Patients’ experiences of living with a stoma in rural areas in Northern Sweden

References

• Näverlo S, Strigård K, Gunnarsson U. Long distance to hospital is not a risk factor for non-reversal of a defunctioning stoma. Int J Colorectal Dis. 2019;34(6):993–12.
   PubMed Web of Science ®Google Scholar
• Näsvall P, Dahlstrand U, Löwenmark T, et al. Quality of life in patients with a permanent stoma after rectal cancer surgery. Qual Life Res. 2017;26(1):55–64.
   PubMed Web of Science ®Google Scholar
• Statistical database of Cancer [Internet]. National Board of Health and Welfare, Sweden. Available: https://www.socialstyrelsen.se/statistik-och-data/statistik/alla-statistikamnen/cancer/
   Google Scholar
• Takahashi K, Funayama Y, Fukushima K, et al. Stoma-related complications in inflammatory bowel disease. Dig Surg. 2008;25(1):16–20. DOI:10.1159/000117818
   PubMed Web of Science ®Google Scholar
• Brassetti A, Möller A, Laurin O, et al. Evolution of cystectomy care over an 11-year period in a high-volume tertiary referral centre. BJU Int. 2018;121(5):752–757. DOI:10.1111/bju.14112
   PubMed Web of Science ®Google Scholar
• Tan EK, Vaizey C, Cornish J, et al. Surgical strategies for faecal incontinence–a decision analysis between dynamic graciloplasty, artificial bowel sphincter and end stoma. Colorectal Dis. 2008;10(6):577–586.
   PubMed Web of Science ®Google Scholar
• Salem L, Flum DR. Primary anastomosis or Hartmann’s procedure for patients with diverticular peritonitis? A systematic review. Dis Colon Rectum. 2004;47(11):1953–1964.
   PubMed Web of Science ®Google Scholar
• Bulkley J, McMullen CK, Hornbrook MC, et al. Spiritual well-being in long-term colorectal cancer survivors with ostomies. Psychooncology. 2013;22(11):2513–2521. DOI:10.1002/pon.3318
   PubMed Web of Science ®Google Scholar
• Boraii S. A descriptive study to assess quality of life in Egyptian patients with a stoma. Ostomy Wound Manage. 2017;63(7):28–33.
   PubMedGoogle Scholar
• Danielsen AK, Burcharth J, Rosenberg J. Patient education has a positive effect in patients with a stoma: a systematic review. Colorectal Dis. 2013;15(6):e276–83.
   PubMed Web of Science ®Google Scholar
• Bonill-de-Las-Nieves C, Celdrán-Mañas M, Hueso-Montoro C, et al. Living with digestive stomas: strategies to cope with the new bodily reality. Rev Lat Am Enfermagem. 2014;22(3):394–400.
   PubMed Web of Science ®Google Scholar
• Merleau-Ponty M. Phenomenology of perception. Book: Routledge; 2002.
   Google Scholar
• Shabbir J, Britton DC. Stoma complications: a literature overview. Colorectal Dis. 2010;12(10):958–964.
   PubMed Web of Science ®Google Scholar
• Carne PW, Robertson GM, Frizelle FA. Parastomal hernia. Br J Surg. 2003;90(7):784–793.
   PubMed Web of Science ®Google Scholar
• Robertson I, Leung E, Hughes D, et al. Prospective analysis of stoma-related complications. Colorectal Dis. 2005;7(3):279–285. DOI:10.1111/j.1463-1318.2005.00785.x
   PubMed Web of Science ®Google Scholar
• Caricato M, Ausania F, Ripetti V, et al. Retrospective analysis of long-term defunctioning stoma complications after colorectal surgery. Colorectal Dis. 2007;9(6):559–561.
   PubMed Web of Science ®Google Scholar
• Londono-Schimmer EE, Leong AP, Phillips RK. Life table analysis of stomal complications following colostomy. Dis Colon Rectum. 1994;37(9):916–920.
   PubMed Web of Science ®Google Scholar
• Brown H, Randle J. Living with a stoma: a review of the literature. J Clin Nurs. 2005;14(1):74–81.
   PubMed Web of Science ®Google Scholar
• Capilla-Díaz C, Bonill-de Las Nieves C, Hernández-Zambrano SM, et al. Living with an intestinal stoma: a qualitative systematic review. Qual Health Res. 2019;29(9):1255–1265. DOI:10.1177/1049732318820933
   PubMed Web of Science ®Google Scholar
• Krogsgaard M, Pilsgaard B, Borglit TB, et al. Symptom load and individual symptoms before and after repair of parastomal hernia: a prospective single centre study. Colorectal Dis. 2016;19(2):200–207.
   Google Scholar
• Wara P, Andersen LM. Long-term follow-up of laparoscopic repair of parastomal hernia using a bilayer mesh with a slit. Surg Endosc. 2011;25(2):526–530.
   PubMed Web of Science ®Google Scholar
• Ripoche J, Basurko C, Fabbro-Perray P, et al. Parastomal hernia. A study of the French federation of ostomy patients. J Visc Surg. 2011;148(6):e435–41.
   PubMed Web of Science ®Google Scholar
• Grant M, McMullen CK, Altschuler A, et al. Gender differences in quality of life among long-term colorectal cancer survivors with ostomies. Oncol Nurs Forum. 2011;38(5):587–596. DOI:10.1188/11.ONF.587-596
   PubMed Web of Science ®Google Scholar
• Helgstrand F, Rosenberg J, Kehlet H, et al. Risk of morbidity, mortality, and recurrence after parastomal hernia repair: a nationwide study. Dis Colon Rectum. 2013;56(11):1265–1272.
   PubMed Web of Science ®Google Scholar
• Odensten C, Strigård K, Dahlberg M, et al. Parastomal hernia repair; seldom performed and seldom reported: results from a nationwide survey. Scand J Surg. 2018;109(2):96–101.
   PubMed Web of Science ®Google Scholar
• Richbourg L, Thorpe JM, Rapp CG. Difficulties experienced by the ostomate after hospital discharge. J Wound Ostomy Continence Nurs. 2007;34(1):70–79.
   PubMed Web of Science ®Google Scholar
• Pringle W, Swan E. Continuing care after discharge from hospital for stoma patients. Br J Nurs. 2001;10(19):1275–1288.
   PubMedGoogle Scholar
• Danielsen AK, Rosenberg J, Black PC. Health related quality of life may increase when patients with a stoma attend patient education–a case-control study. PLoS ONE. 2014;9(3):e90354.
   PubMed Web of Science ®Google Scholar
• Hedman M, Boman K, Brännström M, et al. Clinical profile of rural community hospital inpatients in Sweden - a register study. Scand J Prim Health Care. 2021;39(1):92–100.
   PubMed Web of Science ®Google Scholar
• Municipalities, Statistics Sweden (SCB), [Internet]. Accessed 2021-03-20 Available: https://kommunsiffror.scb.se/.
   Google Scholar
• Massarweh NN, Chiang YJ, Xing Y, et al. Association between travel distance and metastatic disease at diagnosis among patients with colon cancer. J Clin Oncol. 2014;32(9):942–948. DOI:10.1200/JCO.2013.52.3845
   PubMed Web of Science ®Google Scholar
• Näverlo S Stomas from a rural perspective : an evaluation of characteristics, differences and improvement opportunities [Internet] [ PhD dissertation]. [Umeå]: Umeå universitet; 2020. (Umeå University medical dissertations). Available from: http://urn.kb.se/resolve?urn=urn:nbn:se:umu:diva-168717.
   Google Scholar
• Påhlman L, Glimelius B. Local recurrences after surgical treatment for rectal carcinoma. Acta Chir Scand. 1984;150(4):331–335.
   PubMedGoogle Scholar
• Påhlman L, Bohe M, Cedermark B, et al. The Swedish rectal cancer registry. Br J Surg. 2007;94(10):1285–1292. DOI:10.1002/bjs.5679
   PubMed Web of Science ®Google Scholar
• Tong A, Sainsbury P, Craig J. Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. Int J Qual Health Care. 2007;19(6):349–357.
   PubMed Web of Science ®Google Scholar
• Graneheim UH, Lundman B. Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness. Nurse Educ Today. 2004;24(2):105–112.
   PubMed Web of Science ®Google Scholar
• Kamradt M, Baudendistel I, Längst G, et al. Collaboration and communication in colorectal cancer care: a qualitative study of the challenges experienced by patients and health care professionals. Fam Pract. 2015;32(6):686–693. DOI:10.1093/fampra/cmv069
   PubMed Web of Science ®Google Scholar
• Näverlo S, Carson DB, Edin-Liljegren A, et al. Patient perceptions of a virtual health room installation in rural Sweden. Rural Remote Health. 2016;16(4):3823.
   PubMed Web of Science ®Google Scholar
• Maarsingh OR, Henry Y, van de Ven PM, et al. Continuity of care in primary care and association with survival in older people: a 17-year prospective cohort study. Br J Gen Pract. 2016;66(649):e531–9.
   PubMed Web of Science ®Google Scholar
• Rozmovits L, Rose P, Ziebland S. In the absence of evidence, who chooses? A qualitative study of patients’ needs after treatment for colorectal cancer. J Health Serv Res Policy. 2004;9(3):159–164.
   PubMedGoogle Scholar
• Krogsgaard M, Thomsen T, Vinther A, et al. Living with a parastomal bulge - patients’ experiences of symptoms. J Clin Nurs. 2017;26(23–24):5072–5081.
   PubMed Web of Science ®Google Scholar
• Stavropoulou A, Vlamakis D, Kaba E, et al. “Living with a Stoma”: exploring the lived experience of patients with permanent colostomy. Int J Environ Res Public Health. 2021;18(16):8512. DOI:10.3390/ijerph18168512
   PubMed Web of Science ®Google Scholar
• Hueso-Montoro C, Bonill-de-Las-Nieves C, Celdrán-Mañas M, et al. Experiences and coping with the altered body image in digestive stoma patients. Rev Lat Am Enfermagem. 2016;24:e2840.
   PubMed Web of Science ®Google Scholar
• Ketterer SN, Leach MJ, Fraser C. Factors associated with quality of life among people living with a stoma in nonmetropolitan areas. Nurs Res. 2021;70(4):281–288.
   PubMed Web of Science ®Google Scholar
• Nastro P, Knowles CH, McGrath A, et al. Complications of intestinal stomas. Br J Surg. 2010;97(12):1885–1889.
   PubMed Web of Science ®Google Scholar
• Malterud K, Siersma VD, Guassora AD. Sample size in qualitative interview studies: guided by information power. Qual Health Res. 2016;26(13):1753–1760.
   PubMed Web of Science ®Google Scholar