Publication Cover
Mortality
Promoting the interdisciplinary study of death and dying
Volume 29, 2024 - Issue 1
147
Views
0
CrossRef citations to date
0
Altmetric
Research Article

Can advance care planning (ACP) be a relational healing place for indigenous homeless people in Aotearoa New Zealand?

, ORCID Icon, &

References

  • Bartels, D. M., Ulvestad, N., Ratner, E., Wall, M., Uutala, M. M., & Song, J. (2008). Dignity matters: Advance care planning for people experiencing homelessness. The Journal of Clinical Ethics, 19(3), 214–222.
  • Biehl, J. (2013). Vita: Life in a zone of social abandonment. University of California Press.
  • Bishop, R. (1996). Collaborative research stories, whakawhanaungatanga. The Dunmore Press.
  • Charvin-Fabre, S., Stolte, O., & Lawrenson, R. (2020). Amenable mortality within the homeless population of Aotearoa New Zealand: We can do better! The New Zealand Medical Journal, 133(1527), 26–38.
  • Duggleby, W., Kuchera, S., MacLeod, R., Holyoke, P., Scott, T., Holtslander, L., Letendre, A., Moeke-Maxwell, T., Burhansstipanov, L., & Chambers, T. (2015). Indigenous people’s experiences at the end of life. Palliative & Supportive Care, 13(6), 1721–1733. https://doi.org/10.1017/S147895151500070X
  • Durie, M. (1998). Whaiora: Māori health development (2nd ed.). Oxford University Press.
  • Durie, M. (2017). Indigenous suicide: The Turamarama declaration. Journal of Indigenous Wellbeing, Te Mauri- Primatisiwin, 2(2), 59–67.
  • Ellis, C., & Bochner, A. (2006). Analysing analytic autoethnography: An autopsy. Journal of Contemporary Ethnography, 35(4), 429–449. https://doi.org/10.1177/0891241606286979
  • Ellis, C., & Rawicki, J. (2013). Collaborative witnessing of survival during the holocaust: An exemplar of relational autoethnography. Qualitative Inquiry, 19(5), 366–380. https://doi.org/10.1177/1077800413479562
  • Hubbell, S. A. (2017). Advance care planning with individuals experiencing homelessness: Literature review and recommendations for public health practice. Public Health Nursing, 34(5), 472–478. https://doi.org/10.1111/phn.12333
  • Jonsson, A. (2015). Post mortem social death – exploring the absence of the deceased. Contemporary Social Science, 10(3), 1–12. https://doi.org/10.1080/21582041.2015.1078117
  • Kaplan-Weisman, L., Sansone, S., Walter, E., & Crump, C. (2020). Feasibility of advance care planning in primary care for homeless adults. Journal of Aging and Health, 32(7–8), 880–891. https://doi.org/10.1177/0898264319862420
  • King, P., Hodgetts, D., Rua, M., & Te Whetu, T. (2016). Emplaced cultural practices through which homeless men can be Māori. In E. Peters & J. Christensen (Eds.), Indigenous homelessness: Perspectives from Canada, Australia, and New Zealand (pp. 363–388). University of Manitoba Press.
  • Ko, E., & Nelson-Becker, H. (2014). Does End-of-Life Decision Making Matter?: Perspectives of older homeless adults. American Journal of Hospice and Palliative Medicine, 31(2), 183–188. doi:10.1177/1049909113482176.
  • Leung, A. K., Nayyar, D., Sachdeva, M., Song, J., & Hwang, S. W. (2015). Chronically homeless person’s participation in advance care planning intervention: A cohort study. Palliative Medicine, 29(8), 746–755. https://doi.org/10.1177/0269216315575679
  • Leung, A. K., To, M. J., Luong, L., Vahabi, Z. S., Gonçalves, V. L., Song, J., & Hwang, S. W. (2017). The Effect of Advance Directive Completion on Hospital Care Among Chronically Homeless Persons: A Prospective Cohort Study. Journal of Urban Health : Bulletin of the New York Academy of Medicine, 94(1), 43–53. doi:10.1007/s11524-016-0105-2.
  • Love, C. (2004). Extensions on Te Wheke. Open Polytechnic of New Zealand.
  • Mark, G. T., & Lyons, A. C. (2010). Māori healers’ views on wellbeing: The importance of mind, body, spirit, family and land. Social Science & Medicine, 70(11), 1756–1764. https://doi.org/10.1016/j.socscimed.2010.02.001
  • Marsden, M., & Royal, T. A. C. (2003). The woven universe: Selected writings of Rev. Māori Marsden. The Estate of Rev. Māori Marsden.
  • Mead, H. K. (2016). Tikanga Māori, living with Māori values (2nd ed.). Huia Publishers.
  • Ministry of Health. (2011). Advance care planning, a guide for the New Zealand healthcare workforce.
  • Moeke-Maxwell, T., Mason, K., Toohey, F., & Dudley, J. (2019). Pou Aroha: An indigenous perspective of Māori palliative care, Aotearoa New Zealand. In R. D. MacLeod & L. Van den Block (Eds.), Textbook of palliative care (pp. 1247–1263). Springer International Publishing.
  • Moeke-Maxwell, T., & Nikora, L. W. (2018). Wairua manuake-Flight of the wairua: Māori end-of-life preparation. In R. McManus, J. Cornwall, & S. Randon (Eds.), Death down under: Twenty-first century dying, death, disposal and memorialisation (pp. 175–193). Cambridge Scholars Publishing.
  • Nelson-Becker, H., & Moeke-Maxwell, T. (2020). Spiritual diversity, spiritual assessment, and Māori end of life perspectives: Attaining Ka Ea. Religions, 11(10), 536. https://doi.org/10.3390/rel11100536
  • Niemeijer, A. R., & Visse, M. A. (2016). Challenging standard concepts of ‘humane’ care through relational auto-ethnography. Social Inclusion, 4(4), 168–175. https://doi.org/10.17645/si.v4i4.704
  • Nikora, L. W., Masters-Awatere, B., & Te Awekotuku, N. (2012). Final arrangements following death: Māori decision making and tangi. Journal of Community and Applied Psychology, 22(5), 400–413. https://doi.org/10.1002/casp.2112
  • Peters, E. J., & Christensen, J. (2016). Indigenous homelessness : Perspectives from Canada, Australia, and New Zealand. University of Manitoba Press.
  • Pihama, L., Reynolds, P., Smith, C., Reid, J., Smith, L. T., & Te Nana, R. (2014). Positioning historical trauma theory within Aotearoa New Zealand. AlterNative: An International Journal of Indigenous Peoples, 10(3), 248–262. https://doi.org/10.1177/117718011401000304
  • Siersbaek, R., Ford, J., Burke, S., Cliona Ni, C., & Thomas, S. (2021). Contexts and mechanisms that promote access to healthcare for populations experiencing homelessness: A realist review. BMJ Open, 11(4), e043091. https://doi.org/10.1136/bmjopen-2020-043091
  • Smith, T. (2019). He ara uru ora: Traditional Māori understandings of trauma and well-being. Te Atowhai o te Ao.
  • Song, J., Ratner, E. R., & Bartels, D. M. (2005). Dying while homeless: Is it a concern when life itself is such a struggle? The Journal of Clinical Ethics, 16(3), 251–261.
  • Song, J., Ratner, E. R., Bartels, D. M., Alderton, L., Hudson, B., & Ahluwalia, J. S. (2007). Experiences with and attitudes toward death and dying among homeless persons. Journal of General Internal Medicine, 22(4), 427–434. https://doi.org/10.1007/s11606-006-0045-8
  • Song, J., Ratner, E. R., Wall, M., Bartels, D. M., Ulvestad, N., Petroskas, D., West, M., Weber-Main, A. M., Grengs, L., & Gelberg, L. (2010). Effect of an end-of-life planning intervention on the completion of advance directives in homeless persons: A randomized trial. Journal Annals of Internal Medicine, 153(2), 76–84. https://doi.org/10.7326/0003-4819-153-2-201007200-00003
  • Song, J., Wall, M. M., Ratner, E. R., Bartels, D. M., Ulvestad, N., & Greenberg, L. (2008). Engaging homeless persons in end-of-life preparations. Journal of General Internal Medicine, 23(12), 2031–2045. https://doi.org/10.1007/s11606-008-0771-1
  • Sparkes, A. C. (2000). Autoethnography and narratives of self: Reflections on criteria in action. Sociology of Sport Journal, 17(1), 21–43. https://doi.org/10.1123/ssj.17.1.21
  • Statistics New Zealand. (2015). New Zealand definition of homelessness: 2015 update. https://www. stats.govt.nz/methods/new-zealand-definition-of-homelessness-2015-update/
  • Stone, W., Mixer, S. J., & Mendola, A. (2019). Culturally acceptable advance care planning and advance directives for persons experiencing homelessness. Journal of Hospice & Palliative Nursing, 21(5), 350–357. https://doi.org/10.1097/njh.0000000000000530
  • Tarzian, A. J., Neal, M. T., & O’Neil, J. A. (2005). Attitudes, experiences, and beliefs affecting end-of-life decision-making among homeless individuals. Journal of Palliative Medicine, 8(1), 36–48. https://doi.org/10.1089/jpm.2005.8.36
  • Wirihana, R., & Smith, C. (2014). Historical trauma, healing and well-being in Māori communities. MAI Journal, 3(3), 197–210.
  • Woodard, W., & O’Connor, J. (2019). Entering the void: Exploring the relationship between the experience of self for indigenous people of Aotearoa, and the implications for psychotherapeutic clinical practice. Ata: Journal of Psychotherapy Aotearoa New Zealand, 23(1), 89–112. https://doi.org/10.9791/10.9791/ajpanz.2019.09

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.