Publication Cover
Progress in Palliative Care
Science and the Art of Caring
Volume 32, 2024 - Issue 1
792
Views
0
CrossRef citations to date
0
Altmetric
Articles

Barriers and mechanisms to the development of palliative care in Aceh, Indonesia

ORCID Icon, ORCID Icon, ORCID Icon, ORCID Icon & ORCID Icon

References

  • Knaul FM, Farmer PE, Krakauer EL, De Lima L, Bhadelia A, Jiang Kwete X, et al. Alleviating the access abyss in palliative care and pain relief—an imperative of universal health coverage: the Lancet commission report. Lancet 2018;391(10128):1391–454.
  • Sleeman KE, de Brito M, Etkind S, Nkhoma K, Guo P, Higginson IJ, et al. The escalating global burden of serious health-related suffering: projections to 2060 by world regions, age groups, and health conditions. Lancet Glob Health 2019;7(7):e883–92.
  • Anderson RE, Grant L. What is the value of palliative care provision in low-resource settings? BMJ Glob Health 2017;2(1):e000139.
  • Clark J, Gardiner C, Barnes A. International palliative care research in the context of global development: a systematic mapping review. BMJ Support Palliat Care 2018;8(1):7–18. doi: 10.1136/bmjspcare-2015-001008.
  • Rochmawati E, Wiechula R, Cameron K. Current status of palliative care services in Indonesia: a literature review. Int Nurs Rev 2016;63(2):180–90.
  • Shields L, Hartati LE. Primary care in Indonesia. J Child Health Care 2006;10(1):4–8.
  • Rochmawati E, Wiechula R, Cameron K. Centrality of spirituality/religion in the culture of palliative care service in Indonesia: an ethnographic study. Nurs Health Sci 2018;20(2):231–7.
  • Soebadi RD, Tejawinata S. Indonesia: Status of cancer pain and palliative care. J Pain Symptom Manage 1996;12(2):112–5.
  • Clark D, Centeno C, Clelland D, et al. How are palliative care services developing worldwide to address the unmet need for care. In: Connor S (ed.) Global atlas of palliative care. London: WorldWide Hospice Palliative Care Alliance; 2020. p. 45–58.
  • Effendy C, Vissers K, Osse BHP, Tejawinata S, Vernooij-Dassen M, Engels Y, et al. Comparison of problems and unmet needs of patients with advanced cancer in a European country and an Asian country. Pain Pract 2015;15(5):433–40.
  • Braun V, Clarke V. One size fits all? What counts as quality practice in (reflexive) thematic analysis? Qual Res Psychol 2021;18(3):328–52.
  • Clarke M, Fanany I, Kenny S. Post-disaster reconstruction: lessons from Aceh. London; Washington, D.C.: Earthscan; 2010.
  • Kitzinger J. The methodology of focus groups: the importance of interaction between research participants. Sociol Health Illn 1994;16(1):103–21.
  • Nixon A. Palliative care in Saudi Arabia: a brief history. J Pain Palliat Care Pharmacother 2003;17(3-4):45–49.
  • Mendieta M, Buckingham RW. A review of palliative and hospice care in the context of Islam: dying with faith and family. J Palliat Med 2017;20(11):1284–90.
  • Eng V, Hewitt V, Kekalih A. Preference for initiation of end-of-life care discussion in Indonesia: a quantitative study. Bmc Palliat Care 2022;21(1):6.
  • Rochmawati E, Prawitasari Y. Perceived caregiving preparedness and quality of life among Indonesian family caregivers of patients with life-limiting illness. Int J Palliat Nurs 2021;27(6):293–301.
  • Zaman S, Inbadas H, Whitelaw A, Clark D. Common or multiple futures for end of life care around the world? Ideas from the ‘waiting room of history’. Soc Sci Med 2017;172:72–9. doi: 10.1016/j.socscimed.2016.11.012.
  • Sani TP, Tan M, Rustandi K Turana, Y, Care Policy and Evaluation Centre London School of Economics; 2020. COVID-19 Long-Term Care Situation in Indonesia. LTC Covid, International Long-Term Care Policy Network, CPEC-LSE, 30 May 2020.
  • Fadul N, Elsayem AF, Bruera E. Integration of palliative care into COVID-19 pandemic planning. BMJ Support Palliat Care 2021;11(1):40–4.
  • Sallnow L, Kumar S, Numpeli M. Home-based palliative care in Kerala, India: the neighbourhood network in palliative care. Prog Palliat Care 2010;18(1):14–17.
  • Clark J, Barnes A, Gardiner C. Reframing global palliative care advocacy for the sustainable development goal Era: a qualitative study of the views of international palliative care experts. J Pain Symptom Manage 2018;56(3):363–70.
  • World Health Organization. Strengthening of Palliative Care as a Component of Integrated Treatment throughout the Life Course. J Pain Palliat Care Pharmacother. 2014;28(2):130–134. doi: 10.3109/15360288.2014.911801.
  • Arisanti N, Sasongko EPS, Pandia V, Hilmanto D, et al. Implementation of palliative care for patients with terminal diseases from the viewpoint of healthcare personnel. BMC Res Notes 2019;12(1):217.
  • Harding R, Namisango EP, Radbruch L, et al. How to establish successful research partnerships in global health palliative care. J Pain Symptom Manage 2016;53(2):e3–4.