Trauma-Informed Care for Inpatient Palliative Care Social Work: Applying Existing Models at the Bedside

References

• Alici, Y., Smith, D., Lu, H. L., Bailey, A., Shreve, S., Rosenfeld, K., … Casarett, D. J. (2010). Families’ perceptions of veterans’ distress due to posttraumatic stress disorder-related symptoms at the end of life. Journal of Pain and Symptom Management, 39(3), 507–514. doi:10.1016/j.jpainsymman.2009.07.011
   PubMed Web of Science ®Google Scholar
• Bernard, M., Poncin, E., Althaus, B., & Borasio, G. D. (2022). Posttraumatic growth in palliative care patients and its associations with psychological distress and quality of life. Palliative & Supportive Care, 20(6), 846–853. doi:10.1017/S1478951521002066
   PubMed Web of Science ®Google Scholar
• Brown, C., Peck, S., Humphreys, J., Schoenherr, L., Saks, N. T., Sumser, B., & Elia, G. (2020). Covid-19 lessons: The alignment of palliative medicine and trauma-informed care. Journal of Pain and Symptom Management, 60(2), e26–e30. doi:10.1016/j.jpainsymman.2020.05.014
   PubMed Web of Science ®Google Scholar
• Brown, C., Matinrad, H., & Ho, J. (in press). Fast facts and concepts: Trauma-informed care. Palliative Care Network of Wisconsin. Journal of Palliative Medicine.
   Google Scholar
• Cations, M., Laver, K., Couzner, L., Flatman, S., Bierer, P., Ames, C., … Whitehead, C. (2021). Trauma-informed care in geriatric inpatient units to improve staff skills and reduce patient distress: A co-designed study protocol. BMC Geriatrics, 21(1), 492. doi:10.1186/s12877-021-02441-1
   PubMed Web of Science ®Google Scholar
• Center to Advance Palliative Care (CAPC). (2021). Health care for black patients with serious illness: A literature review. https://www.capc.org/health-care-for-black-patients-with-serious-illness-a-literature-revie w
   Google Scholar
• Chochinov, H. M. (2007). Dignity and the essence of medicine: The A, B, C, and D of dignity conserving care. BMJ (Clinical Research ed.), 335(7612), 184–187. doi:10.1136/bmj.39244.650926.47
   PubMedGoogle Scholar
• Couzner, L., Spence, N., Fausto, K., Huo, Y., Vale, L., Elkins, S., … Cations, M. (2022). Delivering trauma-informed care in a hospital ward for older adults with dementia: An illustrative case series. Frontiers in Rehabilitation Sciences, 3, 934099. doi:10.3389/fresc.2022.934099
   PubMedGoogle Scholar
• Cozolino, L. (2020). The pocket guide to neuroscience for clinicians (1st ed.). New York, NY: W.W. Norton & Company, Inc.
   Google Scholar
• DiBiase, J., & Nathanson, A. (in press). Trauma-informed work with serious illness. In M. Ruden (Eds.), The practice of clinical social work in healthcare. Switzerland: Springer Nature.
   Google Scholar
• Feldman, D. B. (2017). Stepwise psychosocial palliative care: A new approach to the treatment of posttraumatic stress disorder at end of life. Journal of Social Work in End-of-Life & Palliative Care, 13(2-3), 113–133. doi:10.1080/15524256.2017.1346543
   PubMed Web of Science ®Google Scholar
• Feldman, D. B., Sorocco, K. H., & Bratkovich, K. L. (2014). Treatment of posttraumatic stress disorder at the end-of-life: Application of the stepwise psychosocial palliative care model. Palliative & Supportive Care, 12(3), 233–243. doi:10.1017/S1478951513000370
   PubMed Web of Science ®Google Scholar
• Feldman, D. B., & Periyakoil, V. S. (2006). Posttraumatic stress disorder at the end of life. Journal of Palliative Medicine, 9(1), 213–218. doi:10.1089/jpm.2006.9.213
   PubMed Web of Science ®Google Scholar
• Ganzel, B. (2018). Trauma-informed hospice and palliative care. The Gerontologist, 58(3), 409–419.
   PubMed Web of Science ®Google Scholar
• Glick, D. M., Cook, J. M., Moye, J., & Kaiser, A. P. (2018). Assessment and treatment considerations for post-traumatic stress disorder at end of life. The American Journal of Hospice & Palliative Care, 35(8), 1133–1139. doi:10.1177/1049909118756656
   PubMed Web of Science ®Google Scholar
• Goto, Y., Kojimoto, G., Pantilat, S., & Sumser, B. (2022). Recommendations for integrating antiracist practice at the JPSM. Journal of Pain and Symptom Management, 63(6), e685–e689. doi:10.1016/j.jpainsymman.2021.12.010
   PubMed Web of Science ®Google Scholar
• Guarino, K., Soares, P., Konnath, K., Clervil, R., & Bassuk, E. (2009). Trauma-informed organizational toolkit. Rockville, MD: Center for Mental Health Services, Substance Abuse and Mental Health Services Administration, and the Daniels Fund, the National Child Traumatic Stress Network, and the W.K. Kellogg Foundation. Available at www.homeless.samhsa.gov and www.familyhomelessness.org.
   Google Scholar
• Gwyther, L. P., Altilio, T., Blacker, S., Christ, G., Csikai, E. L., Hooyman, N., … Howe, J. (2005). Social work competencies in palliative and end-of-life care. Journal of Social Work in End-of-Life & Palliative Care, 1(1), 87–120. doi:10.1300/J457v01n01_06
   PubMedGoogle Scholar
• Han, H.-R., Miller, H. N., Nkimbeng, M., Budhathoki, C., Mikhael, T., Rivers, E., … Wilson, P. (2021). Trauma-informed interventions: A systematic review. PloS One, 16(6), e0252747. doi:10.1371/journal.pone.0252747
   PubMed Web of Science ®Google Scholar
• Kaiser, A. P., O'Malley, K., Moye, J., Etchin, A. G., Korsun, L., Weiskittle, R., … Sager, Z. S. (2021). Hospice and palliative care clinicians’ perceptions of posttraumatic stress disorder at end-of-life in military veterans. Progress in Palliative Care, 2021(4), 1–7. doi:10.1080/09699260.2021.1980649
   PubMedGoogle Scholar
• Kusmaul, N., & Anderson, K. (2018). Applying a trauma-informed perspective to loss and change in the lives of older adults. Social Work in Health Care, 57(5), 355–375. doi:10.1080/00981389.2018.1447531
   PubMed Web of Science ®Google Scholar
• Makoff, E. (2020). Racial trauma: A palliative care perspective. Journal of Palliative Medicine, 23(4), 577–578. 23, 577-doi:10.1089/jpm.2019.0484
   PubMed Web of Science ®Google Scholar
• McGinley, J., & Waldrop, D. (2019). The interrelationship between aging, trauma, and the end of life. Trauma and Human Rights: Integrating Approaches to Address Human Suffering (1st ed.), L. D. Butler, F.M. Critelli, & J. Carello (Eds). Switzerland: Palgrave MacMillan.
   Google Scholar
• National Consensus Project (NCP) for Quality Palliative Care. (2018). Clinical practice guidelines for quality palliative care (4th ed.). https://www.nationalcoalitionhpc.org/wp-content/uploads/2018/10/NCHPC-NCPGuidelines_4thED_web_FINAL.pdf.
   Google Scholar
• National Council for Behavioral Health (NCBH). (2019). Fostering resilience and recovery: A change package for advancing trauma-informed primary care. Washington, DC: National Council for Mental Wellbeing. https://www.thenationalcouncil.org/wp-content/uploads/2019/12/FosteringResilienceCha ngePackage_Final.pdf?daf=375ateTbd56.
   Google Scholar
• National Hospice & Palliative Care Organization (NHPCO). (2020). Questions and answers about trauma-informed end-of-life-care. Available at https://www.nhpco.org/education/tools-and-resources/trauma-informed-end-of-life-care/.
   Google Scholar
• Ntizimira, C., Deo, M. S., Dunne, M., & Krakauer, E. (2022). Decolonizing end-of-life care: Lessons and opportunities. ecancermedicalscience, 16(121), 1–3. doi:10.3332/ecancer.2022.ed121
   Google Scholar
• Ricks-Aherne, E., Wallace, C., & Kusmaul, N. (2020). Practice considerations for trauma-informed care at end of life. Journal of Social Work in End-of-Life & Palliative Care, 16(4), 313–329. doi:10.1080/15524256.2020.1819939
   PubMed Web of Science ®Google Scholar
• Rosa, W. E., Gray, T. F., Chambers, B., Sinclair, S., Knaul, F. M., Bhadelia, A., … Smith, C. B. (2022). Palliative care in the face of racism: A call to transform clinical practice, research, policy, and leadership. Health Affairs Forefront. doi:10.1377/forefront.20220207.574426
   Google Scholar
• Roth, M. L., St. Cyr, K., Harle, I., & Katz, J. (2013). Relationship between pain and posttraumatic stress symptoms in palliative care. Journal of Pain and Symptom Management, 46(2), 182–191. doi:10.1016/j.jpainsymman.2012.07.015
   PubMed Web of Science ®Google Scholar
• Sanders, J. E. (2021). Teaching note- trauma-informed teaching in social work education. Journal of Social Work Education, 57(1), 197–204. doi:10.1080/10437797.2019.1661923
   Web of Science ®Google Scholar
• Schippert, A. C. S., Grov, E. K., Dahl-Michelsen, T., Silvola, J., Sparboe-Nilsen, B., Danielsen, S. O., … Bjørnnes, A. K. (2023). Retraumatization of torture survivors during treatment in somatic healthcare services: A mapping review and appraisal of literature presenting clinical guidelines and recommendations to prevent retraumatization. Social Science & Medicine, 323, 115775. doi:10.1016/j.socscimed.2023.115775
   PubMed Web of Science ®Google Scholar
• Substance Abuse and Mental Health Services Administration (SAMHSA). (2014). SAMHSA’s concept of trauma and guidance for a trauma-informed approach. SAMHSA. Available at https://store.samhsa.gov/sites/default/files/d7/priv/sma14-4884.pdf.
   Google Scholar
• Silvers, A., Sinclair, S., Curseen, K., Chambers, B., Bullock, K., & Bowman, B. (2022). How Medicare Advantage could address pain inequities for Black patients living with serious illness. Health Affairs Forefront. doi:10.1377/forefront.20221206.976112
   Google Scholar
• Sullivan, E., Shelley, J., Rainey, E., Bennett, M., Prajapati, P., Powers, M. B., … Warren, A. M. (2017). The association between posttraumatic stress symptoms, depression, and length of hospital stay following traumatic injury. General Hospital Psychiatry, 46, 49–54. doi:10.1016/j.genhosppsych.2017.03.004
   PubMed Web of Science ®Google Scholar
• Van der Kolk, B. A. (2015). The body keeps the score: Brain, mind, and body in the healing of trauma. New York: Penguin Random House, LLC.
   Google Scholar
• Von der Warth, R., Hehn, P., Wolff, J., & Kaier, K. (2020). Hospital costs associated with posttraumatic stress disorder in somatic patients: A retrospective study. Health Economics Review, 10(1), 23. doi:10.1186/s13561-020-00281-0
   PubMed Web of Science ®Google Scholar
• Weng, K., Shearer, J., & Johnson, L. (2022). Developing successful palliative care teams in rural communities: A facilitated process. Journal of Palliative Medicine, 25(5), 734–741. doi:10.1089/jpm.2021.0287
   PubMed Web of Science ®Google Scholar
• Wilson, C., Pence, D., & Conradi, L. (2013). Trauma-informed care. Encyclopedia of Social Work, 1–15. https://oxfordre.com/socialwork/view/10.1093/acrefore/9780199975839.001.0001/acrefo re-9780199975839-e-1063.
   Google Scholar