565
Views
0
CrossRef citations to date
0
Altmetric
Articles

‘There is a fear of not being SUPER knowledgeable’ – social workers striving to enhance children’s participation in the assessment process for disability support

‘Det finns en rädsla att inte vara SUPER kunnig’ – Om socialarbetares strävan för att öka barns delaktighet i utredningsprocessen om stödinsatser enligt LSS

, &
Pages 625-637 | Received 01 Feb 2023, Accepted 14 Dec 2023, Published online: 03 Jan 2024

References

  • Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77–101. https://doi.org/10.1191/1478088706qp063oa
  • Buchholz, M., Ferm, U., & Holmgren, K. (2018). That is how I speak nowadays’ - Experiences of remote communication among persons with communicative and cognitive disabilities. Disability and Rehabilitation, 40(12), 1468–1479. https://doi.org/10.1080/09638288.2017.1300340
  • Engwall, K., & Hultman, L. (2020). Meet and Greet’: Children with disabilities’ participatory rights in the assessment process of respite care. Scandinavian Journal of Disability Research, 22(1), 187–197. https://doi.org/10.16993/sjdr.693
  • Engwall, K., & Hultman, L. (2021). Constructions of childhood: The assessment of respite care for children with disabilities in Sweden. European Journal of Social Work, 24(4), 617–628. https://doi.org/10.1080/13691457.2020.1763260
  • Gallagher, M., Smith, M., Hardy, M., & Wilkinson, H. (2012). Children and families’ involvement in social work decision making. Children & Society, 26(1), 78–85. https://doi.org/10.1111/j.1099-0860.2011.00409.x
  • Heimer, M., Näsman, E., & Palme, J. (2018). Vulnerable children's rights to participation, protection, and provision: The process of defining the problem in Swedish child and family welfare. Child & Family Social Work, 23(2), 316–323. https://doi.org/10.1111/cfs.12424
  • Hultman, L., Forinder, U., Öhrvall, A.-M., Pergert, P., & Fugl-Meyer, K. (2019). Elusive participation – Social workers’ experience of the participation of children with disabilities in LSS assessments. Scandinavian Journal of Disability Research, 21(1), 38–48. https://doi.org/10.16993/sjdr.558
  • Krueger, R. A., & Casey, M. A. (2014). Focus groups: a practical guide for applied research (5. [updated] ed.). Sage.
  • Leviner, P. (2018). Child participation in the Swedish child protection system - Child-friendly focus but limited child influence on outcomes. International Journal of Children Rights, 26(1), 136–158. https://doi.org/10.1163/15718182-02601002
  • Lipsky, M. (2010). Street-level bureaucracy: Dilemmas of the individual in public services (30th anniversary expanded ed.). Russel Sage Foundation.
  • Lundy, L. (2007). Voice’ is not enough: conceptualising Article 12 of the United Nations Convention on the Rights of the Child. British Educational Research Journal, 33(6), 927–942. https://doi.org/10.1080/01411920701657033
  • Molin, M. (2020). The emerging concepts of participation and belonging in social pedagogy. Papers of Social Pedagogy, 13(1), 9–33. https://doi.org/10.5604/01.3001.0014.4350
  • Nowak, H. I., Broberg, M., & Starke, M. (2018). Opportunity to participate in planning and evelauation of support for children with disabilities: Parents’ and professionals’ perspectives. Journal of Intellectual Disabilities, 24(1), 5–20. https://doi.org/10.1177/1744629518756227
  • SFS. (1993:387). Lag om stöd och service till visa funktionshindrade [The Swedish Act Concerning Support and Service for Persons with Certain Functional Impairments]. Svensk författningssamling [Swedish code of statutes]. Sveriges Riksdag.
  • Shier, H. (2001). Pathways to participation: Openings, opportunities and obligations. Children & Society, 15(2), 107–117. https://doi.org/10.1002/chi.617
  • Svensson, K., Johnsson, K., & Laanemets, L. (2010). Handlingsutrymme – Utmaningar i socialt arbete. [Discretion – Challenges in social work]. Natur & Kultur.
  • Taylor, I., & Kelly, J. (2006). Professionals, discretion and public sector reform in the UK: Revisiting Lipsky. International Journal of Public Sector Management, 19(7), 629–642. https://doi.org/10.1108/09513550610704662
  • The National Board of Health and Welfare [Socialstyrelsen]. (2019). Uppföljning av barnkonventionens genomslag vid tillämpning av LSS. [Follow-up of the consequences of the CRC in the application of the LSS]. Socialstyrelsen.
  • Thomas, N., & O’Kane, C. (1999). Children’s participation in reviews and planning meetings when they are ‘looked after’ in middle childhood. Child and Family Social Work, 4(3), 221–230. https://doi.org/10.1046/j.1365-2206.1999.00112.x
  • Thunberg, G., Johnson, E., Bornman, J., Öhlén, J., & Nilsson, S. (2022). Being heard–Supporting person-centred communication in paediatric care using augmentative and alternative communication as universal design: A position paper. Nursing Inquiry, 29(2), e12426. https://doi.org/10.1111/nin.12426
  • UNICEF. (2009). Un’s convention on the Rights of the Child. Author.
  • United Nations. (2006). United Nations convention on the rights of people with disabilities. Author.
  • Vis, S. A., Holtan, A., & Thomas, N. (2012). Obstacles for child participation in care and protection cases—Why Norwegian social workers find it difficult. Child Abuse Review, 21(1), 7–23. https://doi.org/10.1002/car.1155
  • Vis, S. A., Strandbu, A., Holtan, A., & Thomas, N. (2011). Participation and health - A research review of child participation in planning and decision-making. Child & Family Social Work, 16(3), 325–335. https://doi.org/10.1111/j.1365-2206.2010.00743.x
  • Vis, S. A., & Thomas, N. (2009). Beyond talking – children's participation in Norwegian care and protection cases. European Journal of Social Work, 12(2), 155–168. http://doi.org/10.1080/13691450802567465
  • World Health Organization. (2001). International classification of functioning, disability and health (ICF). Author.
  • WMA. (2013). World medical association declaration of Helsinki: Ethical principles for medical research involving human subjects. JAMA, 310(20), 2191–2194. https://doi.org/10.1001/jama.2013.281053