Perceptions of a Virtual Health Promotion Program for Children on the Autism Spectrum and their Primary Caregiver: A Qualitative Analysis

References

• Bandura, A. (1991). Social cognitive theory of self-regulation. Organizational Behavior and Human Decision Processes, 50(2), 248–287. https://doi.org/10.1016/0749-5978(91)90022-L
   Web of Science ®Google Scholar
• Bandura, A. (1997). Self-efficacy: The exercise of control. W H Freeman/Times Books/Henry Holt & Co.
   Google Scholar
• Bandura, A. (1998). Health promotion from the perspective of social cognitive theory. Psychology & Health, 13(4), 623–649. https://doi.org/10.1080/08870449808407422
   Web of Science ®Google Scholar
• Bandura, A. (2004). Health promotion by social cognitive means. Health Education & Behavior, 31(2), 143–164. https://doi.org/10.1177/1090198104263660
   PubMed Web of Science ®Google Scholar
• Bossink, L. W. M., Van Der Putten, A. A., & Vlaskamp, C. (2017). Understanding low levels of physical activity in people with intellectual disabilities: A systematic review to identify barriers and facilitators. Research in Developmental Disabilities, 68, 95–110. https://doi.org/10.1016/j.ridd.2017.06.008
   PubMed Web of Science ®Google Scholar
• Brown, D. M., Arbour-Nicitopoulos, K. P., Martin Ginis, K. A., Latimer-Cheung, A. E., & Bassett-Gunter, R. L. (2020). Examining the relationship between parent physical activity support behavior and physical activity among children and youth with autism spectrum disorder. Autism, 24(7), 1783–1794. https://doi.org/10.1177/1362361320922658
   PubMed Web of Science ®Google Scholar
• Brown, K. K., Smith, J., Bailey, T. N., Ortiz, G., Gu, X., & Tamplain, P. (2022). Parent-reported motivators and barriers to participation in a community-based intervention designed for children with motor skill difficulties: A qualitative program evaluation. Adapted Physical Activity Quarterly, 39(1), 109–128. https://doi.org/10.1123/apaq.2020-0142
   PubMed Web of Science ®Google Scholar
• Collins, K., & Staples, K. (2017). The role of physical activity in improving physical fitness in children with intellectual and developmental disabilities. Research in Developmental Disabilities, 69, 49–60. https://doi.org/10.1016/j.ridd.2017.07.020
   PubMed Web of Science ®Google Scholar
• Curtin, C., Anderson, S. E., Must, A., & Bandini, L. (2010). The prevalence of obesity in children with autism: A secondary data analysis using nationally representative data from the National Survey of Children’s Health. BMC Pediatrics, 10, 11. https://doi.org/10.1186/1471-2431-10-11
   PubMed Web of Science ®Google Scholar
• Curtin, C., Bandini, L. G., Perrin, E. C., Tybor, D. J., & Must, A. (2005). Prevalence of overweight in children and adolescents with attention deficit hyperactivity disorder and autism spectrum disorders: A chart review. BMC Pediatrics, 5, 48. https://doi.org/10.1186/1471-2431-5-48
   PubMedGoogle Scholar
• Egan, K. B., Ettinger, A. S., & Bracken, M. B. (2013). Childhood body mass index and subsequent physician-diagnosed asthma: a systematic review and meta-analysis of prospective cohort studies. BMC Pediatrics, 13, 121. https://doi.org/10.1186/1471-2431-13-121
   PubMed Web of Science ®Google Scholar
• Gehricke, J.-G., Chan, J., Farmer, J. G., Fenning, R. M., Steinberg-Epstein, R., Misra, M., Parker, R. A., & Neumeyer, A. M. (2020). Physical activity rates in children and adolescents with autism spectrum disorder compared to the general population. Research in Autism Spectrum Disorders, 70, 101490. https://doi.org/10.1016/j.rasd.2019.101490
   PubMed Web of Science ®Google Scholar
• Ghanadzade, M., Waltz, M., & Ragi, T. (2018). The intervention priorities of parents of children with autism spectrum disorders in Iran. Research in Autism Spectrum Disorders, 55, 14–24. https://doi.org/10.1016/j.rasd.2018.08.002
   Web of Science ®Google Scholar
• Gregor, S., Bruni, N., Grkinic, P., Schwartz, L., McDonald, A., Thille, P., Gabison, S., Gibson, B. E., & Jachyra, P. (2018). Parents’ perspectives of physical activity participation among Canadian adolescents with autism spectrum disorder. Research in Autism Spectrum Disorders, 48, 53–62. https://doi.org/10.1016/j.rasd.2018.01.007
   Web of Science ®Google Scholar
• Hall, C. M., Culler, E. D., & Frank-Webb, A. (2016). Online dissemination of resources and services for parents of children with autism spectrum disorders (ASDs): A systematic review of evidence. Review Journal of Autism and Developmental Disorders, 3(4), 273–285. https://doi.org/10.1007/s40489-016-0083-z
   Web of Science ®Google Scholar
• Healy, S., Aigner, C. J., & Haegele, J. A. (2019). Prevalence of overweight and obesity among US youth with autism spectrum disorder. Autism, 23(4), 1046–1050. https://doi.org/10.1177/1362361318791817
   PubMed Web of Science ®Google Scholar
• Healy, S., & Marchand, G. (2020). The feasibility of project CHASE: A facebook-delivered, parent-mediated physical activity intervention for children with autism. International Journal of Disability, Development and Education, 67(2), 225–242. https://doi.org/10.1080/1034912X.2019.1597968
   Web of Science ®Google Scholar
• Healy, S., Marchand, G., & Williams, E. (2018). “I'm not in this alone" the perspective of parents mediating a physical activity intervention for their children with autism spectrum disorder. Research in Developmental Disabilities, 83, 160–167. https://doi.org/10.1016/j.ridd.2018.08.014
   PubMed Web of Science ®Google Scholar
• Healy, S., Nacario, A., Braithwaite, R. E., & Hopper, C. (2018). The effect of physical activity interventions on youth with autism spectrum disorder: A meta‐analysis. Autism Research, 11(6), 818–833. https://doi.org/10.1002/aur.1955
   PubMed Web of Science ®Google Scholar
• Hill, A. P., Zuckerman, K. E., & Fombonne, E. (2015). Obesity and autism. Pediatrics, 136(6), 1051–1061. https://doi.org/10.1542/peds.2015-1437
   PubMed Web of Science ®Google Scholar
• Jang, J., Dixon, D. R., Tarbox, J., Granpeesheh, D., Kornack, J., & De Nocker, Y. (2012). Randomized trial of an eLearning program for training family members of children with autism in the principles and procedures of applied behavior analysis. Research in Autism Spectrum Disorders, 6(2), 852–856. https://doi.org/10.1016/j.rasd.2011.11.004
   Web of Science ®Google Scholar
• Ketcheson, L., Felzer-Kim, I. T., & Hauck, J. L. (2021). Promoting adapted physical activity regardless of language ability in young children with autism spectrum disorder. Research Quarterly for Exercise and Sport, 92(4), 813–823. https://doi.org/10.1080/02701367.2020.1788205
   PubMed Web of Science ®Google Scholar
• Ketcheson, L. R., & Pitchford, E. A. (2021). Promoting physical activity participation and nutrition education through a telehealth intervention for children on the autism spectrum and their caregivers. Contemporary Clinical Trials, 107, 106496. https://doi.org/10.1016/j.cct.2021.106496
   PubMed Web of Science ®Google Scholar
• Kobak, K. A., Stone, W. L., Wallace, E., Warren, Z., Swanson, A., & Robson, K. (2011). A web-based tutorial for parents of young children with autism: results from a pilot study. Telemedicine Journal and e-Health, 17(10), 804–808. https://doi.org/10.1089/tmj.2011.0060
   PubMed Web of Science ®Google Scholar
• Lai, B., Wilroy, J., Young, H.-J., Howell, J., Rimmer, J. H., Mehta, T., & Thirumalai, M. (2019). A mobile app to promote adapted exercise and social networking for people with physical disabilities: Usability study. JMIR Formative Research, 3(1), e11689. https://doi.org/10.2196/11689
   PubMedGoogle Scholar
• Lee, M. H., Park, C., Matthews, A. K., & Hsieh, K. (2017). Differences in physical health, and health behaviors between family caregivers of children with and without disabilities. Disability and Health Journal, 10(4), 565–570. https://doi.org/10.1016/j.dhjo.2017.03.007
   PubMed Web of Science ®Google Scholar
• Levy, S. E., Pinto-Martin, J. A., Bradley, C. B., Chittams, J., Johnson, S. L., Pandey, J., Pomykacz, A., Ramirez, A., Reynolds, A., Rubenstein, E., Schieve, L. A., Shapira, S. K., Thompson, A., Young, L., & Kral, T. V. E. (2019). Relationship of weight outcomes, co-occurring conditions, and severity of autism spectrum disorder in the study to explore early development. The Journal of Pediatrics, 205, 202–209. https://doi.org/10.1016/j.jpeds.2018.09.003
   PubMed Web of Science ®Google Scholar
• Lotan, M., Yalon-Chamovitz, S., & Weiss, P. L. (2010). Virtual reality as means to improve physical fitness of individuals at a severe level of intellectual and developmental disability. Research in Developmental Disabilities, 31(4), 869–874. https://doi.org/10.1016/j.ridd.2010.01.010
   PubMed Web of Science ®Google Scholar
• Macdonald, M., Esposito, P., & Ulrich, D. (2011). The physical activity patterns of children with autism. BMC Research Notes, 4(1), 422. https://doi.org/10.1186/1756-0500-4-422
   PubMedGoogle Scholar
• McMahon, D. D., Barrio, B., McMahon, A. K., Tutt, K., & Firestone, J. M.(2020). Virtual reality exercise games for high school students with intellectual and developmental disabilities. Journal of Special Education Technology, 35(2), 87–96. https://doi.org/10.1177/0162643419836416
   Web of Science ®Google Scholar
• Memari, A. H., Panahi, N., Ranjbar, E., Moshayedi, P., Shafiei, M., Kordi, R., Ziaee, V., et al. (2015). Children with autism spectrum disorder and patterns of participation in daily physical and play activities. Neurology Research International, 2015, 531906–531907. https://doi.org/10.1155/2015/531906
   PubMed Web of Science ®Google Scholar
• Must, A., Eliasziw, M., Phillips, S. M., Curtin, C., Kral, T. V. E., Segal, M., Sherwood, N. E., Sikich, L., Stanish, H. I., & Bandini, L. G. (2017). The effect of age on the prevalence of obesity among US youth with autism spectrum disorder. Childhood Obesity, 13(1), 25–35. https://doi.org/10.1089/chi.2016.0079
   PubMed Web of Science ®Google Scholar
• Najafabadi, M. G., Sheikh, M., Hemayattalab, R., Memari, A., Aderyani, M. R., & Hafizi, S. (2018). The effect of SPARK on social and motor skills of children with autism. Pediatrics and Neonatology, 59(5), 481–487. https://doi.org/10.1016/j.pedneo.2017.12.005
   PubMed Web of Science ®Google Scholar
• Nichols, C., Block, M. E., Bishop, J. C., & McIntire, B..(2019). Physical activity in young adults with autism spectrum disorder: Parental perceptions of barriers and facilitators. Autism, 23(6), 1398–1407. https://doi.org/10.1177/1362361318810221
   PubMed Web of Science ®Google Scholar
• Padden, C., & James, J. E. (2017). Stress among parents of children with and without autism spectrum disorder: A comparison involving physiological indicators and parent self-reports. Journal of Developmental and Physical Disabilities, 29(4), 567–586. https://doi.org/10.1007/s10882-017-9547-z
   PubMed Web of Science ®Google Scholar
• Peregrin, T. (2019). Telehealth is transforming health care: What you need to know to practice telenutrition. Journal of the Academy of Nutrition and Dietetics, 119(11), 1916–1920. https://doi.org/10.1016/j.jand.2019.07.020
   PubMed Web of Science ®Google Scholar
• Rollo, M. E., Aguiar, E. J., Williams, R. L., Wynne, K., Kriss, M., Callister, R., & Collins, C. E. (2016). eHealth technologies to support nutrition and physical activity behaviors in diabetes self-management. Diabetes, Metabolic Syndrome and Obesity: Targets and Therapy, 9, 381–390. https://doi.org/10.2147/DMSO.S95247
   PubMed Web of Science ®Google Scholar
• Ryan, R. M., & Deci, E. L. (2000). Intrinsic and extrinsic motivations: Classic definitions and new directions. Contemporary Educational Psychology, 25(1), 54–67. https://doi.org/10.1006/ceps.1999.1020
   PubMed Web of Science ®Google Scholar
• Sallis, J. F., Cervero, R. B., Ascher, W., Henderson, K. A., Kraft, M. K., & Kerr, J. (2006). An ecological approach to creating active living communities. Annual Review of Public Health, 27(1), 297–322. https://doi.org/10.1146/annurev.publhealth.27.021405.102100
   PubMed Web of Science ®Google Scholar
• Sallis, J. F., Owen, N., & Fisher, E. B. (2008). Ecological models of health behavior. In K. Glanz, B.R. Rimer, & K. Viswanath (Eds.), Health behavior and health education: Theory, research, and practice (4th ed., pp. 465–485). Jossey-Bass.
   Google Scholar
• Sharma, R., Latimer-Cheung, A. E., Cairney, J., & Arbour-Nicitopoulos, K. P. (2021). An online physical activity intervention for youth with physical disabilities: A pilot study. Frontiers in Rehabilitation Sciences, 2, 651688. https://doi.org/10.3389/fresc.2021.651688
   PubMedGoogle Scholar
• Shedlock, K., Susi, A., Gorman, G. H., Hisle-Gorman, E., Erdie-Lalena, C. R., & Nylund, C. M. (2016). Autism spectrum disorders and metabolic complications of obesity. The Journal of Pediatrics, 178, 183–187 e181. https://doi.org/10.1016/j.jpeds.2016.07.055
   PubMed Web of Science ®Google Scholar
• Shields, N., Dodd, K. J., & Abblitt, C. (2009). Do children with Down syndrome perform sufficient physical activity to maintain good health? A pilot study. Adapted Physical Activity Quarterly, 26(4), 307–320. https://doi.org/10.1123/apaq.26.4.307
   PubMed Web of Science ®Google Scholar
• The Aspen Institute. (2013). The Aspen Institute’s Project Play Summit 2013: With Support from the Robert Wood Johnson Foundation. https://www.aspeninstitute.org/wpcontent/uploads/files/content/upload/Aspen%20Institute%20Project%20Play%202013%20Summit%20Summary_0.pdf.
   Google Scholar
• Toscano, C. V., Carvalho, H. M., & Ferreira, J. P. (2018). Exercise effects for children with autism spectrum disorder: Metabolic health, autistic traits, and quality of life. Perceptual and Motor Skills, 125(1), 126–146. https://doi.org/10.1177/0031512517743823
   PubMed Web of Science ®Google Scholar
• United States Department of Health and Human Services. (2018). Physical activity guidelines for Americans (2nd ed.). U.S. Department of Health and Human Services.
   Google Scholar
• Vismara, L. A., McCormick, C., Young, G. S., Nadhan, A., & Monlux, K. (2013). Preliminary findings of a telehealth approach to parent training in autism. Journal of Autism and Developmental Disorders, 43(12), 2953–2969. https://doi.org/10.1007/s10803-013-1841-8
   PubMed Web of Science ®Google Scholar
• Vismara, L. A., Young, G. S., & Rogers, S. J. (2012). Telehealth for expanding the reach of early autism training to parents. Autism Research and Treatment, 2012, 121878–121812. https://doi.org/10.1155/2012/121878
   PubMedGoogle Scholar
• Wainer, A. L., & Ingersoll, B. R. (2015). Increasing access to an ASD imitation intervention via a telehealth parent training program. Journal of Autism and Developmental Disorders, 45(12), 3877–3890. https://doi.org/10.1007/s10803-014-2186-7
   PubMed Web of Science ®Google Scholar
• Young, K. A., Finney, M. A., Marayong, P., & Vu, K-P.L. (2021). Advancing inclusive mentoring through an online mentor training program and coordinated discussion group. Human interface and the management of information [Paper presentation]. Information-Rich and Intelligent Environments: Thematic Area, HIMI 2021, Held as Part of the 23rd HCI International Conference, HCII 2021, Virtual Event, 12766, 177–194.
   Google Scholar
• Young, M. D., Plotnikoff, R. C., Collins, C. E., Callister, R., & Morgan, P. J. (2014). Social cognitive theory and physical activity: a systematic review and meta-analysis. Obesity Reviews, 15(12), 983–995. https://doi.org/10.1111/obr.12225
   PubMed Web of Science ®Google Scholar