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Research Article

Engendering ethics: recognition and inclusion of intersectional identities in queer communities when conducting population survey research

ORCID Icon, ORCID Icon & ORCID Icon
Received 13 Oct 2023, Accepted 19 Mar 2024, Published online: 09 Apr 2024

References

  • Adams, Noah, Ruth Pearce, Jaimie Veale, Asa Radix, Danielle Castro, Amrita Sarkar, and Kai C. Thom. 2017. “Guidance and Ethical Considerations for Undertaking Transgender Health Research and Institutional Review Boards Adjudicating This Research.” Transgender Health 2 (1): 165–175. https://doi.org/10.1089/trgh.2017.0012.
  • Aguessivognon, Togla A. 2022. “Research on African Adolescents’ Sexual and Reproductive Health: Ethical Practices and Challenges.” African Journal of Reproductive Health 26 (3): 13–19. https://doi.org/10.29063/ajrh2022/v26i3.2.
  • AHRC (Australian Human Rights Commission). 2015. Resilient Individuals: Sexual Orientation, Gender Identity, and Intersex Rights. Sydney, NSW: Australia.
  • Auer, Matthias K., Johannes Fuss, Nina Höhne, Günter K. Stalla, Caroline Sievers, and M. J. Coleman. 2014. “Transgender Transitioning and Change of Self-Reported Sexual Orientation.” PLOS ONE 9 (10): e110016. https://doi.org/10.1371/journal.pone.0110016.
  • Bale, Tracy L., and Neill C. Epperson. 2017. “Sex As a Biological Variable: Who, What, When, Why, and How.” Neuropsychopharmacol 42 (2): 386–396. https://doi.org/10.1038/npp.2016.215.
  • Barlo, Stuart, William E. Boyd, Margaret Hughes, Shawn Wilson, and Alessandro Pelizzon. 2021. “Yarning As Protected Space: Relational Accountability in Research.” AlterNative: An International Journal of Indigenous Peoples 17 (1): 40–48. https://doi.org/10.1177/1177180120986151.
  • Bauer, Greta R. 2014. “Incorporating Intersectionality Theory into Population Health Research Methodology: Challenges and the Potential to Advance Health Equity.” Social Science and Medicine 110: 10–17. https://doi.org/10.1016/j.socscimed.2014.03.022.
  • Bauer, Greta R. Jessica Braimoh, Ayden I. Scheim, Christoffer Dharma, and A. R. Dalby. 2017. “Transgender-Inclusive Measures of Sex/Gender for Population Surveys: Mixed-Methods Evaluation and Recommendations.” Public Library of Science ONE 12 (5): e0178043. https://doi.org/10.1371/journal.pone.0178043.
  • Beckford-Jarrett, Sharlene, Robin Flanagan, Annie Coriolan, Orlando Harris, Andrea Campbell, and Nicola Skyers. 2020. “Barriers and Facilitators to Participation of Men Who Have Sex with Men and Transgender Women in HIV Research in Jamaica.” Culture, Health & Sexuality 22 (8): 887–903. https://doi.org/10.1080/13691058.2019.1634222.
  • Bobongie-Harris, Francis, Daniele Hromek, and Grace O’Brien. 2021. “Country, Community and Indigenous Research: A Research Framework That Uses Indigenous Research Methodologies (Storytelling, Deep Listening and Yarning).” Australian Aboriginal Studies 2: 14–24. https://search.informit.org/doi/abs/10.3316/informit.625130518148928.
  • Brembs, Björn, Katherine Button, and Marcus Munafò. 2013. “Deep Impact: Unintended Consequences of Journal Rank.” Frontiers in Human Neuroscience 7: 291. https://doi.org/10.3389/fnhum.2013.00291.
  • Callahan, Gerald 2009. Between XX and XY: Intersexuality and the Myth of Two Sexes. Chicago Review Press. https://books.google.com.au/books?id=HlG-8bSgDBgC.
  • Campbell, Rebecca, Rachael Goodman-Williams, and McKenzie Javorka. 2019. “A Trauma-Informed Approach to Sexual Violence Research Ethics and Open Science.” Journal of Interpersonal Violence 34 (23–24): 4765–4793. https://doi.org/10.1177/0886260519871530.
  • Carpenter, M. 2021. “Intersex Human Rights, Sexual Orientation, Gender Identity, Sex Characteristics and the Yogyakarta Principles Plus 10.” Culture, Health and Sexuality 23 (4): 516–532. https://doi.org/10.1080/13691058.2020.1781262.
  • Caruana, Edward J. Marius Roman, Jules Hernández-Sánchez, and Piergiorgio Solli. 2015. “Longitudinal Studies.” Journal of Thoracic Disease 7 (11): E537–540. https://doi.org/10.3978/j.issn.2072-1439.2015.10.63.
  • Cass, Vivienne C. 1979. “Homosexuality Identity Formation: A Theoretical Model.” Journal of Homosexuality 4 (3): 219–235. https://doi.org/10.1300/J082v04n03_01.
  • Cass, Vivienne C. 1984. “Homosexual Identity Formation: Testing a Theoretical Model.” The Journal of Sex Research 20 (2): 143–167. https://www.jstor.org/stable/3812348.
  • Cass, Vivienne C. 1996. “Sexual Orientation Identity Formation: A Western Phenomenon.” In Textbook of Homosexuality and Mental Health, edited by Robert. P. Cabaj and Terry. S. Stein, 227–251. Arlington, VA: American Psychiatric Association.
  • Crenshaw, Kimberle 1989. “Demarginalizing the Intersection of Race and Sex: A Black Feminist Critique of Antidiscrimination Doctrine, Feminist Theory and Antiracist Politics.” University of Chicago Legal Forum 1989 (1): Article 8. http://chicagounbound.uchicago.edu/uclf/vol1989/iss1/8.
  • Davison, Kate 2021. “Cold War Pavlov: Homosexual Aversion Therapy in the 1960s.” History of the Human Sciences 34 (1): 89–119. https://doi.org/10.1177/0952695120911593.
  • de Graaf, Nastasja M., Bodi Huisman, Peggy T. Cohen-Kettenis, Jos Twist, Kris Hage, Polly Carmichael, Baudewikntje P. C. Kreukels, and Thomas. D. Steensma. 2021. “Psychological Functioning in Non-Binary Identifying Adolescents and Adults.” Journal of Sex & Marital Therapy 47 (8): 773–784. https://doi.org/10.1080/0092623X.2021.1950087.
  • Dubé, Simon, Maria Santaguida, and Dave Anctil. 2022. “Erobots As Research Tools: Overcoming the Ethical and Methodological Challenges of Sexology.” Journal of Future Robot Life 3 (2): 207–221. https://doi.org/10.3233/FRL-210017.
  • Ellsberg, Mary, and Lori Heise. 2002. “Bearing Witness: Ethics in Domestic Violence Research.” The Lancet 359 (9317): 1599–1604. https://doi.org/10.1016/S0140-6736(02)08521-5.
  • Folayan, Morenike O., Bridget Haire, Abigail Harrison, Morolake Odetoyingbo, Olawunmi Fatusi, and Brandon Brown. 2015. “Ethical Issues in adolescents’ Sexual and Reproductive Health Research in Nigeria.” Developing World Bioethics 15 (3): 191–198. https://doi.org/10.1111/dewb.12061.
  • Greendale, Gail A., Nancy P. Lee, and Edga R. Arriola. 1999. “The Menopause.” The Lancet 353 (9152): 571–580. https://doi.org/10.1016/S0140-6736(98)05352-5.
  • Henrickson, Mark, Sulaimon Giwa, Trish Hafford-Letchfield, Christine Cocker, Nick J. Mulé, Jason Schaub, and Alexandre Baril. 2020. “Research Ethics with Gender and Sexually Diverse Persons.” International Journal of Environmental Research and Public Health 17 (18): 1–13. https://doi.org/10.3390/ijerph17186615.
  • ”How Nature Contributed to science’s Discriminatory Legacy.” 2022. Nature. 609 (7929): 875–876. https://doi.org/10.1038/d41586-022-03035-6.
  • Humbyrd, Casey 2019. “Virtue Ethics in a Value-Driven World: Can I Respect Autonomy without Respecting the Person?” Clinical Orthopaedics and Related Research 477 (2): 293–294. https://doi.org/10.1097/CORR.0000000000000575.
  • Hyde, Janet S., Rebecca S. Bigler, Daphna Joel, Charlotte C. Tate, and Sari M. van Anders. 2019. “The Future of Sex and Gender in Psychology: Five Challenges to the Gender Binary.” The American Psychologist 74 (2): 171–193. https://doi.org/10.1037/amp0000307.
  • International Commision of Jurists. 2017. “The Yogyakarta Principles Plus 10 – Additional Principles and State Obligation on the Application of International Human Rights Law in Relation to Sexual Orientation, Gender Expression and Sex Characteristics to Complement the Yogyakarta Principles.” https://yogyakartaprinciples.org/wp-content/uploads/2017/11/A5_yogyakartaWEB-2.pdf.
  • Krieger, Nancy 2020. “Measures of Racism, Sexism, Heterosexism, and Gender Binarism for Health Equity Research: From Structural Injustice to Embodied Harm–an Ecosocial Analysis.” Annual Review of Public Health 41 (1): 37–62. https://doi.org/10.1146/annurev-publhealth-040119-094017.
  • Kung, Winnie W, and Sarah Johansson. 2022. “Ethical Mental Health Practice in Diverse Cultures and Races.” Journal of Ethnic and Cultural Diversity in Social Work 31 (3–5): 248–262. https://doi.org/10.1080/15313204.2022.2070889.
  • Lee, Yeonsoo S., Kathryn M. Rexrode, and K. M. Rexrode. 2021. “Women’s Health in Times of Emergency: We Must Take Action.” Journal of Women’s Health 30 (3): 289–292. https://doi.org/10.1089/jwh.2020.8600.
  • Meanley, Steven, Sabina A. Haberlen, Chukwuemeka N. Okafor, Andre Brown, Mark Brennan-Ing, Deanna Ware, James E. Egan, et al. 2020. “Lifetime Exposure to Conversion Therapy and Psychosocial Health Among Midlife and Older Adult Men Who Have Sex with Men.” The Gerontologist 60 (7): 1291–1302. https://doi.org/10.1093/geront/gnaa069.
  • Moore, Quianta L., Amy L. McGuire, Mary A. Majumder, and M. A. Majumder. 2016. “Legal Barriers to Adolescent Participation in Research About HIV and Other Sexually Transmitted Infections.” American Journal of Public Health 106 (1): 40–44. https://doi.org/10.2105/AJPH.2015.302940.
  • Munyaradzi, Mawere 2012. “Critical Reflections on the Principle of Beneficence in Biomedicine.” The Pan African Medial Journal 11 (29). https://pubmed.ncbi.nlm.nih.gov/22514763/.
  • Newman, Elana, and Danny Kaloupek. 2009. “Overview of Research Addressing Ethical Dimensions of Participation in Traumatic Stress Studies: Autonomy and Beneficence.” Journal of Traumatic Stress 22 (6): 595–602. https://doi.org/10.1002/jts.20465.
  • Page, Katie 2012. “The Four Principles: Can They Be Measured and Do They Predict Ethical Decision Making?” BMC Medical Ethics 13 (1): 10. https://doi.org/10.1186/1472-6939-13-10.
  • Paquin, Jill D., Karen W. Tao, and Stephanie L. Budge. 2019. “Toward a Psychotherapy Science for All: Conducting Ethical and Socially Just Research.” Psychotherapy Theory, Research, Practice, Training 56 (4): 491–502. https://doi.org/10.1037/pst0000271.
  • Parkinson, Patrick, and Philip Morris. 2021. “Psychiatry, Psychotherapy and the Criminalisation of ‘Conversion Therapy’ in Australia.” Australasian Psychiatry 29 (4): 409–411. https://doi.org/10.1177/10398562211014220.
  • Resnik, David B. 2020. “Environmental Health Research Involving Human Subjects: Ethical Issues.” Environmental Health Insights 2 (1): EHI.S892. https://doi.org/10.4137/EHI.S892.
  • Rogers, Jamie, and Ursula A. Kelly. 2011. “Feminist Intersectionality: Bringing Social Justice to Health Disparities Research.” Nursing Ethics 18 (3): 397–407. https://doi.org/10.1177/0969733011398094.
  • Saxena, Abha, Emily Lasher, Claire Somerville, and Shirin Heidari. 2022. “Considerations of Sex and Gender Dimensions by Research Ethics Committees: A Scoping Review.” International Health 14 (6): 554–561. https://doi.org/10.1093/inthealth/ihab093.
  • Shansky, Rebecca M., and Anne Z. Murphy. 2021. “Considering Sex as a Biological Variable Will Require a Global Shift in Science Culture.” Nature Neuroscience 24 (4): 457–464. https://doi.org/10.1038/s41593-021-00806-8.
  • Shirmohammadi, Maryam, Shahnaz Kohan, Ehsan Shamsi-Gooshki, and Mohsen Shahriari. 2018. “Ethical Considerations in Sexual Health Research: A Narrative Review.” Iranian Journal of Nursing and Midwifery Research 23 (3): 157. https://doi.org/10.4103/ijnmr.IJNMR_60_17.
  • Staples, Jennifer M., Elizabeth R. Bird, Tatiana N. Masters, and William H. George. 2018. “Considerations for Culturally Sensitive Research with Transgender Adults: A Qualitative Analysis.” The Journal of Sex Research 55 (8): 1065–1076. https://doi.org/10.1080/00224499.2017.1292419.
  • Steinert., Janina I, David Atika Nyarige, Milan Jacobi, Jana Kuhnt, and Lennart Kaplan. 2021. “A Systematic Review on Ethical Challenges of ‘Field’ Research in Low- Income and Middle-Income Countries: Respect, Justice and Beneficence for Research Staff?” BMJ Global Health 6 (7): e005380. https://doi.org/10.1136/bmjgh-2021-005380.
  • Tomson, Anastacia 2018. “Gender-Affirming Care in the Context of Medical Ethics – Gatekeeping V. Informed Consent.” South African Journal of Bioethics and Law 11 (1): 24. https://doi.org/10.7196/SAJBL.2018.v11i1.00616.
  • Tseng, Po-En, and Ya-Huei Wang. 2021. “Deontological or Utilitarian? An Eternal Ethical Dilemma in Outbreak.” International Journal of Environmental Research and Public Health 18 (16): 8565. https://doi.org/10.3390/ijerph18168565.
  • Warner, Leah R., and Stephanie A. Shields. 2013. “The Intersections of Sexuality, Gender, and Race: Identity Research at the Crossroads.” Sex Roles 68 (11–12): 803–810. https://doi.org/10.1007/s11199-013-0281-4.
  • Wilson, Jean D., and Claus Roehrborn. 1999. “Long-Term Consequences of Castration in Men: Lessons from the Skoptzy and the Eunuchs of the Chinese and Ottoman Courts.” Journal of Clinical Endocrinology & Metabolism 84 (12): 4324–4331. https://doi.org/10.1210/jcem.84.12.6206.
  • Zwickl, S., Alex F.Q. Wong, Eden Dowers, Shalem Y-L. Leemaqz, Ingrid Bretherton, Teddy Cook, Jeffery D. Zajac, Paul S.F. Yip, and Ada S. Cheung. 2021. “Factors Associated with Suicide Attempts Among Australian Transgender Adults.” BMC Psychiatry 21 (1): 81. https://doi.org/10.1186/s12888-021-03084-7.