Patient Perspectives of a University-Based Intensive Comprehensive Aphasia Program for Stroke Survivors with Aphasia

References

• Attard, M. C., Lanyon, L., Togher, L., & Rose, M. L. (2015). Consumer perspectives on community aphasia groups: a narrative literature review in the context of psychological well-being. Aphasiology, 29(8), 983–1019. https://doi.org/10.1080/02687038.2015.1016888
   Web of Science ®Google Scholar
• Azios, J. H., Strong, K. A., Archer, B., Douglas, N. F., Simmons-Mackie, N., & Worrall, L. (2021). Friendship matters: a research agenda for aphasia. Aphasiology, 1–20. https://doi.org/10.1080/02687038.2021.1873908
   PubMed Web of Science ®Google Scholar
• Babbitt, E., Worrall, L., & Cherney, L. R. (2013a). Clinician perspectives of an intensive comprehensive aphasia program. Topics in Stroke Rehabilitation, 20(5), 398–408.
   PubMed Web of Science ®Google Scholar
• Babbitt, E., Worrall, L., & Cherney, L. R. (2015). Structure, processes, and retrospective outcomes from an intensive comprehensive aphasia program. American Journal of Speech-Language Pathology, 24(4), S854–S863.
   PubMed Web of Science ®Google Scholar
• Babbitt, E., Worrall, L. E., & Cherney, L. R. (2013b). Clinician Perspectives of an Intensive Comprehensive Aphasia Program. Topics in Stroke Rehabilitation, 20(5), 398–408. https://doi.org/10.1310/tsr2005-398
   PubMed Web of Science ®Google Scholar
• Babbitt, E. M., Worrall, L., & Cherney, L. R. (2016). Who benefits from an intensive comprehensive aphasia program? Topics in Language Disorders, 36(2), 168–184.
   Web of Science ®Google Scholar
• Babbitt, E. M., Worrall, L., & Cherney, L. R. (2021). “It’s like a lifeboat”: stakeholder perspectives of an intensive comprehensive aphasia program (ICAP). Aphasiology. https://doi.org/10.1080/02687038.2021.1873905
   PubMed Web of Science ®Google Scholar
• Baliki, M. N., Babbitt, E. M., & Cherney, L. R. (2018). Brain network topology influences response to intensive comprehensive aphasia treatment. NeuroRehabilitation, 43(1), 63–76.
   PubMed Web of Science ®Google Scholar
• Barrett, A. M. (2010). Rose-colored answers: Neuropsychological deficits and patient-reported outcomes after stroke. Behavioural Neurology, 22(1–2), 17–23. https://doi.org/10.1155/2010/628257
   PubMed Web of Science ®Google Scholar
• Boyer, N., Jordan, N., & Cherney, L. R. (2020). Implementation Cost Analysis of an Intensive Comprehensive Aphasia Program. Archives of Physical Medicine and Rehabilitation. https://doi.org/10.1016/j.apmr.2020.09.398
   PubMed Web of Science ®Google Scholar
• Braun, V., Clarke, V. (2021). Can I use TA? Should I use TA? Should I not use TA? Comparing reflexive thematic analysis and other pattern-based qualitative analytic approaches. Counselling and Psychotherapy Research, 21, 37–47. https://doi.org/10.1002/capr.12360
   Web of Science ®Google Scholar
• Brumfitt, S. M. (1993). Losing your sense of self: What aphasia can do. Aphasiology, 7, 569–575.
   Web of Science ®Google Scholar
• Burns, M., Baylor, C., Dudgeon, B. J., Starks, H., & Yorkston, K. (2015). Asking the stakeholders: Perspectives of individuals with aphasia, their family members, and physicians regarding communication in medical interactions. American Journal of Speech-Language Pathology, 24(3), 341–357.
   PubMed Web of Science ®Google Scholar
• Braun, V., Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3, 77–101. https://doi.org/10.1191/1478088706qp063oa
   Google Scholar
• Carter N, Bryant-Lukosius D, DiCenso A, Blythe J, Neville, AJ. (2014). The use of triangulation in qualitative research. Oncol Nurs Forum, 41(5):545–7. https://doi.org/10.1188/14.ONF.545-547. PMID: 25158659.
   PubMed Web of Science ®Google Scholar
• Connelly, L. M. (2016). Trustworthiness in qualitative research. Medsurg Nursing, 25(6), 435–436.
   PubMedGoogle Scholar
• Creswell, J.W. (2014). Research Design: Qualitative, Quantitative, and Mixed Methods Approaches. Sage Publications, Inc.
   Google Scholar
• Creswell, J. W., & Poth, C. N. (2018). Qualitative Inquiry and Research Design: Choosing Among Five Approaches. Sage Publications, Inc.
   Google Scholar
• Dalemans, R. J. P., de Witte, L., Wade, D., & van den Heuvel, W. (2010). Social participation through the eyes of people with aphasia. International Journal of Language and Communication Disorders, 45(5), 537–550.
   PubMed Web of Science ®Google Scholar
• Elman, R., & Bernstein-Ellis, E. (1999). Psychosocial aspects of group communication treatment - preliminary findings. Seminars in Speech and Language, 20(1), 65–72. https://doi.org/10.1055/s-2008-1064009
   PubMedGoogle Scholar
• Elman, R. (2007). The importance of aphasia group treatment for rebuilding community and health. Topics in Language Disorders, 27, 300–308.
   Web of Science ®Google Scholar
• Fama, M.E., Baron, C.R., Hatfield, B., Turkeltaub, P.E. (2016). Group therapy as a social context for aphasia recovery: a pilot, observational study in an acute rehabilitation hospital. Topics in Stroke Rehabilitation, 23(4):276–83. https://doi.org/10.1080/10749357.2016.1155277.
   PubMed Web of Science ®Google Scholar
• Glesne, C. (2006). Becoming Qualitative Researchers: An Introduction (3rd ed.). Pearson Education, Inc.
   Google Scholar
• Gornall, L. (2013). Joseph A Maxwell, A Realist Approach for Qualitative Research. Qualitative Research, 13(4), 453–454. https://doi.org/10.1177/1468794113483232
   Web of Science ®Google Scholar
• Grawburg, M., Howe, T., Worrall, L., and Scarinci, N. (2019). Assessment of third-party disability in family members with the Family Aphasia Measure of Life Impact, Topics in Language Disorders, 39 (1), 29–54.
   Web of Science ®Google Scholar
• Griffin-Musick, J., Off, C. A., Milman, L., Kincheloe, H., & Kozlowski, A. (2020). The impact of a university-based Intensive Comprehensive Aphasia Program (ICAP) on psychosocial well-being in stroke survivors with aphasia. Aphasiology. https://doi.org/10.1080/02687038.2020.1814949
   Web of Science ®Google Scholar
• Griffin-Musick, J. R., Jakober, D., Sallay, A., Milman, L., Off, C. A., & Milman, L. (2021). Cognitive-linguistic outcomes from an intensive comprehensive aphasia program implemented by graduate student clinicians. Aphasiology. https://doi.org/10.1080/02687038.2021
   Web of Science ®Google Scholar
• Haley, K., Cunningham, K., Barry, J., & de Riesthal, M. (2019). Collaborative goals for communicative life participation in aphasia: The FOURC model. American Journal of Speech Language Pathology, 28(1), 1–13.
   PubMed Web of Science ®Google Scholar
• Hinckley, J., Boyle, E., Lombard, D., & Bartels-Tobin, L. (2014). Towards a consumer-informed research agenda for aphasia: preliminary work. Disability and Rehabilitation, 36(12), 1042–1050. https://doi.org/10.3109/09638288.2013.829528
   PubMed Web of Science ®Google Scholar
• Hinckley, J. J., Hasselkus, A., & Ganzfried, E. (2013). What people living with aphasia think about the availability of aphasia resources. Am J Speech Lang Pathol, 22(2), S310–317. https://doi.org/10.1044/1058-0360(2013/12-0090)
   PubMed Web of Science ®Google Scholar
• Hoover, E. L., Caplan, D. N., Waters, G. S., & Carney, A. (2017). Communication quality of life outcomes from an interprofessional intensive, comprehensive aphasia program (ICAP). Topics in Stroke Rehabilitation, 24(2), 82–90.
   PubMed Web of Science ®Google Scholar
• Hoover, E. L., & Carney, A. (2014). Integrating the iPad into an Intensive Comprehensive Aphasia Program. Seminars in Speech and Language, 35(1), 25–37. https://doi.org/10.1055/s-0033-1362990
   PubMed Web of Science ®Google Scholar
• Hula, W. D., Cherney, L. R., & Worrall, L. E. (2013). Setting a research agenda to inform intensive comprehensive aphasia programs. Topics in Stroke Rehabilitation, 20(5), 409–420.
   PubMed Web of Science ®Google Scholar
• Kagan, A., Simmons-Mackie, N., Rowland, A., Huijbregts, M., Shumway, E., McEwen, S., Threats, T., & Sharp, S. (2008). Counting what counts: A framework for capturing real-life outcomes of aphasia intervention. Aphasiology, 22(3), 258–280.
   Web of Science ®Google Scholar
• Kincheloe, H., Off, C., Murphy, M., Griffin-Musick, J., Murray, K., & Jakober, D. (2022). “We all have coping and communication problems”. Experiences of stroke survivors living with aphasia and graduate student clinicians who participated in a a telehealth interprofessional psychoeducation and wellness group. Aphasiology, https://doi.org/10.1080/02687038.2021.2020716.
   Web of Science ®Google Scholar
• Kiran, S., & Thompson, C. K. (2019). Neuroplasticity of language networks in aphasia: Advances, updates, and future challenges. Frontiers in Neurology, 10, 1–16.
   PubMed Web of Science ®Google Scholar
• Kleim, J. A., & Jones, T. A. (2008). Principles of experience-dependent neural plasticity: implications for rehabilitation after brain damage. Journal of Speech, Language and Hearing Research, 51(1), S225–S239.
   PubMed Web of Science ®Google Scholar
• Kurland, J., Pulvermuller, F., Silva, N., Burke, K., & Andrianopoulos, M. (2012). Constrained versus unconstrained intensive language therapy in two individuals with chronic, moderate-to-severe aphasia and apraxia of speech: behavioral and fMRI outcomes. American Journal of Speech-Language Pathology, 21(2), S65–87.
   PubMed Web of Science ®Google Scholar
• Leff, A.P., Nightingale, S., Gooding, B., Rutter, J., Craven, N., Peart, M., Dunstan, A., Sherman, A., Paget, A., Duncan, M., Davidson, J., Kumar, N., Farrington-Douglas, C., Julien, C., Crinion, J.T. (2021). Clinical effectiveness of the Queen Square intensive comprehensive aphasia service for patients with poststroke aphasia. Stroke, 52(10), e594–e598. https://doi.org/10.1161/STROKEAHA.120.033837.
   PubMed Web of Science ®Google Scholar
• Lincoln, Y. S., & Guba, E. G. (1985). Naturalistic Inquiry. Sage Publications.
   Google Scholar
• Luck, A. M., & Rose, M. L. (2007). Interviewing people with aphasia: Insights into method adjustments from a pilot study. Aphasiology, 21(2), 208–224. https://doi.org/10.1080/02687030601065470
   Web of Science ®Google Scholar
• Mackie, T. I., Sheldrick, R. C., de Ferranti, S. D., Saunders, T., Rojas, E. G., & Leslie, L. K. (2017). Stakeholders’ Perspectives on Stakeholder-engaged Research (SER): Strategies to Operationalize Patient-centered Outcomes Research Principles for SER. Medical Care, 55(1).
   Google Scholar
• Maxwell, R. J. (1992). Dimensions of quality revisited: from thought to action. Quality & Safety in Health Care, 1(3), 171–177. https://doi.org/10.1136/qshc.1.3.171
   Google Scholar
• Monnelly, K., Marshall, J., & Cruice, M. (2021). Intensive Comprehensive Aphasia Programmes: a systematic scoping review and analysis using the TIDierR checklist for reporting interventions. Disability and Rehabilitation, online. https://doi.org/10.1080/09638288.2021.1964626
   Web of Science ®Google Scholar
• Moustakas, C. (1994). Phenomenological Research Methods. Sage Publications.
   Google Scholar
• Mumby, K., & Whitworth, A. (2012). Evaluating the effectiveness of intervention in
   Google Scholar
• long-term aphasia post-stroke: The experience from CHANT (Communication Hub for
   Google Scholar
• Aphasia in North Tyneside). International Journal of Language and Communication Disorders, 47, 398–412.
   PubMed Web of Science ®Google Scholar
• Nicholas, M., Pittman, R., Pennington, S., Tabor Connor, L., Ambrosi, D., Wagner, L.B., HIndebrand, M., & Savastano, M. (2021). Outcomes of an interprofessional intensive comprehensive aphasia program’s first five years. Topics in Stroke Rehabilitation, https://doi.org/10/1080/10749357.2021.1970452
   Web of Science ®Google Scholar
• Nowell, L. S., Norris, J. M., White, D. E., & Moules, N. J. (2017). Thematic Analysis: Striving to Meet the Trustworthiness Criteria. International Journal of Qualitative Methods. https://doi.org/10.1177/1609406917733847
   PubMed Web of Science ®Google Scholar
• Off, C. A., Griffin, J. R., Murray, K., & Milman, L. (2019). Interprofessional caregiver education, training, and wellness in the context of a cohort model for aphasia rehabilitation. Topics in Language Disorders, 13(1).
   Web of Science ®Google Scholar
• Palmer, R., Enderby, P., & Paterson, G. (2013). Using computers to enable self-management of aphasia therapy exercises for word finding: the patient and carer perspective. Int J Lang Commun Disord, 48(5), 508–521. https://doi.org/10.1111/1460-6984.12024
   PubMed Web of Science ®Google Scholar
• Parr, S. (2007). Living with severe aphasia: Tracking social exclusion. Aphasiology, 21(1), 98–123. https://doi.org/10.1080/02687030600798337
   Web of Science ®Google Scholar
• Persad, C., Wozniak, L., & Kostopoulos, E. (2013). Retrospective analysis of outcomes from two intensive comprehensive aphasia programs. Topics in Stroke Rehabilitation, 20(5), 388–397.
   PubMed Web of Science ®Google Scholar
• Pierce, J.E., O’Halloran, R., Menahemi-Falkov, M., Togher, L., & Rose, M.L. (2021). Comparing higher and lower weekly treatment intensity for chronic aphasia: A systematic review and meta-analysis, Neuropsychological Rehabilitation, 31 (8), 1289–1313. https://doi.org/10.1080/09602011.2020.1768127
   PubMed Web of Science ®Google Scholar
• Plourde, J. M. H., Purdy, S. C., Moore, C., Friary, P., Brown, R., & McCann, C. M. (2019). Gavel Club for people with aphasia: Communication confidence and quality of communication life. Aphasiology, 33(1), 73–93.
   Web of Science ®Google Scholar
• Portney, L. G., & Watkins, M. P. (2000). Foundations of clinical research: Applications to practice. Prentice-Hall.
   Google Scholar
• Raymer, A. M., Beeson, P., Holland, A., Kendall, D., Maher, L. M., Martin, N., Murray, L., Rose, M., Thompson, C. K., Turkstra, L., Altmann, L., Boyle, M., Conway, T., Hula, W., Kearns, K., Rapp, B., Simmons-Mackie, N., & Gonzalez Rothi, L. J. (2008). Translational research in aphasia: from neuroscience to neurorehabilitation. J Speech Lang Hear Res, 51(1), S259–275. https://doi.org/10.1044/1092-4388(2008/020)
   PubMed Web of Science ®Google Scholar
• Robinson, L. A., & Krol, D. M. (2014). Interprofessional education and practice … moving toward collaborative, patient-centered care: Part Two. J Calif Dent Assoc, 42(9), 616–618.
   PubMedGoogle Scholar
• Rodriguez, A., Worrall, L., Brown, K., Grohn, B., McKinnon, E., Pearson, C., Van Hees, S., Roxbury, T., Cornwell, P., MacDonald, A., Angwin, A., Cardell, E., Davidson, B., & Copland, D. (2013). Aphasia LIFT: Exploratory investigation of an intensive comprehensive aphasia programme. Aphasiology, 27(11), 1339–1361.
   Web of Science ®Google Scholar
• Rose, M., Cherney, L. R., & Worrall, L. (2013). Intensive Comprehensive Aphasia Programs: An international survey of practice. Topics in Stroke Rehabilitation, 3(20), 379–387.
   Web of Science ®Google Scholar
• Rose, M. L., Pierce, J. E., Scharp, V. L., Off, C. A., Babbitt, E. M., Griffin-Musick, J. R., & Cherney, L. R. (2021). Developments in the application of Intensive Comprehensive Aphasia Programs: an international survey of practice. Disability and Rehabilitation, 1–15. https://doi.org/10.1080/09638288.2021.1948621
   PubMed Web of Science ®Google Scholar
• Rose, T. A., Worrall, L. E., Hickson, L. M., & Hoffmann, T. C. (2011). Aphasia friendly written health information: Content and design characteristics. International Journal of Speech-Language Pathology, 13(4), 335–347. https://doi.org/10.3109/17549507.2011.560396
   PubMed Web of Science ®Google Scholar
• Rotherham, A., Howe, T., & Tillard, G. (2015). “We just thought that this was Christmas”: Perceived benefits of participating in aphasia, stroke, and other groups. Aphasiology, 29(8), 965–982.
   Web of Science ®Google Scholar
• Saladana, J. (2015). The Coding Manual for Qualitative Researchers. Sage Publications.
   Google Scholar
• Saunders, B., Sim, J., Kingstone, T., Baker, S., Waterfield, J., Bartlam, B., Burroughs, H., & Jinks, C. (2018). Saturation in qualitative research: exploring its conceptualization and operationalization. Quality & Quantity, 52(4), 1893–1907. https://doi.org/10.1007/s11135-017-0574-8
   PubMed Web of Science ®Google Scholar
• Sheehan, O. C., Ritchie, C. S., Garrett, S. B., Harrison, K. L., Mickler, A., Eaton England, A. L., Sharma Basyal, P., Garrigues, S. K., & Leff, B. (2020). Unanticipated therapeutic value of PCORI stakeholder engagement project for homebound older adults. Journal of American Medical Directors Association, 21(8), 1172–1173.
   PubMed Web of Science ®Google Scholar
• Shrubsole, K., Copland, D., Hill, A., Khan, A., Lawrie, A., O’Connor, D.A., Pattie, M., Rodriguez, A. Ward, E.C., Worrall, L. & McSween, M-P. (2022). Development of a tailored intervention to implement an Intensive and Comprehensive Aphasia Program (ICAP) into Australian health services, Aphasiology, https://doi.org/10.1080/02687038.2022.2095608
   Web of Science ®Google Scholar
• Smith, J. A., Flowers, P., & Larkin, M. (2009). Interpretative Phenomenological Analysis: Theory, Method, and Research. Sage Publications.
   Google Scholar
• Strong, K. (2018). More than a story: My life came back to life. Archives of Physical Medicine and Rehabilitation, 97(10). https://doi.org/10.1016/j.apmr.2016.08.201
   Google Scholar
• Trebilcock, M., Shrubsole, K., Worrall, L., & Ryan, B. (2021). Development of an online implementation intervention for aphasia clinicians to increase the intensity and comprehensiveness of their service. Disability and Rehabilitation, 1–10. https://doi.org/10.1080/09638288.2021.1910867
   PubMed Web of Science ®Google Scholar
• Trebilcock, M., Worrall, L. E., Ryan, B., Shrubsole, K., Jagoe, C., Simmons-Mackie, N., Bright, F., Cruice, M., Pritchard, M., & Le Dorze, G. (2019). Increasing the intensity and comprehensiveness of aphasia services: identification of key factors influencing implementation across six countries. Aphasiology, 33(7), 865–887. https://doi.org/10.1080/02687038.2019.1602860
   Web of Science ®Google Scholar
• Turner, G. M., Backman, R., McMullan, C., Mathers, J., Marshall, T., & Calvert, M. (2018). Establishing research priorities relating to the long-term impact of TIA and minor stroke through stakeholder-centred consensus. Research involvement and engagement, 4, 2–2. https://doi.org/10.1186/s40900-018-0089-z
   PubMedGoogle Scholar
• Vasileiou, K., Barnett, J., Thorpe, S., Young, T. (2018). Characterising and justifying sample size sufficiency in interview-based studies: Systematic analysis of qualitative health research over a 15-year period. BMC Medical Research Methodology, 18(1), 148. https://doi.org/10.1186/s12874-018-0594-7.
   PubMed Web of Science ®Google Scholar
• WHO. (2001). International classification of functioning, disability, and health (ICF). World Health Organization http://www.who.int/classifications/icf/en
   Google Scholar
• Williams, S. S., Esposito, D., & Rich, E. C. (2014). Patients and clinicians as stakeholders in comparative effectiveness research: multiple perspectives and evolving roles. Journal of Comparative Effectiveness Research, 3(6), 573–575. https://doi.org/10.2217/cer.14.61
   PubMed Web of Science ®Google Scholar
• Wilson, C., & Kim, E. S. (2019). Qualitative data collection: Considerations for people with aphasia. Aphasiology. https://doi.org/10.1080/02687038.2019.1693027
   PubMed Web of Science ®Google Scholar
• Winans-Mitrik, R. L., Hula, W., Dickey, M. W., Schumacher, J. G., Swoyer, B., & Doyle, P. (2014). Description of an Intensive Residential Aphasia Treatment Program: Rationale, Clinical Processes, and Outcomes. American Journal of Speech-Language Pathology, 23, S330–S342.
   PubMed Web of Science ®Google Scholar
• Worrall, L., Brown, K., Cruice, M., Davidson, B., Hersh, D., Howe, T., & Sherratt, S. (2010). The evidence for a life-coaching approach to aphasia. Aphasiology, 24(4), 497–514. https://doi.org/10.1080/02687030802698152
   Web of Science ®Google Scholar
• Worrall, L., Sherratt, S., Rogers, P., Howe, T., Hersh, D., Ferguson, A., & Davidson, B. (2011). What people with aphasia want: Their goals according to the ICF. Aphasiology, 25(3), 309–322. https://doi.org/10.1080/02687038.2010.508530
   Web of Science ®Google Scholar
• Yalom, I. D., & Leszcz, M. (2008). The Theory and Practice of Group Psychotherapy. Basic Books.
   Google Scholar