Patient-reported wait times and the impact of living with chronic pain on their quality of life: A waiting room survey in chronic pain clinics in Ontario, Manitoba, and Quebec

References

• Dydyk AM, Conermann T. Chronic Pain. In: StatPearls [Internet]. StatPearls Publishing; 2023 [accessed 2023 July 14]. https://www.ncbi.nlm.nih.gov/books/NBK553030/.
   Google Scholar
• Scholz, Joachim. Finally, A Systematic Classification of Pain (the ICD-11). Pract Pain Manage. 2020;19(3). [accessed 2023 July 14]. https://www.practicalpainmanagement.com/resources/clinical-practice-guidelines/finally-systematic-classification-pain-icd-11.
   Google Scholar
• Birnie KA, Dib K, Ouellette C, et al. Partnering For Pain: a Priority Setting Partnership to identify patient-oriented research priorities for pediatric chronic pain in Canada. CMAJ Open. 2019;7(4):E654–E664. doi:10.9778/cmajo.20190060
   PubMedGoogle Scholar
• Canada H. Canadian Pain Task Force Report: March 2021. Published 2021 May 5 [accessed 2023 May 15]. https://www.canada.ca/en/health-canada/corporate/about-health-canada/public-engagement/external-advisory-bodies/canadian-pain-task-force/report-2021.html.
   Google Scholar
• Goldberg DS, McGee SJ. Pain as a global public health priority. BMC Public Health. 2011;11:770. doi:10.1186/1471-2458-11-770
   PubMed Web of Science ®Google Scholar
• Palacios-Ceña D, Albaladejo-Vicente R, Hernández-Barrera V, et al. Female Gender Is Associated with a Higher Prevalence of Chronic Neck Pain, Chronic Low Back Pain, and Migraine: Results of the Spanish National Health Survey, 2017. Pain Med. 2021;22(2):382–395. doi:10.1093/pm/pnaa368
   PubMed Web of Science ®Google Scholar
• Bartley EJ, Fillingim RB. Sex differences in pain: a brief review of clinical and experimental findings. Br J Anaesth. 2013;111(1):52–58. doi:10.1093/bja/aet127
   PubMed Web of Science ®Google Scholar
• Dahlhamer J, Lucas J, Zelaya, C, et al. Prevalence of Chronic Pain and High-Impact Chronic Pain Among Adults — United States, 2016. Morb Mortal Wkly Rep. 2018;67(36):1001–1006. doi:10.15585/mmwr.mm6736a2
   PubMed Web of Science ®Google Scholar
• Mallon T, Ernst A, Brettschneider C, et al. Prevalence of pain and its associated factors among the oldest-olds in different care settings – results of the AgeQualiDe study. BMC Fam Pract. 2018;19(1):85. doi:10.1186/s12875-018-0768-8
   PubMedGoogle Scholar
• Atkins N, Mukhida K. The relationship between patients’ income and education and their access to pharmacological chronic pain management: A scoping review. Can J Pain. 2022;6(1):142. doi:10.1080/24740527.2022.2104699
   PubMed Web of Science ®Google Scholar
• Buono FD, Savage SR, Cerrito B, et al. Chronic Pain, Mood Disorders and Substance Use: Outcomes of Interdisciplinary Care in a Residential Psychiatric Hospital. J Pain Res. 2020;13:1515–1523. doi:10.2147/JPR.S250568
   PubMed Web of Science ®Google Scholar
• Bailey NGN, Knott R, Grenier G, Craig KD, Kramer JLK. Physical pain among Indigenous Peoples in Canada: a scoping review. Can J Anesth Can Anesth. 2023;70(6):1047–1063. doi:10.1007/s12630-023-02461-y
   Google Scholar
• Meints SM, Cortes A, Morais CA, Edwards RR. Racial and ethnic differences in the experience and treatment of noncancer pain. Pain Manag. 9(3):317–334. doi:10.2217/pmt-2018-0030
   PubMed Web of Science ®Google Scholar
• Zajacova A, Grol-Prokopczyk H, Fillingim R. Beyond Black vs White: racial/ethnic disparities in chronic pain including Hispanic, Asian, Native American, and multiracial US adults. Pain. 2022;163(9):1688–1699. doi:10.1097/j.pain.0000000000002574
   PubMed Web of Science ®Google Scholar
• VanDenKerkhof EG, VanTil L, Thompson JM, et al. Pain in Canadian Veterans: Analysis of data from the Survey on Transition to Civilian Life. Pain Res Manage J Can Pain Soc. 2015;20(2):89–95.
   PubMed Web of Science ®Google Scholar
• Chadwick AL, Lisha NE, Lubensky ME, et al. Localized and Widespread Chronic Pain in Sexual and Gender Minority People - An Analysis of The PRIDE Study. MedRxiv Prepr Serv Health Sci. Published online November 28, 2023:2023.11.27.23299101. doi:10.1101/2023.11.27.23299101
   Google Scholar
• Katz N. The Impact of Pain Management on Quality of Life. J Pain Symptom Manage. 2002;24(1):S38–S47. doi:10.1016/S0885-3924(02)00411-6
   PubMed Web of Science ®Google Scholar
• Canadian Pain Task Force. Working together to better understand, prevent and, manage chronic pain: What We Heard. Published 2020 Nov 6 [accessed 2023 May 15]. https://www.canada.ca/en/health-canada/corporate/about-health-canada/public-engagement/external-advisory-bodies/canadian-pain-task-force/report-2020.html.
   Google Scholar
• Lynch ME, Campbell F, Clark AJ, et al. A systematic review of the effect of waiting for treatment for chronic pain. Pain. 2008;136(1–2):97–116. doi:10.1016/j.pain.2007.06.018
   PubMed Web of Science ®Google Scholar
• Deslauriers S, Roy JS, Bernatsky S, et al. The burden of waiting to access pain clinic services: perceptions and experiences of patients with rheumatic conditions. BMC Health Serv Res. 2021;21:160. doi:10.1186/s12913-021-06114-y
   PubMed Web of Science ®Google Scholar
• Liddy C, Poulin PA, Hunter Z, Smyth C, Keely E. Patient perspectives on wait times and the impact on their life: A waiting room survey in a chronic pain clinic. Scand J Pain. 2017;17:53–57. doi:10.1016/j.sjpain.2017.07.015
   PubMedGoogle Scholar
• Peng P, Choiniere M, Dion D, et al. Challenges in accessing multidisciplinary pain treatment facilities in Canada. Can J Anaesth J Can Anesth. 2007;54(12):977–984. doi:10.1007/BF03016631
   PubMed Web of Science ®Google Scholar
• Choinière M, Peng P, Gilron I, et al. Accessing care in multidisciplinary pain treatment facilities continues to be a challenge in Canada. Reg Anesth Pain Med. 2020;45(12):943–948. doi:10.1136/rapm-2020-101935
   PubMed Web of Science ®Google Scholar
• Dueñas M, Ojeda B, Salazar A, Mico JA, Failde I. A review of chronic pain impact on patients, their social environment and the health care system. J Pain Res. 2016;9:457–467. doi:10.2147/JPR.S105892
   PubMed Web of Science ®Google Scholar
• De Ruddere L, Craig KD. Understanding stigma and chronic pain: a-state-of-the-art review. Pain. 2016;157(8):1607–1610. doi:10.1097/j.pain.0000000000000512
   PubMed Web of Science ®Google Scholar
• Perugino F, De Angelis V, Pompili M, Martelletti P. Stigma and Chronic Pain. Pain Ther. 2022;11(4):1085–1094. doi:10.1007/s40122-022-00418-5
   PubMed Web of Science ®Google Scholar
• Cooper L, Ahmed S, Bibeau C, et al. Impact of patient partner co-design on survey development in primary care research: Case study. Can Fam Physician Med Fam Can. 2022;68(3):235–236. doi:10.46747/cfp.6803235
   PubMed Web of Science ®Google Scholar
• El-Tallawy SN, Perglozzi JV, Ahmed RS, et al. Pain Management in the Post-COVID Era—An Update: A Narrative Review. Pain Ther. 2023;12(2):423–448. doi:10.1007/s40122-023-00486-1
   PubMed Web of Science ®Google Scholar
• Saldaña J. The Coding Manual for Qualitative Researchers. 2nd ed. SAGE; 2013.
   Google Scholar
• Choinière M, Peng P, Gilron I, et al. Accessing care in multidisciplinary pain treatment facilities continues to be a challenge in Canada. Reg Anesth Pain Med. 2020;45(12):943–948. doi:10.1136/rapm-2020-101935
   PubMed Web of Science ®Google Scholar
• Lynch ME, Campbell FA, Clark AJ, et al. Waiting for Treatment for Chronic Pain – a Survey of Existing Benchmarks: Toward Establishing Evidence-Based Benchmarks for Medically Acceptable Waiting Times. Pain Res Manage. 2007;12(4):245–248. doi:10.1155/2007/891951
   PubMed Web of Science ®Google Scholar
• International Association for the Study of Pain. Task Force on Wait-Times. Summary and Recommendations; 2011 [accessed 2023 July 20]. https://www.aped-dor.org/images/diversos/documentos/iasp_task_force_on_wait_times.pdf.
   Google Scholar
• Lynch ME, Campbell F, Clark AJ, et al. A systematic review of the effect of waiting for treatment for chronic pain. Pain. 2008;136(1–2):97–116. doi:10.1016/j.pain.2007.06.018
   PubMed Web of Science ®Google Scholar
• Merlijn VPBM, Hunfeld JAM, van der Wouden JC, Hazebroek-Kampschreur AAJM, Passchier J, Koes BW. Factors Related to the Quality of Life in Adolescents With Chronic Pain. Clin J Pain. 2006;22(3):306. doi:10.1097/01.ajp.0000177509.93523.68
   PubMed Web of Science ®Google Scholar
• Roth-Isigkeit A, Thyen U, Stöven H, Schwarzenberger J, Schmucker P. Pain Among Children and Adolescents: Restrictions in Daily Living and Triggering Factors. Pediatrics. 2005;115(2):e152–e162. doi:10.1542/peds.2004-0682
   PubMed Web of Science ®Google Scholar
• Murray CB, Groenewald CB, de la Vega R, Palermo TM. Long-term impact of adolescent chronic pain on young adult educational, vocational, and social outcomes. Pain. 2020;161(2):439–445. doi:10.1097/j.pain.0000000000001732
   PubMed Web of Science ®Google Scholar
• Pagé MG, Ziemianski D, Shir Y. Triage processes at multidisciplinary chronic pain clinics: An international review of current procedures. Can J Pain. 1(1):94–105. doi:10.1080/24740527.2017.1331115
   PubMedGoogle Scholar
• Gatchel RJ, Peng YB, Peters ML, Fuchs PN, Turk DC. The biopsychosocial approach to chronic pain: scientific advances and future directions. Psychol Bull. 2007;133(4):581–624. doi:10.1037/0033-2909.133.4.581
   PubMed Web of Science ®Google Scholar
• Gerdle B, Åkerblom S, Brodda Jansen G, et al. Who benefits from multimodal rehabilitation - an exploration of pain, psychological distress, and life impacts in over 35,000 chronic pain patients identified in the Swedish Quality Registry for Pain Rehabilitation. J Pain Res. 2019;12:891–908. doi:10.2147/JPR.S190003
   PubMed Web of Science ®Google Scholar
• Ratcliffe GE, Enns MW, Belik SL, Sareen J. Chronic pain conditions and suicidal ideation and suicide attempts: an epidemiologic perspective. Clin J Pain. 2008;24(3):204–210. doi:10.1097/AJP.0b013e31815ca2a3
   PubMed Web of Science ®Google Scholar
• Koesling D, Bozzaro C. Chronic pain patients’ need for recognition and their current struggle. Med Health Care Philos. 2021;24(4):563–572. doi:10.1007/s11019-021-10040-5
   PubMed Web of Science ®Google Scholar
• Haetzman M, Elliott AM, Smith BH, Hannaford P, Chambers WA. Chronic pain and the use of conventional and alternative therapy. Fam Pract. 2003;20(2):147–154. doi:10.1093/fampra/20.2.147
   PubMed Web of Science ®Google Scholar
• Gauthier K, Dulong C, Argáez C. Multidisciplinary Treatment Programs for Patients with Chronic Non-Malignant Pain: A Review of Clinical Effectiveness, Cost-Effectiveness, and Guidelines – An Update. Canadian Agency for Drugs and Technologies in Health; 2019 [accessed 2023 May 26]. http://www.ncbi.nlm.nih.gov/books/NBK545496/.
   Google Scholar
• Groenewald CB, Murray CB, Battaglia M, Scaini S, Quinn PD. Prevalence of Pain Management Techniques Among Adults With Chronic Pain in the United States, 2019. JAMA Netw Open. 2022;5(2):e2146697. doi:10.1001/jamanetworkopen.2021.46697
   PubMed Web of Science ®Google Scholar
• Liddy C, Smyth C, Poulin PA, Joschko J, Rebelo M, Keely E. Improving Access to Chronic Pain Services Through eConsultation: A Cross-Sectional Study of the Champlain BASE eConsult Service. Pain Med. Published online April 3, 2016:pnw038. doi:10.1093/pm/pnw038
   Web of Science ®Google Scholar
• Liddy C, Smyth C, Poulin PA, Joschko J, Sheppard M, Keely E. Supporting Better Access to Chronic Pain Specialists: The Champlain BASE TM eConsult Service. J Am Board Fam Med. 2017;30(6):766–774. doi:10.3122/jabfm.2017.06.170170
   PubMed Web of Science ®Google Scholar
• Power Over Pain Portal – Power Over Pain; [accessed 2023 Dec 18]. https://poweroverpain.ca/.
   Google Scholar
• Lynch ME, Williamson OD, Banfield JC. COVID-19 impact and response by Canadian pain clinics: A national survey of adult pain clinics. Can J Pain Rev Can Douleur. 2020;4(1):204–209. doi:10.1080/24740527.2020.1783218
   PubMed Web of Science ®Google Scholar
• Soltani S, Killackey T, Birnie KA, et al. Pain, mental health and healthcare utilization: Impact of the COVID-19 pandemic on youth with chronic pain, parents and siblings. Eur J Pain Lond Engl. 2023;27(10):1249–1265. doi:10.1002/ejp.2157
   PubMed Web of Science ®Google Scholar
• Lakha SF, Deshpande A, Assimakopoulos D, Mailis A. Demographics, Pain Characteristics and Diagnostic Classification Profile of Chronic Non-Cancer Pain Patients Attending a Canadian University-Affiliated Community Pain Clinic. Pain Ther. 2021;10(2):1413–1426. doi:10.1007/s40122-021-00301-9
   PubMed Web of Science ®Google Scholar
• Young MA, Anang P, Gavalova A. Pediatric Chronic Pain, Resilience and Psychiatric Comorbidity in Canada: A Retrospective, Comparative Analysis. Front Health Serv. 2022;2:852322. doi:10.3389/frhs.2022.852322
   PubMedGoogle Scholar
• Osborne NR, Davis KD. Sex and gender differences in pain. Int Rev Neurobiol. 2022;164:277–307. doi:10.1016/bs.irn.2022.06.013
   PubMedGoogle Scholar
• Samulowitz A, Gremyr I, Eriksson E, Hensing G. “Brave Men” and “Emotional Women”: A Theory-Guided Literature Review on Gender Bias in Health Care and Gendered Norms towards Patients with Chronic Pain. Pain Res Manage. 2018; 2018:6358624. doi:10.1155/2018/6358624
   PubMed Web of Science ®Google Scholar
• Strath LJ, Sorge RE, Owens MA, et al. Sex and Gender are Not the Same: Why Identity Is Important for People Living with HIV and Chronic Pain. J Pain Res. 2020;13:829–835. doi:10.2147/JPR.S248424
   PubMed Web of Science ®Google Scholar
• Duong D, Vogel L. National survey highlights worsening primary care access. CMAJ Can Med Assoc J J Assoc Medicale Can. 2023;195(16):E592–E593. doi:10.1503/cmaj.1096049
   PubMed Web of Science ®Google Scholar