Advancing Patient-Centered Care: An International Survey of Adolescent Perspectives on Insomnia

References

• American Academy of Sleep Medicine. (2014). The international classification of sleep disorders (ICSD-3).
   Google Scholar
• American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (5th ed.). Washington, D.C. https://doi.org/10.1176/appi.books.9780890425596
   Google Scholar
• American Psychiatric Association. (2022). Diagnostic and statistical manual of mental disorders (5th ed.). Washington, D.C. https://doi.org/10.1176/appi.books.9780890425787
   Google Scholar
• American Psychological Association. (2008). Stress in America: Are teens adopting adults’ stress habits? Stress in America^TM survey. https://www.apa.org/news/press/releases/stress
   Google Scholar
• Badawy, S. M., Law, E. F., & Palermo, T. M. (2019). The interrelationship between sleep and chronic pain in adolescents. Current Opinion in Physiology, 11, 25–28. https://doi.org/10.1016/j.cophys.2019.04.012
   PubMed Web of Science ®Google Scholar
• Baglioni, C., Battagliese, G., Feige, B., Spiegelhalder, K., Nissen, C., Voderholzer, U., Lombardo, C., & Riemann, D. (2011). Insomnia as a predictor of depression: A meta-analytic evaluation of longitudinal epidemiological studies. Journal of Affective Disorders, 135(1–3), 10–19. https://doi.org/10.1016/j.jad.2011.01.011
   PubMed Web of Science ®Google Scholar
• Baños, R. M., Etchemendy, E., Mira, A., Riva, G., Gaggioli, A., & Botella, C. (2017). Online positive interventions to promote well-being and resilience in the adolescent population: A narrative review. Frontiers in Psychiatry, 8(JAN), 222668. https://doi.org/10.3389/fpsyt.2017.00010
   Google Scholar
• Benton, T., Njoroge, W. F. M., & Ng, W. Y. K. (2022). Sounding the Alarm for Children’s Mental Health during the COVID-19 pandemic. JAMA Pediatrics, 176(4), e216295–e216295. American Medical Association. https://doi.org/10.1001/jamapediatrics.2021.6295
   PubMed Web of Science ®Google Scholar
• Carey, T. J., Moul, D. E., Pilkonis, P., Germain, A., & Buysse, D. J. (2005). Focusing on the experience of insomnia. Behavioral Sleep Medicine, 3(2), 73–86. https://doi.org/10.1207/S15402010BSM0302_2
   PubMedGoogle Scholar
• Cheung, J. M. Y., Bartlett, D. J., Armour, C. L., & Saini, B. (2013). The insomnia patient perspective, a narrative review. Behavioral Sleep Medicine, 11(5), 369–389. https://doi.org/10.1080/15402002.2012.694382
   PubMed Web of Science ®Google Scholar
• Crowley, S. J., Wolfson, A. R., Tarokh, L., & Carskadon, M. A. (2018). An update on adolescent sleep: New evidence informing the perfect storm model. Journal of Adolescence, 67(1), 55–65. https://doi.org/10.1016/j.adolescence.2018.06.001
   PubMedGoogle Scholar
• Dahl, R. E., & Lewin, D. S. (2002). Pathways to adolescent health sleep regulation and behavior. Journal of Adolescent Health, 31(6), 175–184. https://doi.org/10.1016/S1054-139X(02)00506-2
   PubMed Web of Science ®Google Scholar
• de Zambotti, M., Goldstone, A., Colrain, I. M., & Baker, F. C. (2018). Insomnia disorder in adolescence: Diagnosis, impact, and treatment. Sleep Medicine Reviews, 39(2018), 12–24. https://doi.org/10.1016/j.smrv.2017.06.009
   PubMedGoogle Scholar
• Falch-Madsen, J., Wichstrøm, L., Pallesen, S., & Steinsbekk, S. (2020). Prevalence and stability of insomnia from preschool to early adolescence: A prospective cohort study in Norway. BMJ Paediatrics Open, 4(1), e000660. https://doi.org/10.1136/bmjpo-2020-000660
   PubMedGoogle Scholar
• Frank, L., Basch, E., & Selby, J. V. (2014). The PCORI perspective on patient-centered outcomes research. Jama, 312(15), 1513–1514. https://doi.org/10.1001/jama.2014.11100
   PubMed Web of Science ®Google Scholar
• Gangwisch, J. E., Babiss, L. A., Malaspina, D., Turner, J. B., Zammit, G. K., & Posner, K. (2010). Earlier parental set bedtimes as a protective factor against depression and suicidal ideation. Sleep, 33(1), 97–106. https://doi.org/10.1093/sleep/33.1.97
   PubMed Web of Science ®Google Scholar
• Gehrman, P., Findley, J., & Perlis, M. (2012). Insomnia I: Etiology and Conceptualization. The Oxford Handbook of Sleep and Sleep Disorders. https://doi.org/10.1093/oxfordhb/9780195376203.013.0021
   Google Scholar
• Gisev, N., Bell, J. S., & Chen, T. F. (2013). Interrater agreement and interrater reliability: Key concepts, approaches, and applications. Research in Social and Administrative Pharmacy, 9(3), 330–338. https://doi.org/10.1016/j.sapharm.2012.04.004
   PubMed Web of Science ®Google Scholar
• Hale, L., & Guan, S. (2015). Screen time and sleep among school-aged children and adolescents: A systematic literature review. Sleep Medicine Reviews, 21, 50–58. https://doi.org/10.1016/j.smrv.2014.07.007
   PubMed Web of Science ®Google Scholar
• Harbard, E., Allen, N. B., Trinder, J., & Bei, B. (2016). What’s keeping teenagers up? Prebedtime behaviors and Actigraphy-Assessed Sleep over school and vacation. Journal of Adolescent Health, 58(4), 426–432. https://doi.org/10.1016/j.jadohealth.2015.12.011
   PubMed Web of Science ®Google Scholar
• Harris, P. A., Taylor, R., Minor, B. L., Elliott, V., Fernandez, M., O’Neal, L., McLeod, L., Delacqua, G., Delacqua, F., Kirby, J., & Duda, S. N. (2019). The REDCap consortium: Building an international community of software platform partners. Journal of Biomedical Informatics, 95(May), 103208. https://doi.org/10.1016/j.jbi.2019.103208
   PubMedGoogle Scholar
• Harvey, C. J., Gehrman, P., & Espie, C. A. (2014). Who is predisposed to insomnia: A review of familial aggregation, stress-reactivity, personality and coping style. Sleep Medicine Reviews, 18(3). https://doi.org/10.1016/j.smrv.2013.11.004
   PubMed Web of Science ®Google Scholar
• Honaker, S. M., & Meltzer, L. J. (2014). Bedtime problems and night wakings in young children: An update of the evidence. Paediatric Respiratory Reviews, 15(4), 333–339. https://doi.org/10.1016/j.prrv.2014.04.011
   PubMed Web of Science ®Google Scholar
• Hysing, M., Harvey, A. G., Bøe, T., Heradstveit, O., Vedaa, Ø., & Sivertsen, B. (2020). Trajectories of sleep problems from adolescence to adulthood. Linking two population-based studies from Norway. Sleep medicine, 75, 411–417. https://doi.org/10.1016/j.sleep.2020.08.035
   PubMed Web of Science ®Google Scholar
• Jakobsson, M., Josefsson, K., & Högberg, K. (2022). Adolescents’ suggestions on how to support their sleep: A Focus Group study. The Journal of School Nursing, 105984052210843. https://doi.org/10.1177/10598405221084317
   Web of Science ®Google Scholar
• Jarrin, D. C., Chen, I. Y., Ivers, H., & Morin, C. M. (2014). The role of vulnerability in stress-related insomnia, social support and coping styles on incidence and persistence of insomnia. Journal of Sleep Research, 23(6), 681–688. https://doi.org/10.1111/jsr.12172
   PubMed Web of Science ®Google Scholar
• Lemola, S., Perkinson-Gloor, N., Brand, S., Dewald-Kaufmann, J. F., & Grob, A. (2014). Adolescents’ electronic media use at night, sleep disturbance, and depressive symptoms in the Smartphone Age. Journal of Youth and Adolescence, 44(2), 405–418. https://doi.org/10.1007/s10964-014-0176-x
   PubMed Web of Science ®Google Scholar
• Levenson, J. C., Ford, H. A., Reyes, Z. M. D., Mukundan, A., Patel, G., Bahary, S., & Miller, E. (2021). Designing adolescent sleep interventions with stakeholder input. Sleep Health, 7(5), 581–587. https://doi.org/10.1016/j.sleh.2021.07.007
   PubMed Web of Science ®Google Scholar
• Lunsford-Avery, J. R., Krystal, A. D., & Kollins, S. H. (2016). Sleep disturbances in adolescents with ADHD: A systematic review and framework for future research. Clinical Psychology Review, 50, 159–174. https://doi.org/10.1016/j.cpr.2016.10.004
   PubMed Web of Science ®Google Scholar
• Mead, N., & Bower, P. (2000). Patient-centredness: A conceptual framework and review of the empirical literature. Social Science and Medicine, 51(7), 1087–1110. https://doi.org/10.1016/S0277-9536(00)00098-8
   PubMed Web of Science ®Google Scholar
• Meltzer, L. J., Wainer, A., Engstrom, E., Pepa, L., & Mindell, J. A. (2021). Seeing the whole elephant: A scoping review of behavioral treatments for pediatric insomnia. Sleep Medicine Reviews, 56, 101410. https://doi.org/10.1016/j.smrv.2020.101410
   PubMed Web of Science ®Google Scholar
• Quante, M., Khandpur, N., Kontos, E. Z., Bakker, J. P., Owens, J. A., & Redline, S. (2019). “Let’s talk about sleep”: A qualitative examination of levers for promoting healthy sleep among sleep-deprived vulnerable adolescents. Sleep Medicine, 60, 81–88. https://doi.org/10.1016/j.sleep.2018.10.044
   PubMed Web of Science ®Google Scholar
• Richardson, C., Micic, G., Cain, N., Bartel, K., Maddock, B., & Gradisar, M. (2019). Cognitive “insomnia” processes in delayed sleep–wake phase disorder: Do they exist and are they responsive to chronobiological treatment? Journal of Consulting and Clinical Psychology, 87(1), 16–32. https://doi.org/10.1037/ccp0000357
   PubMed Web of Science ®Google Scholar
• Roberts, R. E., & Duong, H. T. (2013). Depression and insomnia among adolescents: A prospective perspective. Journal of Affective Disorders, 148(1), 66–71. https://doi.org/10.1016/j.jad.2012.11.049
   PubMed Web of Science ®Google Scholar
• Roberts, R. E., Roberts, C. R., & Duong, H. T. (2008). Chronic insomnia and its negative consequences for health and functioning of adolescents: A 12-month prospective study. Journal of Adolescent Health, 42(3), 294–302. https://doi.org/10.1016/j.jadohealth.2007.09.016
   PubMed Web of Science ®Google Scholar
• Scott, J., Kallestad, H., Vedaa, O., Sivertsen, B., & Etain, B. (2021). Sleep disturbances and first onset of major mental disorders in adolescence and early adulthood: A systematic review and meta-analysis. Sleep Medicine Reviews, 57, 101429. https://doi.org/10.1016/j.smrv.2021.101429
   PubMed Web of Science ®Google Scholar
• Short, M. A., Gradisar, M., Wright, H., Lack, L. C., Dohnt, H., & Carskadon, M. A. (2011). Time for bed: Parent-set bedtimes associated with improved sleep and daytime functioning in adolescents. Sleep, 34(6), 797–800. https://doi.org/10.5665/SLEEP.1052
   PubMed Web of Science ®Google Scholar
• Spear, L. P. (2009). Heightened stress responsivity and emotional reactivity during pubertal maturation: Implications for psychopathology. Development & Psychopathology, 21(1). https://doi.org/10.1017/S0954579409000066
   PubMed Web of Science ®Google Scholar
• Stern, M. J., Fordyce, E., Hansen, C., Heim Viox, M., Michaels, S., Schlissel, A., Avripas, S., Harper, C., Johns, M., & Dunville, R. (2020). Social media recruitment for a web survey of sexual and gender minority youth: An evaluation of methods used and resulting sample diversity. LGBT Health, 7(8). https://doi.org/10.1089/lgbt.2019.0311
   PubMed Web of Science ®Google Scholar
• Thomas, A., Grandner, M., Nowakowski, S., Nesom, G., Corbitt, C., & Perlis, M. L. (2016). Where are the Behavioral Sleep Medicine providers and where are they needed? A geographic assessment. Behavioral Sleep Medicine, 14(6), 687–698. https://doi.org/10.1080/15402002.2016.1173551
   PubMed Web of Science ®Google Scholar
• Zhang, J., Chan, N. Y., Lam, S. P., Li, S. X., Liu, Y., Chan, J. W., Kong, A. P. S., Ma, R. C., Chan, K. C., Li, A. M., & Wing, Y.-K. (2016). Emergence of sex differences in insomnia symptoms in adolescents: A large-scale school-based study. Sleep, 39(8), 1563–1570. https://doi.org/10.5665/sleep.6022
   PubMed Web of Science ®Google Scholar