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Research Articles

Health Literacy Assessment of NHLBI COPD Education Playlist on YouTube

ORCID Icon, , , & ORCID Icon
Pages 177-188 | Received 09 Aug 2023, Accepted 20 Sep 2023, Published online: 24 Jan 2024

References

  • Mayo Clinic. COPD. Mayo Clinic website. Updated April 15, 2020. https://www.mayoclinic.org/diseases-conditions/copd/symptoms-causes/syc-20353679. Accessed May 31, 2023.
  • MacNee W. Pathology, pathogenesis, and pathophysiology. BMJ. 2006;332(7551):1202–1204. doi:10.1136/bmj.332.7551.1202.
  • Xu J, Murphy SL, Kockanek KD, et al. Mortality in the United States, 2021. NCHS. 2022;456. doi:10.15620/cdc:122516.
  • American Lung Association. COPD trends brief: prevalence. American Lung Association website. https://www.lung.org/research/trends-in-lung-disease/copd-trends-brief/copd-prevalence. Accessed May 31, 2023.
  • Guarascio AJ, Ray SM, Finch CK, et al. The clinical and economic burden of chronic obstructive pulmonary disease in the USA. Clinician Outcomes Res. 2013;5:235–245. doi:10.2147/CEOR.S34321.
  • Welte T, Vogelmeier C, Papi A. COPD: early diagnosis and treatment to slow disease progression. Int J Clin Pract. 2015;69(3):336–349. doi:10.1111/ijcp.12522.
  • Watson A, Wilkinson TMA. Digital healthcare in COPD management: a narrative review on the advantages, pitfalls, and need for further research. Ther Adv Respir Dis. 2022;16:1–23. doi:10.1177/17534666221075493.
  • Shah RF, Gupta RM. Video instruction is more effective than written instruction in improving inhaler technique. Pulm Pharmacol Ther. 2017;46:16–19. doi:10.1016/j.pupt.2017.08.005.
  • Corbett JA, Opladen JM, Bisognano JD. Telemedicine can revolutionize the treatment of chronic disease. Int J Cardiol Hypertens. 2020;7:100051. doi:10.1016/j.ijchy.2020.100051.
  • Navarro O, Escrivá M, Faubel R, et al. Empowering patients living with chronic conditions using video as an educational tool: scoping review. J Med Internet Res. 2021;23(7):e26427. doi:10.2196/26427.
  • Liu F, Cai H, Tang Q, et al. Effects of an animated diagram and video-based online breathing program for dyspnea in patients with stable COPD. Patient Prefer Adher. 2013;7:905–913. doi:10.2147/PPA.S43305.
  • Gagliano ME. A literature review on the efficacy of video in patient education. J Med Educ. 1988;63(10):785–792. doi:10.1097/00001888-198810000-00006.
  • Lenferink A, van der Palen J, Effing T. The role of social support in improving chronic obstructive pulmonary disease self-management. Expert Rev Respir Med. 2018;12(8):623–626. doi:10.1080/17476348.2018.1489723.
  • McCabe C, McCann M, Brady AM. Computer and mobile technology interventions for self-management in chronic obstructive pulmonary disease. Cochrane Database Syst Rev. 2017;2020(2):CD011425. doi:10.1002/14651858.CD011425.pub2.
  • National Institutes of Health. National Heart, Lung, and Blood Institute (NHLBI). National Institutes of Health website. https://www.nih.gov/about-nih/what-we-do/nih-almanac/national-heart-lung-blood-institute-nhlbi. Published June 14, 2018. Accessed May 31, 2023.
  • National Heart, Lung, and Blood Institute. About the learn more breathe better® program. National Heart Lung and Blood Institute website. https://www.nhlbi.nih.gov/health-topics/education-and-awareness/copd-learn-more-breathe-better/about-lmbb. Accessed May 31, 2023.
  • Alcântara EC, Corrêa KS, Jardim J, Rabahi MF. Multidisciplinary education with a focus on COPD in primary health care. J Bras Pneumol. 2019;45(6):e20180230. doi:10.1590/1806-3713/e2018-0230.
  • Madathil KC, Rivera-Rodriguez AJ, Greenstein JS, et al. Healthcare information on YouTube: a systematic review. Health Informatics J. 2015;21(3):173–194. doi:10.1177/1460458213512220.
  • Yoo M, Bang MH, Jang CW. Evaluation of YouTube videos as a source of information on pulmonary rehabilitation for COPD. Respir Care. 2022;67(5):534–542. doi:10.4187/respcare.09651.
  • Paige SR, Damiani RE, Flood-Grady E, Krieger JL, Stellefson M. The perceived availability of online social support: exploring the contributions of illness and rural identities in adults with chronic respiratory illness. Int J Environ Res Public Health. 2019;17(1):242. doi:10.3390/ijerph17010242.
  • Stellefson M, Chaney B, Ochipa K, et al. YouTube as a source of chronic obstructive pulmonary disease patient education: a social media content analysis. Chron Respir Dis. 2014;11(2):61–71. doi:10.1177/1479972314525058.
  • Haslam K, Doucette H, Hachey S, et al. YouTube videos as health decision aids for the public: an integrative review. Can J Dent Hyg. 2019;53(1):53–66. https://pubmed.ncbi.nlm.nih.gov/33240342/. Accessed May 31, 2023.
  • National Institute on Aging. How to find reliable health information online. National Institute on Aging website. https://www.nia.nih.gov/health/how-find-reliable-health-information-online. Published January 12, 2023. Accessed May 31, 2023.
  • Kale MS, Federman AD, Krauskopf K, et al. The association of health literacy with illness and medication beliefs among patients with chronic obstructive pulmonary disease. PLoS One. 2015;10(4):e0123937. doi:10.1371/journal.pone.0123937.
  • Puente-Maestu L, Calle M, Rodriguez-Hermosa JL, et al. Health literacy and health outcomes in chronic obstructive pulmonary disease. Resp Med. 2016;115:78–82. doi:10.1016/j.rmed.2016.04.016.
  • Agency for Healthcare Research and Quality. The patient education materials assessment tool (PEMAT) and user’s guide. Agency for Healthcare Research and Quality website. Updated November, 2020. https://www.ahrq.gov/health-literacy/patient-education/pemat-av.html. Published October, 2013. Accessed May 31, 2023.
  • Eichner J, Dullabh P. Accessible Health Information Technology (Health IT) for Populations with Limited Literacy: A Guide for Developers and Purchasers of Health IT; 2007. AHRQ Publication No. 08-0010-EF. Agency for Healthcare Research and Quality.
  • Cusack CM, Byrne C, Hook JM, et al. Health Information Technology Evaluation Toolkit: 2009 Update; 2009. AHRQ Publication No. 09-0083-EF. Agency for Healthcare Research and Quality.
  • Baur C, Prue C. The CDC clear communication index is a new evidence-based tool to prepare and review health information. Health Promot Pract. 2014;15(5):629–37. doi:10.1177/1524839914538969.
  • Centers for Disease Control and Prevention. The CDC clear communication index. Centers for Disease Control and Prevention website. https://www.cdc.gov/ccindex/index.html. Published June 28, 2023. Accessed May 31, 2023.
  • Shoemaker S, Wolf M, Brach C. The Patient Education Materials Assessment Tool (PEMAT) and User’s Guide; 2013. AHRQ Publication No. 14-0002-EF. Reviewed November, 2020. https://www.ahrq.gov/health-literacy/patient-education/pemat.html. Accessed September 15, 2023.
  • Lambert K, Mullan J, Mansfield K, et al. Evaluation of the quality and health literacy demand of online renal diet information. J Hum Nutr Diet. 2017;30(5):634–645. doi:10.1111/jhn.12466.
  • Loeb S, Sengupta S, Butaney M, et al. Dissemination of misinformative and biased information about prostate cancer on YouTube. Eur Urol. 2019;75(4):564–567. doi:10.1016/j.eururo.2018.10.056.
  • Shoemaker SJ, Wolf MS, Brach C. Development of the patient education materials assessment tool (PEMAT): a new measure of understandability and actionability for print and audiovisual patient information. Patient Educ Couns. 2014;96(3):395–403. doi:10.1016/j.pec.2014.05.027.
  • Middeldorp ME, Lyrtzis E, Heath K, Hall T, Kadhim K, Sanders P. Assessment of available online educational resources for patients with atrial fibrillation. Heart Rhythm O2. 2022;4(3):187–192. doi:10.1016/j.hroo.2022.12.013.
  • Centers for Disease Control and Prevention. CDC Clear Communication Index: A Tool for Developing and Accessing CDC Public Communication Products. Atlanta, GA: Centers for Disease Control and Prevention; 2019.
  • Centers for Disease Control and Prevention. Welcome to the CDC clear communication index. Atlanta, GA: Centers for Disease Control and Prevention website. https://www.cdc.gov/ccindex/widget.html. Accessed May 31, 2023.
  • Centers for Disease Control and Prevention. CDC Clear Communication Index Score Sheet. Atlanta, GA: Centers for Disease Control and Prevention; 2014.
  • McHugh ML. Interrater reliability: the kappa statistic. Biochem Med (Zagreb). 2012;22(3):276–282. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3900052/. Published October 15, 2012. Accessed September 15, 2023.
  • Marinho AMCL, Baur C, Costa LEO, et al. Some psychometric properties of the Brazilian CDC clear communication index. Health Lit Res Pract. 2022;6(2):84–87. doi:10.3928/24748307-20220315-01.
  • Cohen J. Weighted kappa: nominal scale agreement provision for scaled disagreement or partial credit. Psychol Bull. 1968;70(4):213–220. doi:10.1037/h0026256.
  • Kessler R, Partridge MR, Miravitlles M, et al. Symptom variability in patients with severe COPD: a pan-European cross-sectional study. Eur Respir J. 2011;37(2):264–272. doi:10.1183/09031936.00051110.
  • Stellefson M, Paige SR, Alber JM, et al. Association between health literacy, electronic health literacy, disease-specific knowledge and health-related quality of life among adults with chronic obstructive pulmonary disease: cross-sectional study. J Med Internet Res. 2019;21(6):e12165. doi:10.2196/12165.
  • Rigual J, Vargas Centanaro G, Pelaez F, et al. Factors associated with therapeutic compliance in COPD. Eur Respir J. 2017;50:A3881. doi:10.1183/1393003.congress-2017.PA3881.
  • Paige SR, Damianai RE, Flood-Grady E, Krieger JL, Stellefson M. The perceived availability of online social support: exploring the contributions of illness and rural identities in adults with chronic respiratory illness. Int J Environ Res Public Health. 2020;17(1):242. doi:10.3390/ijerph17010242.
  • Centers for Disease Control and Prevention. The CDC clear communication index: risk explained. Centers for Disease Control and Prevention website. https://www.cdc.gov/ccindex/tool/page-18.html. Published August 7, 2019. Accessed July 10, 2023.
  • Apperson A, Stellefson M, Paige S, et al. Facebook groups on chronic obstructive pulmonary disease: social media content analysis. Int J Environ Res Public Health. 2019;16(20):3789. doi:10.3390/ijerph16203789.
  • Stellefson M, Paige SR, Chaney BH, Chaney JD. Social media and health promotion. IntJ Environ Res Public Health. 2020;17(9):3323. doi:10.3390/ijerph17093323.
  • National Commission for Health Education Credentialing. Responsibilities and competencies for health education specialists. National Commission for Health Education Credentialing Website. https://www.nchec.org/responsibilities-and-competencies. Accessed June 27, 2023.

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