75
Views
0
CrossRef citations to date
0
Altmetric

References

  • Freijser L, Naccarella L, McKenzie R, et al. Cancer care coordination: building a platform for the development of care coordinator roles and ongoing evaluation. Aust J Prim Health. 2015;21(2):157–163. doi: 10.1071/py13037
  • McDonald KM, Sundaram V, Bravata DM, et al. Closing the Quality Gap: A Critical Analysis of Quality Improvement Strategies: Vol. 7. Care Coordination. Rockville, Md.: Agency for Healthcare Research and Quality; 2007.
  • Gorin SS, Haggstrom D, Han PKJ, et al. Cancer care coordination: a systematic review and meta-analysis of over 30 years of empirical studies. Ann Behav Med. 2017;51(4):532–546. doi: 10.1007/s12160-017-9876-2
  • Peikes D, Chen A, Schore J, et al. Effects of care coordination on hospitalization, quality of care, and health care expenditures among Medicare beneficiaries: 15 randomized trials. JAMA. 2009;301(6):603–618.
  • Shin J, Shin DW, Lee J, et al. Association between perception of care coordination and health outcomes in Korean cancer survivors. Health Qual Life Outcomes. 2020;18(1):21. doi: 10.1186/s12955-020-1279-6
  • Sauro K, Maini A, Machan M, et al. Are there opportunities to improve care as patients transition through the cancer care continuum? A scoping review protocol. BMJ Open. 2021;11(1):e043374. doi: 10.1136/bmjopen-2020-043374
  • Balasubramanian BA, Higashi RT, Rodriguez SA, et al. Thematic analysis of challenges of care coordination for underinsured and uninsured cancer survivors with chronic conditions. JAMA Netw Open. 2021;4(8):e2119080. doi: 10.1001/jamanetworkopen.2021.19080
  • Walsh J, Young JM, Harrison JD, et al. What is important in cancer care coordination? A qualitative investigation. Eur J Cancer Care (Engl). 2011;20(2):220–227. doi: 10.1111/j.13652354.2010.01187.x
  • Yabroff KR, Gansler T, Wender RC, et al. Minimizing the burden of cancer in the United States: Goals for a high-performing health care system. CA Cancer J Clin. 2019;69(3):166–183. doi: 10.3322/caac.21556
  • Taplin SH, Weaver S, Salas E, et al. Reviewing cancer care team effectiveness. J Oncol Pract. 2015;11(3):239–246. doi: 10.1200/JOP.2014.003350
  • Look Hong NJ, Wright FC, Gagliardi AR, et al. Examining the potential relationship between multidisciplinary cancer care and patient survival: an international literature review. J Surg Oncol. 2010;102(2):125–134. doi: 10.1002/jso.21589
  • Smith SD, Nicol KM, Devereux J, et al. Encounters with doctors: quantity and quality. Palliat Med. 1999;13(3):217–223. doi: 10.1191/026921699668267830.
  • Walsh J, Harrison JD, Young JM, et al. What are the current barriers to effective cancer care coordination? A qualitative study. BMC Health Serv Res. 2010;10(1):132. doi: 10.1186/1472-6963-10-132
  • Haynes K, Ugalde A, Whiffen R, et al. Health professionals involved in cancer care coordination: nature of the role and scope of practice. Collegian. 2017;25(4):1–6. doi: 10.1016/j.colegn.2017.10.006
  • Peterson K, Anderson J, Bourne D, et al. Health care coordination theoretical frameworks: a systematic scoping review to increase their understanding and use in practice. J Gen Intern Med. 2019;34(Suppl 1):90–98. doi: 10.1007/s11606-019-04966-z
  • Verhoeven DC, Chollette V, Lazzara EH, et al. The anatomy and physiology of teaming in cancer care delivery: a conceptual framework. J Natl Cancer Inst. 2021;113(4):360–370. doi: 10.1093/jnci/djaa166
  • Weaver SJ, Jacobsen PB. Cancer care coordination: opportunities for healthcare delivery research. Transl Behav Med. 2018;8(3):503–508. doi: 10.1093/tbm/ibx079
  • Easley J, Miedema B, Carroll JC, et al. Coordination of cancer care between family physicians and cancer specialists: Importance of communication. Can Fam Physician. 2016;62(10):e608–e615. https://www.cfp.ca/content/62/10/e608.long
  • Barry CA, Bradley CP, Britten N, et al. Patients’ unvoiced agendas in general practice consultations: qualitative study. BMJ. 2000;320(7244):1246–1250. doi: 10.1136/bmj.320.7244.1246
  • Chan EA, Wong F, Cheung MY, et al. Patients’ perceptions of their experiences with nurse-patient communication in oncology settings: a focused ethnographic study. PLoS One. 2018;13(6):e0199183. doi: 10.1371/journal.pone.0199183
  • Crystal JD, Wilson AG. Prospective memory: a comparative perspective. Behav Processes. 2015;112:88–99. doi: 10.1016/j.beproc.2014.07.016
  • Griffin SJ, Kinmonth AL, Veltman MWM, et al. Effect on health-related outcomes of interventions to alter the interaction between patients and practitioners: a systematic review of trials. Ann Fam Med. 2004;2(6):595–608. doi: 10.1370/afm.142
  • Bergeson SC, Dean JD. A systems approach to patient-centered care. JAMA. 2006;296(23):2848–2851. doi: 10.1001/jama.296.23.2848
  • Roehrs A, da Costa CA, Righi RD, et al. Personal health records: a systematic literature review. J Med internet Res. 2017;19(1):e13. doi: 10.2196/jmir.5876
  • Koeniger-Donohue R, Agarwal NK, Hawkins JW, et al. Role of nurse practitioners in encouraging use of personal health records. Nurse Pract. 2014;39(7):1–8. doi: 10.1097/01.NPR.0000450743.39981.93
  • Kaelber D, Pan EC. The value of personal health record (PHR) systems. AMIA Annu Symp Proc. 2008;2008:343–347.
  • The Office of the National Coordinator for Health Information Technology. Personal health records: what health care providers need to know. Accessed October 17, 2022. healthit.gov/sites/default/files/about-phrs-for-providers-011311.pdf
  • Niazkhani Z, Toni E, Cheshmekaboodi M, et al. Barriers to patient, provider, and caregiver adoption and use of electronic personal health records in chronic care: a systematic review. BMC Med Inform Decis Mak. 2020;20(1):153.
  • Abd-Alrazaq AA, Bewick BM, Farragher T, et al. Factors that affect the use of electronic personal health records among patients: a systematic review. Int J Med Inform. 2019;126:164–175. doi: 10.1016/j.ijmedinf.2019.03.014
  • Wells S, Rozenblum R, Park A, et al. Organizational strategies for promoting patient and provider uptake of personal health records. J Am Med Inform Assoc. 2015;22(1):213–222. doi: 10.1136/amiajnl-2014-003055
  • Thorne S, Oliffe JL, Stajduhar KI, et al. Poor communication in cancer care: patient perspectives on what it is and what to do about it. Cancer Nurs. 2013;36(6):445–453. doi: 10.1097/CC.0b013e31827eeda4
  • Ong LM, de Haes JC, Hoos AM, et al. Doctor-patient communication: a review of the literature. Soc Sci Med. 1995;40(7):903–918. doi: 10.1016/0277-9536(94)00155-m
  • Leclère H, Beaulieu MD, Bordage G, et al. Why are clinical problems difficult? General practitioners’ opinions concerning 24 clinical problems. CMAJ. 1990;143(2):1305–1315.
  • Wahl C, Gregoire JP, Teo K, et al. Concordance, compliance, and adherence in healthcare: closing gaps and improving outcomes. Healthc Q. 2005;8(1):65–70. doi: 10.12927/hcq.16941
  • Tallent A. ASCO’s National Cancer Opinion survey: understanding Americans’ views and perceptions on cancer. Published February 26, 2020. Accessed February 24, 2022. connection.asco.org/magazine/features/asco%E2%80%99s-national-cancer-opinion-survey-understanding-americans%E2%80%99-views-and?cid=DM4628&bid=38505744
  • Bensing J, van Dulmen S, Tates K. Communication in context: new directions in communication research. Patient Educ Couns. 2003;50(1):27–32. doi: 10.1016/s0738-3991(03)00076-4
  • Dasinger LK, Krause N, Thompson PJ, et al. Doctor proactive communication, return-to-work recommendation, and duration of disability after a workers’ compensation low back injury. J Occup Environ Med. 2001;43(6):515–525. doi: 10.1097/00043764-200106000-00001
  • Agarwal A, Sands DZ, Schneider JD. Quantifying the economic impact of communication inefficiencies in U.S. hospitals. J Health Manag. 2010;55(4):265–282.
  • Gurjal SS, Raheja I, Gupta A. Patient’s compliance: an overview. Int Parameters, 2013;1(2): 3.
  • Jin J, Sklar GE, Oh VMS, et al. Factors affecting therapeutic compliance: a review from the patient’s perspective. Ther Clin Risk Manag. 2008;4(1):269–286. doi: 10.2147/tcrm.s1458
  • Spinetta JJ, Masera G, Eden T, et al. Refusal, non-compliance, and abandonment of treatment in children and adolescents with cancer: a report of the SIOP Working Committee on psychological issues in pediatric oncology. Med Pediatr Oncol. 2002;38(2):114–117. doi: 10.1002/mpo.1283
  • Lilleyman JS, Lennard L. Non-compliance with oral chemotherapy in childhood leukaemia. BMJ. 1996;313(7067):1219–1220. doi: 10.1136/bmj.313.7067.1219
  • Thorne SE, Bultz BD, Baile WF, et al. Is there a cost to poor communication in cancer care? A critical review of the literature. Psychooncology. 2005;14(10):875–884. doi: 10.1002/pon.947
  • Matusitz J, Spear J. Effective doctor-patient communication: an updated examination. Soc Work Public Health. 2014;29(3):252–266. doi: 10.1080/19371918.2013.776416
  • Schenker Y, Stewart A, Na B, et al. Depressive symptoms and perceived doctor-patient communication in the Heart and Soul study. J Gen Intern Med. 2009;24(5):550–556. doi: 10.1007/s11606-009-0937-5
  • Fiester A. The “difficult” patient reconceived: an expanded moral mandate or clinical ethics. Am J Bioeth. 2012;12(5):2–7. doi: 10.1080/15265161.2012.665135
  • Dudzinski DM, Alvarez C. Repairing difficult patient-clinician relationships. AMA J Ethics. 2017;19(4):364–368. doi: 10.1001/journalofethics.2017
  • Paternotte E, van Dulmen S, van der Lee N, et al. Factors influencing intercultural doctor-patient communication: a realist review. Patient Educ Couns. 2015;98(4):420–455. doi: 10.1016/j.pec.2014.11.018
  • Barrier PA, Li JTC, Jensen NM. Two words to improve physician-patient communication: what else? Mayo Clin Proc. 2003;78(2):211–214. doi: 10.4065/78.2.211
  • Gruman J, Rovner MH, French ME, et al. From patient education to patient engagement: implications for the field of patient education. Patient Educ Couns. 2010;78(3):350–356. doi: 10.1016/j.pec.2010.02.002
  • Griffiths C, Foster G, Ramsay J, et al. How effective are expert patient (lay led) education programmes for chronic disease? BMJ. 2007;334(7606):1254–1256. doi: 10.1136/bmj.39227.698785.47
  • Bandura A. Self-efficacy: toward a unifying theory of behavioral change. Psychol Rev. 1977;84(2):191–215. doi: 10.1037//0033-295x.84.2.191
  • Krupat E, Irish JT, Kasten LE, et al. Patient assertiveness and physician decision-making among older breast cancer patients. Soc Sci Med. 1999;49(4):449–457. doi: 10.1016/s0277-9536(99)00106-9
  • Andersen MR, Guthrie KA. Assertiveness with physicians: does it predict mammography use? Women Health. 2004;39(2):1–11.
  • Street RL Jr, Makoul G, Arora NK, et al. How does communication heal? Pathways linking clinician-patient communication to health outcomes. Patient Educ Couns. 2009;74(3):295–301. doi: 10.1016/j.pec.2008.11.015
  • Hoerger M, Epstein RM, Winters PC, et al. Values and options in cancer care (VOICE): study design and rationale for a patient-centered communication and decision-making intervention for physicians, patients with advanced cancer, and their caregivers. BMC Cancer. 2013;13:188. doi: 10.1186/1471-2407-13-188
  • Street Jr RL, Slee C, Kalauokalani DK, et al. Improving physician-patient communication about cancer pain with a tailored education-coaching intervention. Patient Educ Couns. 2010;80(1):42–47. doi: 10.1016/j.pec.2009.10.009
  • Zion SR, Schapira L, Crum AJ. Targeting mindsets, not just tumors. Trends Cancer. 2019;5(10):573–576. doi: 10.1016/j.trecan.2019.08.001
  • Jia Y, Li F, Liu YF, et al. Depression and cancer risk: a systematic review and meta-analysis. Public Health. 2017;149:138–148. doi: 10.1016/j.puhe.2017.04.026
  • Mitchell AJ, Chan M, Bhatti H, et al. Prevalence of depression, anxiety, and adjustment disorder in oncological, haematological, and palliative-care settings: a meta-analysis of 94 interview-based studies. Lancet Oncol. 2011;12(2):160–174. doi: 10.1016/S1470-2045(11)70002-X
  • Baraki AG, Tessema GM, Demeke EA. High burden of depression among cancer patients on chemotherapy in University of Gondar comprehensive hospital and Felege Hiwot referral hospital, Northwest Ethiopia. PLoS One. 2020;15(8):e0237837. doi: 10.1371/journal.pone.0237837
  • Chae J, Lee CJ, Jensen JD. Correlates of cancer information overload: focusing on individual ability and motivation. Health Commun. 2016;31(5):626–634. doi: 10.1080/10410236.2014.986026
  • Jensen JD, Carcioppolo N, King AJ, et al. The cancer information overload (CIO) scale: establishing predictive and discriminant validity. Patient Educ Couns. 2014;94(1):90–96. doi: 10.1016/j.pec.2013.09.016
  • Kim K, Lustria MLA, Burke DE, et al. Predictors of cancer information overload: findings from a national survey. Information Research. 2007;12(4):1–29.
  • Lorig KR, Sobel DS, Ritter PL, et al. Effect of a self-management program on patients with chronic disease. Eff Clin Pract. 2001;4(6):256–262. https://pubmed.ncbi.nlm.nih.gov/11769298/
  • Gardner T, Refshauge K, McAuley J, et al. Patient led goal setting in chronic low back pain—what goals are important to the patient and are they aligned to what we measure? Patient Educ Couns. 2015;98(8):1035–1038. doi: 10.1016/j.pec.2015.04.012
  • Pope D, Tipler S, Kirwan J, et al. Implementing a patient-led service for chronic conditions. Nurs Times. 2005;101(49):28–31. pubmed.ncbi.nlm.nih.gov/16372731/
  • Jerant AF, von Friederichs-Fitzwater MM, Moore M. Patients’ perceived barriers to active self-management of chronic conditions. Patient Educ Couns. 2005;57(3):300–307. doi: 10.1016/j.pec.2004.08.004
  • Okado I, Cassel K, Pagano I, et al. Assessing patients’ perceptions of cancer care coordination in a community-based setting. JCO Oncol Pract. 2020;16(8):e726–e733. doi: 10.1200/JOP.19.00509
  • Amin AL, Neuner J, Duthie EA, et al. A one-to-one mentoring support service for breast cancer survivors. WMJ. 2014;113(5):185–189.
  • Loprinzi Brauer CE, Clark MM, Solberg Nes L, et al. Peer mentorship programs for breast cancer patients. J Pain Symptom Manage. 2016;51(5):e5–e7. doi: 10.1016/j.jpainsymman.2016.03.001
  • Lorig KR, Sobel DS, Stewart AL, et al. Evidence suggesting that a chronic disease self-management program can improve health status while reducing hospitalization: a randomized trial. Med Care. 1999;37(1):5–14. doi: 10.1097/00005650-199901000-00003
  • Attai DJ, Cowher MS, Al-Hamadani M, et al. Twitter social media is an effective tool for breast cancer patient education and support: patient-reported outcomes by survey. J Med internet Res. 2015;17(7):e188. doi: 10.2196/jmir.4721
  • Gill M, Bagshaw SM, McKenzie E, et al. Patient and family member-led research in the intensive care unit: a novel approach to patient-centered research. PLoS One. 2016;11(8):e0160947. doi: 10.1371/journal.pone.0160947
  • Bodenheimer T, Lorig K, Holman H, et al. Patient self-management of chronic disease in primary care. JAMA. 2002;288(19):2469–2475. doi: 10.1001/jama.288.19.2469
  • Hammer MJ, Ercolano EA, Wright F, et al. Self-management for adult patients with cancer: an integrative review. Cancer Nurs. 2015;38(2):E10–E26. doi: 10.1097/NCC.0000000000000122
  • van Dongen SI, de Nooijer K, Cramm JM, et al. Self-management of patients with advanced cancer: a systematic review of experiences and attitudes. Palliat Med. 2020;34(2):160–178. doi: 10.1177/0269216319883976
  • McCorkle R, Ercolano E, Lazenby M, et al. Self-management: Enabling and empowering patients living with cancer as a chronic illness. CA Cancer J Clin. 2011;61(1):50–62. doi: 10.3322/caac.20093
  • Committee on Improving the Quality of Cancer Care: Addressing the Challenges of an Aging Population, Board on Health Care Services, Institute of Medicine, et al. Delivering High-Quality Cancer Care: Charting a New Course for a System in Crisis. Washington, D.C.: National Academies Press; 2013. Accessed October 17, 2022. doi: 10.17226/18359.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.