1,774
Views
31
CrossRef citations to date
0
Altmetric
Original Research

COPD patients’ experiences, self-reported needs, and needs-driven strategies to cope with self-management

, , , &
Pages 1033-1043 | Published online: 16 May 2019

References

  • Janssen DJ, Engelberg RA, Wouters EF, Curtis JR. Advance care planning for patients with COPD: past, present and future. Patient Educ Couns. 2012;86(1):19–24. doi:10.1016/j.pec.2011.01.00721316899
  • Gudmundsson G. [Acute exacerbations of chronic obstructive pulmonary disease - review]. Laeknabladid. 2015;101(7–8):357–362.26158628
  • Kendall M, Carduff E, Lloyd A, et al. Different experiences and goals in different advanced diseases: comparing serial interviews with patients with cancer, organ failure, or frailty and their family and professional carers. J Pain Symptom Manag. 2015;50(2):216–224. doi:10.1016/j.jpainsymman.2015.02.017
  • Pooler A, Beech R. Examining the relationship between anxiety and depression and exacerbations of COPD which result in hospital admission: a systematic review. Int J Chron Obstruct Pulmon Dis. 2014;9:315–330. doi:10.2147/COPD.S6017924729698
  • Hayen A, Herigstad M, Pattinson KT. Understanding dyspnea as a complex individual experience. Maturitas. 2013;76(1):45–50. doi:10.1016/j.maturitas.2013.09.00223849705
  • Giacomini M, DeJean D, Simeonov D, Smith A. Experiences of living and dying with COPD: a systematic review and synthesis of the qualitative empirical literature. Ont Health Technol Assess Ser. 2012;12(13):1–47.
  • Christensen VL, Rustoen T, Cooper BA, et al. Distinct symptom experiences in subgroups of patients with COPD. Int J Chron Obstr. 2016;11:1801–1809. doi:10.2147/COPD.S105299
  • Vogelmeier CF, Criner GJ, Martinez FJ, et al. Global strategy for the diagnosis, management, and prevention of chronic obstructive lung disease 2017 report. GOLD executive summary. Am J Respir Crit Care Med. 2017;195(5):557–582. doi:10.1164/rccm.201701-0150WS28128970
  • Arne M, Emtner M, Janson S, Wilde-Larsson B. COPD patients perspectives at the time of diagnosis: a qualitative study. Prim Care Respir J. 2007;16(4):215–221. doi:10.3132/pcrj.2007.0003317625785
  • Schulman-Green D, Jaser SS, Park C, Whittemore R. A metasynthesis of factors affecting self-management of chronic illness. J Adv Nurs. 2016;72(7):1469–1489. doi:10.1111/jan.1290226781649
  • Huygens MW, Vermeulen J, Swinkels IC, Friele RD, van Schayck OC, de Witte LP. Expectations and needs of patients with a chronic disease toward self-management and eHealth for self-management purposes. BMC Health Serv Res. 2016;16:232. doi:10.1186/s12913-016-1484-527391471
  • Richardson J, DePaul V, Officer A, et al. Development and evaluation of self-management and task-oriented approach to rehabilitation training (START) in the home: case report. Phys Ther. 2015;95(6):934–943. doi:10.2522/ptj.2013023525721121
  • Bourbeau J,van der Palen J. Promoting effective self-management programmes to improve COPD. Eur Respir J. 2009;33(3):461–463. doi:10.1183/09031936.0000130919251792
  • Jonkman NH, Westland H, Trappenburg JC, et al. Characteristics of effective self-management interventions in patients with COPD: individual patient data meta-analysis. Eur Respir J. 2016;48(1):55–68. doi:10.1183/13993003.01860-201527126694
  • Ryrso CK, Godtfredsen NS, Kofod LM, et al. Lower mortality after early supervised pulmonary rehabilitation following COPD-exacerbations: a systematic review and meta-analysis. BMC Pulm Med. 2018;18(1):154. doi:10.1186/s12890-018-0718-130219047
  • Arnardottir RH, Boman G, Larsson K, Hedenstrom H, Emtner M. Interval training compared with continuous training in patients with COPD. Respir Med. 2007;101(6):1196–1204. doi:10.1016/j.rmed.2006.11.00417188853
  • Spruit MA, Singh SJ, Garvey C, et al. An official American Thoracic Society/European Respiratory Society statement: key concepts and advances in pulmonary rehabilitation. Am J Respir Crit Care. 2013;188(8):e13–e64. doi:10.1164/rccm.201309-1634ST
  • Halding AG, Grov EK. Self-rated health aspects among persons living with chronic obstructive pulmonary disease. Int J Chronic Obstr. 2017;12:1163–1172. doi:10.2147/COPD.S129325
  • Sigurgeirsdottir J, Halldorsdottir S. Existential struggle and self-reported needs of patients in rehabilitation. J Adv Nurs. 2008;61(4):384–392. doi:10.1111/j.1365-2648.2007.04531.x18234036
  • Gardiner C, Gott M, Payne S, et al. Exploring the care needs of patients with advanced COPD: an overview of the literature. Respir Med. 2010;104(2):159–165. doi:10.1016/j.rmed.2009.09.00719818590
  • McMullan M. Patients using the Internet to obtain health information: how this affects the patient-health professional relationship. Patient Educ Couns. 2006;63(1–2):24–28. doi:10.1016/j.pec.2005.10.00616406474
  • Apps LD, Harrison SL, Mitchell KE, Williams JEA, Hudson N, Singh SJ. A qualitative study of patients‘ experiences of participating in SPACE for COPD: a self-management programme of activity, coping and education. ERJ Open. 2017;3(4):1–11.
  • Ek K, Sahlberg-Blom E, Andershed B, Ternestedt BM. Struggling to retain living space: patients‘ stories about living with advanced chronic obstructive pulmonary disease. J Adv Nurs. 2011;67(7):1480–1490. doi:10.1111/j.1365-2648.2010.05604.x21375574
  • Russell S, Ogunbayo OJ, Newham JJ, et al. Qualitative systematic review of barriers and facilitators to self-management of chronic obstructive pulmonary disease: views of patients and healthcare professionals. NPJ Prim Care Respir Med. 2018;28(1):2. doi:10.1038/s41533-017-0069-z29343739
  • Harb N, Foster JM, Dobler CC. Patient-perceived treatment burden of chronic obstructive pulmonary disease. Int J Chronic Obstr. 2017;12:1641–1652. doi:10.2147/COPD.S130353
  • Spiegelberg H. The Phenomenological Movement: A Historical Introduction by Herbert Spiegelberg. 3rd enlarged ed. The Hague: Martinus Nijhoff; 1984.
  • Ricoeur P, ed. Existence and Hermeneutics (translated by K. McLaughlin). London: Routledge & Kegan Paul; 1980. BJ, editor. Contemporary Hermeneutics: hermeneutics as method, philosophy and critique.
  • Ricoeur P. Hermeneutics and the Human Sciences: Essays on Language, Action and Interpretation (edited, translated and introduced by JB T, editor). Cambridge: Cambridge University Press; 1990.
  • Schwandt T, editor. Constructivist, Interpretivist Approaches to Human Inquiry. Thousand Oaks CA: Sage; 1994. Denzin NK LYE, editor. Handbook of Qualitative Research.
  • Halldorsdottir S. The Vancouver School of doing Phenomenology In: Fridlund BHCE, editor. Qualitative Research Methods in the Service of Health. Lund: Studentlitteratur; 2000:46–81.
  • Lindqvist G, Hallberg LRM. Feelings of guilt due to self-inflicted disease. J Health Psychol. 2010;15(3):456–466. doi:10.1177/135910530935364620348366
  • Norweg A, Collins EG. Evidence for cognitive-behavioral strategies improving dyspnea and related distress in COPD. Int J Chronic Obstr. 2013;8:439–451. doi:10.2147/COPD.S30145
  • Jonsdottir R, Jonsdottir H. The experience of women with advanced chronic obstructive pulmonary disease of repeatedly relapsing to smoking. Scand J Caring Sci. 2007;21(3):297–304. doi:10.1111/scs.2007.21.issue-317727541
  • Wortz K, Cade A, Menard JR, et al. A qualitative study of patients‘ goals and expectations for self-management of COPD. Prim Care Respir J. 2012;21(4):384–391. doi:10.4104/pcrj.2012.0007023138844
  • Rochester CL, Vogiatzis I, Holland AE, et al. An Official American Thoracic Society/European Respiratory Society Policy Statement: enhancing implementation, use, and delivery of pulmonary rehabilitation. A J Respir Crit Care. 2015;192(11):1373–1386. doi:10.1164/rccm.201510-1966ST