester, 2011.
   Google Scholar
• Hagan T, Smail D. Power-mapping—I. Background and basic methodology. J. Community. Appl. Soc. Psychol. 1997;7(4):257–267.
   Web of Science ®Google Scholar
• McCracken LM. Learning to live with the pain: acceptance of pain predicts adjustment in persons with chronic pain. Pain. 1998;74(1):21–27.
   PubMed Web of Science ®Google Scholar
• Brassington L, Ferreira NB, Yates S, et al. Better living with illness: a transdiagnostic acceptance and commitment therapy group intervention for chronic physical illness. J Contextual Behav Sci. 2016;5(4):208–214.
   Web of Science ®Google Scholar
• Dibb B, Ellis-Hill C, Donovan-Hall M, et al. Exploring positive adjustment in people with spinal cord injury. J Health Psychol. 2014;19(8):1043–1054.
   PubMed Web of Science ®Google Scholar
• National Institute for Health and Care Excellence. Shared decision making NG197. London: NICE; 2021. https://www.nice.org.uk/guidance/ng197
   Google Scholar
• Manhas KP, Olson K, Churchill K, et al. Measuring shared decision-making and collaborative goal setting in community rehabilitation: a focused ethnography using cross-sectional surveys in Canada. BMJ Open. 2020;10(8):e034745.
   PubMed Web of Science ®Google Scholar
• Hayes SC, Strosahl KD, Wilson KG. Acceptance and commitment therapy. Washington (DC): american Psychological Association; 2009.
   Google Scholar
• Godfrey E, Wileman V, Holmes MG, et al. Physical therapy informed by acceptance and commitment therapy (PACT) versus usual care physical therapy for adults with chronic low back pain: a randomized controlled trial. J Pain. 2020;21(1–2):71–81.
   PubMed Web of Science ®Google Scholar
• Riaz R. The influence of culture on body image: a thematic analysis investigating perceptions of the effects of cultural appearance ideals on the body image of young women [master’s thesis]. Manchester Metropolitan University; 2018.
   Google Scholar