Clear as Mud: Readability Scores in Cloacal Exstrophy Literature and Its Treatment

References

• Feldkamp ML, Botto LD, Amar E, et al. Cloacal exstrophy: an epidemiologic study from the International Clearinghouse for Birth Defects Surveillance and Research. In: American Journal of Medical Genetics Part C: Seminars in Medical Genetics (Vol. 157, No. 4, pp. 333–343); November 15, 2011; Hoboken: Wiley Subscription Services, Inc., A Wiley Company.
   Google Scholar
• Goldstein SD, Inouye BM, Reddy S, et al. Continence in the cloacal exstrophy patient: what does it cost? J Pediatr Surg. 2016;51(4):622–625. doi:10.1016/j.jpedsurg.2015.12.003
   PubMed Web of Science ®Google Scholar
• Nicholl H, Tracey C, Begley T, King C, Lynch AM. Internet use by parents of children with rare conditions: findings from a study on parents’ web information needs. J Med Internet Res. 2017;19(2):e51. doi:10.2196/jmir.5834
   PubMed Web of Science ®Google Scholar
• Nielsen-Bohlman L, Panzer AM, Kindig DA. Committee on Health Literacy. In: Health Literacy: A Prescription to End Confusion. Washington, DC: National Academies Press; 2004.
   Google Scholar
• Berkman ND, Sheridan SL, Donahue KE, et al. Health literacy interventions and outcomes: an updated systematic review. Evid Rep Technol Assess. 2011;199:1–941.
   PubMedGoogle Scholar
• Eltorai AE, Ghanian S, Adams CA, Born CT, Daniels AH. Readability of patient education materials on the American association for surgery of trauma website. Arch Trauma Res. 2014;3(2). doi:10.5812/atr.18161
   PubMedGoogle Scholar
• Doak CC, Doak LG, Root JH. Teaching patients with low literacy skills; Volume 2; 1996 . Philadelphia, PA: Lipincott Williams and Wilkins.
   Google Scholar
• NCES Organization. Adult Literacy (U.S. Department of Education. Institute of Education Sciences, National Center for Education Statistics); 2017.
   Google Scholar
• Weis BD. Health Literacy: A Manual for Clinicians. Washington D.C., Chicago, IL: American Medical Association Foundation and American Medical Association; 2003.
   Google Scholar
• Ley P, Florio T. The use of readability formulas in health care. Psychol Health Med. 1996;1(1):7–28. doi:10.1080/13548509608400003
   Google Scholar
• Cisu TI, Mingin GC, Baskin LS. An evaluation of the readability, quality, and accuracy of online health information regarding the treatment of hypospadias. J Pediatr Urol. 2019;15(1):40–e1. doi:10.1016/j.jpurol.2018.08.020
   Web of Science ®Google Scholar
• Werner Z, Trump T, Zaslau S, Shapiro R. Assessing comprehension of online information in the United States for third-line treatment of overactive bladder. Int Urogynecol J. 2022;34(3):1–5.
   PubMed Web of Science ®Google Scholar
• Koo K, Shee K, Yap RL. Readability analysis of online health information about overactive bladder. Neurourol Urodynamics. 2017;36(7):1782–1787. doi:10.1002/nau.23176
   PubMed Web of Science ®Google Scholar
• Sare A, Patel A, Kothari P, Kumar A, Patel N, Shukla PA. Readability assessment of Internet-based patient education materials related to treatment options for benign prostatic hyperplasia. Acad Radiol. 2020;27(11):1549–1554. doi:10.1016/j.acra.2019.11.020
   PubMed Web of Science ®Google Scholar
• Colaco M, Svider PF, Agarwal N, Eloy JA, Jackson IM. Readability assessment of online urology patient education materials. J Urol. 2013;189(3):1048–1052. doi:10.1016/j.juro.2012.08.255
   PubMed Web of Science ®Google Scholar
• Doinn TÓ, Broderick JM, Abdelhalim MM, Quinlan JF. Readability of patient educational materials in pediatric orthopaedics. JBJS. 2021;103(12):e47. doi:10.2106/JBJS.20.01347
   PubMed Web of Science ®Google Scholar
• Ballestas SA, Soriano RM, Sethna AB. Readability assessment of online rhytidectomy patient information. Plastic Surg Nurs. 2020;40(3):145–149. doi:10.1097/PSN.0000000000000311
   PubMedGoogle Scholar
• Alejos D, Tregubenko P, Jayarangaiah A, Steinberg L, Kumar A. We need to do better: readability analysis of online patient information on cancer survivorship and fertility preservation. J Cancer Policy. 2021;28:100276. doi:10.1016/j.jcpo.2021.100276
   PubMed Web of Science ®Google Scholar
• Pass JH, Patel AH, Stuart S, Barnacle AM, Patel PA. Quality and readability of online patient information regarding sclerotherapy for venous malformations. Pediatr Radiol. 2018;48(5):708–714. doi:10.1007/s00247-018-4074-3
   PubMed Web of Science ®Google Scholar
• Nawaz MS, McDermott LE, Thor S, Abergel A. The readability of patient education materials pertaining to gastrointestinal procedures. Can J Gastroenterol Hepatol. 2021;2021:1–6. doi:10.1155/2021/7532905
   Web of Science ®Google Scholar
• Ahmadi O, Louw J, Leinonen H, Gan PY. Glioblastoma: assessment of the readability and reliability of online information. Br J Neurosurg. 2021;35(5):551–554. doi:10.1080/02688697.2021.1905772
   PubMed Web of Science ®Google Scholar
• Samuel D, Vilardo N, Isani SS, Kuo DY, Gressel GM. Readability assessment of online gynecologic oncology patient education materials from major governmental, non-profit and pharmaceutical organizations. Gynecologic Oncol. 2019;154(3):616–621. doi:10.1016/j.ygyno.2019.06.026
   PubMed Web of Science ®Google Scholar
• Haffar A, Morrill C, Garcia A, Werner Z, Crigger C, Gearhart JP. Complicating the already complex? Readability scores in bladder exstrophy and its treatment. Front Urol. 2023;2:1044639.
   Google Scholar
• Routh JC, Gong EM, Nelson CP. Pediatric urology and the internet—does an uncommon topic decrease content quality? J Urol. 2009;182(4):1569–1574. doi:10.1016/j.juro.2009.06.056
   PubMed Web of Science ®Google Scholar
• Cai HC, King LE, Dwyer JT. Using the Google™ search engine for health information: is there a problem? Case study: supplements for cancer. Curr Dev Nutr. 2021;5(2):nzab002.
   PubMed Web of Science ®Google Scholar