Health Information Seeking Using Tech and Non-Tech Sources Among a Diverse Sample of Caregivers in the Deep South

References

• Al-Megren, S., Majrashi, K., & Allwihan, R. M. (2021, September). The dementia diva strikes again! : A thematic analysis of how informal carers of persons with dementia use TikTok. Adjunct publication of the 23rd international conference on mobile human-computer interaction, Toulouse, France. (pp. 1–6).
   Google Scholar
• Alzheimer’s Association. (2023). 2023 Alzheimer’s disease facts and figures. https://www.alz.org/media/documents/alzheimers-facts-and-figures.pdf
   Google Scholar
• Ancker, J. S., Grossman, L. V., & Benda, N. C. (2020). Health literacy 2030: Is it time to redefine the term? Journal of General Internal Medicine, 35(8), 2427–2430. https://doi.org/10.1007/s11606-019-05472-y
   PubMed Web of Science ®Google Scholar
• Bangerter, L. R., Griffin, J., Harden, K., & Rutten, L. J. (2019). Health information–seeking behaviors of family caregivers: Analysis of the health information national trends survey. JMIR Aging, 2(1), e11237. https://doi.org/10.2196/11237
   PubMedGoogle Scholar
• Berkman, N. D., Davis, T. C., & McCormack, L. (2010). Health literacy: What is it? Journal of Health Communication, 15(sup2), 9–19. https://doi.org/10.1080/10810730.2010.499985
   PubMed Web of Science ®Google Scholar
• Blusi, M., Asplund, K., & Jong, M. (2013). Older family carers in rural areas: Experiences from using caregiver support services based on information and communication technology (ICT). European Journal of Ageing, 10(3), 191–199. https://doi.org/10.1007/s10433-013-0260-1
   PubMed Web of Science ®Google Scholar
• Centers for Disease Control. (2022). What is health literacy?. https://www.cdc.gov/healthliteracy/learn/index.html
   Google Scholar
• Conrad, E. J., Becker, M., Powell, B., & Hall, K. C. (2020). Improving health promotion through the integration of technology, crowdsourcing, and social media. Health Promotion Practice, 21(2), 228–237. https://doi.org/10.1177/1524839918811152
   PubMed Web of Science ®Google Scholar
• Dionne‐Odom, J. N., Applebaum, A. J., Ornstein, K. A., Azuero, A., Warren, P. P., Taylor, R. A., & Bakitas, M. A. (2018). Participation and interest in support services among family caregivers of older adults with cancer. Psycho‐Oncology, 27(3), 969–976.
   PubMed Web of Science ®Google Scholar
• Disbrow, E. A., Arnold, C. L., Glassy, N., Tilly, C. M., Langdon, K. M., Gungor, D., & Davis, T. C. (2021). Alzheimer disease and related dementia resources: Perspectives of African American and Caucasian family caregivers in northwest Louisiana. Journal of Applied Gerontology, 40(2), 209–219. https://doi.org/10.1177/0733464820904568
   PubMed Web of Science ®Google Scholar
• Fields, B., Rodakowski, J., James, A. E., & Beach, S. (2018). Caregiver health literacy predicting healthcare communication and system navigation difficulty. Families, Systems, & Health, 36(4), 482. https://doi.org/10.1037/fsh0000368
   PubMed Web of Science ®Google Scholar
• Fifolt, M., & McCormick, L. C. (2020). Advancing public health education through place-based learning: “on the road in the deep south”. Pedagogy in Health Promotion, 6(2), 102–112. https://doi.org/10.1177/2373379919839076
   Google Scholar
• Fox, S., Duggan, M., & Purcell, K. (2013). Family caregivers are wired for health. Pew Research Center. https://www.pewresearch.org/internet/2013/06/20/family-caregivers-are-wired-for-health/
   Google Scholar
• Gage-Bouchard, E. A., LaValley, S., & Devonish, J. A. (2019). Deciphering the signal from the noise: Caregivers’ information appraisal and credibility assessment of cancer-related information exchanged on social networking sites. Cancer Control: Journal of the Moffitt Cancer Center, 26(1), 1073274819841609. https://doi.org/10.1177/1073274819841609
   Web of Science ®Google Scholar
• Gage-Bouchard, E. A., LaValley, S., Mollica, M., & Beaupin, L. K. (2017). Communication and exchange of specialized health-related support among people with experiential similarity on Facebook. Health Communication, 32(10), 1233–1240.
   PubMed Web of Science ®Google Scholar
• Gajos, J. M., Luo, Y., Wang, K., & Lee, H. Y. (2022). Self-rated health and mental health among African Americans in the rural south: The influence of social determinants of health. Journal of Health Care for the Poor and Underserved, 33(3), 1305–1321. https://doi.org/10.1353/hpu.2022.0114
   PubMed Web of Science ®Google Scholar
• Ingle, M. P., Carroll, A. M., Matlock, D. D., Gama, K. D., Valle, J. A., Allen, L. A., & Knoepke, C. E. (2022). Decision support needs for patients with severe symptomatic aortic stenosis. Journal of Gerontological Social Work, 65(6), 589–603. https://doi.org/10.1080/01634372.2021.1995095
   PubMed Web of Science ®Google Scholar
• Kimzey, M., Howe, C. J., Martin, C., McLarty, J., & Baucham, R. (2022). Development of health literacy in persons and caregivers living with dementia: A qualitative directed content analysis. Dementia (London, England), 21(2), 540–555. https://doi.org/10.1177/14713012211049691
   PubMedGoogle Scholar
• Lee, H. Y., Hao, Z., & Choi, E. Y. (2022). Online health information-seeking behavior among Korean American immigrants in rural Alabama: Does discrimination matter? Journal of Immigrant and Minority Health, 24(4), 996–1004. https://doi.org/10.1007/s10903-021-01317-1
   PubMed Web of Science ®Google Scholar
• Lima, C. (2023, February 2). A new bill would ban anyone under 16 from using social media. The Washington Post. https://www.washingtonpost.com/politics/2023/02/02/new-bill-would-ban-anyone-under-16-using-social-media/
   Google Scholar
• Lorini, C., Buscemi, P., Mossello, E., Schirripa, A., Giammarco, B., Rigon, L., Albora, G., Giorgetti, D., Biamonte, M. A., Fattorini, L., Bruno, R. M., Giusti, G., Longobucco, Y., Ungar, A., & Bonaccorsi, G. (2023). Health literacy of informal caregivers of older adults with dementia: Results from a cross-sectional study conducted in Florence (Italy). Aging Clinical and Experimental Research, 35(1), 61–71. https://doi.org/10.1007/s40520-022-02271-0
   PubMed Web of Science ®Google Scholar
• Maheshwari, H., & Holpuch, A. (2023, April 12). Why countries are banning TikTok. The New York Times. https://www.nytimes.com/article/tiktok-ban.html
   Google Scholar
• Malloy-Weir, L. J., Charles, C., Gafni, A., & Entwistle, V. (2016). A review of health literacy: Definitions, interpretations, and implications for policy initiatives. Journal of Public Health Policy, 37(3), 334–352. https://doi.org/10.1057/jphp.2016.18
   PubMed Web of Science ®Google Scholar
• Miller, L. M., Whitlatch, C. J., & Lyons, K. S. (2016). Shared decision-making in dementia: A review of patient and family carer involvement. Dementia (London, England), 15(5), 1141–1157. https://doi.org/10.1177/1471301214555542
   PubMedGoogle Scholar
• NASW, ASWB, CSWE, & CSWA. (2017). NASW, ASWB, CSWE, & CSWA standards for technology in social work practice. Authors. https://www.socialworkers.org/LinkClick.aspx?fileticket=bq9JrB-oVm4%3d&portalid=0
   Google Scholar
• National Conference of State Legislatures. (2022, October). Broadband 2022 legislation. https://www.ncsl.org/technology-and-communication/broadband-2022-legislation
   Google Scholar
• Nguyen, H., Phan, H. T., Terry, D., Doherty, K., & McInerney, F. (2022). Impact of dementia literacy interventions for non-health-professionals: Systematic review and meta-analysis. Aging & Mental Health, 26(3), 442–456. https://doi.org/10.1080/13607863.2021.1884843
   PubMed Web of Science ®Google Scholar
• Oh, Y. S. (2015). Predictors of self and surrogate online health information seeking in family caregivers to cancer survivors. Social Work in Health Care, 54(10), 939–953. https://doi.org/10.1080/00981389.2015.1070780
   PubMed Web of Science ®Google Scholar
• Ruggiano, N., Brown, E. L., Li, J., Geldmacher, D., Clark, P., Hristidis, V., & Bertram, J. (2019). Communicating with providers for dementia care: Perspectives from caregivers and the potential role for information technology. The Journal of Aging and Social Change, 9(3), 25–38. https://doi.org/10.18848/2576-5310/CGP/v09i03/25-38
   Google Scholar
• Ruggiano, N., Brown, E., Shaw, S., Geldmacher, D., Clarke, P., Hristidis, V., & Bertram, J. (2019). The potential of information technology to navigate caregiving systems: Perspectives from dementia caregivers. Journal of Gerontological Social Work, 62(4), 432–450. https://doi.org/10.1080/01634372.2018.1546786
   PubMed Web of Science ®Google Scholar
• Rupert, D. J., Gard Read, J., Amoozegar, J. B., Moultrie, R. R., Taylor, O. M., O’Donoghue, A. C., & Sullivan, H. W. (2016). Peer-generated health information: The role of online communities in patient and caregiver health decisions. Journal of Health Communication, 21(11), 1187–1197. https://doi.org/10.1080/10810730.2016.1237592
   PubMed Web of Science ®Google Scholar
• Sanders, C. K., & Scanlon, E. (2021). The digital divide is a human rights issue: Advancing social inclusion through social work advocacy. Journal of Human Rights and Social Work, 6(2), 130–143. https://doi.org/10.1007/s41134-020-00147-9
   PubMed Web of Science ®Google Scholar
• Scott, A. J., & Wilson, R. F. (2011). Social determinants of health among African Americans in a rural community in the deep south: An ecological exploration. Rural and Remote Health, 11(1), 196–207. https://doi.org/10.22605/RRH1634
   Web of Science ®Google Scholar
• Singh, M. (2023, March 23). Utah bans under-18s from using social media unless parents consent. The Guardian. https://www.theguardian.com/us-news/2023/mar/23/utah-social-media-access-law-minors
   Google Scholar
• Smith, S. J., Smith, A. B., Kennett, W., & Vinod, S. K. (2022). Exploring cancer patients’, caregivers’, and clinicians’ utilization and experiences of telehealth services during COVID-19: A qualitative study. Patient Education and Counseling, 105(10), 3134–3142. https://doi.org/10.1016/j.pec.2022.06.001
   PubMed Web of Science ®Google Scholar
• Soong, A., Au, S. T., Kyaw, B. M., Theng, Y. L., & Tudor Car, L. (2020). Information needs and information seeking behaviour of people with dementia and their non-professional caregivers: A scoping review. BMC Geriatrics, 20(1), 1–17. https://doi.org/10.1186/s12877-020-1454-y
   Web of Science ®Google Scholar
• Turner-Lee, N. (2019). Can emerging technologies buffer the cost of in-home care in rural America? Generations, 43(2), 88–93.
   Web of Science ®Google Scholar
• Wazny, K. (2018). Applications of crowdsourcing in health: An overview. Journal of Global Health, 8(1), 010502. https://doi.org/10.7189/jogh.08.010502
   PubMed Web of Science ®Google Scholar
• Wilson, T. D. (2000). Human information behavior. Informing Science, 3, 49. https://doi.org/10.28945/576
   Google Scholar