Attitudes on breast feeding among persons with HIV who have given birth and their perceptions of coercion during counseling on safe infant feeding practices

References

• Abdulahi, M., Fretheim, A., Argaw, A., & Magnus, J. H. (2020). Adaptation and validation of the Iowa infant feeding attitude scale and the breastfeeding knowledge questionnaire for use in an Ethiopian setting. International Breastfeeding Journal, 15(1), 24. https://doi.org/10.1186/s13006-020-00269-w
   PubMed Web of Science ®Google Scholar
• Acheampong, A. K., Naab, F., & Kwashie, A. (2018). The voices that influence HIV-positive mothers’ breastfeeding practices in an urban, Ghanaian society. Journal of Human Lactation, 34(1), 176–183. https://doi.org/10.1177/0890334417740345
   PubMed Web of Science ®Google Scholar
• Adeniyi, O. V., Ajayi, A. I., Issah, M., Owolabi, E. O., Goon, D. T., Avramovic, G., & Lambert, J. (2019). Beyond health care providers’ recommendations: Understanding influences on infant feeding choices of women with HIV in the Eastern Cape, South Africa. International Breastfeeding Journal, 14(1), 7. https://doi.org/10.1186/s13006-019-0201-5
   PubMedGoogle Scholar
• Bonacquisti, A., Geller, P. A., & Aaron, E. (2014). Rates and predictors of prenatal depression in women living with and without HIV. AIDS Care, 26(1), 100–106. https://doi.org/10.1080/09540121.2013.802277
   PubMed Web of Science ®Google Scholar
• Borra, C., Iacovou, M., & Sevilla, A. (2015). New evidence on breastfeeding and postpartum depression: The importance of understanding women’s intentions. Maternal and Child Health Journal, 19(4), 897–907. https://doi.org/10.1007/s10995-014-1591-z
   PubMed Web of Science ®Google Scholar
• Buchberg, M. K., Fletcher, F. E., Vidrine, D. J., Levison, J., Peters, M. Y., Hardwicke, R., Yu, X., & Bell, T. K. (2015). A mixed-methods approach to understanding barriers to postpartum retention in care among low-income, HIV-infected women. AIDS Patient Care and STDs, 29(3), 126–132. https://doi.org/10.1089/apc.2014.0227
   PubMed Web of Science ®Google Scholar
• Casal, C. S., Lei, A., Young, S. L., & Tuthill, E. L. (2017). A critical review of instruments measuring breastfeeding attitudes, knowledge, and social support. Journal of Human Lactation, 33(1), 21–47. https://doi.org/10.1177/0890334416677029
   PubMed Web of Science ®Google Scholar
• Conradie, A., Duys, R., Forget, P., & Biccard, B. M. (2018). Barriers to clinical research in Africa: A quantitative and qualitative survey of clinical researchers in 27 African countries. British Journal of Anaesthesia, 121(4), 813–821. https://doi.org/10.1016/j.bja.2018.06.013
   PubMed Web of Science ®Google Scholar
• Coovadia, H. M., Brown, E. R., Fowler, M. G., Chipato, T., Moodley, D., Manji, K., Musoke, P., Stranix-Chibanda, L., Chetty, V., Fawzi, W., Nakabiito, C., Msweli, L., Kisenge, R., Guay, L., Mwatha, A., Lynn, D. J., Eshleman, S. H., Richardson, P., George, K., … HPTN 046 protocol team. (2012). Efficacy and safety of an extended nevirapine regimen in infant children of breastfeeding mothers with HIV-1 infection for prevention of postnatal HIV-1 transmission (HPTN 046): A randomised, double-blind, placebo-controlled trial. The Lancet, 379(9812), 221–228. https://doi.org/10.1016/S0140-6736(11)61653-X
   PubMed Web of Science ®Google Scholar
• Corbin, J., & Strauss, A. (2008). Basics of qualitative research: Techniques and procedures for developing grounded theory. Los Angeles, London: Sage. https://doi.org/10.4135/9781452230153
   Google Scholar
• Cotelo, M., Movilla-Fernandez, M. J., Pita-Garcia, P., & Novio, S. (2018). Infant feeding attitudes and practices of Spanish low-risk expectant women using the IIFAS (Iowa infant feeding attitude scale). Nutrients, 10(4), 520. https://doi.org/10.3390/nu10040520
   PubMed Web of Science ®Google Scholar
• Coutsoudis, A., Pillay, K., Spooner, E., Kuhn, L., & Coovadia, H. M. (1999). Influence of infant-feeding patterns on early mother-to-child transmission of HIV-1 in Durban, South Africa: A prospective cohort study. The Lancet, 354(9177), 471–476. https://doi.org/10.1016/S0140-6736(99)01101-0
   PubMed Web of Science ®Google Scholar
• de la Mora, A., Russell, D. W., Dungy, C. I., Losch, M., & Dusdieker, L. (1999). The Iowa infant feeding attitude scale: Analysis of reliability and validity. Journal of Applied Social Psychology, 29(11), 2362–2380. https://doi.org/10.1111/j.1559-1816.1999.tb00115.x
   Web of Science ®Google Scholar
• Kesho Bora Study Group, & de Vincenzi, I. (2011). Triple antiretroviral compared with zidovudine and single-dose nevirapine prophylaxis during pregnancy and breastfeeding for prevention of mother-to-child transmission of HIV-1 (Kesho Bora study): A randomised controlled trial. The Lancet Infectious Diseases, 11(3), 171–180. https://doi.org/10.1016/S1473-3099(10)70288-7
   PubMed Web of Science ®Google Scholar
• DHHS. (2022). Recommendations for the use of antiretroviral drugs in pregnant women with HIV infection and interventions to reduce perinatal HIV transmission in the United States. https://clinicalinfo.hiv.gov/en/guidelines/perinatal/postpartum-follow-women-living-hiv-infection?view=full
   Google Scholar
• Fischer, T. P., & Olson, B. H. (2014). A qualitative study to understand cultural factors affecting a mother’s decision to breast or formula feed. Journal of Human Lactation, 30(2), 209–216. https://doi.org/10.1177/0890334413508338
   PubMed Web of Science ®Google Scholar
• Flynn, P. M., Taha, T. E., Cababasay, M., Fowler, M. G., Mofenson, L. M., Owor, M., Fiscus, S., Stranix-Chibanda, L., Coutsoudis, A., Gnanashanmugam, D., Chakhtoura, N., McCarthy, K., Mukuzunga, C., Makanani, B., Moodley, D., Nematadzira, T., Kusakara, B., Patil, S., Vhembo, T., … PROMISE Study Team. (2018). Prevention of HIV-1 transmission through breastfeeding: Efficacy and safety of maternal antiretroviral therapy versus infant nevirapine prophylaxis for duration of breastfeeding in HIV-1-infected women with high CD4 cell count (IMPAACT PROMISE): A randomized, open-label, clinical trial. JAIDS Journal of Acquired Immune Deficiency Syndromes, 77(4), 383–392. https://doi.org/10.1097/QAI.0000000000001612
   PubMed Web of Science ®Google Scholar
• Fowler, M. G., Coovadia, H., Herron, C. M., Maldonado, Y., Chipato, T., Moodley, D., Musoke, P., Aizire, J., Manji, K., Stranix-Chibanda, L., Fawzi, W., Chetty, V., Msweli, L., Kisenge, R., Brown, E., Mwatha, A., Eshleman, S. H., Richardson, P., Allen, M., … HPTN 046 Protocol Team. (2014). Efficacy and safety of an extended nevirapine regimen in infants of breastfeeding mothers with HIV-1 infection for prevention of HIV-1 transmission (HPTN 046): 18-month results of a randomized, double-blind, placebo-controlled trial. JAIDS Journal of Acquired Immune Deficiency Syndromes, 65(3), 366–374. https://doi.org/10.1097/QAI.0000000000000052
   PubMed Web of Science ®Google Scholar
• Givens, M., Levison, J., & Rahangdale, L. (2021). Considerations and recommendations for pregnancy and postpartum care for people living with human immunodeficiency virus. Obstetrics & Gynecology, 138(1), 119–130. https://doi.org/10.1097/AOG.0000000000004441
   PubMed Web of Science ®Google Scholar
• Gostin, L. O., & Kavanagh, M. M. (2019). The ethics of breastfeeding by women living with HIV/AIDS: A concrete proposal for reforming department of health and human services recommendations. Journal of Law, Medicine & Ethics, 47(1), 161–164. https://doi.org/10.1177/1073110519840496
   PubMed Web of Science ®Google Scholar
• Gross, M. S., Taylor, H. A., Tomori, C., & Coleman, J. S. (2019). Breastfeeding with HIV: An evidence-based case for new policy. Journal of Law, Medicine & Ethics, 47(1), 152–160. https://doi.org/10.1177/1073110519840495
   PubMed Web of Science ®Google Scholar
• Gurrieri, L., Previte, J., & Brace-Govan, J. (2012). Women’s bodies as sites of control: Inadvertent stigma and exclusion in social marketing. Journal of Macromarketing, 33(2), 128–143. https://doi.org/10.1177/0276146712469971
   Web of Science ®Google Scholar
• Haberl, L., Audebert, F., Feiterna-Sperling, C., Gillor, D., Jakubowski, P., Jonsson-Oldenbuttel, C., Khaykin, P., Kiener, R., Reitter, A., Rieke, A., Rodríguez, E., Rößler, S., Rump, J. A., Schüttfort, G., Stephan, C., Ulmer, A., von Braun, A., von Weizsäcker, K., & Haberl, A. (2021). Not recommended, but done: Breastfeeding with HIV in Germany. AIDS Patient Care and STDs, 35(2), 33–38. https://doi.org/10.1089/apc.2020.0223
   PubMed Web of Science ®Google Scholar
• Harris, P. A., Taylor, R., Thielke, R., Payne, J., Gonzalez, N., & Conde, J. G. (2009). Research electronic data capture (REDCap) – A metadata-driven methodology and workflow process for providing translational research informatics support. Journal of Biomedical Informatics, 42(2), 377–381. https://doi.org/10.1016/j.jbi.2008.08.010
   PubMed Web of Science ®Google Scholar
• Hemphill, R., Forsythe, L. P., Heckert, A. L., Amolegbe, A., Maurer, M., Carman, K. L., Mangrum, R., Stewart, L., Fearon, N., & Esmail, L. (2020). What motivates patients and caregivers to engage in health research and how engagement affects their lives: Qualitative survey findings. Health Expectations, 23(2), 328–336. https://doi.org/10.1111/hex.12979
   PubMed Web of Science ®Google Scholar
• Hirani, S. A., & Olson, J. (2016). Concept analysis of maternal autonomy in the context of breastfeeding. Journal of Nursing Scholarship, 48(3), 276–284. https://doi.org/10.1111/jnu.12211
   PubMed Web of Science ®Google Scholar
• Iliadou, M., Lykeridou, K., Prezerakos, P., Tzavara, C., & Tziaferi, S. G. (2019). Reliability and validity of the Greek version of the Iowa infant feeding attitude scale among pregnant women. Materia Socio Medica, 31(3), 160–165. https://doi.org/10.5455/msm.2019.31.160-165
   PubMedGoogle Scholar
• Johnson, G., Levison, J., & Malek, J. (2016). Should providers discuss breastfeeding with women living with HIV in high-income countries? An ethical analysis. Clinical Infectious Diseases, 63(10), 1368–1372. https://doi.org/10.1093/cid/ciw587
   PubMed Web of Science ®Google Scholar
• Kahlert, C., Aebi-Popp, K., Bernasconi, E., Martinez de Tejada, B., Nadal, D., Paioni, P., Rudin, C., Staehelin, C., Wagner, N., & Vernazza, P. (2018). Is breastfeeding an equipoise option in effectively treated HIV-infected mothers in a high-income setting? Swiss Medical Weekly, 148, w14648. https://doi.org/10.4414/smw.2018.14648
   PubMed Web of Science ®Google Scholar
• Kapetanovic, S., Christensen, S., Karim, R., Lin, F., Mack, W. J., Operskalski, E., Frederick, T., Spencer, L., Stek, A., Kramer, F., & Kovacs, A. (2009). Correlates of perinatal depression in HIV-infected women. AIDS Patient Care and STDs, 23(2), 101–108. https://doi.org/10.1089/apc.2008.0125
   PubMed Web of Science ®Google Scholar
• Kathawa, C. A., & Arora, K. S. (2020). Implicit bias in counseling for permanent contraception: Historical context and recommendations for counseling. Health Equity, 4(1), 326–329. https://doi.org/10.1089/heq.2020.0025
   PubMedGoogle Scholar
• Kestler-Peleg, M., Shamir-Dardikman, M., Hermoni, D., & Ginzburg, K. (2015). Breastfeeding motivation and self-determination theory. Social Science & Medicine, 144, 19–27. https://doi.org/10.1016/j.socscimed.2015.09.006
   PubMed Web of Science ®Google Scholar
• Kourtis, A. P., Jamieson, D. J., de Vincenzi, I., Taylor, A., Thigpen, M. C., Dao, H., Farley, T., & Fowler, M. G. (2007). Prevention of human immunodeficiency virus-1 transmission to the infant through breastfeeding: New developments. American Journal of Obstetrics and Gynecology, 197(3 Suppl), S113–S122. https://doi.org/10.1016/j.ajog.2007.03.003
   PubMed Web of Science ®Google Scholar
• Kuhn, L., Reitz, C., & Abrams, E. J. (2009). Breastfeeding and AIDS in the developing world. Current Opinion in Pediatrics, 21(1), 83–93. https://doi.org/10.1097/MOP.0b013e328320d894
   PubMed Web of Science ®Google Scholar
• Levison, J., & Pollock, L. (2019). Pediatric care of human immunodeficiency virus-exposed breastfeeding infants. Journal of the Pediatric Infectious Diseases Society, 8(4), 369–370. https://doi.org/10.1093/jpids/piz031
   PubMed Web of Science ®Google Scholar
• Levison, J., Weber, S., & Cohan, D. (2014). Breastfeeding and HIV-infected women in the United States: Harm reduction counseling strategies. Clinical Infectious Diseases, 59(2), 304–309. https://doi.org/10.1093/cid/ciu272
   PubMed Web of Science ®Google Scholar
• Little, K. M., Hu, D. J., & Dominguez, K. L. (2012). HIV-1 and breastfeeding in the United States. Advances in Experimental Medicine and Biology, 743, 261–270. https://doi.org/10.1007/978-1-4614-2251-8_19
   PubMed Web of Science ®Google Scholar
• Nagot, N., Kankasa, C., Tumwine, J. K., Meda, N., Hofmeyr, G. J., Vallo, R., Mwiya, M., Kwagala, M., Traore, H., Sunday, A., Singata, M., Siuluta, C., Some, E., Rutagwera, D., Neboua, D., Ndeezi, G., Jackson, D., Maréchal, V., Neveu, D., … ANRS 12174 Trial Group. (2016). Extended pre-exposure prophylaxis with lopinavir-ritonavir versus lamivudine to prevent HIV-1 transmission through breastfeeding up to 50 weeks in infants in Africa (ANRS 12174): A randomised controlled trial. The Lancet, 387(10018), 566–573. https://doi.org/10.1016/S0140-6736(15)00984-8
   PubMed Web of Science ®Google Scholar
• Nesheim, S., Taylor, A., Lampe, M. A., Kilmarx, P. H., Fitz Harris, L., Whitmore, S., Griffith, J., Thomas-Proctor, M., Fenton, K., & Mermin, J. (2012). A framework for elimination of perinatal transmission of HIV in the United States. Pediatrics, 130(4), 738–744. https://doi.org/10.1542/peds.2012-0194
   PubMed Web of Science ®Google Scholar
• Nesheim, S., Wiener, J., Fitz Harris, L. F., Lampe, M. A., & Weidle, P. J. (2017). Brief report: Estimated incidence of perinatally acquired HIV infection in the United States, 1978–2013. JAIDS Journal of Acquired Immune Deficiency Syndromes, 76(5), 461–464. https://doi.org/10.1097/QAI.0000000000001552
   PubMed Web of Science ®Google Scholar
• O’Cathain, A., & Thomas, K. J. (2004). “Any other comments?” Open questions on questionnaires – A bane or a bonus to research? BMC Medical Research Methodology, 4(1), 25. https://doi.org/10.1186/1471-2288-4-25
   PubMedGoogle Scholar
• Sibeko, L., Coutsoudis, A., Nzuza, S., & Gray-Donald, K. (2009). Mothers’ infant feeding experiences: Constraints and supports for optimal feeding in an HIV-impacted urban community in South Africa. Public Health Nutrition, 12(11), 1983–1990. https://doi.org/10.1017/S1368980009005199
   PubMed Web of Science ®Google Scholar
• Soltani, H., Dickinson, F. M., Kalk, J., & Payne, K. (2008). Breast feeding practices and views among diabetic women: A retrospective cohort study. Midwifery, 24(4), 471–479. https://doi.org/10.1016/j.midw.2007.04.005
   PubMed Web of Science ®Google Scholar
• Spencer, R. L., Greatrex-White, S., & Fraser, D. M. (2015). ‘I thought it would keep them all quiet’. Women’s experiences of breastfeeding as illusions of compliance: An interpretive phenomenological study. Journal of Advanced Nursing, 71(5), 1076–1086. https://doi.org/10.1111/jan.12592
   PubMed Web of Science ®Google Scholar
• Sundstrom, B. (2014). Breaking women’s health taboos: Integrating diffusion of innovations theory with social marketing. Social Marketing Quarterly, 20(2), 87–102. https://doi.org/10.1177/1524500414525774
   Google Scholar
• Sundstrom, B. L. (2015). Reproductive justice and women’s voices: Health communication across the lifespan. Lexington Books. http://web.b.ebscohost.com.nuncio.cofc.edu/ehost/ebookviewer/ebook/ZTAwMHhuYV9fMTA2MDUzNV9fQU41?sid=693cba3c-6b27-44cb-a38b-e8b70b29b5a7@pdc-v-sessmgr05&vid=0&format=EB&rid=1
   Google Scholar
• Tariq, S., Elford, J., Tookey, P., Anderson, J., de Ruiter, A., O’Connell, R., & Pillen, A. (2016). “It pains me because as a woman you have to breastfeed your baby”: Decision-making about infant feeding among African women living with HIV in the UK. Sexually Transmitted Infections, 92(5), 331–336. https://doi.org/10.1136/sextrans-2015-052224
   PubMed Web of Science ®Google Scholar
• Tuthill, E. L., Tomori, C., Van Natta, M., & Coleman, J. S. (2019). “In the United States, we say, ‘No breastfeeding,’ but that is no longer realistic”: Provider perspectives towards infant feeding among women living with HIV in the United States. Journal of the International AIDS Society, 22(1), e25224. https://doi.org/10.1002/jia2.25224
   PubMed Web of Science ®Google Scholar
• Twells, L. K., Midodzi, W. K., Ludlow, V., Murphy-Goodridge, J., Burrage, L., Gill, N., Halfyard, B., Schiff, R., & Newhook, L. A. (2016). Assessing infant feeding attitudes of expectant women in a provincial population in Canada: Validation of the Iowa infant feeding attitude scale. Journal of Human Lactation, 32(3), NP9–NP18. https://doi.org/10.1177/0890334414559647
   PubMed Web of Science ®Google Scholar
• Ungvary, R., Ittzes, A., Bone, V., & Torok, S. (2021). Psychometric properties of the original and short Hungarian version of the Iowa infant feeding attitude scale. International Breastfeeding Journal, 16(1), 54. https://doi.org/10.1186/s13006-021-00403-2
   PubMed Web of Science ®Google Scholar
• Van de Perre, P., Rubbo, P. A., Viljoen, J., Nagot, N., Tylleskar, T., Lepage, P., Vendrell, J. P., & Tuaillon, E. (2012). HIV-1 reservoirs in breast milk and challenges to elimination of breast-feeding transmission of HIV-1. Science Translational Medicine, 4(143), 143sr143. https://doi.org/10.1126/scitranslmed.3003327
   Web of Science ®Google Scholar
• Waitt, C., Low, N., Van de Perre, P., Lyons, F., Loutfy, M., & Aebi-Popp, K. (2018). Does U = U for breastfeeding mothers and infants? Breastfeeding by mothers on effective treatment for HIV infection in high-income settings. The Lancet HIV, 5(9), e531–e536. https://doi.org/10.1016/S2352-3018(18)30098-5
   PubMed Web of Science ®Google Scholar
• WHO. (2016). Updates on HIV and infant feeding: The duration of breastfeeding, and support from health services to improve feeding practices among mothers living with HIV – NCBI bookshelf. https://www.ncbi.nlm.nih.gov/books/NBK379872/
   Google Scholar
• Young, S. L., Mbuya, M. N., Chantry, C. J., Geubbels, E. P., Israel-Ballard, K., Cohan, D., Vosti, S. A., & Latham, M. C. (2011). Current knowledge and future research on infant feeding in the context of HIV: Basic, clinical, behavioral, and programmatic perspectives. Advances in Nutrition, 2(3), 225–243. https://doi.org/10.3945/an.110.000224
   PubMed Web of Science ®Google Scholar