Experiences of acquired brain injury survivors participating in online and hybrid performance arts programmes: an ethnographic study

References

• Ahmed, Z. M., Khalil, M. F., Kohail, A. M., Eldesouky, I. F., Elkady, A., & Shuaib, A. (2020). The prevalence and predictors of post-stroke depression and anxiety during COVID-19 pandemic. Journal of Stroke and Cerebrovascular Diseases, 29(12), 105315. https://doi.org/10.1016/j.jstrokecerebrovasdis.2020.105315
   PubMed Web of Science ®Google Scholar
• Ayerbe, L., Ayis, S., Wolfe, C. D., & Rudd, A. G. (2013). Natural history, predictors and outcomes of depression after stroke: Systematic review and meta-analysis. British Journal of Psychiatry, 202(1), 14–21. https://doi.org/10.1192/bjp.bp.111.107664
   PubMed Web of Science ®Google Scholar
• Ayre, L. B. (2020 3). What more can we do to address broadband inequity and digital poverty? Information Technology and Libraries, 39 (3). https://doi.org/10.6017/ital.v39i3.12619.
   Web of Science ®Google Scholar
• Baylan, S., McGinlay, M., MacDonald, M., Easto, J., Cullen, B., Haig, C., Mercer, S. W., Murray, H., Quinn, T., Stott, D., Broomfield, N. M., Stiles, C., & Evans, J. J. (2018). Participants’ experiences of music, mindful music, and audiobook listening interventions for people recovering from stroke: MELLO trial participant experiences. Annals of the New York Academy of Sciences, 1423(1), 349–359. https://doi.org/10.1111/nyas.13618
   Web of Science ®Google Scholar
• Chen, J., Jin, W., Dong, W. S., Jin, Y., Qiao, F. L., Zhou, Y., & Chuan, C. (2017). Effects of home-based Telesupervising Rehabilitation on physical function for stroke survivors with hemiplegia. American Journal of Physical Medicine and Rehabilitation, 96(3), 152–160. https://doi.org/10.1097/PHM.0000000000000559
   PubMed Web of Science ®Google Scholar
• Davies, L., LeClair, K. L., Bagley, P., Blunt, H., Hinton, L., Ryan, S., & Ziebland, S. (2020). Face-to-face compared with online collected accounts of health and illness experiences: A scoping review. Qualitative Health Research, 30(13), 2092–2102. https://doi.org/10.1177/1049732320935835
   PubMed Web of Science ®Google Scholar
• Ellis-Hill, C., Payne, S., & Ward, C. (2008). Using stroke to explore the life thread model: An alternative approach to understanding rehabilitation following an acquired disability. Disability and Rehabilitation, 30(2), 150–159. https://doi.org/10.1080/09638280701195462
   PubMed Web of Science ®Google Scholar
• Estevao, C., Taylor, E., Jarrett, L., Fort, J., Murphy, K., Woods, A., Crane, N., Pariante, C., & Jones, F. (2022). A Protocol to Understand the Implementation and Experiences of an Online Community-Based Performance Arts Programme Through and Beyond the COVID-19 Pandemic, Brain Waves. Frontiers in Rehabilitation Sciences, 15 (3), 793901. https://doi.org/10.3389/fresc.2022.793901.
   Google Scholar
• Fancourt, D., Aughterson, H., Finn, S., Walker, E., & Steptoe, A. (2021). How leisure activities affect health: A narrative review and multi-level theoretical framework of mechanisms of action. The Lancet Psychiatry, 8(4), 329–339. https://doi.org/10.1016/S2215-03662030384-9
   PubMed Web of Science ®Google Scholar
• Fancourt, D., & Finn, S. (2019). What is the evidence on the role of the arts in improving health and well-being? A scoping review. WHO Regional Office for Europe. http://www.ncbi.nlm.nih.gov/books/NBK553773
   Google Scholar
• Graham, E. L., Clark, J. R., Orban, Z. S., Lim, P. H., Szymanski, A. L., Taylor, C., DiBiase, R. M., Jia, D. T., Balabanov, R., Ho, S. U., Batra, A., Liotta, E. M., & Koralnik, I. J. (2021). Persistent neurologic symptoms and cognitive dysfunction in non-hospitalized Covid-19 “long haulers”. Annals of Clinical & Translational Neurology, 8(5), 1073–1085. https://doi.org/10.1002/acn3.51350
   PubMed Web of Science ®Google Scholar
• Gronewold, J., & Hermann, D. (2021). Social isolation and risk of fatal cardiovascular events. The Lancet Public Health, 6(4), e197–8. https://doi.org/10.1016/S2468-26672100008-6
   PubMed Web of Science ®Google Scholar
• Gustavson, A., Rauzi, M., Lahn, M., Olson, H., Ludescher, M., Bazal, S., Roddy, E., Interrante, C., Berg, E., Wisdom, J. P., & Fink, H. A. (2021). Practice considerations for adapting in-person groups to telerehabilitation. International Journal of Telerehabilitation, 13(1), 1–13. https://doi.org/10.5195/ijt.2021.6374
   Web of Science ®Google Scholar
• Headway. (2009). The Effects of Brain Injury—Fact Sheet. https://www.headway.org.uk/media/7669/the-effects-of-brain-injury-2019-factsheet.pdf
   Google Scholar
• Headway. (2022). The debilitating impact of social isolation. https://www.headway.org.uk/about-brain-injury/individuals/brain-injury-and-me/the-debilitating-impact-of-social-isolation/
   Google Scholar
• Headway. (n.d.). Statistics. https://www.headway.org.uk/about-brain-injury/further-information/statistics/
   Google Scholar
• Heinemann, A. W., Sokol, K., Garvin, L., & Bode, R. K. (2002). Measuring unmet needs and services among persons with traumatic brain injury. Archives of Physical Medicine and Rehabilitation, 83(8), 1052–1059. https://doi.org/10.1053/apmr.2002.34283
   PubMed Web of Science ®Google Scholar
• Holland, M., Fiorito, M., Gravel, M., McLeod, S., Polson, J., Incio Serra, N., & Blain-Moraes, S. (2022). “We are still doing some magic”: Exploring the effectiveness of online therapeutic clowning. Arts & Health, 9(2), 1–16. https://doi.org/10.1080/17533015.2022.2047745
   Google Scholar
• Jarrett, L. (2018). Stroke Odysseys: Performance arts after stroke, a service innovation for neurological rehabilitation. British Journal of Neuroscience Nursing, 14(Sup5), S18–21. https://doi.org/10.12968/bjnn.2018.14.Sup5.S18
   Google Scholar
• Jolliffe, L., Lannin, N. A., Cadilhac, D. A., & Hoffmann, T. (2018). Systematic review of clinical practice guidelines to identify recommendations for rehabilitation after stroke and other acquired brain injuries. British Medical Journal Open, 8(2), e018791. https://doi.org/10.1136/bmjopen-2017-018791
   PubMed Web of Science ®Google Scholar
• Kocsis, B. J., & Yellowlees, P. (2017). Telepsychotherapy and the therapeutic relationship: Principles, advantages, and case examples. Telemedicine and E-Health, 24(5), 329–334. https://doi.org/10.1089/tmj.2017.0088
   PubMed Web of Science ®Google Scholar
• Konrad, C., Geburek, A. J., Rist, F., Blumenroth, H., Fischer, B., Husstedt, I., Arolt, V., Schiffbauer, H., & Lohmann, H. (2011). Long-term cognitive and emotional consequences of mild traumatic brain injury. Psychological Medicine, 41(6), 1197–1211. https://doi.org/10.1017/S0033291710001728
   PubMed Web of Science ®Google Scholar
• Larkin, M., Watts, S., & Clifton, E. (2006). Giving voice and making sense in interpretative phenomenological analysis. Qualitative Research in Psychology, 3(2), 102–120. https://doi.org/10.1191/1478088706qp062oa
   Google Scholar
• Northcott, S., Moss, B., Harrison, K., & Hilari, K. (2016). A systematic review of the impact of stroke on social support and social networks: Associated factors and patterns of change. Clinical Rehabilitation, 30(8), 811–831. https://doi.org/10.1177/0269215515602136
   PubMed Web of Science ®Google Scholar
• Ownsworth, T., & Haslam, C. (2016). Impact of rehabilitation on self-concept following traumatic brain injury: An exploratory systematic review of intervention methodology and efficacy. Neuropsychological Rehabilitation, 26(1), 1–35. https://doi.org/10.1080/09602011.2014.977924
   PubMed Web of Science ®Google Scholar
• Patterson, K. K., Wong, J. S., Nguyen, T. U., & Brooks, D. (2018). A dance program to improve gait and balance in individuals with chronic stroke: A feasibility study. Topics in Stroke Rehabilitation, 25(6), 410–416. https://doi.org/10.1080/10749357.2018.1469714
   PubMed Web of Science ®Google Scholar
• Patterson, K. K., Wong, J. S., Prout, E. C., & Brooks, D. (2018). Dance for the rehabilitation of balance and gait in adults with neurological conditions other than Parkinson’s disease: A systematic review. Heliyon, 4(3), e00584. https://doi.org/10.1016/j.heliyon.2018.e00584
   PubMed Web of Science ®Google Scholar
• Reeves, S., Kuper, A., & Hodges, B. D. (2008). Qualitative research methodologies: Ethnography. British Medical Journal, 337(7668), 512–514. https://doi.org/10.1136/bmj.a1020
   Web of Science ®Google Scholar
• Rosetta Life. (n.d.). Rosetta Life: What we do. https://rosettalife.org/what-we-do
   Google Scholar
• Sarfo, F. S., Ulasavets, U., Opare-Sem, O. K., & Obviagele, B. (2018). Telerehabilitation after stroke: An updated systematic review of the literature. Journal of Stroke and Cerebrovascular Diseases, 27(9), 2306–2318. https://doi.org/10.1016/j.jstrokecerebrovasdis.2018.05.013
   PubMed Web of Science ®Google Scholar
• Schlaug, G., Altenmüüller, E., & Thaut, M. (2010). Music listening and music making in the treatment of neurological disorders and impairments. Music Perception, 27(4), 249–250. https://doi.org/10.1525/mp.2010.27.4.249
   Web of Science ®Google Scholar
• Seah, K. M. (2020). COVID-19: Exposing digital poverty in a pandemic. International Journal of Surgery, 79, 127–128. https://doi.org/10.1016/j.ijsu.2020.05.057
   PubMed Web of Science ®Google Scholar
• Smith, J. A. (2011). Evaluating the contribution of interpretative phenomenological analysis. Health Psychology Review, 5(1), 9–27. https://doi.org/10.1080/17437199.2010.510659
   Web of Science ®Google Scholar
• Stroke Association. (n.d.). Lived experience of Stroke. Chapter 3: Caring for a stroke survivor: What carers need. https://www.stroke.org.uk/sites/default/files/lived_experience_of_stroke_report_-_chapter_3.pdf
   Google Scholar
• Stroke Association. (n.d.). Stroke Statistics. https://www.stroke.org.uk/what-is-stroke/stroke-statistics
   Google Scholar
• Tarrant, M., Lamont, R., Hollands, L., Mounce, L., Dean, S., Code, C., Bollen, J., Sanders, A., & Calitri, R. (2022). Post-stroke peer-support groups research report: An investigation of the Stroke Association’s peer support groups before and during the COVID-19 pandemic. [ Unpublished manuscript]. University of Exeter and Stroke Association.
   Google Scholar
• Vassilev, I., Band, R., Kennedy, A., James, E., & Rogers, A. (2019). The role of collective efficacy in long-term condition management: A metasynthesis. Health and Social Care in the Community, 27(5), e588–603. https://doi.org/10.1111/hsc.12779
   PubMed Web of Science ®Google Scholar
• Watts, G. (2020). COVID-19 and the digital divide in the UK. Lancet Digital Health, 2(8), E395–E396. https://doi.org/10.1016/S2589-7500(20)30169-2
   PubMedGoogle Scholar
• Wilkie, L., Arroyo, P., Conibeer, H., Kemp, A. H., & Fisher, Z. (2021). The impact of psycho-social interventions on the wellbeing of individuals with acquired brain injury during the COVID-19 pandemic. Frontiers in Psychology, 12, 648286. https://doi.org/10.3389/fpsyg.2021.648286
   PubMed Web of Science ®Google Scholar