Patient Related Outcome Measures, Volume 14, Issue (2023)

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Patient Related Outcome Measures, Volume 14, Issue (2023)

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Vol 15, 2024 Volume 14, 2023 Vol 13, 2022 Vol 12, 2021 Vol 11, 2020 Vol 10, 2019 Vol 9, 2018 Vol 8, 2017 Vol 7, 2016 Vol 6, 2015 Vol 5, 2014 Vol 4, 2013 Vol 3, 2012 Vol 2, 2011 Vol 1, 2010
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REVIEW

Review
Impact of Belimumab on Patient-Reported Outcomes in Systemic Lupus Erythematosus: Insights from Clinical Trials and Real-World Evidence
Alvaro Gomez, Yvonne Enman & Ioannis Parodis
Pages: 1-13
Published online: 19 Jan 2023
AbstractforImpact of Belimumab on Patient-Reported Outcomes in Systemic Lupus Erythematosus: Insights from Clinical Trials and Real-World Evidence | Full Text | References | PDF (643.4 KB) | EPUB
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ORIGINAL RESEARCH

Article
NIH Toolbox Emotion Battery Findings Among People with HIV: Normative Comparisons and Clinical Associations
Lilla A Brody, Lily Kamalyan, Kayle Karcher, Lesley A Guarena, Alexis A Bender, Benjamin S McKenna, Anya Umlauf, Donald Franklin, Maria J Marquine & Robert K Heaton
Pages: 15-30
Published online: 15 Feb 2023
AbstractforNIH Toolbox Emotion Battery Findings Among People with HIV: Normative Comparisons and Clinical Associations | Full Text | References | PDF (1.6 MB) | EPUB
  • 365 Views
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REVIEW

Review
Methodological Quality of PROMs in Psychosocial Consequences of Colorectal Cancer Screening: A Systematic Review
Emma Grundtvig Gram, Jessica á Rogvi, Anders Heiberg Agerbeck, Frederik Martiny, Anne Katrine Lykke Bie & John Brandt Brodersen
Pages: 31-47
Published online: 14 Mar 2023
AbstractforMethodological Quality of PROMs in Psychosocial Consequences of Colorectal Cancer Screening: A Systematic Review | Full Text | References | PDF (629.7 KB) | EPUB
  • 290 Views
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ORIGINAL RESEARCH

Article
Acceptability and Feasibility of Delivering Decision Aids to Veterans for Management of Knee Osteoarthritis – A Pilot Study
Clifford A Reilly, Makenna L Rice, Dylan J Parker, Philip P Goodney, Jon D Lurie, Said A Ibrahim & Eric R Henderson
Pages: 49-55
Published online: 22 Mar 2023
AbstractforAcceptability and Feasibility of Delivering Decision Aids to Veterans for Management of Knee Osteoarthritis – A Pilot Study | Full Text | References | PDF (380.5 KB) | EPUB
  • 251 Views
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Article
Content Validation of Patient-Reported Sleep Measures and Development of a Conceptual Model of Sleep Disturbance in Patients with Moderate-to-Severe, Uncontrolled Asthma
Asif H Khan, Katherine Kosa, Lucia De Prado Gomez, Diane Whalley, Siddhesh Kamat & Marci Clark
Pages: 57-71
Published online: 23 Mar 2023
AbstractforContent Validation of Patient-Reported Sleep Measures and Development of a Conceptual Model of Sleep Disturbance in Patients with Moderate-to-Severe, Uncontrolled Asthma | Full Text | References | PDF (685.1 KB) | EPUB
  • 355 Views
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Article
Incidence and Predictors of Mortality Among Patients with Traumatic Brain Injury at University of Gondar Comprehensive Specialized Hospital, Northwest Ethiopia: A Retrospective Follow-Up Study
Nega Getachew Tegegne, Demeke Yilkal Fentie, Biresaw Ayen Tegegne & Belete Muluadam Admassie
Pages: 73-85
Published online: 05 Apr 2023
AbstractforIncidence and Predictors of Mortality Among Patients with Traumatic Brain Injury at University of Gondar Comprehensive Specialized Hospital, Northwest Ethiopia: A Retrospective Follow-Up Study | Full Text | References | PDF (607.9 KB) | EPUB
  • 619 Views
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Article
Magnitude, Distribution and Contextual Risk Enhancing Predictors of High 10-Year Cardiovascular Risk Among Diabetic Patients in Tanzania
Nadeem Kassam, Salim Surani, Kamran Hameed, Eric Aghan, Robert Mayenga, Iris Matei, Gijsberta Jengo, Fatma Bakshi, Hanifa Mbithe, James Orwa, George Udeani & Samina Somji
Pages: 87-96
Published online: 01 May 2023
AbstractforMagnitude, Distribution and Contextual Risk Enhancing Predictors of High 10-Year Cardiovascular Risk Among Diabetic Patients in Tanzania | Full Text | References | PDF (1.4 MB) | EPUB
  • 329 Views
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Article
Quantitative Global Survey Results of Acute Back Pain Sufferers Across Four Countries
Nadine Maybaum, Salvador Rios-Martinez & Martin Johnson
Pages: 97-110
Published online: 03 May 2023
AbstractforQuantitative Global Survey Results of Acute Back Pain Sufferers Across Four Countries | Full Text | References | PDF (684.8 KB) | EPUB
  • 331 Views
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REVIEW

Review
Patient-Reported Outcomes in Ovarian Cancer: Facilitating and Enhancing the Reporting of Symptoms, Adverse Events, and Subjective Benefit of Treatment in Clinical Trials and Clinical Practice
Rachel Campbell, Madeleine T King, Martin R Stockler, Yeh Chen Lee, Felicia T Roncolato & Michael L Friedlander
Pages: 111-126
Published online: 08 May 2023
AbstractforPatient-Reported Outcomes in Ovarian Cancer: Facilitating and Enhancing the Reporting of Symptoms, Adverse Events, and Subjective Benefit of Treatment in Clinical Trials and Clinical Practice | Full Text | References | PDF (582.2 KB) | EPUB
  • 326 Views
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ORIGINAL RESEARCH

Article
Pregnant Women’s Experiences with Midwifery-Led Antenatal Care Services in Peri-Urban Communities in Karachi, Pakistan
Nida Salman Yazdani, Kaniz Amna Haider, Amna Khan, Syed Ali Jaffar Zaidi, Akbar Rajani, Imran Nisar, Fyezah Jehan & Zahra Hoodbhoy
Pages: 127-136
Published online: 09 May 2023
AbstractforPregnant Women’s Experiences with Midwifery-Led Antenatal Care Services in Peri-Urban Communities in Karachi, Pakistan | Full Text | References | PDF (1.7 MB) | EPUB
  • 479 Views
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Article
Incidence and Associated Factors of Postoperative Undesirable Anesthetic Outcomes Among Surgical Patients at Referral Hospitals in Amhara Region, Ethiopia: A Multi-Center Study
Belete Muluadam Admassie, Biruk Adie Admass & Debas Yaregal Melesse
Pages: 137-152
Published online: 16 May 2023
AbstractforIncidence and Associated Factors of Postoperative Undesirable Anesthetic Outcomes Among Surgical Patients at Referral Hospitals in Amhara Region, Ethiopia: A Multi-Center Study | Full Text | References | PDF (573.8 KB) | EPUB
  • 353 Views
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REVIEW

Review
Health-Related Quality of Life Instruments for Clinical Trials in AL Amyloidosis: Report from the Amyloidosis Forum HRQOL Working Group
Avery A Rizio, Michelle K White, Anita D’Souza, Kristen Hsu, Paula Schmitt, Tiffany P Quock, James Signorovitch, Isabelle Lousada & Vaishali Sanchorawala
Pages: 153-169
Published online: 18 May 2023
AbstractforHealth-Related Quality of Life Instruments for Clinical Trials in AL Amyloidosis: Report from the Amyloidosis Forum HRQOL Working Group | Full Text | References | PDF (4.2 MB) | EPUB
  • 299 Views
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ORIGINAL RESEARCH

Article
Assessment of Real-World Patient-Reported Outcomes in Patients Initiating Biologic Agents for the Treatment of Autoimmune Diseases: An Observational Study in Four Patient-Powered Research Networks
Timothy Beukelman, Millie D Long, Rennie L Rhee, Michael D Kappelman, Peter A Merkel, William Benjamin Nowell, Cassie Clinton, Sarah Ringold, Vincent Del Gaizo, Brian Price, Dianne G Shaw, Shilpa Venkatachalam, David Cuthbertson, Fenglong Xie, Xian Zhang & Jeffrey R Curtis
Pages: 171-180
Published online: 13 Jun 2023
AbstractforAssessment of Real-World Patient-Reported Outcomes in Patients Initiating Biologic Agents for the Treatment of Autoimmune Diseases: An Observational Study in Four Patient-Powered Research Networks | Full Text | References | PDF (397.2 KB) | EPUB
  • 240 Views
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Article
Risk Factors and Prognosis in Anti-NMDA Receptor Encephalitis Patients with Disturbance of Consciousness
Zhuowei Gong, Dayuan Lao, Fang Huang, Sirao Lv, Fengping Mao & Wen Huang
Pages: 181-192
Published online: 14 Jun 2023
AbstractforRisk Factors and Prognosis in Anti-NMDA Receptor Encephalitis Patients with Disturbance of Consciousness | Full Text | References | PDF (1.8 MB) | EPUB
  • 283 Views
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METHODOLOGY

Studies on Reliability and Measurement Error of Measurements in Medicine – From Design to Statistics Explained for Medical Researchers
Lidwine B Mokkink, Iris Eekhout, Maarten Boers, Cees PM van der Vleuten & Henrica CW de Vet
Pages: 193-212
Published online: 07 Jul 2023
AbstractforStudies on Reliability and Measurement Error of Measurements in Medicine – From Design to Statistics Explained for Medical Researchers | Full Text | References | PDF (4.5 MB) | EPUB
  • 297 Views
  • 4 CrossRef citations
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ORIGINAL RESEARCH

Article
The Transthyretin Amyloidosis – Quality of Life (ATTR-QOL) Questionnaire: Development of a Conceptual Model and Disease-Specific Patient-Reported Outcome Measure
Meaghan O’Connor, Kristen Hsu, Lynne Broderick, Kristen L McCausland, Kaitlin LaGasse, Sabrina Rebello, Michelle Carty & Isabelle Lousada
Pages: 213-222
Published online: 07 Jul 2023
AbstractforThe Transthyretin Amyloidosis – Quality of Life (ATTR-QOL) Questionnaire: Development of a Conceptual Model and Disease-Specific Patient-Reported Outcome Measure | Full Text | References | PDF (3.5 MB) | EPUB
  • 261 Views
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Open Access
Article
The PCQ-Infertility Revised: A New Digital Instrument to Measure Treatment Satisfaction of Fertility Patients
Lotte van der Kolk, Ellen Smit, Josée Bloemer & Lise Marit van Wijk
Pages: 223-234
Published online: 18 Jul 2023
AbstractforThe PCQ-Infertility Revised: A New Digital Instrument to Measure Treatment Satisfaction of Fertility Patients | Full Text | References | PDF (470.4 KB) | EPUB
  • 214 Views
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SHORT REPORT

Sensitivity for Change Analyses of the Patient-Reported Outcomes in Obesity (PROS) Questionnaire: A Prospective Cohort Study
Pål André Hegland, Ronette L Kolotkin & John Roger Andersen
Pages: 235-241
Published online: 01 Aug 2023
AbstractforSensitivity for Change Analyses of the Patient-Reported Outcomes in Obesity (PROS) Questionnaire: A Prospective Cohort Study | Full Text | References | PDF (1.6 MB) | EPUB
  • 199 Views
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ORIGINAL RESEARCH

Article
The Effect of Armed Conflict on Treatment Interruption, Its Outcome and Associated Factors Among Chronic Disease Patients in North East, Amhara, Ethiopia, 2022
Betelhem Mesfin, Alexander Mersha Demise, Mullu Shiferaw, Freweyni Gebreegziabher & Fentaw Girmaw
Pages: 243-251
Published online: 24 Aug 2023
AbstractforThe Effect of Armed Conflict on Treatment Interruption, Its Outcome and Associated Factors Among Chronic Disease Patients in North East, Amhara, Ethiopia, 2022 | Full Text | References | PDF (1 MB) | EPUB
  • 359 Views
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Article
Disutilities Associated with Intravenous Iron Infusions: Results from a Time Trade-off Survey and Diminishing Marginal Utility Model for Treatment Attributes in China
Shanlian Hu, Depei Wu, Jing Wu, Yabing Zhang, Mette Bøgelund, Johannes Pöhlmann & Richard F Pollock
Pages: 253-267
Published online: 26 Sep 2023
AbstractforDisutilities Associated with Intravenous Iron Infusions: Results from a Time Trade-off Survey and Diminishing Marginal Utility Model for Treatment Attributes in China | Full Text | References | PDF (614.2 KB) | EPUB
  • 140 Views
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SHORT REPORT

Association Between Hematologic Response and Change in Health-Related Quality of Life Among Patients with Light-Chain (AL) Amyloidosis
Avery A Rizio, Kristen L McCausland, Michelle K Carty, Ansgar Conrad & Tiffany P Quock
Pages: 297-304
Published online: 10 Oct 2023
AbstractforAssociation Between Hematologic Response and Change in Health-Related Quality of Life Among Patients with Light-Chain (AL) Amyloidosis | Full Text | References | PDF (1.7 MB) | EPUB
  • 91 Views
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CORRIGENDUM

Correction
Development and Validation of a Revised Instrument to Measure Burden of Long-Term Medicines Use: The Living with Medicines Questionnaire Version 3 [Corrigendum]
Pages: 283-284
Published online: 10 Oct 2023
CitationforDevelopment and Validation of a Revised Instrument to Measure Burden of Long-Term Medicines Use: The Living with Medicines Questionnaire Version 3 [Corrigendum] | Full Text | PDF (223 KB) | EPUB
  • 70 Views
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REVIEW

Review
Impact of Safinamide on Patient-Reported Outcomes in Parkinson’s Disease
Christian Espinoza-Vinces, Rafael Villino-Rodríguez, Ainhoa Atorrasagasti-Villar, Gloria Martí-Andrés & María-Rosario Luquin
Pages: 285-295
Published online: 10 Oct 2023
AbstractforImpact of Safinamide on Patient-Reported Outcomes in Parkinson’s Disease | Full Text | References | PDF (423.5 KB) | EPUB
  • 246 Views
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ORIGINAL RESEARCH

Article
Generating Items for Measuring Needs-Based Quality of Life and Self-Perceived Health Inequity in Patients with Multimorbidity: Development of the MultiMorbidity Questionnaire (MMQ)
Kristine Henderson Bissenbakker, Anne Møller, Alexandra Brandt Ryborg Jønsson & John Brandt Brodersen
Pages: 269-282
Published online: 10 Oct 2023
AbstractforGenerating Items for Measuring Needs-Based Quality of Life and Self-Perceived Health Inequity in Patients with Multimorbidity: Development of the MultiMorbidity Questionnaire (MMQ) | Full Text | References | PDF (2.2 MB) | EPUB
  • 214 Views
  • 1 CrossRef citations
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REVIEW

Review
Impact of Ravulizumab on Patient Outcomes and Quality of Life in Generalized Myasthenia Gravis
Carlo Antozzi & Renato Mantegazza
Pages: 305-312
Published online: 18 Oct 2023
AbstractforImpact of Ravulizumab on Patient Outcomes and Quality of Life in Generalized Myasthenia Gravis | Full Text | References | PDF (381.6 KB) | EPUB
  • 208 Views
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ORIGINAL RESEARCH

Article
Quantitative and Qualitative Exploration of Meaningful Change on the Vineland Adaptive Behavior Scales (Vineland™-II) in Children and Adolescents with Autism Without Intellectual Disability Following Participation in a Clinical Trial
Susanne Clinch, Stacie Hudgens, Elizabeth Gibbons, Tom Willgoss, Janice Smith, Ela Polek & Claire Burbridge
Pages: 337-354
Published online: 20 Nov 2023
AbstractforQuantitative and Qualitative Exploration of Meaningful Change on the Vineland Adaptive Behavior Scales (Vineland™-II) in Children and Adolescents with Autism Without Intellectual Disability Following Participation in a Clinical Trial | Full Text | References | PDF (611.4 KB) | EPUB
  • 441 Views
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Article
Qualitative Exploration in Exit Interviews of Changes Observed in Clinical Trials for Individuals with Autism Spectrum Disorder Without Intellectual Disability
Michael Chladek, Claire Burbridge, Elizabeth Gibbons, Tom Willgoss, Janice Smith & Susanne Clinch
Pages: 313-335
Published online: 20 Nov 2023
AbstractforQualitative Exploration in Exit Interviews of Changes Observed in Clinical Trials for Individuals with Autism Spectrum Disorder Without Intellectual Disability | Full Text | References | PDF (1.6 MB) | EPUB
  • 186 Views
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Article
The Burden of Sickle Cell Disease on Children and Their Caregivers: Caregiver Reports of Children’s Health-Related Quality of Life and School Experiences, Caregiver Burden, and Their Association with Frequency of Vaso-Occlusive Crises
Andrew Campbell, Avery A Rizio, Kristen L McCausland, Serban Iorga, Glorian P Yen, Jincy Paulose & Soyon Lee
Pages: 369-381
Published online: 27 Nov 2023
AbstractforThe Burden of Sickle Cell Disease on Children and Their Caregivers: Caregiver Reports of Children’s Health-Related Quality of Life and School Experiences, Caregiver Burden, and Their Association with Frequency of Vaso-Occlusive Crises | Full Text | References | PDF (5 MB) | EPUB
  • 263 Views
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Article
Psychometric Analysis of the Patient-Reported Hypoparathyroidism Symptom Diary Symptom Subscale Using Data from Two Clinical Trials
Lauren Nelson, Steven W Ing, Mishaela R Rubin, Jia Ma, Susan Martin, Rohini Sen & Olulade Ayodele
Pages: 355-367
Published online: 27 Nov 2023
AbstractforPsychometric Analysis of the Patient-Reported Hypoparathyroidism Symptom Diary Symptom Subscale Using Data from Two Clinical Trials | Full Text | References | PDF (519.3 KB) | EPUB
  • 99 Views
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Article
The Pattern of Admission, Clinical Characteristics, and Outcomes Among Patients Admitted to the Intensive Care Unit of a Tertiary Hospital in Tanzania: A 5-Year Retrospective Review
Nadeem Kassam, Philip B Adebayo, Iris Martin Matei, Eric Aghan, Samina Somji, Samwel Paul Kadelya, Yasson Abha, Frank Elton Swai, Mangaro Mabusi, Kamran Hameed, Hanifa Mbithe, Alyyah Thawer, Mandela Charles Makakala, Fatma Amirali Bakshi, Harrison Chuwa, Masolwa Ng’wanasayi, Casmir M Wambura, Robert Sostenes Mvungi, James Orwa, Munish Sharma, George Udeani & Salim Surani
Pages: 383-392
Published online: 07 Dec 2023
AbstractforThe Pattern of Admission, Clinical Characteristics, and Outcomes Among Patients Admitted to the Intensive Care Unit of a Tertiary Hospital in Tanzania: A 5-Year Retrospective Review | Full Text | References | PDF (1.4 MB) | EPUB
  • 247 Views
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Article
Lived Experiences of Patients on Hemodialysis Treatment at Kiruddu National Referral Hospital: A Phenomenological Study
Alobo Jennifer Ogwang, Eric Baluku Murungi, Niyonzima Vallence & Beebwa Esther
Pages: 393-408
Published online: 12 Dec 2023
AbstractforLived Experiences of Patients on Hemodialysis Treatment at Kiruddu National Referral Hospital: A Phenomenological Study | Full Text | References | PDF (465.7 KB) | EPUB
  • 244 Views
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Article
Exploring Effective Communication Strategies Employed by Physicians in Delivering Bad News in Ethiopian State Hospitals
Alebel Guangul Gessesse, Jemal Mohammed Haile & Amanuel Gebru Woldearegay
Pages: 409-425
Published online: 19 Dec 2023
AbstractforExploring Effective Communication Strategies Employed by Physicians in Delivering Bad News in Ethiopian State Hospitals | Full Text | References | PDF (457 KB) | EPUB
  • 172 Views
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