Publication Cover
Canadian Journal of Pain
Revue canadienne de la douleur
Volume 8, 2024 - Issue 1
489
Views
0
CrossRef citations to date
0
Altmetric
Research Article

Codéveloppement d’un programme d’autogestion de la douleur chronique en ligne: un projet de recherche basé sur la conception et axé sur l’engagement des patients

ORCID Icon, ORCID Icon & ORCID Icon
Article: 2302487 | Received 05 Aug 2023, Accepted 03 Jan 2024, Published online: 12 Mar 2024

References

  • Lin I, Wiles L, Waller R, Goucke R, Nagree Y, Gibberd M, Straker L, Maher CG, O’Sullivan PPB. What does best practice care for musculoskeletal pain look like? Eleven consistent recommendations from high-quality clinical practice guidelines: systematic review. Br J Sports Med. 2020;54(2):79–15. doi:10.1136/bjsports-2018-099878.
  • Shupler MS, Kramer JK, Cragg JJ, Jutzeler CR, Whitehurst DGT. Pan-Canadian estimates of chronic pain prevalence from 2000 to 2014: a repeated cross-sectional survey analysis. J Pain. 2019;20(5):557–65. doi:10.1016/j.jpain.2018.10.010.
  • Lorig K, Holman H. Self-management education: history, definition, outcomes, and mechanisms. Ann Behav Med. 2003;26(1):1–7. doi:10.1207/S15324796ABM2601_01.
  • Aggarwal VR, Fu Y, Main CJ, Wu J. The effectiveness of self‐management interventions in adults with chronic orofacial pain: a systematic review, meta‐analysis and meta‐regression. Eur J Pain. 2019;23(5):849–65. doi:10.1002/ejp.1358.
  • Kroon FP, van der Burg LR, Buchbinder R, Osborne RH, Johnston RV, Pitt V. Self-management education programmes for osteoarthritis. Cochrane Database Syst Rev. 2014;(1)Cd008963. doi:10.1002/14651858.CD008963.pub2.
  • Carnes ED, Homer LK, Miles JCC, Pincus JCT, Underwood JCM, Rahman JCA, Taylor JCS. Effective delivery styles and content for self-management interventions for chronic musculoskeletal pain: a systematic literature review. Clin J Pain. 2012;28(4):344–54. doi:10.1097/AJP.0b013e31822ed2f3.
  • Reynoldson C, Stones C, Allsop M, Gardner P, Bennett MI, Closs SJ, Jones R, Knapp P. Assessing the quality and usability of smartphone apps for pain self-management. Pain Med. 2014;15(6):898–909. doi:10.1111/pme.12327.
  • Lalloo C, Jibb LA, Rivera J, Agarwal A, Stinson JN. “There’s a pain app for that”: review of patient-targeted smartphone applications for pain management. Clin J Pain. 2015;31(6):557–63. doi:10.1097/ajp.0000000000000171.
  • Lim YZ, Chou L, Au RT, Seneviwickrama KMD, Cicuttini FM, Briggs AM, Sullivan K, Urquhart DM, Wluka AE. People with low back pain want clear, consistent and personalised information on prognosis, treatment options and self-management strategies: a systematic review. J Physiother. 2019;65(3):124–35. doi:10.1016/j.jphys.2019.05.010.
  • Ledel Solem IK, Varsi C, Eide H, Kristjansdottir OB, Mirkovic J, Børøsund E, Haaland-Øverby M, Heldal K, Schreurs KMG, Waxenberg LB, et al. Patients’ needs and requirements for eHealth pain management interventions: qualitative study. J Med Internet Res. 2019;21(4):e13205. doi:10.2196/13205.
  • Choinière M, Peng P, Gilron I, Buckley N, Williamson O, Janelle-Montcalm A, Baerg K, Boulanger A, Renna TD, Finley GA, et al. Accessing care in multidisciplinary pain treatment facilities continues to be a challenge in Canada. Reg Anesth Pain Med. 2020;45(12):943–48. doi:10.1136/rapm-2020-101935.
  • Gandy M, Pang STY, Scott AJ, Heriseanu AI, Bisby MA, Dudeney J, Karin E, Titov N, Dear BF. Internet-delivered cognitive and behavioural based interventions for adults with chronic pain: a systematic review and meta-analysis of randomized controlled trials. Pain. 2022;163(10):e1041–e1053. doi:10.1097/j.pain.0000000000002606.
  • Moman RN, Dvorkin J, Pollard EM, Wanderman R, Murad MH, Warner DO, Hooten WM. A systematic review and meta-analysis of unguided electronic and mobile health technologies for chronic pain-is it time to start prescribing electronic health applications? Pain Med. 2019;20(11):2238–55. doi:10.1093/pm/pnz164.
  • Smith J, Faux SG, Gardner T, Hobbs MJ, James MA, Joubert AE, Kladnitski N, Newby JM, Schultz R, Shiner CT, et al. Reboot online: a randomized controlled trial comparing an online multidisciplinary pain management program with usual care for chronic pain. Pain Med. 2019;20(12):2385–96. doi:10.1093/pm/pnz208.
  • Devan H, Godfrey HK, Perry MA, Hempel D, Saipe B, Hale L, Grainger R. Current practices of health care providers in recommending online resources for chronic pain self-management. J Pain Res. 2019;12:2457–72. doi:10.2147/JPR.S206539.
  • Wilson M, Finlay M, Orr M, Barbosa-Leiker C, Sherazi N, Roberts MLA, Layton M, Roll JM. Engagement in online pain self-management improves pain in adults on medication-assisted behavioral treatment for opioid use disorders. Addict Behav. 2018;86:130–37. doi:10.1016/j.addbeh.2018.04.019.
  • Dear BF, Karin E, Fogliati R, Dudeney J, Nielssen O, Gandy M, Staples L, Scott AJ, Heriseanu AI, Bisby MA, et al. The pain course: a randomised controlled trial and economic evaluation of an internet-delivered pain management program. Pain. 2022;163(7):1388–401. doi:10.1097/j.pain.0000000000002507.
  • Bhatia A, Kara J, Janmohamed T, Prabhu A, Lebovic G, Katz J, Clarke H. User engagement and clinical impact of the manage my pain app in patients with chronic pain: a real-world, multi-site trial. JMIR Mhealth Uhealth. 2021;9(3):e26528. doi:10.2196/26528.
  • Boureanu M, Brahim LO, Apedaile D, Wasserman S, Magalhaes M, Belzile E, Frati FYE, Lambert S. Evaluation of online, publicly available cancer-related educational and self-management resources for symptom management. Psychooncology. 2021;30(11):1884–93. doi:10.1002/pon.5756.
  • Trudeau K, Ainscough J, Pujol L, Charity S. What arthritis pain practitioners and patients want in an online self‐management programme. Musculoskelet Care. 2010;8(4):189–96. doi:10.1002/msc.183.
  • Canadian Agency for Drugs and Technologies in Health. Access to and availability of non-pharmacological treatments for chronic non-cancer pain in Canada: an environmental scan. Ottawa (CA): Canadian Agency for Drugs and Technologies in Health (CADTH); 2021 Nov 30 [ accessed 2023 Jul 31]. https://www.cadth.ca/access-and-availability-non-pharmacological-treatments-chronic-non-cancer-pain-canada-0.
  • Moore SK, Guarino H, Acosta MC, Aronson ID, Marsch LA, Rosenblum A, Grabinski MJ, Turk DC. Patients as collaborators: using focus groups and feedback sessions to develop an interactive, web-based self-management intervention for chronic pain. Pain Med. 2013;14(11):1730–40. doi:10.1111/pme.12200.
  • Keogh E, Rosser BA, Eccleston C. e-Health and chronic pain management: current status and developments. Pain. 2010;151(1):18–21. doi:10.1016/j.pain.2010.07.014.
  • Carman KLPD, Workman TAPD. Engaging patients and consumers in research evidence: applying the conceptual model of patient and family engagement. Patient Educ Couns. 2017;100(1):25–29. doi:10.1016/j.pec.2016.07.009.
  • Araújo-Soares V, Hankonen N, Presseau J, Rodrigues A, Sniehotta FF. Developing behavior change interventions for self-management in chronic illness: an integrative overview. Eur Psychol. 2019;24(1):7–25. doi:10.1027/1016-9040/a000330.
  • Svendsen MJ, Wood KW, Kyle J, Cooper K, Rasmussen CDN, Sandal LF, Stochkendahl MJ, Mair FS, Nicholl BI. Barriers and facilitators to patient uptake and utilisation of digital interventions for the self-management of low back pain: a systematic review of qualitative studies. BMJ Open. 2020;10(12):e038800. doi:10.1136/bmjopen-2020-038800.
  • Slattery BW, Haugh S, O’Connor L, Francis K, Dwyer CP, O’Higgins S, Egan J, McGuire BE. An evaluation of the effectiveness of the modalities used to deliver electronic health interventions for chronic pain: systematic review with network meta-analysis. J Med Internet Res. 2019;21(7):e11086. doi:10.2196/11086.
  • Bhattarai P, Newton-John TRO, Phillips JL. Quality and usability of arthritic pain self-management apps for older adults: a systematic review. Pain Med. 2018;19(3):471–84. doi:10.1093/pm/pnx090.
  • McKenney S, Reeves TC. Systematic review of design-based research progress: is a little knowledge a dangerous thing? Educ Res. 2013;42(2):97–100. doi:10.3102/0013189X12463781.
  • Anderson T, Shattuck J. Design-based research: a decade of progress in education research? Educ Res. 2012;41(1):16–25. doi:10.3102/0013189X11428813.
  • Scott EE, Wenderoth MP, Doherty JH. Design-based research: a methodology to extend and enrich biology education research. CBE Life Sci Educ. 2020;19(3):es11. doi:10.1187/cbe.19-11-0245.
  • Cane J, O’Connor D, Michie S. Validation of the theoretical domains framework for use in behaviour change and implementation research. Implement Sci. 2012;7(1):37. doi:10.1186/1748-5908-7-37.
  • Ryan RM, Deci EL. Self-determination theory and the facilitation of intrinsic motivation, social development, and well-being. Am Psychol. 2000;55(1):68–78. doi:10.1037/0003-066X.55.1.68.
  • Kerns RD, Rosenberg R. Predicting responses to self-management treatments for chronic pain: application of the pain stages of change model. Pain. 2000;84(1):49–55. doi:10.1016/s0304-3959(99)00184-0.
  • Ozuah PO. First, there was pedagogy and then came andragogy. Einstein J Biol Med. 2016;21(2):83–87. doi:10.23861/ejbm20052190.
  • Skinner M, Wilson HD, Turk DC. Cognitive-behavioral perspective and cognitive-behavioral therapy for people with chronic pain: distinctions, outcomes, and innovations. J Cogn Psychother. 2012;26(2):93–113. doi:10.1891/0889-8391.26.2.93.
  • Turk DC. Cognitive-behavioral approach to the treatment of chronic pain patients. Reg Anesth Pain Med. 2003;28(6):573–79. doi:10.1016/s1098-7339(03)00392-4.
  • Jensen MP, Nielson WR, Kerns RD. Toward the development of a motivational model of pain self-management. J Pain. 2003;4(9):477–92. doi:10.1016/s1526-5900(03)00779-x.
  • McCarron TL, Clement F, Rasiah J, Moran C, Moffat K, Gonzalez A, Wasylak T, Santana M. Patients as partners in health research: a scoping review. Health Expect. 2021;24(4):1378–90. doi:10.1111/hex.13272.
  • Instituts de recherche en santé du Canada. Stratégie de recherche axée sur le patient - Cadre d’engagement des patients. Ottawa (CA): Instituts de recherche en santé du Canada; 2019 [ accessed 2023 Jul 31]. https://cihr-irsc.gc.ca/f/48413.html.
  • Chudyk AM, Horrill T, Waldman C, Demczuk L, Shimmin C, Stoddard R, Hickes S, Schultz ASH. Scoping review of models and frameworks of patient engagement in health services research. BMJ Open. 2022;12(8):e063507. doi:10.1136/bmjopen-2022-063507.
  • Higgins DM, Buta E, Williams DA, Halat A, Bair MJ, Heapy AA, Krein SL, Rajeevan H, Rosen MI, Kerns RD. Internet-based pain self-management for veterans: feasibility and preliminary efficacy of the pain EASE program. Pain Pract. 2020;20(4):357–70. doi:10.1111/papr.12861.
  • Marier-Deschênes P, Pinard AM, Dugas M, Rodrigues M, Stefan T, Carnovale V, Lépine J, Suarez N, Jalbert L, Poirier AA, et al. Caractéristiques et effets des programmes d’autogestion chez les personnes atteintes de douleur chronique - Revue systématique et méta-analyse. Quebec (CAN): SPOR Evidence Alliance; 2022 [ accessed 2023 Nov 24]. https://sporevidencealliance.ca/wp-content/uploads/2023/05/SPOREA_Query-04-18_Report.pdf.
  • Articulate 360. New York (USA): Articulate Global, LLC; 2024 [accessed 2024 Jan 28]. https://www.articulate.com/360/.
  • Carpenter MK, Stoner AS, Mundt MJ, Stoelb MB. An online self-help CBT intervention for chronic lower back pain. Clin J Pain. 2012;28(1):14–22. doi:10.1097/AJP.0b013e31822363db.
  • Korownyk CS, Montgomery L, Young J, Moore S, Singer AG, MacDougall P, Darling S, Ellis K, Myers J, Rochford C, et al. PEER simplified chronic pain guideline: management of chronic low back, osteoarthritic, and neuropathic pain in primary care. Can Fam Physician. 2022;68(3):179–90. doi:10.46747/cfp.6803179.
  • Colvin LA, Stein A, Smith BH IV. Managing chronic pain: a clinical challenge: new SIGN guidelines provide a practical evidence-based approach and identify research gaps. Br J Anaesth. 2014;112(1):9–12. doi:10.1093/bja/aet470.
  • National Institute for Health and Clinical Excellence. Chronic pain (primary and secondary) in over 16s: assessment of all chronic pain and management of chronic primary pain [NG193]. Manchester (UK): National Institute for Health and Care Excellence (NICE); 2021 [ accessed 2023 Jul 31]. https://www.nice.org.uk/guidance/ng193/informationforpublic.
  • National Institute for Health and Clinical Excellence. Low back pain and sciatica in over 16s: assessment and management [NG59]. Manchester (UK): National Institute for Health and Care Excellence (NICE); 2020 [ accessed 2023 Jul 31]. https://www.nice.org.uk/guidance/ng193/informationforpublic.
  • Scottish Intercollegiate Guidelines Network. Management of chronic pain [SIGN 136]. Edinburgh (SCT): Scottish Intercollegiate Guidelines Network (SIGN); 2019 [ accessed 2023 Jul 31]. https://www.sign.ac.uk/media/2097/sign136_2019.pdf.
  • Carnes D, Homer K, Underwood M, Pincus T, Rahman A, Taylor SJC. Pain management for chronic musculoskeletal conditions: the development of an evidence-based and theory-informed pain self-management course. BMJ Open. 2013;3(11):e003534. doi:10.1136/bmjopen-2013-003534.
  • Barlow JH, Turner AP, Wright CC. A randomized controlled study of the arthritis self-management programme in the UK. Health Educ Res. 2000;15(6):665–80. doi:10.1093/her/15.6.665.
  • Dowd H, Hogan MJ, McGuire BE, Davis MC, Sarma KM, Fish RA, Zautra AJ. Comparison of an online mindfulness-based cognitive therapy intervention with online pain management psychoeducation. Clin J Pain. 2015;31(6):517–27. doi:10.1097/AJP.0000000000000201.
  • Dear BF, Gandy M, Karin E, Staples LG, Johnston L, Fogliati VJ, Wootton BM, Terides MD, Kayrouz R, Perry KN, et al. The pain course: a randomised controlled trial examining an internet-delivered pain management program when provided with different levels of clinician support. Pain. 2015;156(10):1920–35. doi:10.1097/j.pain.0000000000000251.
  • Guarino H, Fong C, Marsch LA, Acosta MC, Syckes C, Moore SK, Cruciani RA, Portenoy RK, Turk DC, Rosenblum A. Web-based cognitive behavior therapy for chronic pain patients with aberrant drug-related behavior: outcomes from a randomized controlled trial. Pain Med. 2018;19(12):2423–37. doi:10.1093/pm/pnx334.
  • Rini SC, Porter JL, Somers CT, McKee FD, Devellis KR, Smith LM, Winkel MG, Ahern SD, Goldman JR, Stiller JJ, et al. Automated Internet-based pain coping skills training to manage osteoarthritis pain: a randomized controlled trial. Pain. 2015;156(5):837–48. doi:10.1097/j.pain.0000000000000121.
  • Devan H, Hale L, Hempel D, Saipe B, Perry MA. What works and does not work in a self-management intervention for people with chronic pain? Qualitative systematic review and meta-synthesis. Phys Ther. 2018;98(5):381–97. doi:10.1093/ptj/pzy029.
  • O’Hagan ET, Di Pietro F, Traeger AC, Cashin AG, Hodges PW, Wand BM, O’Neill S, Schabrun SM, Harris IA, McAuley JH. What messages predict intention to self-manage low back pain? A study of attitudes towards patient education. Pain. 2022;163(8):1489–96. doi:10.1097/j.pain.0000000000002530.
  • Holtrop JS, Fisher M, Martinez DE, Simpson M, Awadallah NS, Nease DE, Zittleman L, Westfall JM. What works for managing chronic pain: an appreciative inquiry qualitative analysis. J Prim Care Community Health. 2019 Nov 21;10:215013271988528. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6873267/10.1177/2150132719885286.
  • Geraghty AWA, Maund E, Newell D, Santer M, Everitt H, Price C, Pincus T, Moore M, Little P, West R, et al. Self-management for chronic widespread pain including fibromyalgia: a systematic review and meta-analysis. PLoS One. 2021;16(7):e0254642. doi:10.1371/journal.pone.0254642.
  • Gogovor A, Visca R, Auger C, Bouvrette-Leblanc L, Symeonidis I, Poissant L, Ware MA, Shir Y, Viens N, Ahmed S. Informing the development of an Internet-based chronic pain self-management program. Int J Med Inform. 2017;97:109–19. doi:10.1016/j.ijmedinf.2016.10.005.
  • Michie S, Wood CE, Johnston M, Abraham C, Francis JJ, Hardeman W. Behaviour change techniques: the development and evaluation of a taxonomic method for reporting and describing behaviour change interventions (a suite of five studies involving consensus methods, randomised controlled trials and analysis of qualitative data). Health Technol Assess. 2015;19(99):1–188. doi:10.3310/hta19990.
  • Schulman-Green D, Jaser S, Martin F, Alonzo A, Grey M, McCorkle R, Redeker NS, Reynolds N, Whittemore R. Processes of self-management in chronic illness. J Nurs Scholarsh. 2012;44(2):136–44. doi:10.1111/j.1547-5069.2012.01444.x.
  • Gamwell KL, Kollin SR, Gibler RC, Bedree H, Bieniak KH, Jagpal A, Tran ST, Hommel KA, Ramsey RR. Systematic evaluation of commercially available pain management apps examining behavior change techniques. Pain. 2021;162(3):856–65. doi:10.1097/j.pain.0000000000002090.
  • Pearson J, Whale K, Walsh NE, Derham S, Russell J, Cramp F. Fibromyalgia Self-Management: mapping the behaviour change techniques used in a practice-based programme. Musculoskelet Care. 2020;18(3):372–82. doi:10.1002/msc.1470.
  • Siqueira Do Prado L, Carpentier C, Preau M, Schott AM, Dima AL. Behavior change content, understandability, and actionability of chronic condition self-management apps available in france: systematic search and evaluation. JMIR Mhealth Uhealth. 2019;7(8):e13494. doi:10.2196/13494.
  • Keogh A, Tully MA, Matthews J, Hurley DA. A review of behaviour change theories and techniques used in group based self-management programmes for chronic low back pain and arthritis. Man Ther. 2015;20(6):727–35. doi:10.1016/j.math.2015.03.014.
  • Fernandes LG, Devan H, Fioratti I, Kamper SJ, Williams CM, Saragiotto BT. At my own pace, space, and place: a systematic review of qualitative studies of enablers and barriers to telehealth interventions for people with chronic pain. Pain. 2022;163(2):e165–e181. doi:10.1097/j.pain.0000000000002364.
  • Williamson R, Atkin H, Wood O, Thomson L, Whitehead P. Patient and public involvement in research published in the British journal of occupational therapy 2015–2021: a scoping review. Br J Occup Ther. 2023;86(6):400–12. doi:10.1177/03080226231165374.
  • Bird M, Ouellette C, Whitmore C, Li L, Nair K, McGillion MH, Yost J, Banfield L, Campbell E, Carroll SL. Preparing for patient partnership: a scoping review of patient partner engagement and evaluation in research. Health Expect. 2020;23(3):523–39. doi:10.1111/hex.13040.
  • Abelson J, Canfield C, Leslie M, Levasseur MA, Rowland P, Tripp L, Vanstone M, Panday J, Cameron D, Forest P-G, et al. Understanding patient partnership in health systems: lessons from the Canadian patient partner survey. BMJ Open. 2022;12(9):e061465. doi:10.1136/bmjopen-2022-061465.
  • Slater H, Stinson JN, Jordan JE, Chua J, Low B, Lalloo C, Pham Q, Cafazzo JA, Briggs AM. Evaluation of digital technologies tailored to support young people’s self-management of musculoskeletal pain: mixed methods study. J Med Internet Res. 2020;22(6):e18315. doi:10.2196/18315.
  • Ruehlman LS, Karoly P, Enders C. A randomized controlled evaluation of an online chronic pain self management program. Pain. 2012;153(2):319–30. doi:10.1016/j.pain.2011.10.025.
  • Gardiner P, D’Amico S, Luo M, Haas N. An innovative electronic health toolkit (our whole lives for chronic pain) to reduce chronic pain in patients with health disparities: open clinical trial. JMIR Mhealth Uhealth. 2020;8(3):e14768. doi:10.2196/14768.
  • Bailey JF, Agarwal V, Zheng P, Smuck M, Fredericson M, Kennedy DJ, Krauss J. Digital care for chronic musculoskeletal pain: 10,000 participant longitudinal cohort study. J Med Internet Res. 2020;22(5):e18250. doi:10.2196/18250.